Hypothyroid Anyone?

Discussion in 'Fibromyalgia Main Forum' started by patarogers123, Jun 25, 2006.

  1. patarogers123

    patarogers123 New Member

    I've just found out I'm hypothyroid, after several months of major weight gain, no energy, tendinitis and wearing a cast for it on right arm and thumb since Christmas. Started thyroid pills last week and I know it will take a while, but symptoms haven't let up a bit - I crave sugar -have no energy -have become 30 lbs. overweight. Sleep a lot during the day and don't want to go to bed at night - and now this tendinitis thing. Anyone facing this?

    thanks -patarogers123
  2. angellwolffe

    angellwolffe New Member

    it can take many months to get the right dossage. it has taken me almost a year to start to see any results. good luch and keep your chin up about it. angell
  3. Fudge43

    Fudge43 New Member

    I have Hashimoto's .. a hypothyroid with diffused goiter (thankfully it isn't too noticeable) .. have been on Synthroid about 4 years .. still have continual sugar cravings .. still have the excess weight ..
    My med has been increased here and there .. but with eveything else wrong chipping away at me too .. I don't really feel much different .. just BLAH ! still haha

    Hope you can get at the doseage that helps you soon !
    Good Luck
  4. slowworm

    slowworm New Member

    I had my thyroid levels checked by my GP, they were in the "normal range" but on the low side ( how on earth can they tell what an individuals normal is when they have only tested when one is feeling ill, there is nothing to compare it with when you were healthy ) I was refused thyroid medication so I bought some Armour thyroid from the internet. Initailly I felt much better, more energy, but now makes little difference. I haven't lost any weight, have gained some in fact due to overwhelming sugar cravings, I'm now wondering if I am insulin resistant. I now have to come off the thyroid treatment gradually so that I can start making my own throxine again. I did stop abruptly and started having hot flushes and my hair started to fall out.
  5. kjfms

    kjfms Member

    I have Hypothyroidism due to Hashimoto's Thyroiditis (autoimmune thyroid disease) with multinodular goiter.

    I am sorry you have to deal with Hypothyroidism it can be very frustrating can't it?

    It takes time for you medication to work. I hope you have a good endocrinologist checking your values for you. Thyroid disease is serious and nothing to be played around with however can be successfully managed.

    It will take at least three weeks or so to see any effects of you medication. I do hope you have a physician who treats the symptoms and not just the lab results.

    There is a great site which I use for thyroid issues that has loads of information which is [web site address removed as per rules]

    Good luck,

  6. CanBrit

    CanBrit Member

    I too have a thyroid problem. I'm currently taking synthoid 75mcg's. My Dr started me out at .25 and we moved up. I was the one who had to ask him to move me to .75. He felt my figures were fine but I wasn't feeling any better.

    The long and short of it is that I really don't feel any different. My FM gives me pain and fatigue. The only things that have improved is my hair has become healthier again and I'm not craving sugar like I was. (My hair was starting to fall out!)

    I also have FM related troubles in my elbows, wrists, hips, knees, neck and back. Not all at the same time usually, Thank God.

    I started walking 30 minutes every day whether I hurt or not. It has made a huge different on my energy and outlook. Sometimes I have to take an extra pain pill but I can feel myself slowing starting to tone up. It's taken my a month to lose 4 pounds but I'm getting there.

    With thyroid problems, there doesn't seem to be any quick solution.

    All the best,


  7. caroleye

    caroleye New Member

    For years, Dr.'s were missing my hypothyroid, based on those insensitive tests. Finally a "smart" Dr. referred me to a thyroid specialist.

    He did a special test: the FAMA, and discovered I was borderline Hashimoto's. But based on my symptoms, he prescribed Armor thyroid.

    He taught me how to monitor myself through my symptoms & my temperature. Lately I had to change my dose, and did it by taking my temperature; much more reliable for me.

    I had previously tried a few other thyroid meds, but none of them worked. We know our bodies better than most Dr.'s who only see us occasionally. But the "smart" ones know how to figure these puzzles out.

  8. hugs4evry1

    hugs4evry1 New Member

    Yep, me too.

    To me this feels worse than the FM/CFS combined. (Sometimes... or maybe it's just an awful combination to have at all.)

    I wish I had a better thyroid doc, I just had an appt on Friday and I asked about continuing symptoms. He really didn't know how to answer my question.

    I've been on meds since Nov 2005, finally got some relief from symptoms but would swear I still have "hypothyroid" days.

    Although I have had some relief in my symptoms, I still have the 20 pounds I gained. And didn't know it makes you crave sugar either. Interesting fact...

  9. Cromwell

    Cromwell New Member

    As someone with Hashimotos wondering if I am hypothyroid I will ask for that test when I see thyroid doc for biopsy on thursday as I have all the symptoms and I understand that most people with Hashimotos do go hypothyroid eventually.

    I have heard, pata, that Armour does work better.

    Love and thanks. Anne Cromwell
  10. Neicee99

    Neicee99 New Member

    I have had hypothyroidism since 1991 and was on synthroid ever since, up until 6 months ago when I started seeing a naturopath and he switched me to Armour Thyroid. Well, I just had my thyroid tested and it is supposed to be between 3.5 and 5.5 and mine was 36.5 so needless to say, i am back on the synthroid and the natural way was thrown out the window. My doctor told me that since Armour Thyroid is a natural replacement, as opposed to the synthetic types, synthroid, that each pill is different in the make-up. So, I had been dragging my body around, sleeping all the time and just plain out of it for months. Now I have been on the new stuff since the 16th of June and I actually feel more energetic and I am not sleeping like I was before.

    YOu will start to feel much better as soon as it kicks in and they get you on the right dosage.
  11. butterfly8

    butterfly8 New Member

    As others have said, it will take time for your med. to work and you may have to try different types and strengths until you find one that suits you. Not an easy task - but certainly one worth working on.

    Have you tried taking chromium for your sugar cravings??? I find that it helps me, and helps the carb. cravings too. However, at 3 am when I am wide awake, nothing helps at all.
  12. lil_angel1198

    lil_angel1198 New Member

    I'm on Synthroid, but still am gaining weight and tired, allt hat stuff.
    I never knew craving sugar was part of it..... I guess that explains my desire for ice cream everyday.
  13. patarogers123

    patarogers123 New Member

    Thank you all for answering my question about hypothyroid. I have thought I was hypothyroid for some time now, but couldn't get the doctors to try anything. I had to do two blood tests before anything actually came up that I was hypo thyroid. My doctor put me on Levothyroxine / L-Thyroxine, which is generic for synthroid, and on looking it up on the internet, thyroxine is one of the hormones itself T4 -and is supposed to be one of the fastest for helping to lose weight, which is my primary concern, along with having absolutely no energy whatsoever and craving sweets, which has packed on 30 lbs and there seems to be no end in sight.
    I will spend one day doing semi-normal things - like running errands -and be totally wiped out the next day, like I swam the English tunnel or something. I've only been on it 2 weeks, tho, so I see now, I do have to give it time. I hope it doesn't take 4 months tho-I'm getting tired of wearing black gaucho pants. Thanks again for all your replys. It really helps to know that someone is listening and takes time to respond. I really appreciate it. Pat
  14. patarogers123

    patarogers123 New Member

    Carolye - can you expound on your message about taking your temperature to test how your thyroid was doing? I am fascinated about this treatment, because I just found out I am hypothyroid because of the weight gain, but do notice temp. changes on and off. Thanks. Pat
  15. patarogers123

    patarogers123 New Member

    Carolye - can you expound on your message about taking your temperature to test how your thyroid was doing? I am fascinated about this treatment, because I just found out I am hypothyroid because of the weight gain, but do notice temp. changes on and off. Thanks. Pat
  16. caroleye

    caroleye New Member

    The FAMA test is to dx whether or not you have Hashimotos, where antibodies are attacking your thyroid, which in my case led to hypothyroidism.

    Once I knew my "baseline" temp, then I could monitor my symptoms & temp.

    Initially, I would be around 97.6 before I got out of bed,and it would slowly rise through the day, but never got beyond the low 98's.

    Recently (since doing neurofeedback), I started getting hyper symptoms, and my temperature rose, so I decreased my dose.

    The last couple of days, it's starting "again". Blood pressure too high; temp too high; slight heart palpitations, so I'm going to again reduce my dose.

    Once all the above stabilize, I will stay at that dose.

    But if you're not comfortable doing that, just have testing done & pay attention to your symptoms. Your body will tell you. For me, I know that it's the neurofeedback that's allowing my body to take over its natural function, and decrease my meds.

    Hope that was clear...........LIGHT***********carole
  17. patarogers123

    patarogers123 New Member

    can you tell me more about the neurofeedback. And how you found a doctor to help you with all this info? Thanks Pat
  18. caroleye

    caroleye New Member

    There's alot of tell about neurofeedback. Good news is that there's a ton of info if you google it.

    There also will be lists of Dr.'s who do it. Usually they are not your regular Dr.'s at hospitals, but out on their own.

    If you lived near me, I could guide you further. I'm near S.F.

  19. crossword

    crossword New Member

    I now take Armour thyroid (120 mg.) per day. all kinds of thyroid meds including generic and synthetics have been tried. the only brand for FM patients that works is the Armour and it takes 3 months to fully kick in. You will start to feel it working in about 3 weeks. Hope this helps.
  20. patarogers123

    patarogers123 New Member

    Hi Crossword - where did you find the statistics that only Armour Thyroid helped patients with FM. I am very interested in reading that. I don't want to have to travel down the thyroid med trail for 51 years!! Thanks, Pat

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