I beg someone to help me

Discussion in 'Fibromyalgia Main Forum' started by simplespot, Aug 9, 2013.

  1. RaisedNearby

    RaisedNearby Member

    I think your story is typical. I took 5 years to get a grip with my ME(CFS) diagnosis, and I've been suffering for nearly 10 years. There are little things that you might not have noticed in your past that start adding up to support the ME diagnosis.

    Also it sounds like you are lucky in that you have recognised the need to stop and rest when you say you have a daily nap! Just what I needed - but I pushed myself too far and just drank coffee or Redbull until I colapsed in the evening! :oops:

    Now I take it easy and nap. The coughs and colds which used to linger - giving me the sore throats are gone. Routine is the thing!!! :D

    I recenlty found a Kindle read when looking for new poetry. The is a book called The Long Hard Highway by an ME sufferer; which also includes a description of his symptoms and how he dealt with them!

    :) Rob
  2. GeminiMoon

    GeminiMoon Member

    Naps are a beautiful thing! :)
  3. Craig-H

    Craig-H Member

    Hi Mathew,
    I have had CFS/ME since the year 2000. I feel very good at the moment and here is how i achieved it.

    1. Dr Susan Myhill's Stone Age Diet.
    2. LDN (Low Dose Naltrexone)
    3. Relora (Bring's the high Cortisol under control)
    4. Omega 3
    5. Vitamin C

    You can cheat on the diet now and again so don't worry if you find it hard. The Naltrexone helps boost the Endorphine's in your brain which kick start your immune system. Relora as stated get's control of the raging Cortisol that is ruining your system. And it is cheaper than Seriphos. Stick with me kid and you'll be as good as Gold in no time. :)
  4. Mikie

    Mikie Moderator

    In addition to medical treatments and OTC ones which you find help you, the advice to keep stress to a manageable level is good advice. Because stress and depression can be so hard on us, there are those, even medical professionals, who say our illnesses are all in our heads. Well, who wouldn't get stressed easily and depressed when dealing with all the physical symptoms we have to put up with? Stress can trigger our illnesses full blown but I, and most people here, do not believe stress causes our illnesses.

    Also, it's good to rest when needed. I was in denial big time and one day, I literally could not get up and work aother day. Because of my amino acid solution injections, I am symptom free now but I still tire easily because of all the years of inactivity. When I'm tired, I stop and sleep. There is almost nothing which can't keep until tomorrow. Also, I never let the need to sleep stress me out.

    Good luck.

    Love, Mikie
  5. simplespot

    simplespot Member

    Hi Craig - I private messaged you , wanted to chat about your Relora suggestion as I was just about to try Seriphos!

    Hi Mikie - Couldnt agree more! I want to tell you the most sucess i had treating my CFS came from no doctor, no pill, but a system called DNR, dynamic neural retraining, basically you step away from your thoughts about your illness and retrain your brain to think positively. Its called plasticity and it this training helped me a lot. Now I am going to get my cortisol down and I should be doing great!
  6. Mikie

    Mikie Moderator

    Hi, Simplespot, yes, our brains are so much more plastic than previously thought. Neurons which fire together, wire together. We can form new habits which lead to healing. We can learn to have healing thoughts. I did it with CBT in which I learned to identify the instant I let my brain wander into unhealthy territory. I replaced those thoughts with healing thoughts. I think that no matter what we do medically, we cannot heal if we are surrounded with negativity and toxic situations.

    Love, Mikie
    Jesse_healing likes this.
  7. simplespot

    simplespot Member

    haha Mikie you know it!!! love your signature quote
  8. Mikie

    Mikie Moderator

    Thanks, Simplespot. The quote came from the movie, "The Santa Clause." It's amazing where one can find wisdom.

    Love, Mikie
  9. Ugh....help

    Ugh....help Member

    Someone help me! I have been experiencing all these symptoms. I haven't been diagnosed with anything. My VA doctor suggested I may have chronic fatigue syndrome. It comes mad goes. I suffer from depression/PTSD and GERD. I was really sick without a fever. Started throwing up and went to the ER. They said everything was normal again. Every time I mention this test are taken and it's all normal. I have just dubbed myself crazy, lazy, and stupid. Cause that's how I feel. And how I see myself in the eyes of people when I tell them this. It hurts emotionally and physically. If you can help me or tell me who can, please. Not sure how much of this I can take. Thank you.

    My symptoms are attached, but to include decreasing body temp. From 98 to current 96.8. I see my doctor tomorrow who keeps taking the same test and everything comes back normal. It's frustrating and at home resting from work isn't helping that much.

    Attached Files:

  10. RadioFM

    RadioFM Active Member


    There are many possible contributing factors to look for such as: Unidentified chronic infections, lyme disease, mold toxicity, environmental toxins, B12 deficiency, dysbiosis, iron deficiency or possibly haemochromatosis?

    I have listed other contributing factors here:

    B12-deficiency-101 /Understanding Adrenal Function - DHEA


    Last edited: May 23, 2014
  11. Craig-H

    Craig-H Member

    Hi Ugh!
    The first thing i would try if i was you is to cut out wheat!!! You will feel pretty bad for a few day's and then you should start to feel better and better afterwards. I think loads of health problems nowadays are connected to wheat, it's in everything and our bodies are beginning to reject it. Then try and stick to the regime i put in an earlier post. Good luck!
    RadioFM likes this.
  12. RadioFM

    RadioFM Active Member

    Hello Jam,

    Yes, you make a great point about the thyroid. We also need to contemplate the basic thyroid physiology as well.

    Please review this info: Low T3 Syndrome I: It's Not About the Thyroid? /
    Iron and hypothyroidism?

    Last edited: May 23, 2014
  13. In addition to having your adrenals checked, have your thyroid checked -about 4-5 tests. The adrenals and thyroid need to balance each other. If the thyroid is off, it can cause fatigue. I'd also have your iron and B-12 levels checked. They can cause fatigue. Look at your sleep study results for the final two stages of sleep. My doctor picked up on this. I'm missing 100% of the next to the last stage of sleep and well over 80% of the final stage of sleep. See if you can get 7-8 hours of sleep each night in a row. This is very important. Eating a high protein, low carbohydrate, low sugar diet and walking helped.

    For the adrenals, Adrenal Stress End plus a variety of Ginseng helped assist me in adrenal recovery. Two weeks is too early to tell if is is working. It can take six months to over one year or more for the adrenals to recover. A helpful read is "Adrenal Fatigue" by Dr. James L. Wilson.
    Last edited: May 24, 2014
    RadioFM likes this.
  14. TigerLilea

    TigerLilea Active Member

    I totally cut wheat out of my diet for over a month and I did not notice any difference what-so-ever to my symptoms. Wheat isn't a problem for everyone.
  15. RadioFM

    RadioFM Active Member

    Hey, Jam

    I have enjoy Stop The Thyroid Madness book and it is unfortunate that the forum had to close. I also want to express that you are right about the iron/ferritin being more of a problem for women. But, we also need to consider that there are other risk factors relating to iron issues.

    Stomach acid (HCL) is required for iron metabolism. Low stomach acid is a common problem and possibly link to many degenerative disease we see today. H-pylori is a known related risk factor for (HCL) insufficiencies.

    The real truth about H. pylori: allergies, autoimmune, & adrenal fatigue

    Last edited: May 23, 2014
  16. tamsyn

    tamsyn Member

    Hi! I note that you state you have mitral valve prolapse. I have a close friend with this and she found that fatigue was her number one problem in life. She DID NOT have ME/CFS or any of it symptoms; she simply struggled with fatigue, had to pace herself, had to limit her activities, and sometimes was too tired to go out or had to lie down and rest. So you might want to talk to a cardiologist about this (although in my own personal experience, they tend to downplay the fatigue of cardiac issues.) There are degrees of valve prolapse; you might want to address the severity of yours with a cardiologist.
  17. mbofov

    mbofov Active Member

    RadioFM likes this.