I can't believe I'm feeling better

Discussion in 'Fibromyalgia Main Forum' started by bigmama2, Jan 25, 2007.

  1. bigmama2

    bigmama2 New Member

    HI Everybody!

    I wish we were all doing better, but I have to share my story. In a nutshell, for many YEARS my worst symptoms have been severe tiredness, no energy, can barely function, severe insomnia at night, and a reversed circadian rhythm. There's lots more but I want to keep it simple. I was so tired most of the time it was hard to do chores, or anything. I would feel like crap most days and just want to be in bed. I was in bed all the time.

    But this month I am doing so much better energy wise. I've been cleaning and organizing the house, cooking more, more errands, etc. (And without feeling so freakin exhausted all the time.) Now in the last week I have even been able to fall asleep at a normal time like 10 or 11 pm!! that is a MIRACLE for me.

    And I wake up ----with energy!!!???? I can't believe it!!! Please please please let this be a lasting change. In the 12 years I have had CFS I have never had a remission.It would just get worse year after year. Sure I would have good days but only like 2 in a row ever. This has been 4 weeks of slowly gaining energy.

    So what is causing this? Everything in my life has been the same except- I now take supps. (regular vit and minerals). But I started those in August and I have only started feeling better this month (Jan). The only new supps. I've been on that coincide with my feeling better are- adrenal glandulars, sublingual B12, and grapeseed extract. I think it is one of those that is helping me so much. Or maybe all of them.

    Anyways I just had to share this news. After years and years of praying that I woud get better and get my life back, it now seems like I am starting to get better. (or maybe it's just temporary- I hope not!)

    Anyways, I hope the above 3 supps will help some of you all too. Thanks for reading!

  2. ll1816

    ll1816 Member

    Hi Bigmama:

    Oh, it's so great that you are feeling more energized and less fatigued.

    Your fatigue symptoms are much like mine and I've been trying just about everything to wake up refreshed, but to no avail.

    Are your muscles feeling okay? I take the sublingual B-12, but haven't tried the grapeseed extract. I've also tried adrenal glandulars after the Cortef didn't help, but didn't notice an improvement then.

    I'm do take and have for awhile taken vitamins and supplements, but I think I'll try the grapeseed extract. That's not to say that I'll feel more awake, but it's work a try.

    Remission or not, I'm soooo happy for you that you have that energy back when you wake up and that you're going to sleep early. Do you take anything for sleep? I use sublingual Melatonin.

    I'm going to start a detox program with infrared dry saunas at my doctor's office along with a total body cleanse kit next week. We're hoping to get all the toxins lurking in my body, out.

    Well again, I'm so happy for you and I know it must feel wonderful to experience energy. I really hope this lasts for you too. Take good care.

    Gentle hugs,


    FOYBOYFOY New Member

    BUT DONT OVERDO IT GURL !!!!!!!!!!!! FOY
  4. Slayadragon

    Slayadragon New Member

    I'm so glad to hear about this.

    I tend to think the adrenal glandulars are what is helping you the most. if your adrenals are messed up, giving them support can make a huge difference.

    The reason that it worked for you (if it did) is because you did it in the right way. You had them professionally tested and then worked with someone who apparently knew what he was doing in terms of explaining what was happening and what you could do to correct the problem.

    Your adrenal status may change over time. Getting retested eventually may help make sure you're supporting them optimally.

    i've never used grapeseed oil, but perhaps I should look into it.

    It's always good to hear success stories. Hopefully other people on their board will follow your lead. Using a professional was key, I think.

  5. Jeanne-in-Canada

    Jeanne-in-Canada New Member

    I have to second that its the adrenal gland supps that are making the big dent. Those are the benefits I get from them too, as well as normal body temp., being able to take the toughest that Canadian winter can dish out (-31 C atm and I'm down w/ it), better mood. The reason is taht all the energy, temperature regulation and circadian rhythm symptoms we suffered w/ are all due to malfunctioning adrenals.

    I had a doctor admit that standard lab tests do NOT show poorly functioning glands and organs, because they can only detect disease state when it is well underway and often irreversable. You need to listen to the body's many signals of distress to get all the problems that go under the radar. Well before they show up on lab tests, you can already be in big trouble, as we all too well know.

  6. bigmama2

    bigmama2 New Member


    ll346- my muscles are fine. How are yours? I read your bio and i agree that our symptoms sound alike. Consider getting the adrenal test. (read more info about it on my other posts) good luck w detox

    foy- thanks man. I'll try not to over do it!

    lisa and jeanne - thanks for the support! it probably is the adrenal supps. I am soo glad I got the saliva test. i am a stage 5 out of 7!!! (7 = adrenal failure) not good! and yes I do have low body temp all the time.

    Want to hear the craziest thing? After a few years of severe stress (which started my CFS) my mother would say to me "what is that huge hump at the base of your neck, (in the back? You didn't always have it?" I'd say "I have no idea, and no it wasn't always there." So I would even tell my docs. about it and show them, and they always said oh it's because of all the weight you've gained.

    Well- NOW from all that I have read about adrenal fatigue- the earlier stages of it a person has too much cortisol, which can create a "buffalo hump" like what I had!!! and weight gain- I was gaining 15 lbs a year!!!

    I still can not believe that after seeing drs for severe fatigue for 12 long years, even endos, no one suggested adrenal problems. What the H@^%$^!!!!

    The only way I found out about it was thru here, and all the reading I do.

    Anyways, hopefully this new energy and no insonmia will last. I don't want to get my hopes up too much, but if it is only temporary I sure am enjoying it now!!!

  7. bigmama2

    bigmama2 New Member

    hi dcn!
    it is called MilAdregen. it contains adrenal, spleen, and thymus, and also vit c, b6, pantothenic acid, zinc, and bioflavinoids. I take 2 - 3 pills a day. it was not too expensive. maybe about $30. for a 2 month supply if I only take 2 a day. it is made by Miller Pharmacal Group.

    I also have some adrenal supps from Future Formulations/ Dr. Wilson.- author of Adrenal Fatigue book. very good book. his supps seem good also, but right now I am using the MilAdregen.

    My family is so suprised to see me w/ energy. They are like, "who ARE you?" hehehe

  8. Shalala

    Shalala New Member

    which adrenal supp? 01/26/07 10:21 AM

    it is called MilAdregen. it contains adrenal, spleen, and thymus, and also vit c, b6, pantothenic acid, zinc, and bioflavinoids. I take 2 - 3 pills a day. it was not too expensive. maybe about $30. for a 2 month supply if I only take 2 a day. it is made by Miller Pharmacal Group.

    Hi Bigmama2

    Is all of this over the counter?
  9. Shalala

    Shalala New Member

    Thanks .... did a search and found it ;-)
  10. bigmama2

    bigmama2 New Member

    yes it is over the counter. in 1 pill- vit c 250mg, B6 50mg, pantothenic acid 60mg, zinc 10mg, citrus bioflavinoids 25mg, RAW ADRENAL 250mg, raw spleen 50, and raw thymus 50mg.

    I am still feeling good. I am functioning in the MORNING today! For me that is a miracle. I still keep hoping this lasts. It's almost hard to believe. I need to calm down, it's too soon to tell if this will actually improve my life for real.

    I have to tell you guys this too--- my brother who has been a MESS (nervous breakdown 6 yrs ago and never recovered, severe depression, can't hold a job) also took the saliva adrenal test. his cortisol was reversed of a normal circadian rhythm--meaning his is too low in morn, and too high at nite) so he has been taking the MilAdregen and has been feeling so much better too. He said he feels like he is waking up from a 6 year coma.

    We are both completely freaking out that MAYBE our health problems can finally improve and we can get a life! We have EACH spent many thousands of dollars on drs appts, blood tests, medicines, supps, etc over the last years, but not getting any real improvement. He says he can't belive that an inexpensive OTC adrenal pill seems to be helping us sooo much.

    I will definately keep you all posted. Please remember that one should not just "blindly" take adrenal supps. One needs the test first and some guidance from a dr who knows about adrenal fatigue. Please see my other posts for info about getting the test and the dr I saw.

    [This Message was Edited on 01/27/2007]
  11. jole

    jole Member

    WHOOPIE!!! I am soooo happy for you! It sounds like you have found your answer, and I wish it was the answer for all of us. But it's great hearing your story and knowing at least one person is feeling so much better.

    You must feel like you've won the lottery and are afraid someone is going to take it away from you....anyway that's how I would be. Hope it continues going well for you. You deserve it. And so does your brother! what wonderful news!!

  12. bigmama2

    bigmama2 New Member

    thanks! My brother said that we should each buy a lifetime supply of the pills now in case they EVER stop manufacturing them! I think he was not kidding.

    You are sooo right on with the lottery thing. We are both incredulous that this is happening, and afraid it will not continue.

    Our parents just don't know what to think!!!

  13. shar6710

    shar6710 New Member

    This is great news.

    I hope it is permanent but still try not to overdo. I think pacing and increasing your activity level slowly is still in order.

    Best of luck and please keep us up to date!

  14. bigmama2

    bigmama2 New Member

    thanks shar- good advice. I do keep reminding myself and my bro to take it easy. I am not used to being awake this much. it feels great but very wierd! My bro is not used to NOT feeling like a total basket case, and he is so overwhelmed he started tearing up (but in a good way, like when you are moved to tears by something beautiful).

  15. foxglove9922

    foxglove9922 New Member

    Ahhh, I love to read posts like this. I am so very, very happy for you.

    I know of a few others here that really benefited from the glanulars. When I tried them,,,,,,,poop,,,,,,,,it was a total disaster for me. I just got sicker and sicker.

    Funny how something can work for one and not another.

    I hope your post is encouraging to others especially newbies who are unfamiliar with this protocol.

    Smile and enjoy your newfound life, 12 years is a long time to have CFS and I am so happy for you.

  16. OptimusUndead

    OptimusUndead Member

    adrenal glandulars, sublingual B12, and grapeseed extract.

    Just out of curiosity, who makes the products that your taking, and what are they called?. I'm mostly interested in the Glandulars, but if you could list em all, i would appreciate it ^_^
  17. Beadlady

    Beadlady Member

    letting us know about this.

    About 5 years ago my reg dr. said my thryoid was low & I've been on medication for it.

    An acquaintance told me about a specialist I should go to, but I never did because I thought my dr. was taking care of it. Now I wonder if I should have listened to that lady.

    I think the specialist is an Endo. Maybe I should try going to the spec now.
  18. bigmama2

    bigmama2 New Member

    thanks for the kind words!

    Foxglove- I'm sorry they didn't work for you. Maybe still consider the adrenal saliva test so you will know exactly whats going on with your adrenals. From what I understand -in the earlier stages of adrenal fatigue one's cortisol is too HIGH,and so maybe that's why the glandulars made you worse????

    S-elaine, and OptimusUndead- Adrenal supp is called MilAdregen made by Miller Pharmacal, and can be ordered online thru various websites. Grape seed extract (that's the name of it) made by Twinlab, sublingual B-12 1000mcg (in methylcobalamin form- important) made by The Vitamin Shoppe. I purchased grapeseed and b12 from the vitamin shoppe. Look on line and maybe you can prchase all 3 products from vitamin shoppe?

    Remember that it is way better to have the adrenal test and a dr.'s guidance w the adrenal supps. Apparently they can be powerful! I ordered the test on line from the clymer healing center (google it) . cost $160 and included a 20 min phone consult w Dr. Neville. The test is called Adrenal Stress Index, and was done by Diagnos tech Labs. (they also have a website w info.) If you have a good Dr. or chiro that you like ask him/her to order this test. The only thing is that if your dr is not familiar w adrenal fatigue he may not know how best to treat it.

    Optimus- I read your bio and it reminded me ALOT of me when I was younger. My fatigue started in high school too, but got severe when i was 25 due to a very stressful job. has gotten slowly worse each year and now I am 37!!!!!!! but like you I always kept hope alive, somehow!

    take care, bigmama2

    note- I and we must remember that I have only been feeling better for a few weeks (and MUCH better this last week) but it is still to soon to know if this will last. I don't want to get my/ your hopes up too high, in case it stops working.
    (but I sure am loving it right now!!!!!)

  19. bigmama2

    bigmama2 New Member

    i love beads! about the endo- probably don't bother unless he specifically believes in and knows about adrenal fatigue and will order the saliva test.

    I saw an endo about 4 years ago for my severe fatigue and he even tested me (blood test) for adrenal function. it came back "normal". Now I know that "normal" includes everything except extreme adrenal malfunction like Addisons disease and Cushings. so if your adrenal is working sub optimally they (endos) still consider it normal. and then the patient will still feel like crap.

    Everyone- "bakeman" who posted above is my brother, a man of few words. He is truly in shock at how much better he feels now. He is also praying that this is not a fluke.

    [This Message was Edited on 01/27/2007]
  20. bigmama2

    bigmama2 New Member

    about adrenal fatigue is on this website...

    chronic fatigue dot org

    I hope this doesn't get removed (due to website address) as it is important info that could help some of us

[ advertisement ]