I am new and need help PLEASE

Discussion in 'Fibromyalgia Main Forum' started by Kriss3031, Aug 16, 2003.

  1. Kriss3031

    Kriss3031 New Member

    Hello, My name is Kriss I am thirty one.. Years ago I had problems with my back. I have herniated discs L4 L5 and spinal stenosis,, Anyway all of my life I have had bouts of being tired etc. I always thought it was normal everyone gets tired once in a while. Well I have felt like crap for six months now.. I knew right away that the pain I was feeling wasnt my lower back probelm even though I hurt there too. I finally went to the doctor. Got blood work on everything, I was diagnosed with Epstien Barr and fibromyalgia.. This is my MAJOR complaint.. When in bed or sitting/driving ,, If I am laying down and am sleeping on my side I wake up hurting so bad I have to turn on the other side then the other side starts and I am flat on my back and that starts.. IT NEVER ENDS.. I pop advil like crazy, the Dr. gave me arthritis meds and they do not work.. I am afraid to take contrlled medications being that when I was on them years ago for my back I became dependent on them.. What can I do.. I have treid over the counter meds, creans, hot and cold treatments etc.. I have two little kids and I just cant bare the pain anymnore,I bought the book Fibromyalgia for Dummies and it said it is very important to talk with others that have this,, This is how I found this board, My main complaint is in my hips and buttocks,,,,,, Does anyone else get this?? What can I do for my butt?? Seriously? Please help me I am tired of feeling so stiff and aches all over in this area, Kriss Please e mail me direct too at Kriss 3031@ aol.com. Just incase I cannot find or do this message board correctly. I am new at this. Thanks in advance
  2. tandy

    tandy New Member

    your story sounds all to familiar!!! Yours sounds just like mine in the early days of being DX with fibro.I have 2 herniated low back disks,the same as you L-4 and L-5 and L-5 and S-1. Yes....if I lay on my right side,I wake up a few hrs later with that side aching or numb!!!if I lay on my back....the same!!the pain travels depending on how I'm laying!! I've had this now for 11 yrs.I just turned the big 40! feeling like 80 tho~ Sorry I don't have much for suggestions.....In my mind,Drs. do not know how to treat us!or with what! I currently take darvecet which I've been on for 8 yrs so they dont work well for me anymore.(they did help in the beginning) Any of the arthritis drugs i've tried have never helped!!useless.
    I did try a newer drug called ultracet and that did work some.you might wanna ask your dr about that one. Also I added magnesium to my diet thru a supplement,it helps with muscle pain and spasms!you can get that at just about any store or nutrition center!(give it time tho cause it took a couple months to notice anything). You can add epsom salt to your hot bath water and that soothes some of the muscle pain too.I use 2 cups to a bath. I have alot of hip pain too.....just on the left????odd?? and my butt hurts all the stinkin time!!both cheeks but they alternate. Those heat packs that you apply under your clothes really help me......I forget the name??but they are sold near the rubs.The warmth feels good and lasts 8 hrs or so. Hope this helped some and hope you get back here to see this reply!!!you'll get it....its pretty easy working this board~ Nice to meet you~ Tracey:)
  3. susabar

    susabar New Member

    That is when I feel the worse, when my hips are affected... for those times I bring out the major pain killers ( Vicodin) that usually knocks it right out ( me too). For everyday pain I use Ultracet. You may have to re-think taking drugs. I used so much prescription Motrin that I wound up with 12 ulcers in my stomach, upon examination during an endoscopy. What works for me is a balance of everything, good diet, rest, spiritual nourishment. It's very difficult to acheive that and "stay there".
    I wish you luck in dealing with this chronic problem.
    Welcome,
    Sue
  4. donna13210

    donna13210 Member

    I have the same problem with waking up and the side I'm laying on is part numb, part painful. It hurts even more to turn over, doesn't it ?!

    I'm convinced it's my conventional bed. I want to get an air mattress as soon as I can afford it. You may want to think about some new bedding. Or at least a super thick, soft mattress topper.

    You're 31, I am 49. Don't want to alarm you, but the longer this goes on, the less you move, and the older you get, the worse it gets. Get help for the pain right away, maybe a pain management center? Keep moving as much as you can. If I hadn't stopped exercising 10 years ago, maybe I wouldn't feel like I'm 120 years old right now! Inactivity breeds inactivity.

    Hope you find the help you need. Let us know.


  5. Echo2

    Echo2 New Member

    This is a long road you are on, and long term use of ibuprofen (advil) can damage your kidneys. I was taking about 8 - 10 a day for 4 years. My Dr. had a fit and put me on Ultrams. They are mild, and work well. Get some from your Dr. Don't get Ultracet, they also have Ibuprofen in them. For the really nasty days I do have vicodin. When you have kids to raise, work to do, a life to live, it ends up being WHATEVER WORKS. I really recommend the Ultrams, do give them a try. There are also other meds out there, you need a good Dr. to help you with this.
    I take epsom salt baths every morning to loosen up. I add hydrogen peroxide (learned about that right here) and it seems to help too. Get the Trigger Point Therapy Workbook by Claire Davies. It sound as though you might really benefit from it. I also got a Theracane to reach the hard places in my back. The trigger point therapy has helped me a lot already.
    Above all else, educate yourself. Use this board, it is such a wonderful resource. I do not know what I would have done without all these terrific folks who really care. Tell us what is going on with you, we want to know. If you are frustrated, let it out here. We understand.
    Welcome, and good wishes sent your way, along with hugs.
    Echo
  6. Annette2

    Annette2 New Member

    My pain is the worst in my hips and butt area. I do the same as everyone else - I take hot baths, try to exercise (a treadmill) and take meds. I take Ultracet, which is Ultram and tylenol (not ibuprofin as was said above). It works okay sometimes, but when it gets really bad I take Darvocet. As was also said above, try to keep moving. By stretching your hip area you can sometimes work the muscle pain out. I also sit in a hot whirlpool when I go to the gym. I hope this helps you.

    Annette2
  7. Kriss3031

    Kriss3031 New Member

    Thanks so much to all of you that posted back.... I do feel better during the day when I am walking etc.. Just the nights and sitting. I am seeing a massage therapist once a week and it also helps with relaxation she is great but EXPENSIVE ( insurance does not cover it) I am well aware of the advil etc and that it can cause damage eventually.. I have tried Ultram in the past for my back and I had a bad reaction if it came down to it I would go back on vicodin being thatI didnt like the Ultram. Vicodin was a BIG issue for me.. I am not ashamed to say that I became very very addicted to it.. At one point I had online consults with on line doctors and got vicodin that way. Believe me I can get the stuff when ever I want because it is that easy but I have come such a long way with that and I dont ever want to go through that again.. Time I guess will only tell? Ladies be careful on these medications even ultram I never would have thought I would become addicted to anything. I was never the tyoe as a teen that tryed drugs etc.. ANYWAY I can understand I read one post that said when you have kids and stuff you have to and gosh is she right, I am going to a specialist Monday I am putting itin his hands. I am going to tell him about my past with pain meds and let him decide, If I end up having to I am going to give them to my hubby and take thenm strictly for bed and when I have to sit.. I cant believe the response I got.. This looks like a great place. I hope I didnt scare anyone away being so open about the pain medication thing. I need all of the support I can. I am hurting, Someone mentioned the pain heating pads by the creans can you find out what they are called? I am assuming that heat is better? Love, and Peace Kriss
  8. Pat45

    Pat45 New Member

    Hello I too am fairly new to this diagnosis.. I have found th pain in my hips at night to be the most distressing ..There is no such thing as a good night's sleep. I have been lucky to find a primary physician who actually believes that CFS and FIBRO are actually real diseases and is willing to treat them as such. She tried sending me to a pain management center because the pain in my hips just refused to let me sleep. They tried cortizone injections in the hips. It actually worked but only for a short time..2-3 weeks and they would only do one hip at a time so in the long run it wasn't much help. She did however put me on nortriptlyne and cyclobenzaprine (muscle relaxer) that do seem to help at least with the pain at night. I also cut my hours at work in half,and that certainly helps with the exhaustion. Luckily my boss was agreeable. I also take relafin for arthritis and toprol for a rapid heart. On days that the pain is too much I also have oxycodone which can be addictive....so I only take it occasionally... Well I don't know if any of this is helpful to you. Just know that there are many of us that are dealing with the same issues,and a lot of it is really trial and error until you find what will work for you. Wishing you only the best...and a good nights sleep....Regards Pat
  9. Shirl

    Shirl New Member

    Hi Kriss, welcome to our world. Sure know how you feel, been there myself, and right now have lower back pain thats about got me going through the roof! This is not FM, I pulled a muscle in the lower back and its giving me the fits right this minute.

    I cannot take pain meds, they make me very ill, gave that up years ago.

    What will help you greatly is a 'mattress heating pad', and when you lay down, put a pillow between your knees to support your spine. Believe me, this is a tremendous help with the back pain.

    Hate to give you a lot of advice at once, as we do have a tendecy to 'forget' so easily! But will try and if you forget or need to ask more questions, please feel free to do so.

    Here goes...................

    My Epson Salts and Peroxide soak;

    3 cups of Epson Salts
    3 bottles (large) of Peroxide

    Mix in a tub of water as warm as you can stand it, soak for TWENTY MINUTES ONLY, this will make you feel weak when you get out, so go to bed for at least half an hour. This is not a cure but you will get some relief pretty quick.

    Also, we are all deficient in Magnisium, this mineral seems to play a big part in our pain, fogginess, and a lot of other problems we have.

    I take Pro Energy (Malic Acid and Magnesium Glycinate), one in the morning before breakfast, one before lunch with a full glass of water.

    Before bed I take ZMA (zinc, magnesium and vitamin B-6), this also has stopped my RLS, spasms, pain and is a miracle for deep stage four sleep which we need so badly to heal the muscles.
    Both these products can be bought here at Pro Health, go to the 'Store' link on the top right of this page, you can read more about both of them.

    Keep in mind, none of this is going to work like a 'pain pill', as it takes time for supplements to get into our systems. These are healing methods, not masking the pain with pain killers that work quick, but do not last.

    Heat always works best for FM pain, ice is not an option for me anyway.

    Also heres another good one; Take mens tube socks, fill them with raw rice three quarters full. Tie the end. YOu can put them in the microwave for heat they will stay warm for hours without wires and you can put them anywhere you are hurting.

    If you want cold with them, just put them in the freezer, they freeze the rice but do not drip like an ice pack.

    Also if the pain is out of the ball park, I will take one Advil gel capsule with a low dose of Xanax (o.25 milligrams), now and then to control the worst pain. But do not take more than two in a twenty four hour period.

    Like someone else said, I had ulcers and I have IBS due to pain meds and OTC's too. So I am very careful.

    I sure hope you get some relief, as we all know how horrific this pain is to deal with.

    Also, please drink water, half your body weight in OUNCES of water a day. We are mostly dehydrated which does not help us to heal either.

    I know this is a lot to digest at one time, but whatever you can't remember, just ask, will be glad to repeat if necessary! Many have done the same for me.

    Try the bath first, its cheap and it does give relief quickly. Also the rice socks.

    Take care, and let us know how you are doing.

    Shalom, Shirl

    PS. It is not a good idea to put your eaddress on this public board. There are a lot of scammers out there that pass throught here collecting unsuspecting peoples addresses for all the wrong reasons. If you don't want it there, and do not know how to remove it, just let me know and I will delete it for you.
  10. Lana56

    Lana56 New Member

    Hi Kriss,
    I have the same back condition and fibromyalgia.Gee,were you talking about me!I have the same trouble sleeping at times.I will suggest what changed for me though.I started using Lidoderm patches-they have lidocaine in them.They can be put on anywhere on the body where you hurt.Also antidepressants help pain level and help me sleep better.I don't know if this will help you but a suggestion.Oh,my doctor also put me on muscle relaxers and that helps too.Hope I have given you some ideas to think about.Have a good nights rest. Lana56
  11. 9974

    9974 New Member

    I am a 39 year old male and I know exactly how you feel.
    I've had it for 10 years, but like you I thought I was just growing old. Boy was I wrong, I have all the same problems.
    You should pick up the book by Dr.ST. Amand. What your Dr. may not tell you about fibromyalgia. you may get some help from that. As for a mattress I just bought one with a 5" pillow top on it $1500 waste of money I still toss and turn.
    If you have a pool you may try that. I don't have one but I started going to the river near my house. I put on a life jacket and just float, sounds crazy but it sure feels good to take the weight off of your body. I guess a poor man has poor ways.
    As for the medication its hard to say what to do. I take percocet, very strong stuff but thats the only thing that will even dull the pain for me. You also need to get you something to make you sleep. That is one of the most important things is to get very good sleep. The book I told you about will explain all of that.

    Very sorry you hurt Kriss. Keep your chin up
    GOD BLESS
    Lonnie.