I can't sleep at all, was hoping for some suggestions.

Discussion in 'Fibromyalgia Main Forum' started by Trevor1, May 27, 2006.

  1. Trevor1

    Trevor1 New Member

    Hey all,

    Lately, pretty much this past week I haven't been able to sleep at all. Just last night I didn't even sleep an hour. I take Ambien CR everynight, but I think ive developed an immunity or something because it doesn't even phase me anymore.

    Last night was so bad, I took my Ambien CR at 1 am, then still awake at 3:30 am I took half of another Ambien. And still didn't even feel it. I never ended up getting to sleep last night, and am beyond fogged up today because of that. The night before I got 4 hours tops.

    My main problems are racing brain, and simply I don't get "sleepy" its like im on speed for some reason. I also get hot at night so that doesn't make it any easier.

    Anyway, im gonna contact a psychologist and try to get some info on another sleep drug, since Ambein appears to be useless now.

    I was just hoping you guys could throw some suggestions out there, i've read a bit about Klonopin, Xanax, but don't know much about them. I was on Lunesta before Ambien so I don't think ill be able to try going back to Lunesta.

    Well anyway, any suggestions would be great because if I keep goin on this rate im gonna feel way worse then I already do.

    Thanks for any information,
    Trevor
  2. Scapper

    Scapper New Member

    I'm in the same boat. I hit a wall w/ my insomnia this past year. No amount of medication was putting me to sleep. I too get really hot while laying in bed trying to sleep and it makes falling asleep even harder.

    After about 9 months of this total inability to fall asleep and going on and off every sleep medication known to man, I went back to my wholistic practitioner. I knew that my EBV (epstein barr) levels were really high (according to my bloodwork) so when he told me that the virus was affecting my hypothalamus, I wasn't surprised. This explained the extreme heat at night, inability to fall asleep, along w/ many other symptoms.

    Don't get me wrong, I'm sure this is not ALL due to EBV. I've had insomnia right from the onset of this illness. However, as I said, the past 9 months I became immune to all the medication I was taking and the cocktail of meds were getting higher and higher with no effect.

    I'm still in this process of dealing with this one particular virus. In the meantime, I take a low dose of klonopin and also take remeron. I recently added the homeopathic "calms forte" -- this seems to help some. If I'm still awake at 2-3am, I take Valerian Root, usually about 1000mg. I seem to have to play with this combination frequently, since my body stops responding so easily.

    Ambien & Lunesta only worked for a short time for me and then stopped.

    Klonopin worked wonders initially. However, I was one of those people that built up a tolerance rather quickly. When I found myself up to 3mg of klonopin, along with other sleep meds, and still not sleeping, I decided it was time to begin to wean off.

    I now take .75mg klonopin before bed.

    Also, if you search for insomnia or sleep in the subject box, you'll come up with many people's different combinations for sleep.

    Hang in there. I know how debilitating lack of sleep can be.

    scapper
  3. Trevor1

    Trevor1 New Member

    Thanks for your response scapper, we are really in the same boat. Im in the process of getting my EBV titers down also. They have been showing up in my bloodwork since onset, 11 months ago.

    Recently I began seeing and infectious disease specialist, who believes ive got a case of Chronic EBV. And that the EBV is causing all my CFS symptoms.

    I wanted to ask you what you were doing to try and get control of the EBV. Just yesterday my Dr. prescribed me the anti-viral Valtrex, to help try and get the titers down and maybe get some energy back.

    Ive been researching use of Valrtex on EBV and seem to find mixed answers about whether it really works or not. Also annxyz a member here informed me that Valtrex usually takes up to 3 months before noticing any change. Anyway, just wanted to know what approach you were taking since we both are dealing with this EBV titer.

    Also, thanks for the information on Klonopin, Im going to look into trying to get it. Since it seems now Ambien is useless, and if I don't get something soon im gonna be losing lots and lots of sleep.

    Thanks again,
    Trevor
  4. Pianowoman

    Pianowoman New Member

    Klonopin works well for racing brain in a lot of us. Sometimes, if one drug doesn't work, a combination may be needed. It can take a little while to find what works so don't get discouraged! You'll find the right thing.

    Kathy.
    [This Message was Edited on 05/27/2006]
  5. lovethesun

    lovethesun New Member

    when ambien doesn't work-Then we discovered that trazadone works best on me.On thoses terrible nights when I'd sit up it at least would relax me until I'd eventually fall asleep.Linda
  6. Lolalee

    Lolalee New Member

    I had been taking Ambien for about 8 years. It was the only thing that helped me get to sleep, stay asleep and wake up without a groggy hangover. I have also been taking other prescrip. meds, mainly for pain. I have been looking for alternative "natural" methods.

    I started taking 5HTP and was able to reduce the amount of Ambien, but still needed it. Then, I started taking magnesium and calcium and WOW!!! I'm off the Ambien completely. I take one 50mg 5HTP before bedtime plus 350mg Magnesium/250mgCalcium twice a day.

    I occasionally need a Xanax, but not every night. I sleep well now and I dream which is a sign of good REM sleep!!!

    Don't know if this will work for everyone, but it did the trick for me.

    Lolalee

    P.S. plus I no longer have the nightime Ambien munchies
    [This Message was Edited on 05/27/2006]
  7. carebelle

    carebelle New Member

    After I took Ambien for a couple months it started working the opposite and I would wake up .It just stop working .
    I hope you get some sleep.
  8. earthdog2000

    earthdog2000 Member

    Hey Trevor, I can totally relate as I have had insomnia issues since being diagnosed with both CFS and FS. Do you have a hard time getting "comfortable" because of aches and pains as well? Anyways, I take clonopin to help me get to sleep and Lyrica to keep me asleep due to serious body aches and they both seem to help a lot! The Lyrica is fairly new and is supposed to be for nerve pain but seem to help with the Fibro aches and pains at night. I hope this helps and let me know if you try either of these and they work. okay?
    Gentle fibro hugs, Julie
  9. Scapper

    Scapper New Member

    Trevor: I'm happy to hear your doctor is trying an anti-viral with you. I'm not familiar w/ Valtrex, but I've seen many others here have gotten good results from it.

    I was seeing an M.D. who's protocol was hepapressin/glutathoione injections. I did this for the past year and my viral levels did not budge, nor did my energy/sleep, etc. Unfortunately for me, he was not willing to try an anti-viral w/ me, or antibiotics for other infections. I've since moved on.

    I'm now back with my wholistic practitioner, so the use of medications are not at my disposal. I'm currently, for the past 6 weeks, taking a product called Monolaurin made by "Ecological Formulas" in conjunction with a homeopathic called "crotalus c" My practitioner seems to feel this combination works well. I've been down this road before but giving it another try.

    Please research or do a search on the board before beginning klonopin or any benzodiazapine. It's just good to educate yourself with what you're taking so you can make a better decision for yourself. Just know that for some, me, coming off of benzo's can be difficult (not for everyone -- but in my experience and my body)

    Also, something for sleep that others here seem to get good results with is ZMA, sold by Prohealth. I've never tried it but, again, if you search under insomnia, I'm sure you'll see this product mentioned.

    Have you tried any natural supplements for sleep at all?

    It's so hard to say what would work because we're all so different and react so differently to meds and natural supps.

    I'll definitely post back if I get the EBV "out" -- we then move onto mycoplasma (fun :) My hopes are that my sleep will at least be treatable once we've dealt with EBV.

    Also, great to hear that you're getting good treatment right from the onset. A big plus in being able to restore your health!!

    scapper

    p.s. charlie/julie -- I couldn't agree more, my body does the same thing. I have to be in bed relaxing while the medication starts its calming of my body, otherwise I lose the effects.[This Message was Edited on 05/27/2006]
  10. blizzybear

    blizzybear New Member

    MY MOM IS A NURSE WHO WORKS IN A DR OFFICE, SHE SAID MANY OF THE PATIENTS WHO TOOK THE AMBIEN CR VERSES THE REGULAR AMBIEN DID NOT HAVE MUCH LUCK WITH IT. I MYSELF TAKE EITHER THE REGULAR AMBIEN 10 MG OR THE LUNESTA 3MG. I PREFER THE LUNESTA. I HOPE YOU HAVE SOME LUCK. MY SLEEP DR SAYS THAT AMBIEN AND LUNESTA ARE MUCH BETTER THAN MANY OF THE OTHER MEDS BECAUSE THEY HAVE THE LEAST SIDE AFFECTS IF THEY WORK FOR YOU. GOOD LUCK I KNOW IT IS MISERABLE NOT TO SLEEP, BLIZZY
  11. rinaldo

    rinaldo New Member

    Hi I have been taking ambien cr l2.5mg and one half of a klonopin. Get aleast 7 hrs of sleep. Ambien didnt work alone and it has to be ambien cr. it is not covered by my insurance. Do you get a dry mouth or hungry from taking it.
  12. mainerose

    mainerose New Member

    i was on ambien too and it did not work well. the doc switched me to lunesta and it works great.

    i have some real good hints for you. try celestial seasonings sleepytime tea. you drink it about a hour before you go to bed. you can put in honey, sugar, or anyting else to sweten if you wish. if you use a coffe mug that holds more than 8oz. use 2-3 bags.

    another thing i have used is relaxtion music, you cann get it any where. i money is tight i can burn some that i have for you. i have a lot and it would be no problem for me to do this. go to my profile and e-mail me and would be glad to this and mail it to you.i like liting to it when i am having my sleepytime tea and have some candles burning. it real works for me and i hope that these sug. help you.

    a warm bath before bed can help you to relax.
    have a great weekend and i truly hope this helps
  13. ANNXYZ

    ANNXYZ New Member

    gives me GREAT sleep .
  14. ANNXYZ

    ANNXYZ New Member

    gives me GREAT sleep . Others here think ZMA is great .
  15. diva42597

    diva42597 New Member

    I have had the same difficulties sleeping. I started wearing foam earplugs and a sleep mask in addition to taking sleep medication (tylonol pm) and muscle relaxers. It helps eliviate the distractions that keep me from getting to sleep. I'm one of those people that is fine once I actually get to sleep...it's just falling asleep that is difficult. It sounds like a simple solution, but it has worked wonders.

    Kristen
  16. Marta608

    Marta608 Member

    That's exactly what happened to me after I'd taken Ambien for a period of time! Ditch the Ambien. In fact, I went back and tried it again months later and it still kept me awake.

    I now take generic Restoril, 15 mgs. It's mild but effective and reasonably priced. I take it in the middle of the night rather than at bedtime since I can usually fall asleep but can't stay asleep.

    Good luck! I'm sure others have many more suggestions too.

    And so I read them! lol I forgot about Trazadone which is excellent for reduction of anxiety as well as sleep. I did have a bit of morning grogginess with the 50 mgs. but you might not. Taking it earlier in the evening can help allievate that too. It's not like some others where you must be ready to sleep when you take it or it works counterproductively (someone here mentioned that happening to them and I've had it happen to me on Ambien.

    One thing I like about Dr. Teitelbaum's thinking is that he bluntly says to do whatever it takes to get eight hours of good quality sleep without morning groginess. When I was trying to come out of the no-SSRI-induced flare I took a bit of Trazadone at sleep time, and the Restoril later. It worked well.

    Marta
    [This Message was Edited on 05/28/2006]
  17. caroleye

    caroleye New Member

    Insomnia has to be one of the most difficult to get on top of. I'm in my 60's, and been dealing with it since my 20's.

    So, have tried many approaches, but know this happens for most people. Whatever they take usually stops working as well over time. Rotation of "whatever" seems to be the name of the game.

    I no longer expect to sleep through the night. But if I can get to sleep; wake up around midnight; back for another 3 hours, I'm doing well.

    I have wine with my dinner, which helps increase my GABA.

    8-8:30: ZMA; Cal/Mag; Calms Forte; 5HTP

    Midnight: ZMA; Cal/mag; Calms Forte; Dalmane (if wired)
    or Klonopin

    3-4AM: Klonopin (if I haven't take it earlier) & Calms Forte

    I have to make sure I don't do "any" sugars before bed or even during the day; keep my stress levels down & don't overdo any physical/mental activity.

    Also, I keep blackout drapes on my windows; windows open for cross-breeze & have a fan going. Dark, cool & quiet.

    Good luck with all the options.......

    LIGHT***********carole
  18. rachel432

    rachel432 New Member

    to help with sleep every night i take seroquel which was prescribed by my psych. usually that works really well for me. on the few occasions that it doesn't i take xanax and that does the trick.
    i hope this helps.
    rachel
  19. Mother_Margaret

    Mother_Margaret New Member

    Glad to see you are still here ... as I was hoping to see how you are doing.

    When you can't sleep ... and meds do no good.

    I think you should stop taking them.

    A chemical which would cause Central Nervous System damage is 2-butoxyethanol. One of the CNS effects is ... Sleep problems. As well as short term memory loss, depression, suicidal tendencies, anger outbursts, difficulty concentrating.

    The psychologists and meds are little help, sorry

    Best help is most probably glyconutrient food supplements ... google for glyconutrients & see what you find

    I asked an EMT from the Exxon Valdez oil spill cleanup what his doctor prescribed for his sleeplessness. He said it was for him like the 'magic bullet' He used to barely get any sleep and now he can get 6-7 hours a night. He said all the side effects are not known, and that he takes 1/4 of what the doctor said he could take: 'Remeron' or Mirtazapine

    http://home.gci.net/~blessing/pages/mirtazapine.htm
    This info shared by a gulf war vet DOCTOR in military then.
  20. Dainty45

    Dainty45 New Member

    I laid awake quite a few nights with anxiety, always thinking, night sweats. Finally, I found a doctor that could help me, he put me on Amitryptline. That is an antidepressant, also helps you sleep, and a little muscle relaxer. I have been on it for 15 years, and it still works. It keeps you relaxed during the day also, but always take it at night.

    Good Luck!! SB