I added a picture to my profile

Discussion in 'Chit Chat' started by sues1, Jul 8, 2008.

  1. sues1

    sues1 New Member

    I need any suggestions or info about his condition. I out lined it in my profile.

    This came up in Cromwell's recent posting about her son Danny. A real touching story.

  2. Cromwell

    Cromwell New Member

    Just replied on my post about my Danny.

    Try and google all you can on TRAPS disease. The red cheeks, periodic illness (the P stands for periodic) etc.

    Most doctors have never heard of it. We did, via a Pediatric Rheumie. I dobt our son has it, but this boy has several of the symptoms, and this could be what you are looking for.

    TRAPS parents have a support group via group email. Many people suffer until adults due to lack of knowledge re this disease. I would bet one or two people on this board may even have it.

    Good Luck.

  3. poets

    poets Member

    I love the picture. He's adorable. I'm so sorry he gets sick like he does. Hopefully you will find something that helps soon.