I am never going to my Rheumatologist again !

Discussion in 'Fibromyalgia Main Forum' started by lrning2cope, Nov 24, 2008.

  1. lrning2cope

    lrning2cope New Member

    I can't believe it . I saw my rheumatologist today for the last time.

    He said that he used to think that fibromyalgia was caused by suppressed homosexual tendencies ! ! ! WHAT ? He then stated that it might be real because he has so many people who come to him with the same complaints.

    I recently had surgery with lots of adhesions and scar tissue that had to be cut away . I told him that the surgeon said that this was because of my fibro and he laughed it off and said they didn't know what they were talking about.

    I AM NEVER GOING TO THIS GUY AGAIN. He doesn't even know what tender points are. My internal medicine doctor has said that he never sent her any information even though she referred me to him . I hope he doesn't cause problems with any other patient . I am going to report him to my doctor to see if he should be reported to the medical boards ( or wherever you report a doctor )

    Here I though rheumatologist were supposed to be supportive of fibro patients . What a crack pot !

  2. wendysj

    wendysj New Member

    Really? Homosexual tendancies? That's ridiculous.

    The first Rhuemy I went to said, "I don't believe in Fibromyalgia." Then, he wrote a prescription for Lyrica. Does that make any sense... no. I asked him why he would give me such a powerful drug if he didn't believe in it. He said, "you seem to believe in it". That was the last I saw of that "richard".

  3. Empower

    Empower New Member

    I will NEVER go to ANY rheumatologist again. Sorry, but they are worthless in PA

    That is just so totally bizarre what he said. I am not sure what I would have done if I was the patient


    And yes, he should be reported

  4. Empower

    Empower New Member

    Don't mean to pry, but did you have endometriosis?

    I did, and had the laparoscopy and it started my CFS
  5. lrning2cope

    lrning2cope New Member

    It was a ventral hernia , which is a hernia caused by a former incision from surgery that ripped . Mine was a C section that first ripped in 1988 . In the last year , it went from a golf-ball size to a basketball size and it started causing elimination problems , so I had the surgery .
    Instead of the 3 incisions that they said they would make (laproscopy) they made 10 because there was so much scar tissue.

    I appreciate everyone supporting my reporting this doctor. I am still going over what he said in my head . Everytime I still come up with " crack - pot " I kind of feel sorry for him because he is a very caring person , but today was the last straw for me. It doesn't matter how nice he is if he is incompetent in his medical field and says wacko things to patients.


    Oh , I did go to the mentioned website and reported this doctor. There were 2 patients that loved him and 2 ( including me) that will never go back. He tends to be in a different mood everytime I go , so I can see how people would like him on his "on" days . But oh on his " off " days ...
    [This Message was Edited on 11/24/2008]
  6. Empower

    Empower New Member

    For some reasons, rheumatologist are strange birds
  7. leannebug

    leannebug New Member

    I agree with everyone else, but I do have to say... not all are whack jobs.

    My first rheumy said he had it too... but then he refused to listen to anything i tried to tell him, and was condesending. After that I avoided them.

    THEN, I found a WONDERFUL Rheumy... at first i thought she was going to be like the other one, because her office screwed a few things up... I thought perhaps she wasn't listening to me either, till I read her deposistion... it was like being validated for the first time by anyone other than my GP. It was her testimony that got my ss approved OTR. :) :)

    so.. they aren't all bad!
  8. frostymocha

    frostymocha New Member

    My rheumy was the only one that believed me for the first year and also had MRIs, Xrays, the works done to ensure it wasn't something else or causing other complications. I ADORE him. And he is the one that told me some of his patients reported great success taking collustrum IGG to help their immune systems fight the CFS - so I suppose like everything some are good and some are horrid. I suggest weriting a simple letter to the Medical Boards (google to find out what associateions your Doc belongs to and send the letter to them as well as the AMA. His/her comments should be reported
  9. lrning2cope

    lrning2cope New Member

    I hope that I didn't scare anyone into thinking this is the 'normal' Rhuemy , because I doubt that very much . I have heard lots of good stories too.

    My internist is the best . She has never doubted my pain or anything that I have said. She has a nurse practioner whose mother has CFS and whose sister has FM . My internist goes out of her way to do research on fibro and tells me new things she learned each time I see her ! ( I usually already know what she is telling me , but I am so happy that she cares that much that I am very enthusiastic !)

    I guess I am trying to say that there are wonderful doctors out there. I went through 5 doctors before I found my current one. I think she will probably be as incredulous about this story as she was when I told her the rheumy didn't know what trigger/tenderpoints were.

    I am sure that she( my internal med. doctor ) has been encouraging me not to go to him , but as a professional , so far she can't outright tell me not to.She has made hints though , and it is time I follow through so no one else will have to suffer with yet another doctor who doesn't know much about these DD , and especially one who is on the edge of dementia so it seems.

    I think I will write that letter to the boards though.

    I am so thankful that all of you on these boards understand and are so supportive and what a big shoulder you all have !

  10. lrning2cope

    lrning2cope New Member

    That is a very good question. He has to be late 60's or older. My doctor said that some MDs that are older don't know the latest research ( or don't believe it , like my now ex-rheumy )

    Of course , one would think that any rheumy would keep up with the latest thought and do s little research . Apparently some don't !

  11. jmq

    jmq New Member

    Ok....I thought I have heard everything......all the bad doctor stories on here ....and in my life...but YOU WON the prize. ( so sorry ) What a quack that "doctor" was to say such a thing.

    Hope you find a good doctor soon...
  12. meowee

    meowee New Member

    That is just plain ridiculous. I have seen 2 Rheumies and said NO MORE. They were both crackpots, too. One told me live with it. The other said take Motrin. PFFFFFFFT.

    God bless
  13. Asatrump

    Asatrump New Member

    In my city there are two groups of rheumy's. I went to three different ones within those two groups and fired them all.

    My primary care doctor had me on up to 4 Soma per day back at that time, which is a muscle relaxant.

    When I changed to a new rheumy I was told ONE PER DAY, that was all the doctor could write for or her license was at stake.

    I found incompetence, no knowledge of what was going on, and the last straw was I got in an exam room and a nurse practictioner walked in..... I was not asked or warned, and she stood face to face and said: you don't have a problem seeing me do you? ackkkkk, stupidly I thought ok, maybe she would be better than the real thing.

    At the time it was my hay fever season and I asked her about drugs.... each question she left the room.. rather obvious she had to look everything up.

    The visit before that I was treated as a non person. This rheumy never had touched me, his nurse had already written down the past 3 months, he came in and signed RX and said see me in 3 months. BUT THAT VISIT, he had a student with him..... he took 45 minutes but not with me, with the student, showing my range of motion, etc. which he had never touched or done before. He actually made quiet an egotistical show of himself.

    My primary care doctor is normally a subtle man, but when I told him I refused to see any more rheumy's and that I wanted HIM to take over all my care, fms, bp, etc. he said, all the rheumy's around here are archaic ! Normally one physician does not critique another.

    I should also throw in I have refused to see any further PT.... each time more harm is done.

    My primary guy keeps abreast of fms, he says the president of our fms is doing a poor job representing our cause...... I didn't even realize we had a president, but I googled and indeed there is a woman. He said she is getting stuff written in journals, and is flying from one conference to another, always keeping a very busy schedule. He told me she certainly is doing great, and doesn't act like any of his fms patients. Interesting she has the energy to toodle all over, never miss a beat , while the rest of us try to get to the grocery store from a handicap parking place.
  14. tut90

    tut90 Member

    you have encountered such an idiot for a rheumatologist.

    I've been pretty lucky, my GP send me for blood test the first time I went to him complaining of this horrible pain, at first he suspected rheumatoid arthritis. When I went back after the blood work he told me your pain sounds like fibromyalgia and sent me to a rheumatologist and she cofirmed his diagnosis. I have FM, OA, bursitis on both my hips and she is not ruling out RA. By the way, my GP is in his early sixties, I think it all depends on the doctor and how he keeps up to date with new findings.

    Wishing everyone a blessed Thanksgivings Day.

    [This Message was Edited on 11/26/2008]
  15. loto

    loto Member

    I know there are crackpots out there. I was seeing a neurosurgeon that my primary doctor referred me to, to see if a Fibromyalgia diagnosis was correct. Well, the neurologist confirmed the Fibromyalgia suspicion for me, I knew I had it before the few months old confirmation. Anyway, so I'm thinking, good! now I can get some good help from a doctor who has other fibro patients and will lead me in the right direction! What a let down! He kept me coming back for check ups, and when I would report a new symptom to him he would say, "you need to see your primary doctor for that." Well, excuse me, but what the hell am I going to him for then?!? Why am I making him more and more money, when he tells me to go to my primary for fibromyalgia related problems? So, I cancelled my next check up and told them to send all my records to my primary doctor, because I was not coming back! I just hope the other fibro patients he sees do the same thing. He's okay for a diagnosis, but after that he's worthless! My primary doctor cares more for me and knows where to lead me and what advice to give me, and he doesn't specialize in fibro. I'm fortunate to have a doctor who truly cares and talks to me in a compassionate, thoughtful way. Hats off to you Dr Blaise of Murphysboro, Illinois!!!!
  16. leannebug

    leannebug New Member

    I have to agree with several of the posts...

    When all my back problems, FM, RA, OA, disc probs, etc popped up... my primary dr was the one to continuously be my best resource! There were many times he would send me to a specialist and the specialist would not be up to date, or would be a crackpot, etc.. each time I would go back to my GP and say I can't do this.. He has always been kind, understanding, and willing to RESEARCH and try new things! I think it may relate to his age as well... he is probably in his late 30's. Now we have reached a point where I go to him as my main dr, he prescribes ALL my meds (so as to not run into any problems... NOT FUN.. had that happen too) and it's always nice to feel like he is in my corner. Kinda like my guardian angel o:)

    on a side note: ASA... I also take Soma, in fact, it is the only medicine that keeps my herniated/bulging/whatever disc under control. If I don't take it, I can't move. :p
    [This Message was Edited on 11/26/2008]

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