Discussion in 'Fibromyalgia Main Forum' started by street129, Apr 23, 2009.

  1. street129

    street129 New Member

    i never thought a BLACK person could get this diease, but i have been a cfs from 1995. WOW.
    i use to had good days, but, whatever is going on is not good, i find the yeast treament, and taking nystatin for it, and can hardly eat is bad, cfs with talking something to help with that is bad also. because im having horrible naususa, and weakness, and im ill badly, so whenever i stop and restated, the bad feelings return, how am i suppost to continue treatment stopping and stating, this will take for years. i dont like it. i need conpassion.
    [This Message was Edited on 04/23/2009]
  2. ladybugmandy

    ladybugmandy Member

    if your CFS started with a flu-llike illness, you should consider antiviral treatment.

    best of luck
  3. street129

    street129 New Member

    yes, flu like back in l995. whats a good one to take. i have valtrax
  4. ladybugmandy

    ladybugmandy Member

    you need to see a CFS specialist and get tested for other infections. you may need both valtrex and valcyte. i take valcyte and valtrex (4 g / day) and am better.

    i would suggest seeing dr. a. martin lerner in michigan, if possible.

    i am not white either!

  5. mbofov

    mbofov Active Member

    Hi street129 - CFS is a very nasty illness. I started getting sick over 20 years ago. I have had problems with yeast too and it is difficult to get rid of it, and you do feel worse while doing that too. I've had to stop and start many things. It's very very frustrating.

    Several years ago a chiropractor who does muscle testing was able to help me with weak adrenal glands, and a lot of digestive problems - the regular doctors could not help me with any of this, but the chiropractor was able to find what the problem was, and then gave me supplements which helped.

    I recently started seeing another chiropractor who does muscle testing because I've been getting sick almost constantly (besides CFS exhaustion). Anyways, this one is helping me too. She found that my thymus gland is weak and I'm taking a supplement for that and I am starting to feel better. She also gave me another supplement for my digestion and yeast, and it's not too bad.

    There's a company called Standard Process which makes supplements which these chiropractors use - they're very good products, and if you call Standard Process, they can give you the number of some chiropractors in your area who do this muscle testing. THeir number is (800) 558-8740.

    Also, do read about the methylation protocol developed by Rich Van Konynenburg - His theory is that CFS is caused by a partial block in the methylation cycle in the body, and he has developed a protocol to help lift that block. Do a search on the board at the top. But the search feature on this board is a little weird. First put in what you are searching (methylation protocol), and hit go. THen a window comes up and says there are no matches found, but at the top of that page, where it says "search results" and "search our extensive library", hit "go" again, and then you'll get your search results. It sounds a little complicated but it works.

    Good luck - this is a good board with a lot of info, and we all know what you're going through --

  6. bobbycat

    bobbycat New Member

    My sister's is was on the 20th. I don't have CFS I have FMS and numerous other problems or I would contribute some information. Good Luck Bobby
  7. spacee

    spacee Member

    Whatever shade we are, we are sick. I haven't had the yeast problem. It sounds terrible.

    ((((Hugs)))) to you.