I am sitting here reading post most of the day.AND I cant believe

Discussion in 'Fibromyalgia Main Forum' started by suzetal, Mar 28, 2006.

  1. suzetal

    suzetal New Member

    Boy .I never realized how many we were.....If there was some way to ban together and make one big statement .........I think thats what FM awareness week is all about...I am getting pamphlets to hand out after church....Well not me I don't go out but I have my DH thats going to do it..............Can you see that we might have an impact if all of us here find some way in our own communities no matter how big or small to let people were we live know .............We are here and we are sick..........I don't know just thinking....

    Sue
    [This Message was Edited on 03/28/2006]
    [This Message was Edited on 03/28/2006]
  2. kdeenak

    kdeenak New Member

    I want to shout and scream to the top of the roof. I am mad as heck and tired of this disease being ignored!!! I think if more people knew about it, they couldn't sweep it under the rug so easily. We are suffering and we need understanding, compassion, and some HELP.

    It is not all in our heads, we are hurting, we are tired, and it is about time that someone somewhere listened to us!

    I am ready to get out and march, whatever is necessary to bring it to light.

    Love and hugs,

    Deena
  3. lovethesun

    lovethesun New Member

    I 've already gotten permission from the pastor.Linda
  4. suzetal

    suzetal New Member

    If every one here on this sight.............Took them to church or school Wal - Mart and handed them out.................I bet we would hit every state .....Not only here but also the UK Canada and Australia. Africa and I'm sorry if I missed a country ....Oh and Germany

    Sue
    PS LETS DO IT...........
  5. eeyoreblue02

    eeyoreblue02 Member

    when even our own friends and family don't understand. I'm tired of being told that if I think I'm sick then I'll be sick. And that comes from my own dear daughter.

    Linda
  6. kriket

    kriket New Member


    Maybe we should leave some in the doctors office, since they don't know what the #----### were talking about.I think they could be a little more educated on the subject. Don't you?
    [This Message was Edited on 03/28/2006]
  7. meowee

    meowee New Member

    you are so right. Let's educate the doctors while we are at it.
  8. kdeenak

    kdeenak New Member

    We need to start with the physicians. They should have to take some continuing education classes on fibro. It should be MANDATORY.

    Deena

  9. lovethesun

    lovethesun New Member

    It will say cfs and fm guide=you can order a bunch of these if you want to.
  10. Lolalee

    Lolalee New Member

    ,,,,because we are so isolated (for the most part, I think). We get sick and try to keep functioning in society and little by little, bit by bit we spend more time alone and less time around people. It's a "Catch 22" ...meaning we can't win because if we are out, people think we feel well and if we stay home, people forget about us.

    Yes, we need to bring awareness to this miserable illness.

    Lolalee
  11. kriket

    kriket New Member



    I think that there is an address list for state senators and representatives. Why not send them some info. Would not hurt. If we all send them some info. maybe they will take a second look. We need to flood their mailboxes.

    Kriket
  12. CrymznWych

    CrymznWych New Member

    When I was first diagnosed, I took to the net, wanting to find out as much as I could. And even with all the information available (researchers, etc.), there are still too many doctors out there who either do not know, or don't care.
    I'm lucky, my FP's wife also has fibromyalgia, so he totally understands and is proactive in helping me find solutions.
    A dear friend of mine in Fla, only in his late 20's, was diagnosed by his family doctor, and refered to an orthopedic specialist. This "specialist" told him there was no such thing as fibro, that it was just an excuse people made up to be lazy and get out of work. Nice attitude, huh?
    I told him don't give up, he's off to a good start having an FP who sees him as a patient with a disease, and who needs help and support.
    Getting the flyers out there is a great idea, and I also added this site's link to my email signature, so people can see it and hopefully check it out, and see we are not "lazy people", we are not making up our pain and fatigue. This thing is real.