I am freaked out, someone please help TERRIBLE MORNINGS.

Discussion in 'Fibromyalgia Main Forum' started by nightngale, Dec 4, 2006.

  1. nightngale

    nightngale New Member

    ok, I know I already have a post running concerning this. But I have searched the internet for days and days and I can't find my symptoms anywhere or what to do. EVERY SINGLE MORNING when I wake up no matter how much sleep I have had I have horrible trembles. This is 2 to three hours after my 6:00 am dose of beta blocker and xanax. I am on clonopin too but even if I take my max dose or double am dose it does not stop.

    I am going to a neurologist, who first tried topomax. Now neruontin. Which has seemed if anything to make my morning problems worse. And daytime shakes started up after exertion. I usally get trembly after doing hard pyshical stuff but I mean I was doing a quickie tub scrub and started shaking all over.

    My arms have been extra fatigued and hurt too more these past few months. I mentioned these things to neuro and he put me on the Neurontin, didn't really comunicate much. I had seen him once last year, and he knows I have had an Mri in 2002 and doesn't say much. I almost get the feeling like he isn't hearing my suffering.

    My eyes have alos developed dry eye symptoms and are all crusty and blurry in am. I am going thru menopause.

    I have a wonderful primary care doctor, who said she would refer me out to another neuro after I give this one a chance, dumb ole me bought his name up.

    Shouldn't I be getting some kind of eeg test? He did do a basic blood work up including sed rate and electrolytes which was fine. What other kind of help should I even ask for? Could this be a sezure? Before the xanax I would wake up and feel like I was really really out of it like I was going to pass out.

    Sorry to ramble but I just want a dx. I will sit in bed for 40 minutes everyday if I have to I just want to know what this is!

    I have over the past 10 years had all kinds of bloodwork and the tilt table to dx pots, but that isn't even a symptom of that unless I am a medical miracle, I have created a new disease. LOL. Seriously I am freaked out.
  2. msbad66

    msbad66 New Member

    This might seem trite but true in many ways. The past 3 months I have had these uncontrolable shakes. Some are noticable on the outside but most are only noticable to me on the inside. My whole body shakes and trembles and I have found nothing to make it feel better. I take xanax regularly. Even with this and muscle relaxers I have had several sleepless nights. I also take Cymbalta and synthoid every day.

    My uneasiness is unbearable some days. I've read many books the past few months, cause even as I'm shaking, I can read. This seems to be the only thing I can do.

    Please contact me or post anything you find out. I would really like to know anything you find out.

    Here's to you, hold it together and pray every day, I do.

    Hugs,
    Becky
  3. Gly

    Gly New Member

    I get similar symptoms from hypoglycemia. The only way to test for it is to get a blood glucose meter and test your blood during an episode. There isn't any other type blood test that will show it, unfortunately. My mother has diabetes and suspected that I was having episodes of hypoglycemia. She gave me her old blood glucose meter when she got a new one, so I can test my blood immediately and keep track of the episodes.

    I have episodes during even mild physical exertion if I don't have enough food or if I've eaten too many carbohydrates. I need to eat protein with every meal or snack and eat frequently (but in small amounts). I am fine in the morning. Ny type of hypoglycemia is called "post-prandial". It's common with FMS.

    During a bad episode, I would shake all over, be unable to stand up, get weak limbs and couldn't even speak clearly. Now that I know what it is, I don't let it get to that level. I take something sweet right away to raise my glucose level quickly and then eat something with protein.

    Of course, I'm only offering this as a possible suspect. It may have nothing to do with your symptoms. You could try having something to eat before you get up to see if it helps.
  4. LittleBluestem

    LittleBluestem New Member

    If you suspect hypoglycemia, try a hearty bedtime snack that contains protein. This should prevent/reduce the morning symptoms. I like hot cereal cooked in milk instead of water. Once I let my blood sugar get low, I will feel bad for several hours, even after it comes back up.

    If you are getting up in the night to take medication, you might try a small protein snack then; as long as it didn't interfere with your medication.


    O.K. - that was supposed to be a hearty bedtime snack, not a hearty bedtime smack. (Don't want to run afoul of the censers.) You could also stir in a little cinnamon which is supposed to help regulate blood sugar level.
    [This Message was Edited on 12/05/2006]
  5. Slangx

    Slangx New Member

    Tremors can also be due to "seratonin syndrome". Check your antidepressants & dosages, especially if you're on a new one, or a new higher dose.

    This is a dangerous thing. Usually, when they are starting a person on an SSRI, they'll watch carefully as they increase the does. And if you begin to have tremors they will back off immediately, because it means you've got an overload of seratonin in you and it can make you really sick.

    I think I also recall the dr. saying that stomach pains were also associated with seratonin syndrome.

    C.
  6. nightngale

    nightngale New Member

    Thank you all so much for the replies. I will try the morning protein snack, I have suspected hypoglycemia, I did have a diabetes test in office during an attack years ago and also a blood test for diabetes. Both negative. I will bring this up wiht my new doc. I will let you know what becomes of this. Could neurontin cause the seratonin overload? It is not as SSRI it does make me feel loopy but anzious at same time!

    It is so nice to have some support here. It means more than anything. Thanks again. I can only talk poor hubby's ear off so much a day before he shuts down. He doesn't even say if he has an illness! But he is very supportive of me. It must be hard to hear new symptoms everyday...a litany of the days aches and pains. How could anyone stand it.
  7. nightngale

    nightngale New Member

    Becky you may need xanax increased, or be put on other meds too. I know alot of people are against it but I was on 2 mg for years and all I did was shake all day. Now I can take up to 6 (Yikes, is this alot?) Actually my doc wants me to take clonopin at night as it acts on trembling, but it seems to make me more depressed than xanax alone. I am usually all right during day unless I am tired or do too much or get emotionally fried. I know I need to be on some other med but i just can't find the right one yet.
    [This Message was Edited on 12/05/2006]
    [This Message was Edited on 12/05/2006]
  8. sula

    sula New Member

    I am always shakey when I first get up.........very wobbly and unstable....I really need to sit for a minute to allow my body to adjust. I've also experience a shocking attack of vertigo in the middle of the night on my 5 th trip to potty which is usual but the room started going around and around.....I had to hold on to the wall to keep from falling. I happened to have Meclyzine...an antivert on hand and I took that......it helped and by the end of the following day I was noramal again..what ever that is????? That has only happened once but I understand it is not uncommon. I cannot handle the Neurontins.......they put me under..I do want to know there is a world out there..I take Xanax and Prozac at night...and that is pretty much it. Nothing seems to work much except these two...I do have some Tramadol drops for the heavier pain.....but I just haven't found much of anything that works....except...patience and acceptance. I don't allow myself to get upset anymore when I can't perform like I used to.....it is a handicapp for sure.
  9. JanfromPortTownsend

    JanfromPortTownsend New Member

    Hi Nightingale, I have had similar symptoms and for me it was hypoglycemia. But since you are taking some brain-altering meds, maybe talk to your pharmacist about possible side effects from the meds or combination of meds. I find my pharmacist to be way more help in this area than my doc. You might want to try switching to some natural rememedies for some of the stuff you're taking to avoid Rx interaction - like natural Armour thyroid instead of synthroid, 5-htp instead of any SSRI's, kava kava or passion flower instead of xanax. You can research these natural remedies on the internet.

    Another thing I have noticed for me and a lot of people I talk to is that we feel much better taking 1,000 mg of magnesium maelate and 1,500 mg of calcium per day. Magnesium relaxes the muscles and has completely elimated my restless leg syndrome.

    Dr. Paul St. Amand's guaifenesin protocol has really worked for me. I am even going back to work and my pain is reduced by 80-90%! You can check this out on the Internet also.

    Good luck with this. Jan
    [This Message was Edited on 12/05/2006]
  10. joyfully

    joyfully New Member

    Hi. We are all so different. I have hypoglycemia very badly and I never shake. That doesn't mean that someone else doesn't shake. My hypoglycemis causes headaches, weakness, sweating, brain fog, and sense of loss of direction. If I'm driving, I can't remember how to get home, or I can't remember where I parked my car. If I eat something, my blood sugar goes up and I remember. I understand that this loss of direction is unusual.

    I'd ask for a 5 hour glucose tolerance test to test if you are actually hypoglycemic. My body didn't go bonkers until 4 hours and 40 minutes into the test! Hmmmmmm. Now that I'm going over what happened to me, I actually did shake---but it was from severe cold. I got so cold and confused that they had 6 heated blankets on me. I was shaking all over because I was freezing. They took another blood sample and my glucose level was dangerously low.

    Then, about 5 minutes later, I started sweating. If I recall correctly, the doctor said something about (adrenalin???)kicking in and that was causing the sweats. Then I was throwing off the blankets.

    Have you considered only taking the Beta Blocker in the morning to see if you have the same trembling results? I'm asking this because it would be a way to see if ONE OF THE TWO DRUGS is causing these symptoms.

    If you still get the same shakes, then try only taking the Xanax---then waiting the 2 or 3 hours before taking your beta blocker. I'm not suggesting that you eliminate your beta blocker---just a suggestion of backing up the time that you take your morning dose.

    This would help eliminate the possibility that one of the two drugs is causing this reaction.

    If NEITHER of the drugs causes the reaction when taken individually, then try taking them together again. If you get the trembling back, then you know that it is some kind of reaction between the 2 medications in your particular body.

    The Klonopin at bedtime is an excellent suggestion. I'd talk to your doctor about this.

    I think you could really benefit from a sleeping lab where they wire you up and you sleep at the clinic all night. Those different sensors record alot of information. Find the name of a good sleep specialist and ask your PCP for a referral.

    I know that this has to be scary. Somehow, I think we can accept a scary medical problem WHEN WE FIND OUT WHAT IT IS AND FIND OUT ITS NAME. You don't feel as if you have to do a "dog and pony show" to convince doctors that something is really wrong. A diagnosis puts you and your doctor working toward the best course of medicine.

    Do you happen to live by a large teaching university hospital that runs clinics? They see the unusual. They see the patients that have medical issues which have been unresolved by the "local" doctors.

    Cleveland Clinic, Mayo Clinic, Lyola, University of N.Carolina at Chapel Hill, etc.
  11. matthewson

    matthewson New Member

    is that xanax increases GABA which dampers down all of the other neurotransmittors such as Dopamine. Lack of dopamine can cause tremors. Lack of dopamine is implicated in Parkinson's disease which is manifested in tremors.

    The balance in the brain of the 4 neurotransmittors is a tricky thing. Increase one and you decrease others. Here is a link to a good site that explains the 4 neurotransmittors involved in brain function.

    http://www.drjoecarver.com/chemical.html

    Increasing GABA also decreases Serotonin and that is probably why some people get depressed taking anti-anxiety medications such as xanax, klonopin, valium, etc. They work well for anxiety, but because they affect GABA, which in turn dampers down all the other neurotransmittors, they can cause other problems.

    Also, I have noticed that when I am on the SSRI anti-d's, I have more tremors. I think I did read somewhere that increasing Serotonin, decreases dopamine, so hence the tremors.

    I don't know about you, but I find the study of brain chemistry fascinating! Chemistry in general was my favorite subject in College!

    Take care, Sally
  12. joyfulcalm

    joyfulcalm New Member

    This is exactly how I felt before my eye doctor told me I have a thyroid disease. Lack of thyroid caused me to have crusty dry eyes with constant eye infections. My arms and feet would hurt and it seemed worse in the mornings. At times I couldn't even stand because of the pain. Perhaps doing a thyroid panel on you may reveal a problem, although a problem with the thyroid isn't always detectable right away. I think it was about 6 months of routine blood testings that my Hashimoto's thyroid disease finally was detected. Hopefully you can find an answer for your query soon, I know it's frustrating!!! Good Luck!
  13. BlueSky555

    BlueSky555 New Member

    I am so sorry you have terrible mornings. I also have bad mornings.

    This morning, I woke up at 3am, was very fidgity and had to get up. I went to the bathroom, and brushed my teeth and laid back down.

    Still couldn't be still. I finally got up, fixed me a cup of coffee, turned on the TV, watched it for awhile, and fell asleep in my chair.

    I have many, many mornings like that. I just get the shakes really bad.

    My dr. has me on lorazepam and lexapro, but will soon stop the lorazepam. Dr said goal is to take enough lexapro so I can stop the lorazepam and still get some sleep.

    I just don't see this happening. Dr. has NO idea what I go thru every night and am.

    I do hope you find the answer and will soon be able to sleep well.

    Take Care,

    BlueSky555
  14. nightngale

    nightngale New Member

    Thank you again for all the good ideas. I tried eating a nutty, salty breakfast bar but did no good. The thing is I feel so awful I can't even get out of bed and walk around, or it gets worse and I feel lightheaded. It is partly from the postural orthostatic tachycardia, that is why I have take the Beta blocker, my pulse and blood pressure would shoot way up before that. Now I FEEL the same but the BP and pulse are normal. Cardio wants neuro guy to fix it.

    My cardiologist switched me to a calcium channel blocker today. I have been coughing too much and the BB can cause Depression. I will try it Sat. I have to take the Beta Blocker first thing, cause of the racing heart., I will try holding off on the xanax....but why would this only happen with morning doses of drugs? That is what is so frustrating. Anyway, I called the Neurologist today and told the receptionist I couldn't take Neurontin, was making shakes worse. Didn't hear back yet.

    I think the sleep study is a good idea, and this Neuro does them, why didn't he suggest it? I will ask but for some reason he seems scary to me. Not a real "friendly type". Like I said earlier I can get switched to another. Later.

    Anyway I will look thru all the posts again and try things. I am "ok" after they stop in morning. Maybe I have PTSD. There have been so many problems with my grown daughter these past few years I think there is no room left in my body for stress. It's like I am shocked into being awake and don't want to be in the problem world. Now my son in law is in jail can it get any better? Last weeek I was so happy putting up Christmas lights and stuff, and now I am in sad sad land. I need to get into heavy duty therapy. I feel like I am being sucked into a black hole. Their dark cloud is my dark cloud.

    All I take is the xanax, clonopin for real bad days added and the Beta Blocker soon to be replaced with new calciun channel blocker, verapamil.

    Thanks again, it keeps me going.
    [This Message was Edited on 12/06/2006]


    Joyfulcalm, I started having the crusty dry eye thing this year....will ask about that again too.....[This Message was Edited on 12/06/2006]
  15. joyfully

    joyfully New Member

    hmm. I didn't know about the crusty eye thing until I read it in the post.

    Have you ever heard of Sjorgens disease? I'm not sure if I spelled it correctly. This disease can have some "goofy" additional symptoms. I haven't heard of shakes with it, but heck---I'm not a doctor.

    You definitely get crusty eyes with it. You eyes will feel VERY dry. Sometimes the crud actually "glues" your eyelids somewhat together when you awaken in the morning.

  16. Jillian40

    Jillian40 New Member

    Nightngale -

    I read your post, because I was concerned about you because of your TERRIBLE MORNINGS.

    I don't know if this has anything to do with your situation, but just in case it does, I'll share my thoughts.

    Before I rec'd a dx of adrenal burnout, and started receiving cortef, which is a cortico-steroid, I would shake uncontrollably whenever my stress level was high.
    For Ex: when I went to have a procedure at my dentist's, I started shaking, plus at noon everyday, my energy level would dive.

    I am wondering aloud if your adrenal level first thing in the morning is very very low. Could your level be bottomed out first thing in the morning, then gradually come up by 10:00 or so? Have you been experiencing unrelenting stressful situations lately?

    There is likely a blood test to check for your levels. A regular doc should be able to request this.

    If not, there is a saliva test which can be done at home and mailed in to the lab. This however, is pursued by alternative docs only.

    Well,that's my 2 cents worth. Since we all have different symptoms and reactions to stuff, it's hard to say for sure what it is. But this is just another angle.

    I suppose it still wouldn't hurt to look up symptoms on the internet and if some fit, ask your doc if a blood test can be run.

    I wish you well in your search. Please don't give up.

    Warm Gentle Hugs,
    Jillian
    [This Message was Edited on 12/06/2006]
  17. Slayadragon

    Slayadragon New Member

    Does this sound at all right?

    http://en.wikipedia.org/wiki/Essential_tremor

    If this address gets taken out by mistake (since it's a PURELY INFORMATIONAL SITE), look in wikipedia under "essential tremor".
  18. nightngale

    nightngale New Member

    Thanks again. All the suggestion are great and I will write it all down. I think the stress thing is deffinately a factor. As a matter of fact I have an appt. with primary 2 days after neuro and I will bring my Christmas list (HOHO) of symptoms so I can get a present (the answers!)

    so very thankful, Laila

  19. lenasvn

    lenasvn New Member

    You are so witty! Thanks for putting a smile on my face! LOL!

    I have no good ideas to come with, but I hope you'll find the answers you need. Having the sleep disturbed (with scary symptoms like this) is not pleasant at all.

    Many hugs!
    [This Message was Edited on 12/07/2006]
  20. LittleBluestem

    LittleBluestem New Member

    Most breakfast bars contain too much carbohydrate and sugar, and not enough protein. We’re talking the protein equivalent of a couple of eggs with bacon.

    Even before I came to Jillian’s post, I was also wonder about your adrenals. Do you have a blood pressure checker that you can use to see what your blood pressure is first thing in the morning? Adrenal dysfunction can cause low blood pressure.

    My physician practices ‘Integrated Medicine’. She is an MD that also makes use of alternative approaches. I got the saliva adrenal test from her. You take four samples of saliva at specified times of days, so that they can see how your cortisol cycles through the day. A blood test taken mid-day is not going to tell you what your cortisol level was first thing in the morning. If you decide to have your adrenals tested, I think it would be worth your time to find a medical professional who uses the saliva test.