I Am Getting A Little Sick of My Doctor

Discussion in 'Fibromyalgia Main Forum' started by NyroFan, Nov 23, 2006.

  1. NyroFan

    NyroFan New Member

    Hello all:

    I have been seeing the same rheumatologist for about four years.

    Yes, he has been nice, but now he seems like I am just this 'thing' that comes in every four months for a check-up and an examination.

    He does the same manipuation of my legs/arms, etc. and then asks what I am taking for meds, and then writes his.

    I get the prescriptions, but wonder: is this what I have before me? Just a routine exam and meds.?

    Maybe so. What more can I expect?

    Yet...I have to remember that this is a lifelong disease and that maybe I am the one who is frustrated.

    Any advice?

    nyrofan

  2. claudiaw

    claudiaw New Member

    I'm in the same boat.

    I feel like he is sick of me. I have tried my thing's, nothing work's very good.

    he just basically refills what he thinks is appropriate ( no more pain med's).

    tell's me to "hang in there" and that's about it.

    i'm looking for a research doctor who want's to study this to find a cure.

    I think and endocrinologist would be better than a rhuemy anyway.

    i wish us both luck!:)

    Claudia
  3. lin21

    lin21 New Member

    I don't go to a rheumie anymore since the last one told me he never had much luck with patients like me.
    I see a pain doctor and I felt like this about him a little bit but lately he has "controlled" my illness if there is such a thing. When I first got this i was so bad nothing was helping but finally with the right pain meds and now he has me on thryoid hormones that seem to help the CFS a bit I feel more comfortable with his treatment and I'm seeing that my good days are better even though I still have flares.
  4. PVLady

    PVLady New Member

    Have you ever checked out the website of the National Fibromyalgia Association? They have a site for clinical trials that is interesting.

    If you do a websearch for "clinical trials Fibromyalgia", you will find the website.

    Hope everyone had a nice Thanksgiving. I was sick today and not able to make the turkey I bought.

    Oh well, hope tomorrow is better...

  5. ktpar

    ktpar New Member

    My doctor is so sorry. I go to him and he looks at the computer I was diagnosed with RDD in 2000. Recently I was diagnosed with FMS in 2006. He prescribes me an
    anti-depressant. Then he stated to me one day that he would not prescribed pain medicine for me if the test all come up negative. I think that he thinks that I am crazy. I don't think he is educated about my diseases. He has referred me to an Ortho, Rhematologist and a Pain specialist. The only one that helps and seem like he cares is the Pain Specialist. I can't wait to tell him I have found a better Dr than him. Any one seeing a good Dr is Co Spring/Denver area?
  6. jole

    jole Member

    I too feel the same way - she sometimes looks at me as though she doesn't want to deal with me anymore. When I say the pain med isn't strong enough on my worse days, she just nods. She wants someone else to deal with the FM, but yet she wants me as a patient.

    The simple truth of the matter is, there are very few who really have the time and/or ability to really try for us. So we can either stay where we are or go forward on our own. I have given up on getting anywhere with the docs.

    I do have to say that my rheumatologist, who won't prescribe for me, is very understanding and gives me a lot of ideas on the natural medicine approach, and when I recently had a little miracle of 4 good days in a row (for the first time in 4 years) and told her, she had tears in her eyes and gave me a gentle hug. She does truly care, as do many of them I'm sure. They are just as frustrated as we are with not knowing what to do with our situation.

    In fact, we have much more time to research than they do. All we need to do is find a doc who is willing to do something with the research info we come up with...and that's the whole problem. Going back to a lack of time and/or ability on their part.

    Friends - Jole
  7. MamaDove

    MamaDove New Member

    Hi Hon,

    I'm sorry you are going through this but I believe we all do UNLESS are looking for a rhyme and reason for what we have...

    For 13 years, I have gone to all the specialists and listened to their advice, get worse, get another disease, that doesn't get treated correctly, I get worse...you get the picture...

    After I had to finally stop working in October 2004 from the severity of all my symtpoms combined, I gave in to the illnesses...I say that my 'willpower' was no more...I was tired of fighting...Now mind you, I take no pain meds cause anything I take, even baby aspirin, makes me bleed, due to so-called crohn's colitis...

    Fast forward to today, I am again fighting back to regain my strength and my health...There are answers out there, but the docs are making too much $$$$$ treating our symptoms, why would they have a 'cure'? (Maybe not a cure, per se, but again, a rhyme or reason for what we have)

    This past year I have been IN MY HOUSE, IN PAIN and no end in sight, I thought this is what happens when you have SEVERE fibro and cf...My entire body swelled upon any activity and my tests are consistent with auto-immune disease and the labels such as fibro, osteo, crohn's, uc, are just names of 'diseases' that they can treat and can get paid for by prescribing meds...(ie. depression and alcholism and now referred to as diseases)

    THEN THE RECTAL BLEEDING started again and after a week in the hospital, I learned a valuable lesson...You are not there to be HEALED!!!

    I have been home 9 days and allready had to go back for a sigmoidoscopy, meanwhile researching my brains out...Anything I bring up to my doc, he poo-poos, like I am a nut!!! I bring the info to him (in black and white) and then he considers it, but its like pulling teeth!!!

    I have asked him to order 3 tests, all reasonable with severe crohn's disease yet he tells me, 'I have never ordered that test since I have been doing this', 'that test isnt offered in the US', 'You're grasping at straws, there is NO cure for crohn's'...No Cause, No Cure, but yet there are now 4 BIG name drugs that are causing more harm than good, that they prescribe all day long, when they don't work, they increase the dose, wait for you to get sicker and then change to another...

    Now some people do improve with meds for the same conditions I have, but for me, there is a CAUSE for this and there is a way to HEAL yourself...

    I am now facing two drugs that will destroy what is left of my health and in a race of my life to find the answers, unfortunately using every bit of lil energy I have, all drugged up and eating very little (but eating very healthy), how is that the medical community helping me?

    Now all I have is my theory vs. my docs theory...If I find the answer, I benefit, he loses, no more paychecks from me for my chronic, lifelong condition...Therefore, I am convinced that this doc will never heal me...He proved that Wednesday when he called me incapacitated and offered me a cancer-causing drug and sent me on my way...S$%T head!

    So you are not alone...I am considering someone that calls themselves a naturpathic and believes that this is hormone and diet based...She comes to our support group meetings and does loads of research for us and has hard evidence...She is barely making it in her practice, she gives her time and energy more often than making appointments because she feels for our suffering, that's why she does what she does...I will be contacting her soon, after I am able to get off the front porch...

    You must get up some strength and find the right person to help you...don't give in to this diagnostic bull...If anyone, after 13 years, I was finally convinced more by my own research, but then confirmed by my rheumy that I had sever fibro and he couldnt help me, only with injections for pain relief...Now I am leaning to the actual CAUSE and not the LABEL of the disease...

    Don't give in and don't give up ever...with what you have been through, I don't need to tell you that a strong person such as you will prevail...You Will!!! If you are questioning your doc on here by posting, you ARE questioning your doc and that's not good for YOU! Try and make some changes and fast...I can't believe the new info I found in the past week just by googling...how did I miss it all? I am sick and tired of being sick and tired and I thought fibro/cf was bad until I had the pain of a crohn's attack...WOOHOO...Can you say "KILL ME PLEASE"...If you read my other posts lately you will see where I say that since this crohn's fiasco, I have not had any symtpoms of fibro and as fatigued as I am now, I was moreso BEFORE this ordeal...Just more food for thought...

    Okay sweety, I talked long enough (that must be the NYer in me, tehe)...Hope you enjoyed Turkey Day...I ate watermelon...hahahahahahahaha

    Love to you and better days ahead~Alicia
  8. NyroFan

    NyroFan New Member

    Yes:

    I guess that maybe familiarity breeds contempt. It should not be that way. Doctors should be more astute at figuring out what they are paid for.

    And yes, with our painful conditions they should take care of it with meds (for many of us who need it anyway).

    nyrofan
  9. jake123

    jake123 New Member

    I have read of a few people here whose rheumies did them some good but all mine ever did was read my med file, listen to my heart and lungs, ask what my pain level was and tell me to make another appointment. No meds, no nuthin even though the intern (actually a doctor already) said perhaps a pain med would be in order. So last time I just walked out without making an appointment.
  10. PVLady

    PVLady New Member

    My cousin was recently treated at the Mayo Clinic in Arizona for Crohns. Apparently whatever they are doing has helped. One medication is Remicade I believe.

    I hope you are feeling better soon...

    I just checked the website at Mayo Clinic in Az and they have quite alot of info on Crohns and their program. Actually Mayo's locations are also MN and FL.

    By the way, I also had gallstones for several years gone undiagnosed. Just had gallbladder out 2 weeks ago.

    Ingrid, hope you are feeling better....

    [This Message was Edited on 11/24/2006]
  11. kirschbaum26

    kirschbaum26 New Member

    Hi:

    I can understand all of your comments. I once had a rheumatologist for 5+ years that I only saw twice, and the second time was to dx me with rheumatoid arthritis. He prescribe prednisone and did so for the 5+ years without seeing me.

    I then stayed away from rheumatologist. When I had to go back about a year ago, I asked my PCP for a referral. She treats my FMS, and so knows what I want and need. The practice that she sent me to was very up to date with new treatments, new medications, new ideas. Unfortunately, my RA has not responded too well, and I continue to have some serious problems, but I am hopeful. The doctors seem understanding and while I have only gotten one pain rx from them (only time I ever asked) when I had to stop taking advil for a week prior to surgery, I would recommend them to anyone looking for a good rheumatologist in the South Bay/LA county area.

    You might want to tell your doctor what you expect from your relationship. If it is just to monitor you, and not search for any new reasons for your health issues, or if it is just because you have to see a specialist, you should have a good relationship with your rheumatologist. Not only does he work for you, but he is also responsible (in part) for your health.

    I hope that makes some sense. I am still on my vicodin from surgery.

    Ingrid
  12. twitcher

    twitcher New Member

    I really think they just don't know what to do with patients who have illnesses that have no definitive cause or cure. I also think they are afraid of giving too much narcotic pain meds. I myself have severe pain all over but I will not take narcotic pain meds. I don't want pain meds. I just want to know what is causing all of this and treat the cause. No one knows for sure so they can't help us.

    I also have seen many specialists and I personally feel that most of them just don't care. They are just doing their jobs. It takes a special doctor to care.