I am fuming

Discussion in 'Fibromyalgia Main Forum' started by sapphire, Nov 7, 2002.

  1. sapphire

    sapphire New Member

    I am so upset and hurt. I had my appointment with a Neurologist today. He's a total idiot. His nurse talked to me and asked questions for 1 1/2 hours and evidently he looked at what she wrote and walked in and the first words out of his mouth were, "this is over my head". He had already decided he didn't want to deal with me before he came in. My husband was with me and he kept talking to the Dr. and finally he said well, maybe I can give you something for your mood. I looked at him and said what mood are you talking about. He said your depression. I said, I'm not depressed. Then he starts asking me questions like, are you sociable? do you laugh? blah, blah, blah. I was so mad. Then he says, I don't get this fibromyalgia stuff. That's when I really realized that was the problem.
    I went to him because my PCP thinks I may have MS. I've been having a lot of problems with vision, etc. He was not even going to address that. I finally asked him what about all those problems I'm having. He said since I'd had an mri of the brain that it wasn't ms. He was not going to examine me or anything. He finally did check my reflexes and had me walk putting one foot in front of the other (like toe to heel). I could not do this. He decided that he might find a reason for my fatigue and cognitive problems if he did a sleep study. He is my husband's Dr. or I would have walked out as soon as he started that stuff about depression. I still wish I had now. My husband was pretty upset, too.
    Well, he won't be doing a sleep study or anything else on me.
    I know now why I don't go to the Dr. unless I absolutely have to. It will be a long time before I go back to any Dr.
    Sorry to vent but this was necessary for my sanity.
    My husband said if you weren't depressed before, you will be now. He's absolutely right.
    Thank you all for listening and sorry this is so long.

    Sapphire
  2. sapphire

    sapphire New Member

    I am so upset and hurt. I had my appointment with a Neurologist today. He's a total idiot. His nurse talked to me and asked questions for 1 1/2 hours and evidently he looked at what she wrote and walked in and the first words out of his mouth were, "this is over my head". He had already decided he didn't want to deal with me before he came in. My husband was with me and he kept talking to the Dr. and finally he said well, maybe I can give you something for your mood. I looked at him and said what mood are you talking about. He said your depression. I said, I'm not depressed. Then he starts asking me questions like, are you sociable? do you laugh? blah, blah, blah. I was so mad. Then he says, I don't get this fibromyalgia stuff. That's when I really realized that was the problem.
    I went to him because my PCP thinks I may have MS. I've been having a lot of problems with vision, etc. He was not even going to address that. I finally asked him what about all those problems I'm having. He said since I'd had an mri of the brain that it wasn't ms. He was not going to examine me or anything. He finally did check my reflexes and had me walk putting one foot in front of the other (like toe to heel). I could not do this. He decided that he might find a reason for my fatigue and cognitive problems if he did a sleep study. He is my husband's Dr. or I would have walked out as soon as he started that stuff about depression. I still wish I had now. My husband was pretty upset, too.
    Well, he won't be doing a sleep study or anything else on me.
    I know now why I don't go to the Dr. unless I absolutely have to. It will be a long time before I go back to any Dr.
    Sorry to vent but this was necessary for my sanity.
    My husband said if you weren't depressed before, you will be now. He's absolutely right.
    Thank you all for listening and sorry this is so long.

    Sapphire
  3. Shirl

    Shirl New Member

    Let me tell you, a whole lot of us can relate to your experience! There are more of 'those' type doctors than the good ones. But from what I read here, I think some are getting better informed.

    I don't go to doctors any more either, the last one I went to wanted to give me Prozac, yea, I said I could not sleep, so he decided I must be depressed or whatever. I left the prescription on his desk and walk out of his office.

    If I would have told him what I though of him, he probably would have had me committed!(Smile)

    I hope you find a good doctor soon, it is so stressful when no one believes you, or they think you are a headcase because we have so many symptoms and nothing shows up on tests.

    I honestly got better care from doctors before all these tests got so popular. The good doctor I had, that diagnosed me twenty years ago(no tests), died, since then its been one dumb one after the other. I gave up.

    Don't feel bad, lots of us have been there, and many more will be too.

    Shalom, Shirl

  4. selma

    selma New Member

    To hear about that ?Dr.??.....I'm so Happy that you have the support and understanding of your hubby.

    Many don't have anyone. Thank GOD that you do.

    Know that just as all people are diff. so are Drs.

    Love and hugs, Selma
  5. Hypo

    Hypo New Member

    I am so sorry that you have also been humiliated. Because that is how I see it. Dr.'s make as if there is nothing the matter with you and immediately opt for depression.
    Sickening if you ask me. I will think of you all the time because I went through it on Monday and at the end my husband was eating out of his hand and agreeing with everything he said! Hugs
  6. Kathryn

    Kathryn New Member

    I think everybody that I know has walked into a doctor's office and run into an idiot at least once. You just have no way of knowing until you meet the jerk. I wish my veterinarian could treat me - at least HE is a competent doctor. The boy I am presently seeing doesn't know much about fibro, but at least he is willing to learn, and the specialists that he has sent me to have been excellent. I think you should tell your regular doc what happened and see if you can get a referral to someone who is at least willing to listen. Now, go take a nice warm bath and relax. Letting yourself get all worked up about something you have no control over will just make you feel worse, and you certainly don't need that.
    Kathryn
  7. allhart

    allhart New Member

    sounds like my neuro! anyways he cant rule out ms just from a brian mri lessions on the brian can come and go ,ask for a diffrent neuro!
  8. HOUSEOFBLUES

    HOUSEOFBLUES New Member

    Where the heck have all the Good Docs gone????
    There are so many idiots out there now that it'a becoming scary.....
    I can't conceive of how they are able to graduate!
    I know what you're going thru because I am searching for a good doc too.
    It's obvious that if your not sleeping well then you must not be reaching "level 4" of your sleep stage. So why would you need a sleep study? I was told the same stupid thing by my Rheumy too.
    Don't give up trying to find a good doc.
    They're out there.... somewhere.............

    LOVE,
    HOUSEOFBLUES
  9. karen55

    karen55 New Member

    what Hypo posted. And, just for the record, my neurosurgeon totally does not believe in FM, or anything else he cannot *see an image of*; if it doesn't look broken to him, then he can't fix it, that's pretty much the way he looks at it. Even when I had the ruptured disc in my back, the most recent one was 2 years ago, and had free floating pieces, he wouldn't give me anything stronger than Ultram for the pain before the surgery, which was several weeks! I have no faith in neuros for treating pain, and IMO they all think they are Gods. Mine has the bedside manner of a turnip; the only reason I went back to him in the first place was that he had already been inside my back once previously and I was terrified of the surgery and finding another Dr. to do it.
    Sorry you've had this experience with this Dr., but don't give up looking for some relief. I found a DO who is open minded, and uses therapy, meds, diet control, etc. to treat his patients, and is open minded enough to consider options I may present to him that I've learned about.
    {{{hugs}}}
  10. fibolady

    fibolady New Member

    it seems the neuro doctor stories sound alike. i have an apptment with one in december (for mig/headache) problem, can hardly wait to see how this one will rate! hopefully, there is still hope for compassionate, good doctors out there.

    good for you for taking your husband along. at least your feelings can be validated.

    warm regards, fibolady
  11. TeaBisqit

    TeaBisqit Member

    I have to go get some blood work done for my Hashimoto's today. I had christened this doc Dr. Happy Pills, but I think she reminds me more of a Witch Doctor. She's really scary. She knows nothing about this illness and won't admit it. First she told me my only problem was that I was fat and depressed. Then she just kept pushing the happy pills on me. She never reads my file. When I told her I get headaches from the Synthroid, she was like take some asprin or Aleeve. Had she read my file, she would have seen that for the past two years I've been switching antacids because my stomach is wrecked from pain killers. It's right in my file that I can't take any of those pain killers. I can't wait to switch docs.

    TeaBisqit
  12. janskie

    janskie New Member

    yep Sapphire, after a while a person gets tired of trying to find a decent Dr. I have not been to one in over a year and thought I was taking pretty good care of myself on my own. But after four days in bed and pain that made me cry for mercy I have decided to begin the search again.
    The one thing that has kept me sane these last eleven years of batteling cfs & fm has been that I have never given up hope and I say the same to you, don't give up hope...There are a lot of people out there that do care about our pain and suffering and hopefully for you and I there are still some out there with an MD tacked to the end of thier names?! DGUH(don't give up hoping!) Janskie
  13. TeaBisqit

    TeaBisqit Member

    Actually, I got to see the Witch Doctor's nurse. The nurse let me see my medical file and we were both shocked to see what the Witch Doctor put down. The whole time I thought she was writing about my NMH/Fainting and Hashimoto's, she wasn't writing about any of it! She wrote, "Highly recommend an antidepressant" "Patient adamantly refuses an antidepressant". The nurse thought it was awful and so did I. Not only that, the Witch Doctor ordered the WRONG blood tests for my Hashimoto's. I actually had to tell them to do the antibody test again. She didn't order a TSH test either. I told the nurse I'm switching doc's, I've had it. My last doctor was wonderful and she helped me so much in so many ways. It killed me that she moved out of state. Then I got this animal that doesn't even read my medical file. I am so sick of being abused by people who are supposed to be helping us. There are some good docs out there, but they are hard to find and when you find one, you have to stick with that one.

    TeaBisqit
  14. clueless

    clueless New Member

    I don`t know what it is about neurolagists. They al seem to be idiots! I have been to a number of them and they all act alike. My husband thinks they are all a waste of time. I started with a D.O this year and we locked horns as they say when he started the depression bit and he does not believe in fibro. but I can see a change in him and he sent me to a good rheumatologist. I think he may be redeemable yet.lol He is young but does want to help me and is interested in me and that is a change, so I am going to stick with him and see what happens. It may work out yet. clueless
  15. sapphire

    sapphire New Member

    Thank you all for just being here and listening. It means alot when you have just been through something like this.
    I have decided that I will not be looking for another Dr. at this point. I just can't go through this again. Only when my symptoms get unbearable will I start the search again.
    I am thankful that I had my husband with me. He took up for me. I don't think it helped anything but it made me feel better. He always goes to all my Dr. appointments. He is such a blessing. At least I have one person who believes in me. He knows how I was before I got sick and how I am now. And he knows I do not want to be this way. I wish you all could have a husband like mine. We are in Nashville right now at The Tanning Expo and we were supposed to go to a party last night. Well, I couldn't go. He understood and went on anyway with our daughter and her husband. I felt really bad about not going but am better off this morning for not going. I just hope I can make it through this day and night. He's going to bring me back to the hotel to rest some today. I have to make it to the Alabama concert tonight. I wouldn't miss that.
    Sorry to get off on the subject of how great my husband is but right now I feel very blessed to have him as he is heading out the door to bring breakfast back to the room so I don't have to get out this early.
    Thank you all again just for being here anytime we need to vent.
    I am sorry for anyone that has to put up with these ignorant Drs. I'm happy for the ones here that have found a good one. I think they are few and far between.

    Sapphire
  16. queenbee69

    queenbee69 New Member

    Dear sapphire, was very mad right along with you reading your post! I hope soon that you can find a dr. that will listen and help you. I know right now that doesn't seem like an option, but maybe down the road. I am almost sad in a way to admit that my dr's new partner(who might be all of 35-40)diagnosed me right off. He then sent me to a rheumy,who also had the same diagnosis. I consider myself very fortunate to not have had any of the problems that you and so many others are facing. My heart goes out to you and all the other people who are struggling to be heard. Good luck to you! queenbee69
  17. sapphire

    sapphire New Member

    Thank you for your kindness. You are so very fortunate that you found 2 Drs.(let alone one) that would listen to you and also to get diagnosed so quickly. I am so happy for you that you did not have to go through something like this.
    I have had CFS for 13 years and FMS 3 years. In 1990 I went through this same thing with an Infectious Disease Dr. I was so sick and was hospitialized twice for a week each time and she ran all kinds of tests. The only things that ever came back abnormal were my liver enzymes were elevated and my white count was really low. She couldn't give me a diagnosis and would not admit that I had CFS even though she did believe in it. I think the reason was because I was the one that suggested that was what I might have. Some Drs. just don't like that and she was one of them. Anyway, she ended up calling it the Connie Disease. Connie is my real name. That was in 1990 and it has took me this long to even consider going to another Dr. I do go to my PCP but only when I have to. Actually she is Nurse Practitioner. She has been really good but can only do so much. At least she does believe me and believes in these DD's. In fact, she told me the other day that she thinks she has FMS.
    Sorry I just keep ranting. Hopefully I will get this out of my system soon. Each day it bothers me less and that is a good thing. I refuse to let a Drs. ignorance get me down.

    Thanks again,
    Sapphire
    [This Message was Edited on 11/09/2002]
  18. LindaGa

    LindaGa New Member

    I had the same dr for 15 years who was a doll but I wasnt dianosed with this disease until 6 weeks ago.Although my old dr kept trying to find out what was wrong especiaaly when I ended up not able to walk with a walker and then a wheel chair for 5 years until my son took me to his gym the owner wanted to see me on my feet and thought he could help me and him and my son worked with me every day and I was finally able to walk again after a year of weight traing which also stopped the back and leg pain some(it was all in my left leg)but my old dr and all the specialist must not have known about this disease.But we moved out of state and I had to get a new dr who really takes his time with u but when it started in my leg and all and when I took to many pain pills because of memory(which has been shot for years)He started thinking I was having a breakdown<but he still sent me to a rhmy who after listening to my history and checking out the tender points or trigger points cant remember which dianosed me and put me on nerorotin and is working up the dose now on 600mg 3xda and ultracet 1or2 every 8 hours i take 2 im finding some relief and my new pc is studying up on fms so he can help me too because the rhmy is 2 hours from my home Im sorry this is so long,LindaGa
  19. klutzo

    klutzo New Member

    Too busy playing golf, I guess. As more and more research shows actual physical abnormalities with these DD's,it amazes me that the medical profession keeps moving further towards adopting the psychological model. Even those who used to believe FMS was real are now changing their minds. Three of our (formerly) best Docs here in my area, two Rheumies and a Sleep Specialist, have gone over to the psychological theory. They say it is because of the obviously distrubed way their FMS/CFS patients behave in the office. I tried to tell them they are putting the cart before the horse, and if they had an illness that caused them to be in a constant state of fight-or-flight and on top of it nobody believed them, then they would present as being neurotic too! But, I am just an "idiot patient" and my opinions are not considered. If I didn't need meds to function, I would never see a conventional medical person again.
    I am truly sorry for what happened to you. It has happened to me more than once. I hope this will turn out to be your only bad experience.
    Klutzo