I don't know what to do! This thing is taking all of my energy away. I am the bread winner in my house and I try to put a front on at work as if I am ok. If I don't in the work I am in I will lose clients. I have a husband who I love dearly who I feel doesn't deserve to have to live a life with me. Why was my life cut short at 29? Why do my kids have such a crappy mother now? I took my 8 year old to the store today to get him a game for his good report card and I didn't even have the energy to help him put it together. I would have never had a husband or kids if I knew my life would be like this. Why isn't soemone trying to help us more. I keep trying to press on but I don't know how much longer I can. Then when I can't go on any longer I guess I will ask my husband to raise my children without me. I just can't take this anymore!!!! I wish I at least knew there was some kind of real treatment but there is nothing solid for us. Perhaps we should all go to congress and demand money for research. What can we do?? I am so scared to lose everything I have!!