Hypothyroidism? Need some help please

Discussion in 'Fibromyalgia Main Forum' started by tracii, Apr 6, 2007.

  1. tracii

    tracii New Member

    My thyroid tests have been coming back within normal ranges BUT my endocrinologist/infertility specialist seems to have found one of my levels low. I don't really know all the details - also involves my pituitary gland, I will recieve a letter from him going over our last visit).

    Doc checked my heart rate Thursday & I think he said it was 48!

    I'm wondering if anyone can fill me in on hypothyroidism, does anyone have a dual diagnosis & what seems to be symptoms of each other, (I'm wondering what is Fibromyalgia & what could be coming from the thyroid). Can it just take one level being a little low actually cause so many problems? Why did it take my firtility specialist to find a problem??? Ect, ect, ect.

    Could I have been misdiagnosed with Fibro & it's really my thyroid - even though all the "regular" thyroid tests have been ok?

    Any help at all would be appreciated! Thanks so much!

  2. kjfms

    kjfms Member

    You can have both -- I do and so do many here. I did not want to leave your post hanging. I am not feeling great today or I would post more.

    If you enter hypothyroidism in the search box in the upper left corner you will be able to find a lot of very good threads about it.

    Both FMS and hypothyroidism have overlapping symptoms and at times it is very hard to tell the difference.

    I am sure other will pop in to help also.

    Best of luck,

    Karen :)
  3. tracii

    tracii New Member

    bumping
  4. wildflowers2

    wildflowers2 New Member

    there is a book called thyroid for dummies and I highly recommend it!
    it explains EVERYTHING to you...
    I have the book as I have Hypothyroidism.



    wildflowers2
  5. springrose22

    springrose22 New Member

    There's a website called, Hypothyroidism, Thyroid Disease and Wilson's Syndrome with lots of information. Marie
  6. tracii

    tracii New Member

    Do you have the url to that website? Thanks!
  7. springrose22

    springrose22 New Member

    Just type in just like I wrote, and it will come up. Marie
  8. GigglePoet

    GigglePoet New Member

    Hey Girl,
    So sorry you are having problems, I have Hosimotos myself and was subclinical for years but knew something was wrong but my tests kept coming back normal, The problem was that most doctors were not checking in depth and doing the right tests.Did they check your TSH, T3, T4? and not just the TSH alone, that is the key. May times we can't convert the thyroid hormone that is what the T3 and T4 are all about. If you do end up going on thyroid, I just want to tell you that synthroid has not been shown to work much for those of us who have CFS or Fybro and that the natural form calle Armour thyroid is best because it has the T3 and T4. Good luck in all of your investigating and with your doctor.
    ~Hugzzzzz GigglePoet
  9. llama

    llama New Member

    Hi Tracii,

    I have kind of borderline Hypothyroidism. I have a lot of the symptoms but of course many of them overlap the Fibro diagnosis I do have.

    Lab values are arguably Hypothyroid, but amazingly a lot of physicians, even Endocrinologists still go stictly by the antiquated/misleading value of the TSH.

    Anyway, an excellent website is: www.stopthethyroidmadness.com

    Also a very educated author is Mary Shoman, she's got the disease and has done extensive research.

    Good Luck.........Jill...........
  10. Clay2

    Clay2 New Member

    I went looking for a doctor who would prescribe a T3/T4 thyroid medicine even though my tests said I was still in the normal range - just barely. I found one at my local Fibro and Fatigue Center.

    The 'normal' range for thyroid was created by measuring typical levels in healthy 20 year old males, and then applying a standard deviation. It has NOTHING to do with what the rest of us really need.

    Your doctor should measure both FREE and TOTAL t3 and t4, by the way. It doesn't matter how much you have in your blood if it isn't getting into the cells. Then you can start slowly on a tiny dose of thyroid and ramp up until your blood tests show you are in the upper part of the 'normal' range.

    Watch out for doctors who want to give you a synthetic t4 med only. It doesn't work as well as mixed t3/t4.
  11. tracii

    tracii New Member

    when I receive the letter my endocrinologist/fertility specialist sends out after each appt.

    They specialise in thyroid stuff too. Up until this doctor I was only getting the standard tests.

    He did put me on synthroid though, have to talk to him about it at next visit. He may have put me on synthroid for a couple of reasons though, one, it's approved to take during pregnancy (not pregnant but trying to get there). Also he may have written the script out because of the low cost.

    Has synthroid helped anyone out there? Ok, can't spend too much time here today. I wanted to make sure I replied & thanked for the website referrals.
  12. llama

    llama New Member

    I was put on Synthroid a few years ago...before I had read up on hypothyroid issues. It didn't help at all. Not surprising after I started going to the "stop the madness etc" website.

    About 6 months ago (after I changed docs) I asked him if he'd prescribe Armour...he was hesitant and said let's first try Cytomel. That also has proved to be useless for me.

    I asked doc why he was reluctant to prescribe Armour...he said b/c it's very hard to get the dosage right. It often requires minute changes to get the proper dose. I told him that it wouldn't be a problem, I could take the script to a Compounding pharmacy.

    He looked at me like _how'd you know that_?..lol I guess I further amazed him when I knew exactly where one is in our small community...anyway he's still stalling, he put me on a higher dose of Cytomel and said let's see if this helps. I plan on continuing to ask for it!!

    Good Luck............Jill............
  13. richvank

    richvank New Member

    Hi, all.

    You might be interested to know that the glutathione depletion--methylation cycle block hypothesis for the pathogenesis of CFS accounts for the high prevalence of Hashimoto's thyroiditis (hypothyroidism) in CFS. You can read it here:

    http://phoenix-cfs.org/GluAACFS04.htm

    and here:

    http://phoenix-cfs.org/GSH%20Methylation%20Van%20Konynenburg.htm

    Some of the people who have been trying the treatment based on this hypothesis have been finding that their thyroid function has improved, and they have had to cut back on their supplemental thyroid hormones.

    The treatment is described here:

    http://phoenix-cfs.org/GSH%20Methylation%20Treatment%20Konynenburg.htm

    If you want to track the people who are trying the simplified treatment approach described in this article, read the threads on this board that have "methylation" or "methyl" in their titles.

    If you want to track the people who are doing the full Yasko treatment, you can join this group:

    http://health.groups.yahoo.com/group/CFS_Yasko/


    Rich

  14. deliarose

    deliarose New Member

    My sister is hypothyroid, I have CFS, nephew is autistic.

    Is there a chance this protocol cld be effective v. my sister's hormone problems?

    I suppose we'll just have to suck it and see right?

    For a non-CFS person, would higher dosages of the methyl supps be ok do u suppose?

    delia[This Message was Edited on 04/13/2007]
  15. richvank

    richvank New Member

    Hi, deliarose.

    My sister is hypothyroid, I have CFS, nephew is autistic.

    ***Sounds as though there might be some predisposicing genetic variations in your family.

    Is there a chance this protocol cld be effective v. my sister's hormone problems?

    ***I really can't say for sure.

    I suppose we'll just have to suck it and see right?

    ***I think so. These supplements won't hurt her, and they are fairly inexpensive, so if she's willing, it might be worth a try.

    For a non-CFS person, would higher dosages of the methyl supps be ok do u suppose?

    ***Yes, I think they would, but it would probably be best to start low, since larger amounts may not be needed, especially for one who doesn't have CFS.

    Rich

  16. deliarose

    deliarose New Member

    can't hurt and those thyroid meds are horrible. they have made her swell up and she can't get pregnant on them anyhow.
    cheers
    delia
  17. tracii

    tracii New Member

    I was just wondering if anyone had problems getting their doctors to switch from other thyroid meds to the Armour.

    How long should it take for any throid med to start showing some improvement?

    Is the Armour more expensive?

    Can it be taken durning pregnancy (Synthroid can be taken during pregnancy).

    Thanks for the links ~ gotta love the stop the madness site!