How to control headaches?

Discussion in 'Fibromyalgia Main Forum' started by kvrose48, Mar 13, 2007.

  1. kvrose48

    kvrose48 New Member

    Headaches are becoming the overwhelming pain issue for me.
    I was prescribed Ultram for aches and pains- but does not touch the headaches.
    Using a hand vibrator on my head relieves some of the pain- more than medication. Mainly on my jaw area and temple and back of head.
    Has anyone found a control or preventative medication that works?

  2. FlowerMD

    FlowerMD New Member


    I too suffer with headaches. I have been dx'ed with migrains, sinus headaches and a headache with terrible jaw pain (TMJ) I have a mouth guard that I wear at night and it seems to help the headache with jaw pain. another thing I do with this type of headache is alternate ice and heat applied to the jaw area.

    I hope this helps.

    In Friendship
  3. mapleleaf

    mapleleaf New Member

    Like you, headaches was the overwhelming issue for me. I have chronic daily headaches. Then they turned into migraines. I tried Topamax but had side effects. To make a long story short, the FFC gave me a Prednisone Pulse and at the same time I started on Neurontin (300 mg). For three months I was pretty much headache and migraine free, it was wonderful. Now they are back but not so intense. I have an appt. in April had a headache clinic. I was told to increase the Neurontin to 600 mg., but I'm hesitant. I feel like I'm masking the symptoms and not finding the cause.
  4. woofmom

    woofmom New Member

    I get pretty much total headache relief by avoiding Aspartame and MSG and having an air purifier.
  5. kvrose48

    kvrose48 New Member

    I've never heard of prednisone pulse before-could you explain?
    I currently take 14mg/prenisone/day.
  6. Crispangel66

    Crispangel66 New Member

    I have been a sufferer since I was a teenager. So I first do an evaluation I think about if it is hurting promintly in the front part of my face and if it is I take Advil Cold and sinus plus a pain pill and muscle relaxer. But any of them you have to stay on top of because once they get bad I Have to go to the hospital or pcp and get a strong shot. When you first start getting symptoms of a headache you should take whatever pain meds you have on hand. Sorry to say this but Ultram never touched my pain. But then if my head hurts anywhere else I go to the hospital
    I know it sounds terrible but I leave out the fibro part. Because a lot of time they think oh well your one of those who whine all the time. If I leave out the fact I have fibro and all the meds I get a good shot. Like Demerol, Phengrn, and Ativan. That really knocks it. If I go to my pcp he gives me a shot of Phengrn and Nubane, then I go home and take two 750mg vicodin and 2 soma(muscle relaxers) and go to bed or soak in a bath then go to bed with help usually. I hope this helps.

  7. balletdancer74

    balletdancer74 New Member

    Hi Karen,

    I'm one of the 24/7, incessant head pain (not headache) sufferers.

    I suggest seeing a good neuro that specializes in headaches of all kinds.

    Long story short, I still have daily pain/pressure, but I take CalanSR as a preventive for migraines (they're not classic migraines which I'd kill for!) and Migranal Nasal Spray as an abortive.

    Acupuncture, myofascial massage (by a PT helps as insurance sometimes helps out), neuro/biofeedback, ice on my head and heat on my neck are very helpful for me.

    If I have a more "muscular" type head pain attack (HPA) I increase my muscle relaxant a bit until I break the cycle and go back to my regular, daily, perpetual head pressure.

    I also take Neurontin, but that's more for my other symptoms (I have M.E., FM/MPS complex, etc.).

    Some preventives to consider:
    - CalanSR, Inderal (contraindication is asthma), Nimotop, Nitroglycerin, Topamax ("can" cause glaucoma or other eye disorders), Lyrica/Pregabalin, Neurontin, Depakote, Tegretol, etc.

    Some Migraine Abortives:
    - Imitrex (injection/oral), Maxalt, Axert, Amerge, Zomig, Midrin, Migranal Nasal Spray, DHE-45 (same as Migranal NS but an injection), etc.

    Muscle relaxants or meds that can "act" as a muscle relaxant:
    - Skelaxin, Zanaflex, Soma, Baclofen, Klonopin (can act as a muscle relaxant), Flexeril, etc.

    Magnesium and quinine can act as natural muscle relaxants as well.

    I feel your pain! My worst symptom for years and years (I'm now 32) is the incessant head pain. I wish I could have ONE day without any head pain/pressure...Considering botox injections as Elaine suggested...

    Keep us posted. Hope you find something that really works. You will with some trial and error until you reach success...

    Oh, and be careful with Ultram as that can cause "rebound headaches." I used to take 50-100mg of Ultram every day. It was very helpful for a few years and than stopped working and made me sick. We're all different, but keep in mind that many meds can cause rebound headaches...

    LB32 (Leeza)
  8. froggyfog

    froggyfog New Member

    I was prescribed Topamax for preventive and started it today so don't know if it is going to work or not.

    Can't remember the break through med name he gave me....something like replex.

    I had been taking floricet and excedrine migraine.


  9. kvrose48

    kvrose48 New Member

    Wow! you're my daughter's age!
    How long have you been suffering with this?
    Thank you for all the medication suggestions. My PMD doesn't offer much help- I am going to Stanford next month because they think the autoimmune problem is affecting my heart- uncontrolled atrial fibrillation.
    I am so sensitive to medications- couldn't take Lyrica or Topamax- just a zombie!
    I will seek a neurologist referral for HA help.
    The suggestion for using Botox- had never heard of that for headaches.
    I am so greateful for this message board!
  10. jake123

    jake123 New Member

    Some people do have problems with taking Topomax but it has given me relief from severe migraines that have kept me in bed hoping to die. Another over-the-net med is Migravent. I go to a neurologist who is very helpful and IS THERE for me. Also there is an Express Med doctor nearby who has saved me from death by migraine one time.
    My neurologist has given me some "save me" meds like Phenergan, Skelaxin, and Indomethicin which are all helpful. You probably have TMJ. My TMJ specialist sent me to my neurologist. I have "teamwork" with my doctors!
  11. kvrose48

    kvrose48 New Member

    I feel like I am having to figure things out for myself because of the attitude of my PMD.
    I have been to 3 different doctors in the last year looking for someone to manage my care.
    I live in a remote foothill area of CA so going to doctors is a drive for me.
    I'm not giving up- thanks for the suggestions.
  12. balletdancer74

    balletdancer74 New Member

    I've been suffering with full blown FM/MPS complex and CFIDS/M.E. for eight years, but it all started a lot sooner according to my doctors.

    I hope some of the info I shared is of help to you. You're certainly not alone.

    There are migraines with these illnesses, and than there's me and a few others who have the incessant, every second of the day for every day head pain/pressure. :) Like that run on sentence?!?!? lol

    Life goes on...

    Hope you find relief soon!
    LB32 (Leeza)
  13. jake123

    jake123 New Member

    My neurologist suggested Botox injections also but when he told me the cost, I choked. And it would take about 100 shots into my neck and scalp. I don't like the needle that much. The med itself is expensive. My insurance would choke also because of the cost.
    [This Message was Edited on 03/16/2007]
  14. mezombie

    mezombie Member

    My neurologist takes care of my migraines with just about a dozen injections and one vial of Botox. It cost me $300 the last time I had it done (and that was because I hadn't met my annual insurance deductible yet).

    I also have myofascial pain and I think coding it under that for insurance purposes helps.

    I am migraine-free for 3-6 months with this treatment; sometimes longer.

    You might want to check out another neurologist.
  15. Suzie-Q

    Suzie-Q New Member

    Most of my health problems began with my headaches and migraines from which I have been suffering from since I was 5 years old. I remember my first migraine and my most recent all the same. Migraines, true migraines, want me to literally blow my head off. I get suicidal with them they are so intense! I have been in pain management for years. I have headaches ALL THE TIME. Never a minute without. I have what is called "Daily tension headaches with emerging migraines" I also have CFIDS, and FMS. SO - now I can have TWO headaches at once. The usual and then then crushing pain to the base of my skull that came with the CFIDS. So, I take PAIN RELEIVERS from the pain specialist - shots from the emergency room, walk-in clinic, etc. I would be dead, really dead, without them.
    Topamax was my miracle drug. I had NO migraines for almost 18 months! I had headaches - no migraines. BUT I lost over 35% of my hair (I am female). So I had to make a choice, I weaned of the Topamax (horrible experience), my hair stopped falling out, did not "grow back" and the migraines are also back.
    People cannot see a headache - but they can see a bald 30 year old woman.

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