Discussion in 'Fibromyalgia Main Forum' started by Annette2, Sep 26, 2002.

  1. Annette2

    Annette2 New Member

    Well, I scheduled my hysterectomy today. I've been bleeding and having cramps for 3 days and my dr. suggested I have the surgery. Fibroid tumors run in my family and my mother and sister both had hysterectomies. Itis scheduled for November 13th. Wish me luck!

  2. Annette2

    Annette2 New Member

    Well, I scheduled my hysterectomy today. I've been bleeding and having cramps for 3 days and my dr. suggested I have the surgery. Fibroid tumors run in my family and my mother and sister both had hysterectomies. Itis scheduled for November 13th. Wish me luck!

  3. Jillian40

    Jillian40 New Member

    Annette -

    I'm sorry you're having to go through this decision. Not an easy one to make. I surround you with a hug.

    I too had a hysterectomy, in fact only 2 years ago.
    It was due to fibroids, large ones that kept coming back.
    I was 38 at the time. It was not an easy decision ): though the tough pain influenced me greatly. I had had both endometriosis and fibroids since age 27. No children. (sadness)

    Leading up to this, I had a myoectomy, where the fibroids were removed w/o having to remove my uterus. This gave me two years w/o pain. Then when the hysterectomy was performed, my surgeon (OB-GYN specialist, a female) recommended a partial hysterectomy, called a supracervical hysterectomy, with my ovaries being left in. I've not had to experience the hot flashes, vaginal dryness, mood changes, due to this. I understand that the bottom portion of the cervex is left in to offer more support to this area.

    As I don't know what has led up to your situation, I don't know if this type is an option for you. But I do recommend that you ask about it.

    Secondly, there is one thing that I wish I had tried before having the operation. I've since read about progesterone cream helping to shrink fibroids. It helps by offering a better balance between the estrogen and progesterone. There's one theory that some women are hyper-estrogenated, or some such term. The cream is applied to the skin, one day on the belly, the next on the arm, etc. Supposed to also help with simple ovarian cysts, painful fibrocystic breasts as well.

    These creams, both progesterone and estrogen type are natural, coming from plant sources. One resource is from a doctor who has a site called askdrhelen.com Recommends 1000 mg of USP progesterone.

    Well dear one, I wish you well in your journey and upcoming decisions. May God Bless You, ......... Jillian
  4. griswoldgirl

    griswoldgirl New Member

    It was the best decision for me. I had it in '99. I had severe endometriosis for years since I was 20 and now 42. I, too was bleeding more than I was not-it got too bad to endure anymore. I had already lost my left tube and ovary the year before and they had to remove the other ovary with the hx.

    I take premrin and feel better in that aspect.

    Are you having a total(removal of ovaries) or just uterus? I hope you get to keep the ovaries, surgical menopause is no fun-it hits you in the face and that was not easy for about 6 months-now doing fine hormonally.

    good thoughts and prayers and ((((((((hugs)))))))))) on the way

  5. Annette2

    Annette2 New Member

    My doctor is doing a total hysterectomy. I don't know if I can feel any worse than I do now. I'm bleeding again and have had constant cramps. My mother and sister had totals and they're fine now! Thanks!

  6. Rene

    Rene New Member

    Good luck Annette. I have a orange size fibroid in my 30s and bleed a whole lot to. I don't have kids and w/CFS its not looking good not married anyway. My doc said I could have the myomectomy but I'm wondering about haveing the partial hysteretomey. Kids are for sure out of the question due to CFS so wonder why not have my uterus out?? I've heard bad things about the meds that can shrink a fibroid and I won't take them. Myomectomy is ok but if my fibroid will come back why not just take the uterus out.
  7. ohmyaching

    ohmyaching New Member

    Annette- wishing you well with your surgery
    Rene- You're not the first person I've heard who decided to forego having children because of the illness and similar problems. It does make me sad though each time I hear it
  8. tandy

    tandy New Member

    Heres hoping you'll find big relief after your surgery.
    A big decision on your part!I've been told by a couple drs. that I need a hysto too,due to endometriosis and recurring cysts.....However I'm still grinning and bearing it.I guess I'm not to that point of wanting it all taken out yet~
    good luck to you,
    Warm regards,
  9. domesticgoddess

    domesticgoddess New Member

    I had a complete hyster in 1994. They even took my Appendix.

    One regret I have is - I didnt tell gyno I wanted my bladder 'tacked up'. when ya lose all those parts your bladder tends to drop and when ya cough or squat - Yikes - I Leak.

    I understand it is a very simple procedure while you are having the hysterectomy.

    Just my 3 cents worth!

  10. Annette2

    Annette2 New Member

    I thought of that. I have that problem now - coughing and sneezing produces horrible results. So I figure as long as she's in there, she might as well tack it up. Thanks!

  11. Annette2

    Annette2 New Member

    Thanks for your reply. I felt so bad when I read you don't think you can get married or have children. I think having a partner would make you feel better and give you a lot of enjoyment in life. You're still young and have a lot of years ahead of you. I don't know what your whole medical situation is, but I hope you don't feel you have to be alone.

  12. Annette2

    Annette2 New Member

    Tandy, I read your bio. Where in New York are you from? I grew up in the Bronx!

  13. LuvMeCritters

    LuvMeCritters New Member

    I'm 42 and had an emergency hysterectomy on Christmas day in 1989. I was only 29. I was basically bleeding to death. So, I had a total, as I had previously had one tube/ovary out already, due to other problems. I've been on the Climara patch, you wear one a week. And have never experienced any associated symptoms with hysterectomies or menopause. Good luck to you. The recovery is not bad. First time you stand up you will probably be sore. I'll keep you in my thoughts and prayers for a speedy recovery!


  14. Rene

    Rene New Member

    You guys were both senstive to what I'm going through and thank you! I never wanted to HAVE kids but always wanted to be a foster mom or adopt since I was a teen. But never went for it. I'm in my late 30s and the last movie I went to was 2 summers ago and I don't have any friends but did have "friends" and a super active life before CFS. I'm not lonely at all now, the first couple of years very lonely. Rene
  15. SweetOceanBlue77

    SweetOceanBlue77 New Member

    Dear Annette2,
    I had the same thing, constant bleeding, fibroids, endo, and my mom, grandma, and aunts had the same as well. Last Oct.22, 01 I had a TAH/BSO and recieved alot of support from the hystersisters.com site. Those sisters really gave me alot of support, and they also have a wonderful site very informative on hysterecotmy issues. Please know that I shall keep you in my prayers & may all go well with your surgery. I can relate oh so well & I understand the pain you're in. Please check out the hystersister site if you can. Try to rest as much as possible. I must say I'm so thankful that I had the surgery & all did go well.
    Take Care & HUGE Hugs,
    Michelle K.
  16. Annette2

    Annette2 New Member

    Thanks for giving me the name of the support group for women who had hysterectomies. I'm not upset about having it done - I'm kind of relieved. Though right now I feel like such crap, I'll be glad to get it taken care of. I'm nauseous all the time - did that happen to you?

  17. klutzo

    klutzo New Member

    I read somewhere that 78% of FMSers end up having hysterectomies!
    I had mine at age 29, while pregnant for the third time. It was necessary to save my life, but an awful experience for obvious reasons. Because of the pregnancy, I had an abdominal hysterectomy, which is a whole other animal from the far less painful vaginal one...I hope that's what you're having.
    I am sorry you have to do this, but wish you the quickest and easiest recovery possible.
    God Bless,
  18. Annette2

    Annette2 New Member

    I am having the "incision" type of hysterectomy. I have already had 2 C-sections and reconstructive surgery, so I am no stranger to this. I'm hoping they'll use the incision I previously had. I just want to get it taken care of - I'm experiencing pain and cramps several times during the day and occasionally bleeding. I don't like the idea of "having something inside of me" that doesn't belong there. I really appreciate all of the kind words from you guys on this board. THANKS!!!!