I can't handle the pain and the doctors

Discussion in 'Fibromyalgia Main Forum' started by Krystina, Mar 12, 2003.

  1. Krystina

    Krystina New Member

    I was diagnosed with fibro three years ago and I am more miserable now then ever. I have been to every doctor you can imagine and all the specialists tell me it is something else and not fibro. The only one who seems to believe me is my PCP but I can't live with this pain and I have stopped taking Vicodin, I try to exercise but there are many days I can't bring myself to do it. I work full-time and everyone at work seems to think I'm a hypochondriac. I am very depressed and seeing a psychiatrist who put me on anti depressants which caused me to gain alot of weight. I recently lost my father and there is just to much going on. Where do I go from here? I don't know what to do. Can someone please help!
  2. jeanderek

    jeanderek New Member

    I know you feel miserable right now. I wish I could just reach through this computer and give you a hug right now. I also lost my father, it happened right before I found out that I had fibro. I also live in pain everyday and sometimes I just wonder how can I live like this one more day. I just pray about it. The doctors even though they are doing the best they can just can not understand what someone with this is going through but Krystina, I know exactly how you feel and so does everyone on this message board. You will be in my thoughts and prayers and I am sorry for the loss of your father. I hope you find peace in this trying time and I am glad that you decided to post here because everyone here is so understanding of one another and we all care about one another. I have only been here a few days and since that time I was turned down for my SSD I don't know what I would have done without all these understanding people that I have met. I truly wish you all the best and I hope that you find relief. I am pulling for you!

    Hugs,
    Jeanna
  3. Shirl

    Shirl New Member

    Hi Krystina, welcome to our world. This illness can really get you down. I have had Fibo for twenty years now, I know where you are coming from.

    I am so sorry that you just lost your Father, that is so sad. That does not help you at all, stress is so bad for us to deal with.

    I lost my only brother, and that was the first time I got a spasm, at the wake. I have had them ever since.

    Doctors are hard to convince that we are truly ill. No one can feel this pain unless you have this. That goes for family and friends too.

    A strange thing about this is that we don't look sick, which only makes matters worst. We look fine, and yet we are in such awful pain.

    You have come to the right place, we have some wonderful people here, and we all know what this pain is like and what it does to our lives.

    We will try to help you have a better quality of life, we just keep trying new things, and sharing them with each other.

    You take care, and please let us hear from you often.

    Again, a big welcome to the board.

    Shalom, Shirl
    [This Message was Edited on 03/12/2003]
  4. bejo

    bejo New Member

    Oh how I wish I could wave a magic wand and make you feel better.The depression of losing your dad and the stress about the Drs.will make the pain worse.So come here often and let us help you hang on.Finding this site has been a God send for me,I don't know how I made it without all the support here.I'm sending you (((hugs))) so you know you're not alone. bejo
  5. pam_d

    pam_d New Member

    I really feel for you tonight! I'm so sorry, I'm going through a tough pain time right now, too. I know about doctors who dismiss symptoms that are very obvious to us; I often think we know so much more than they do, because we avidly read all the research, etc.-----they don't have a vested interest in learning about treating this DD, WE do!!

    I'm into this 4 years now, have always had the neuro symptoms mostly, but I'm starting to have much more pain than I ever did. I have been able to handle it without pain meds, til now. I can relate so to your feelings, I feel like I'm there, too, right now. I wish I could offer a solution, only my support that you aren't alone in this. I hope you get some relief soon, or find a place to turn for good medical help. And I'm sorry you have the added stress of losing your father recently, too, that can't be helping. You are in my thoughts & prayers.

    Healing Hugs,
    Pam
    [This Message was Edited on 03/12/2003]
  6. dghoover

    dghoover New Member

    Welcome to the broad! Krystina,
    I'm really sorry for the lose of your father. They are right the stress will make the pain worse. I will be praying for you. The doctors make you feel worse because they don't want to believe that you have the pain or they try to make you believe it all in your head. I will be praying that you can find a doctor that understands you and will help you. It took me years to find a doctor.
    dghoover
  7. dacer

    dacer New Member

    WHAT ARE THE OTHER DOCTORS SAYING IT IS? OR ARE THEY SAYINT THEY DONT KNOW?? IF YOU ARE GAINING WIEGHT ON YOU ANTIDEP TRY A DIFFERANT KIND, BECAUSE WHEN YOU GAIN THE WEIGHT YOU GET MORE DEPRESSED. DONT I KNOW IT! REMERON IS ONE TO STAY AWAY FROM I GAINED 30 LBS IN ONE MONTH, THEN WHEN I STOPPED I LOST 25 IN TWO WEEKS. YOU MIGHT WANT TO LOWER YOUR STRESS LEVEL, MAYBE WORK PARTIME OR CHANGE JOBS. AND I KNOW YOUARE THINKING BUT I NEED THE MONEY, WELL....HOW ABOUT THE FACT YOU ARE SICK AND WILLCONTINUE TO GET WORSE IF YOU DONT MAKE A CHANGE O SOME SORT. SHRINKS CAN ONLY DO SO MUCH FIND A DOCTOR THAT DOES EVERYTHING, STILL SEE THE SHRINK BUT STICK WITH ONE DOC TO MEDICATE YOU. IF YOU KEEP PUSHING YOURSELF THE PAIN WILL GET WORSE. WHAT TESTS HAVE YOU HAD DONE?? DACER
  8. EllenComstock

    EllenComstock New Member

    Hi, Krystina:

    I lost my father five years ago and my mother in October, so I can relate to your loss. Have you considered grief counseling? I did that when I lost my dad and it really helped. There isn't a day that goes by that I don't miss my parents as they were really good to me and I was close to them. But the grief counseling helped me deal with it. If you can't afford counseling and have no insurance, Hospice offers programs for free. Grieving or any kind of stress is certainly going to increase your pain level.

    What do your doctors think you have if not fibro? If you have been tested for everything else then what do they think it is? You may want to get on some kind of pain medication. Am I correct that you are not taking anything right now? I take Ultracet which works pretty good for me. Although I have never found anything that totally blocks the pain and that seems to be the same for others here. But even something that takes the edge off will help. Maybe something to help you sleep, too. I take Elavil, which I know you didn't have good luck with, but there are other medications. I really hate to take medications, but right now it's a choice of being able to function somewhat and work full-time and being homebound so there is no choice.

    Good luck to you. You have our sympathies on the loss of your father. It's so hard to say good-bye to loved ones.

    Ellen
  9. Krystina

    Krystina New Member

    I wanted to thank everyone for all there support. I am so glad I found this website. I know a couple people asked what kind of tests I have had and what else have I had done so here is some of the stuff I've done. I have been to my PCP, a rheumatalogist, a neurosurgeon, a rehab doctor, a physical therapist and a chiropractor. I have had CAT Scans, acupuncture, cortizone injections, massage therapy, neck and back adjustments, EMGs. I have been told it's fibro, scoliosis and herniated discs. On top of all this, I am 35 years old and have recently had my gall bladder out and also had shingles twice. Thank God my boss is understanding because I have been on medical leave once for 3 months and he has always worked with me to make my life easier. Again, I just want to say thanks to everyone again because I have finally found someone who understands what I am going through.

    Thanks Again and Hugs to Everyone!
  10. Mustang

    Mustang New Member

    Hi Krystina,
    God Bless you, Don;t give up. Im 57, was mentally ill almost all my life with Manic Depression, suffered with toxic reactions from lituim and anti depressants in 75 which totally destroyed my life, lost my children, support of all my family. I had severe problems but i always knew there was a light at end of tunnel. I hate to talk about his black period. But nevermind, we can overcome, we are not victims.

    Well dearheart, i am very healthy and happy now. You will be SHOCKED at how fast your life can turn around to the good side.
    Have faith and courage and search for answers. They are out there. What did i do to get well?

    Take Magnesium/Malic acid 3 a day (a must, if you don;t take enough of it, it won't work) swallow it, smash it in food.( this takes at least a month to work and if you stop you will start hurting again. )CF, i take DHEA 25 mg. Check out Dr Youngs Book, The PH Miracle at the library. Saved my life. Getting well is inexpense and easy. Actually it takes alot of money and energy to be sick. You got to read this book, read it 10 times.Do your own research.

    I finally got that FM CF was a food/stress/enviornment toxic problem. I now use PH Strips (9.00 for 100, cut into thirds=300.) to test acid in my urine in am. ACID =PAIN i adjust my food to bring it back to balanced ph. I drink Dr Youngs Green Drink .75 a day and take b vits, and minerals.

    I have had 95% success rate with other people. Take Care, the future is filled with great surprises, but if you give up you'll never know. Keep in touch, Laure
  11. Mikie

    Mikie Moderator

    Welcome to our board. At least, we know what you are going through. The good news is that there are many here who have found treatments which have greatly improved their quality of life. The people here are caring and generous with sharing their info.

    I lost my Mother this last year, so I know how hard that can be. It continues to be a source of great emotional pain for me.

    I pray you start feeling better. If you can find a Pain Specialist, he or she may be able to find something to help you if the Vicodan isn't doing the job.

    Love, Mikie