Hysterectomy - Just wondering how many other

Discussion in 'Fibromyalgia Main Forum' started by kjschlotte, Feb 14, 2006.

  1. kjschlotte

    kjschlotte New Member

    I was just wondering if any others also had to have a hysterectomy because of the FM?????

    Jacqui
  2. marilynb

    marilynb New Member

    I had to have an emergency complete hysterectomy 2 months after my son was born. When I was that young I had infection after infection from multiple things. Wonder if that was a start for this FM.
    Marilynb
  3. sjogrens

    sjogrens New Member



    Hi how are you? I also had a hysterectomy at 32 a year after my third baby girl. I had suffered from endometreoses and many mysterious pain especially one in my stomache. It turned out after the surgery that the pain was not only the endo. it was the fybro and the sjogrens syndrome as well. I still get that terrible pain in my gut. However the endometreosis with symptoms of electric shocks in the my abdomen did go aaway.
    So I don't regret it. I also don't have to worry about getting pregnant or the monthly period so it has been very nice.
  4. Adl123

    Adl123 New Member

    Dear Jacqui,
    (I have a cousin with your name). :)
    I also had a hysterectomy when I was 38. I didn't have it because of Fibro, but it was the beginning of my spiraling downward. That was the start of my serious allergies.
    My operaton in 1991 was the beginnng of Fibro for me. It was a 45 minute operation and I was on oxygen for 10 hours after leaving the recovery room. I should have been able to just go home. It took a terrible toll on my body.

    I think anesthesia does surprising things to us.

    Terry
  5. Kat_in_Texas

    Kat_in_Texas New Member

    I was only 29 and was having very painful and heavy periods. Opted for the hysterectomy as DH and I knew we didn't want more kids. Best thing I ever did!

    I found out after the biopsy that I had endo ... it was never mentioned before. I did not have FM or aches/pain before the surgery or in the few years immediately following it. I started having problems with severe depression/fatigue about 1995, which I now think was the start of the FM. I was just diagnosed with FM in November 2004.

    My neurologist told me an interesting statistic last month. He said that more than 40% of all women who have endometriosis either have or will develop FM. That's a huge percentage. Not sure where he got his info, but it certainly rings true here on this board.

    Kat
  6. Scarlett2

    Scarlett2 New Member

    I had my hysterectomy about 12 years ago. I had severely painful periods, multiple miscarriages and they found 3 huge tumors (benign) in my uterus. I have had fibro symptoms all my adult life but until I was diagnosed a few years ago, it never was connected. I'm sure there are many many people who have odd symptoms whose Drs don't have a clue how to treat them. I know that I was viewed as a nut case by a couple of Drs! Fortunately I found a very compassionate Dr who tried several things to ease my pain and when they didn't work, I think just on a whim, he touched one of the tender points. When I went through the roof, he tried the other ones. Turns out that I reacted badly to all the tender point touches. It was like a light bulb going on over his head when he said "oh my god! You've got Fibromyalgia!" I hadn't heard of it then and was very glad for an answer to all the pain! It didn't really help having the diagnosis, since most of the drugs for fibro react badly with me, but I guess it was some comfort to have a name for it. Before that, I always thought I was being a big baby. (at least that's what my ex-husband made me feel like! Glad he's my EX!!!!) Anyway, I'm not sure if Fibro had anything to do with my female troubles but I'm a firm believer that all things are connected in some way, so it very well may be.

    Scarlett
  7. lana33

    lana33 New Member

    I had a hysterectomy last summer. I had started perimenopause when I was 38. I started bleeding so heavily and when the progesterone stopped helping me cycle as doc wanted it too, I had the surgery.

    I had multiple fibroids and after doc opened me up he said I also had enodmetriosis. I am now on estrogen patch and glad I no longer have that problem.

    I thought, since I was diagnosed with fibro only 2 years ago that maybe my condition would improve, especially my low back pain. But that didn't happen. My back pain got worse. So no I only had the hyst because of the cramps and excess bleeding.

    When did you have a hyst or have you already had one?

    Hugs,
    Lana
  8. tandy

    tandy New Member

    its been suggested to me 2 times by drs.
    for Endometriosis.
    But I have'nt agreed for the simple fact that most times it does'nt help 100%. I have endo on other organs other than my female ogans. Some can be removed,..some can't.
    I'm a mess but I keep waking up!! ha! :)

    I don't believe FM would cause anybody to need a hysterectomy in itself.?????
    They must have other co-existing problems.

    hope this helps somewhat~
  9. Greenbean7

    Greenbean7 New Member

    Had mine about 6 years ago and am never sorry I did!

    I had fibroid tumors and endo. Passed blood clots the size of softballs! Scared the heck out of me.

    I went to the emergency room because the blood would just suddenly gush, blood clots and all. At the ER they had me take a seat, of course, and I told them I wouldn't be responsible for their waiting room! I'm sure they thought I was exagerating.

    When they took me in to a curtain they had me undress and left me with a paper robe and drape. Almost as soon as I stepped out of my pants I did it again. I was standing in a pool of blood yelling for help.

    Didn't take long for the doc to come in after that! She tried to do an exam and just kept saying there's a lot of blood here, a lot of blood! I tried to tell them!

    They put me on an IV and kept me overnight. Meds to stop the bleeding worked. In the morning they brought me cereal in one of those little boxes. I couldn't open it, I didn't have enough strength!

    I am really glad I had it done. I was 44.

    Hugzz,
    Greenbean

    Stop and smell the puppies!
  10. kjschlotte

    kjschlotte New Member

    I know I was full of Endo , they had to go in because I had a tumor on my ovary the size of a grapfruit. So they had to take everything including appendix and then burn the endo off all of the other organs.

    But it did help... no more periods!!!!!
  11. JLH

    JLH New Member

    This was the BEST surgery that I ever had! Never regret it for a minute!!!!

    I had one at age 32 (I'm 55 now) a year after my third child was born.

    It had nothing to do with FM, though.


    Janet
  12. stlouisgal

    stlouisgal New Member

    I had a hysterectomy 1 year ago from endo. I have always had cysts, endo, painful periods, heavy bleeding, blood clots, the list goes on and on. I was only 39 when I got it, I DON'T miss the periods at all, but I don't like being in menapause. They had to take everything because my endo had grown outside my uterus and on my stomach wall. I was diagnosed w/fibro about 2 1/2 years ago, it did take a little longer to recover but my husband is very glad that I had the surgery. Good luck to you. donna
  13. shan1078

    shan1078 New Member

    I had mine right at 2 years ago. I'm 27 now, and 25 when I had mine. I started bleeding heavily, all month long. The Dr's gave me hormones and different drugs to stop the bleeding, with little success. The pains I had were incredible. I had severe endomeotrisis, and that's ultimately why I had it done.

    2 months after my hyst. , I got deathly ill, and had to be admitted to the hospital. Turns out my liver was in terrible shape, because I took WAY too much tylenol the year before my hyst.

    Now, I've just been diagnosed with FMS, but have been dealing with symptoms for almost a year.

    I think that I ultimately developed FMS becuase of the trauma my body went thru in such a short period of time.
    [This Message was Edited on 02/15/2006]
    [This Message was Edited on 02/15/2006]
  14. Donya58

    Donya58 New Member

    I had benign fibroid tumors and terrible migrains. The hysterectomy took the migrains away and was great to have no more periods. I didn't have fm at that time. My fm was diagnosed in Jan/01, four monthes after a rear-end accident. Donya:))
  15. MamaDove

    MamaDove New Member

    Removed a 4 pound mass from me along with my left side, haven't been the same, either hormone related or surgery related, don't know yet...

    I started a post about the hormone relaxin, that may have been the trigger for some of us...It affects many things, collagen for one, highly suspected in FMS...

    You may want to go to that thread and then go to the docs site for further info...I printed out a paper he wrote, very interesting...I will be asking my ob/gyn about this hormone shortly...Let's see where that goes...
  16. i had a total hysterectomy operation in 1995.id always had problems with my womb and tubes from being 19 years old.id had cysts on the cervix,ovarian cysts,and a etopic pregnancy.
    well i was told id gone into a early menapause when i was 31.but i did become pregnant at 33.and after that i just kept on getting more ovarian cysts.so i asked the specialist if i could have a hysterectomy as id now began with heavy bleeding for 3 weeks out of every month.and i suffered from chronic abdominal pain.so i was told that seeing as my ovaries were in a pretty bad condition,those would be removed as well as the womb.
    it was a rough year after that, trying out the different hormone replacement therepy.im now not on any hormone treatment at all as the doctor advised against it as theres breast cancer in my family.but i do take calcium suppliments.
    having that hysterectomy was the best thing to happen to me,for once i no longer had to visit the hospital with those horrible cysts.
    i wasnt aware i had fibromyalgia back then as i wasnt showing any symptoms,but i was later told that the hospital knew many years ago that i did have fibro/ME chronic fatigue syndrome,but they didnt mention it to me until i began visiting the hospital with mobility problems years later.


    all the best
    fran xx