Hi everyone. I am new to this group and I'm not sure that I will be sticking around for very long as I don't have a definite diagnosis. My GP feels strongly that I am in the "advanced stages" of CFS and has scheduled an appointment with a rheumatologist for Monday. I was hoping to share my experience with you guys to see if any of this makes sense. I've already been told 2x that it is all in my head and I am starting to believe them! My first symptoms started 7 years ago after a botched corticosteroid injection. My symptoms were severe and lasted almost one year. They included low grade fever, fatigue, excrutiating joint pain, mouth ulcers, swelling, hair loss, muscle weakness and abnormal sensations in my arms and legs. Since that time, every few months I struggle with extreme joint pain, fever, and ulcers. I had stopped going to doctors because noone believed me. Unfortunately, that was a bad call because after 2 months of severe fatigue and recovering from a sinus infection, my vision in one eye became very blurry and portions of my face became numb-like novacaine. Shortly, thereafter, (and still running after my 2 year old) I was hospitalized with myclonic jerks over my entire body. I still had the fever, muscle weakness and ulcers (strangely, though, no joint pain this time). The responding neuro said that it was in my head and that I should see a psychiatrist. So I got a second opinion who disagreed. Of course. Anyway, the fever is still lingering - gets up to about 100.2 during the day and kills any energy I have. It goes down with rest. But, more frightening, is the tremors, jerks, head-bobs upon exertion. I just don't know what is happening and I am really scared this rheumatologist is going to say it's in my head. I don't think I can physcologically handle that. Do any of these symptoms sound familiar to any of you? I would really appreciate any feedback you guys could offer me. Thanks so much for reading - it got kinda long. Sorry.