I am new here

Discussion in 'Fibromyalgia Main Forum' started by nunu8, Aug 23, 2006.

  1. nunu8

    nunu8 New Member

    Hi I have fibromyalgia. I have been having a lot of pain and can hardly eat now. I can't find a Doctor who can help me. I was wondering if anyone has any advice to help me. I have had a lot of test but nothing shows up. What can I do to help with the pain caused by fibromyalgia? I have all the points of fibromyalgia.
  2. kat2002

    kat2002 New Member

    Welcome to the board! This is an excellent place to begin educating yourself about fibromyalgia. There are articles in the library here that can get you started.

    I would also recommend that you read the book "Fibromyalgia For Dummies". That is the first book I read after I was diagnosed, and it has wonderfully clear information for anyone new to the disease.

    It takes awhile to find out what helps each person, it's different for everyone. The best advice I can give is to educate yourself about the disease. I find new information and present it to my doctor almost every visit.

    Good luck,
    Kat
  3. Rosiebud

    Rosiebud New Member

    welcome to the board. I'm sorry your doctor isnt supporting you, can you not change to another one??? This is a difficulty many of us have experienced at some time or another.

    I take painkillers for pain. You can find lots of info here.

    love
    Rosie
  4. CockatooMom

    CockatooMom New Member

    Unfortunately, I have no advice for you.

    I just wanted to welcome you to our family.
  5. kriket

    kriket New Member



    First of all, welcome. Have you ever tried epsom salt baths in really hot water or water as hot as you can stand? If not, try putting a cup or 2 of epsom salts in a hot bath and soak for about 2o min.


    A lot of times this will ease the pain somewhat. You really need to have a rheumatologist prescribe you something for muscle spasms,sleep, and depression, if you are having problems in these areas. Have you been to a rheumatologist yet?



    Ususally they are more specialized in the fibro. area. Just don't over do it either. Your body will pay afterwards, so try and take it easy and try to keep stress on the down low- which is very hard I know. Anyway, I hope something I have mentioned will help you or lead you into the right direction.



    Kriket
  6. yuckie

    yuckie New Member

    Welcome to the family and so sorry for the reason you are here. I was wondering, are you having trouble eating because of the pain? Or, is it related to IBS. I ask because if it's the latter, there are different ways of approaching this. As far as the pain goes, why don't you try malic acid and magnesium. They have been found to help significantly with the pain associated with Fibro and of course, don't require a prescription. There is an excellent article on this website regarding these findings. I have had good results from taking them together. If your eating problems are from pain, this may help you get the pain under control.

    If your eating problem is from IBS and/or Leaky Gut, you must find out if you have food sensitivities. Do you ever notice the problem to be worse after eating certain foods? If so, try eliminating those and see if you notice a difference.

    Let us know how you are doing and again, Welcome!
  7. Lendy5

    Lendy5 New Member

    Hi nunu, Welcome to the board!

    I'm sorry you're having a hard time finding a supporting doctor but don't give up.....keep searching!

    Unfortunately Fibromyalgia does not show up on any type of test and there are still many doctors that say it's a trash can illness, but as time goes by more doctors are believing what we have is very much real.

    You could try posting a message to ask does anyone know of a doctor in your area or nearby cities that treats fibro. We also have a search feature in the upper left hand corner which is very resourceful.

    There are several doctors that treat fibro including Medical Doctors, Rhuematologist, Neurologist, Pain Specialist and Psych docs. I'm sure there are more but these are just a few I know of.


    You will meet alot of caring people here and I'm glad you found us.

    carolin
  8. boltchik

    boltchik New Member

    I am in southern California and I see a nurse practitioner who specializes in fibromyalgia. Don't know where you are located, but I got a referral from my doctor. I paid out of pocket originally, but then found she worked for a local dr. so I see her and the insurance pays. Ask around to see if you can find someone who specializes in it. This will benefit you greatly as most doctors don't know how to deal with this disease. Welcome to the board! :)
  9. angelstapleton

    angelstapleton New Member

    Here is a link that you may beable to find a doc close to you .
    http://www.fibromyalgiatreatment.com/doctors.htm
    YOu can just copy and then past it into your browser. That how I found mine. Just click on the state you live in and it will give some doc names.
    Hope this help.
    Angel
  10. sues1

    sues1 New Member

    Please tell us your how you are feeling and what is bothering you....physically. Everyone has already given great advise. Better than I could!

    But one thing I have found is that if you take care of the pain and get some quality sleep, you might recover or it might not get worse. Do not push yourself and see.

    You can talk just about anything here. No politics or bashings though.

    Blessings..........Susan
  11. Bambi

    Bambi New Member

    make a list of your symptoms to take to your doctor. Then if he/she doesn't deal with all of them ask for names of doctors he/she might know who does.

    You will get lots of advice from people on what works for them. Be selective in what you try. I'd go with the most non medicinal ones first;
    Chiro, TENS machine, Accupuncture ..things like that and maybe massage if you can afford it. Be VERY careful
    with NSAIDs like Ibuprofen, Aspirin etc as they "can" cause severe stomach problems and even bleeding when used for long term.JMHO

    I personally have tried dozens of herbs and supplements and found very few that seemed to help me. I do think Fish Oil and B Complex heped me with the "fogs" some of us get where memory problems are difficult. I take
    Calcium and Magnesium which "seem" to help some with potty issues and spasm control (I also take a medication for spasms as I have terrible ones without it). We are all so different in what symptoms and main problems we need to address.

    I thinkt the warm to hot Epsom Salts
    baths (and I add a bottle of Peroxide) do help. I generally feel worse right after the bath but in awhile, after some sort of rub on linament (I use house brand usually)
    and wrapping up to a comfortable temperature I feel better.

    Pacing yourself in all you do is important..whether chores or work outside the home, you NEED rest periods inbetween difficult tasks. My pain specialist recommends a nap daily and it does help me in the evenings if I take one in the early
    afternoons. Rest for me is a major
    help, but so is moving around as much as possible inbetween resting. Staying down will make your muscles hurt worse actually and I only do it
    if I'm having a major flare..even then I try to move around as much as
    I can. It's a personal level you will find.

    After years of trying off label medications that for me caused bad
    side effects or did nothing, I found a pain specialist. He treats the symptoms individually and has helped me find what works for me. My life and abilities to function are 95% better than they were even three years ago as I've learned my own pacing routine and the right meds.

    Give anything you try a fair trial unless you have severe bad reaction right off. Even pain meds will make
    some people feel sort of goofy for a
    few days until your body adjusts, but if it's for pain it WILL stop causing any euphoric feelings or anything like that in a short time..up to two
    weeks for most. All I ever felt was
    relief but again we are all different.

    Find what helps you sleep the best..whether it's an herbal remedy or a medication. It is vital that you get the rest and sound sleep to
    restore your strength. I take Trazadone at bedtime and it works great for me. Some get groggy in the mornings after taking it but I never have. There are lots of sleep remedies so don't give up. Ask your doctor to work with you on this one!!

    We could all probably write books on what works for us as individuals, but you will have to find your own best
    solutions. Just don't waste a lot of money and don't do anything that promises a "cure"..so far there is no cure..while some do go into remission
    and some stay there, most relapse eventually. Unfortunately there are lots of people out there wanting to make money on our misery! BEWARE!

    I'd say the most important thing is to do lots of research on your own, online and at the library, through
    doctors who believe in your illness
    and people here. Read the things in
    the library here too..some are good
    and some won't help you, but all are
    worth the read..most have helped SOME one.

    And don't buy into this being a non
    progressive illness. You may go years and not get worse and hopefully never will..but many of us do get worse and many cannot put a blame on why. I believe I've had FM since I was about 5 and am now 58, got severe around
    1998 and quite suddenly..and do NOT know why.

    And keep coming back. You will always find support and a caring audience.
    SOME one will have gone through what
    ever you are experiencing and you can also share the good times and well, most anything in your life you want to share. Good luck in your journey.
    I hope it will be as easy a road as
    possible! Bambi
    [This Message was Edited on 08/24/2006]
  12. kaymac

    kaymac New Member

    If you have fibromyalgia, this is the best place to be! Lots of great tips on the pain managment already so I won't go into that, but understand that possibly you still will have pain or some pain despite other measures, as I have found.

    Keep searching for the doctor that treats you right. I stayed with my family doctor for 3 years and then found another great and better one after I felt he was slighting me the least.

    Read, read, and read anything and everything on this and stay here for encouragement! Best of Luck!

    kaymac