Hypoglycemia/Colonoscopy Prep NO-NO!

Discussion in 'Fibromyalgia and ME & Chronic Fatigue Syndrome' started by klutzo, Sep 16, 2002.

  1. klutzo

    klutzo New Member

    I am posting this as a warning to those of you who are dx'd with either reactive hypoglycemia or Metabolic Syndrome (formerly known as Syndrome X).
    I explained to the GI doc before agreeing to have a colonoscopy and an endoscopy that I had Metabolic Syndrome and was afraid I would have serious insulin overload from going for over 24 hrs. with nothing but sugar water (only popsicles, jello, ginger ale, gatorade, etc. are allowed). He told me to use "mind over matter". I said I'd try...MISTAKE!
    BY 2 PM I was shaking and having chills, by 5 pm I was in bed with a heating pad and 2 blankets, by 3 am I was in serious trouble with a blood pressure of 164/112 (despite extra blood pressure medicine and 4 times my normal dose of Xanax) and a pulse of 132 (my normal pulse is 64). I was nauseated, freezing cold, dizzy and had a pounding headache, all symptoms of way too much insulin. I called the ER where the triage nurse told me to stop the prep and call the doctor. I said I didn't want to wake him, but she said that's what he gets paid for, so I did. He didn't remember discussing anything about insulin resistance with me, or remember me at all for that matter, and said "if you have this problem you will have to be hospitalized on IV fluids and take "Go Lightly" in order to ever have this test done." I had asked him about Go Lightly when I first saw him, after reading about it right here on this Board and he had said "no", just tough it out. I could not have my stomach procedure either since I had to immediately start eating protein to get rid of the excess insulin and stabilize myself. I am still not well at all and it may take weeks to get over the flare this is causing. I did improve dramatically after drinking some soy milk and eating a slice of turkey though. Hell will freeze over before I ever schedule another colonoscopy.
    The silver lining here is that this dramatic demonstration of how messed up my insulin regulation is has scared me enough to make me stick to the Syndrome X diet now, however hard it is, and it is hard! I am grateful for that.
    I hope all of you with this problem will INSIST on being hospitalized and having the Go Lightly fluids if you ever need a colonoscopy, and if I had it to do over I would skip the routine exam after age 50, unless you have a family history of colon cancer. Learn from my mistake.
    Hugs to all,
    Klutzo
  2. klutzo

    klutzo New Member

    I am posting this as a warning to those of you who are dx'd with either reactive hypoglycemia or Metabolic Syndrome (formerly known as Syndrome X).
    I explained to the GI doc before agreeing to have a colonoscopy and an endoscopy that I had Metabolic Syndrome and was afraid I would have serious insulin overload from going for over 24 hrs. with nothing but sugar water (only popsicles, jello, ginger ale, gatorade, etc. are allowed). He told me to use "mind over matter". I said I'd try...MISTAKE!
    BY 2 PM I was shaking and having chills, by 5 pm I was in bed with a heating pad and 2 blankets, by 3 am I was in serious trouble with a blood pressure of 164/112 (despite extra blood pressure medicine and 4 times my normal dose of Xanax) and a pulse of 132 (my normal pulse is 64). I was nauseated, freezing cold, dizzy and had a pounding headache, all symptoms of way too much insulin. I called the ER where the triage nurse told me to stop the prep and call the doctor. I said I didn't want to wake him, but she said that's what he gets paid for, so I did. He didn't remember discussing anything about insulin resistance with me, or remember me at all for that matter, and said "if you have this problem you will have to be hospitalized on IV fluids and take "Go Lightly" in order to ever have this test done." I had asked him about Go Lightly when I first saw him, after reading about it right here on this Board and he had said "no", just tough it out. I could not have my stomach procedure either since I had to immediately start eating protein to get rid of the excess insulin and stabilize myself. I am still not well at all and it may take weeks to get over the flare this is causing. I did improve dramatically after drinking some soy milk and eating a slice of turkey though. Hell will freeze over before I ever schedule another colonoscopy.
    The silver lining here is that this dramatic demonstration of how messed up my insulin regulation is has scared me enough to make me stick to the Syndrome X diet now, however hard it is, and it is hard! I am grateful for that.
    I hope all of you with this problem will INSIST on being hospitalized and having the Go Lightly fluids if you ever need a colonoscopy, and if I had it to do over I would skip the routine exam after age 50, unless you have a family history of colon cancer. Learn from my mistake.
    Hugs to all,
    Klutzo
  3. ssMarilyn

    ssMarilyn New Member

    You can have the sigmoid colonoscopy, which is much less invasive and you don't have to drink those liquids and go through all that prep crap. I had the test done and was told not to eat after midnight. I was allowed to eat crackers and drink water in the waiting room because I get sick if I go that long without eating...especially in the morning! The sigmoid colonoscopy just exams the lower part of the colon...which is better than nothing and still gives them a good idea as to whether or not you have a problem. It's a piece of cake and I'd have a dozen of them in a heartbeat. The only prep involved is 2 fleet enemas. One is done by yourself two hours before you app't and another one is done one hour before your app't. I had zero discomfort and no nausea. Fortunately we live less than 5 minutes from our clinic, so I had no travel stress, etc....

    Marilyn :)
  4. klutzo

    klutzo New Member

    The sigmoidoscopy is what I had way back when my IBS-D was diagnosed. You are right that it was not bad. The barium enema they made me have before it was another story though! The whole thing was just a check because I am over 50, so I am dropping it for now. It was the endoscopy I wanted, because of my hoarseness and the small lump on the left side of my neck that no doctor seems to be able to feel. However, I am seeing a new PCP in two days, and if she can feel the lump,I'll see if she thinks an ENT exam would be enough. I understand from reading another post here, that they can numb your throat and look down there right in the office. BTW, for anyone considering the endoscopy of the stomach, that is even easier by far than the sigmoidoscopy. The colonoscopy is the only one you have to worry about if you are hypoglycemic.
    Klutzo
  5. Mikie

    Mikie Moderator

    Klutzo, I am so sorry for what you went through. That doc is an idiot.

    When I had my colonoscopy, I mistakenly scheduled it for late in the day and was very sick by the time they took me in, but not as sick as you. When I do it again, I will schedule it for early morning. You can have broth, but it's loaded with salt. Of course, the saline prep is so salty that I doubt the salt in the broth adds that much more. I had very little jello because I didn't want to use the sugarless with Neutrasweet. I mostly just drank water that day.

    I still believe that colonoscopies are valuable for people like me with a history of polyps and colon cancer in the family. They found precancerous polyps and removed them from my colon. The flexible sigmoidoscopy I had years ago required the same prep as the colonoscopy. They can't do a good exam with fecal material in the colon. In fact, my doc said he doesn't even do the sigmoids anymore because they are so limited.

    I would hate to think that anyone might see this and not have a screening test which saves many lives every year. For those of you with Syndrome X, make special arrangements and insist on it if the doc balks. BTW, I am hypoglycemic. The test did make me sick and I was tired for a while afterward, but it sure beats colon cancer which is where I was headed.

    Love, Mikie
  6. tandy

    tandy New Member

    I'm so sorry you had to go thru that prep~that dr should have known better!but reality is they don't!!or don't care.(and you even asked him about it!maybe his selective hearing was in order that day!LOL)
    I'm glad I read this b/c,my grandmother who is Diabetic and gives herself insulin shots daily-she's been having some medical problems with shortness of breath,tires very easily when walking and swelling in her ankles.For the last 2-3 times that she told her primary dr,he only gave her a diaretic to help reduce the water retention!Now she's finally gotta go thru a stress test to check her heart in october.But her primary wants her to have a colonoscopy done also to find out the reason for her weight loss and bouts of diareah.They have it sceduled for end of this month and the dr told her the same thing...that she can handle the prep for the colonoscopy!!!!When she told me that,I told her that they have to have a better way for people that are diabetic.She was told no,that she'll be fine.(bulls**t!)With them suspecting heart problems too...how can they put her thru this?
    Needless to say,we have put off the colonoscopy for now.We'll see whats up first with her heart.
    Thanks for the post............(ever wonder how these drs. got out of med school?)lol
    be well,
    Tracey
  7. klutzo

    klutzo New Member

    My heart goes out to your Grandmother. I hope in her condition that she is not having the actual stress test, but the modified version, and I hope she is having either an echocardiogram with it instead of an EKG, or a Pet scan afterwards, otherwise it is useless,esp. in a woman, and increases the risk for heart attack in the following two weeks after the test. I personally know two people who passed it and had heart attacks within two weeks after that. The stress test is another one I will never do again after what they put me through. Do a web search to verify what I just said....you will be amazed and dismayed.
    A friend of my husband just had a new test where they do ultrasound of all the arteries in your body. There is no stress involved and they can see if there is plaque in there or not. I had this done on my neck arteries in 1995, but did not know they are now able to do it all over the body until this friend had it done. That would be much safer and more accurate. I think these docs just want to protect their big money-making tests and ignore new things that don't give them as much profit. It makes me furious.
    Klutzo
  8. selma

    selma New Member

    I'm really sorry to hear about your ******* former PCP.
    He didn't want to accept responsibility for his actions.
    Now you're paying. I hope that you will write an open letter to him so others will know his name and his lack of knowledge and his ?honesty?
    I pray that you Do feel better soon.
    I don't know what an MRI would do or if it would help.
    Someone else will have to answer that.

    Love and huggs, Selma
  9. tandy

    tandy New Member

    I will definately research those tests before she has anything done.honestly tho,if it were'nt for you telling me of the danger of the stress...I would'nt have known~I'll check them out.Glad to hear that theres a better one to ask for if need be.Thanks, your a lifesaver!!
    (my grandmas 78yrs),and she really is a precious part of my family~
    Warm regards,
    Tracey
  10. Dara

    Dara New Member

    I at one time also had a lump in my throat and of course you always thing the worse. Well, my PCP sent me to an ENT specialist. I was scared to death because I have a very active gag reflex, I mean don't even show me a tongue depressor. This ENT was so so good. He told me to close my eyes, and he was going to hold my tongue with gauze, and for me to pant like a puppy. Of course, I'm thinking yeah right, well I did this for just a few seconds, and he said OK you're done!!! I could not believe that he had actually put his little instrument with the mirror and looked at my throat. Even if you're ENT doesn't suggest this, you might ask him to try it. What I had was a tumor on my thyroid which had to be removed. All thyroid functions were normal but obviously it was something that shouldn't be there so I had 2/3 of my thyroid removed. It took me a long time after I discovered the lump to get the courage to go to the doctor because I was so scared of what it might be. Don't delay and insist your PCP sends you to a good specialist.

    Dara
  11. Mikie

    Mikie Moderator

    I recall reading that for people who cannot stand the colonoscopy test, there is a scan available, but it's not as accurate as the actual colonoscopy. Of course, if the scan shows problems, the patient has to then have the colonoscopy anyway.

    I would call around to GI docs in the area and find one who is familiar with methods for testing people with hypoglycemia, insulin resistance, Syndrome X, and diabetes. I'll bet there is someone who is not as ignorant as your doc. Good luck.

    Love, Mikie
  12. klutzo

    klutzo New Member

    Thanks for the info, Dara. The lump in the throat feeling comes and goes, so I think it's probably either post nasal drip or anxiety. The lump I feel on the outside of my neck is so small that so far 3 docs have said they can't feel anything. I will try again with the new one I'm seeing tomorrow, and if she thinks I need it,I'll ask for a recommendation of an ENT doc. It's nice to know it won't be too awful!
    Mikie - thanks for the info. I have not heard of this scan. This was only a routine check due to being over 50. Colon cancer does not run in my family. I am sick and tired of spending precious time at doctor's offices and going through their torture treatments, and in the interest of my mental health, I am letting this ride for now. I will save your info though, in case I have a problem later that really needs attention.
    Klutzo
  13. lilrascal

    lilrascal New Member

    Add another doctor to the lists of idiots with medical degrees. Unbelievable!

    I had a colonoscopy 2 years ago, and it wasn't bad at all. I drank the Golightly, got a puzzle book and headed for the bathroom. :) Before the test, they gave me something that made me very happy, and I don't remember anything else until waking up in the recovery room. The worse part was that the doctor was very handsome, so considering what he was doing to me...

    Don't let them jerk you around next time. Insist on the Golightly and an early appointment, and make sure they know what happened last time. It doesn't have to be a nightmare!
    [This Message was Edited on 09/17/2002]
  14. klutzo

    klutzo New Member

    One of my husband's best friends, and probably the healthiest and most energetic person we knew, died in Jan. from colon cancer at the age of 50, after a 4 yr. battle. His wife just told me today that he took the Go Lightly and found it much harder to take than the normal Fleets PhosphaSoda. She said they made him drink 2 gallons of water mixed with the Go Lightly powder. He didn't have hypoglycemia and insulin resistance however, and that was the problem for me, not the stuff I had to drink.
    It is because of what happened to him, combined with that recent study showing that FMSers get cancer 3 times more often than normals, that I decided to take my doc's advice and do the test.
    For now, I'm going to concentrate on the devil I know, rather than worrying about one I haven't met yet! One glance at my lipid blood tests and you don't need to be psychic to know what will probably kill me. So, I'm putting my energy into fixing my lipids instead of worrying about this.
    Thanks for all the advice, and if you have hypoglycemia or worse, please remember to ask for special arrangements!
    Love, Klutzo
  15. Mikie

    Mikie Moderator

    I also put off my colonoscopy for five years because I know that colon cancer is slow growing and I didn't want to subject myself to another pain-in-the-ass test. This was dumb on my part because my biological father died of colon cancer and my Mom had polyps removed. It wasn't until I started passing dark blood that I got scared enough to have the test done. My situation is different from yours; I'm in a high risk group.

    I was given the Fleet saline laxative which isn't bad at all. You don't have to drink any sweet citrus stuff, just lots of water. The broth made me feel as though I had had something more substantial. A little jello rounded out the day and I preferred water to the 7-Up I had on hand. My mistake was making an afternoon appointment, plus they were running late. A morning appointment would have been just fine. They put me to sleep, fortunately, and it was over in the blink of an eye. I will have another one in two years without worry.

    The scan I mentioned is new and not every doc has one. It does sound as though it would be ideal for you, though, if you can find a doc who has the technology. Good luck.

    Love, Mikie
  16. TaniaF

    TaniaF Member

    I have heard of the virtual colonoscopy and this is probably my first choice since I turned 50. I did the heart scan this way to see if there was any calcification in the arteries--great test and I'm low risk--thank goodness! I am so afraid of sedation, cause I'm so chemically sensitive to drugs. What about that new camera pill I hear about on the news. At least they can view the colon. I have no family history and so far no blood showing up on the occult stool testing. Just a little twinge or two with excess gas that I have had since I was 20. I'm scared of invasive tests when symptoms are not there. I heard their is a risk of perforation of the colon lining too!
    Tania
  17. klutzo

    klutzo New Member

    I saw something on TV about the little camera that you swallow. It requires the same prep as the colonoscopy, and it doesn't make it all the way through the colon before it runs out of film. It has 7 1/2 hrs. max of film, enough to do the esophagus, stomach, and small bowel. It is the only thing that can really see the small bowel, which is a big advancement.
    Klutzo