I may have mentioned in earlier posts that I have been diagnosed as having Meniere's Disease, which, for me, means constant loud tinnitus in my right ear, and, often, violent spinning vertigo attacks that are accompanied by severe nausea and equally violent vomitting. These attacks last for hours, sometimes into the next day, and leave me in even more all-over pain from the muscle spasms brought on by the vomitting. I have to tell you, they are very scary to go through and leave me in pain and exhausted for days afterward. Anyway, after the first attack, I immediately sought help from my PCP. The earliest appointment was not for a couple of weeks. When I got there, though, he was out sick, but the fill-in doctor said it was Meniere's and ordered an urgent referral from the insurance (it's an HMO) to send me to a neuro for further treatment. (Amazingly, the HMO approved the referral that same day.) By this point, I had had 6 of these violent attacks. So, I spoke with the neuro's nurse the next day and she told me that they could not get me in until the very end of March. Having suffered through some 6 of these attacks in the previous 2 weeks, I expressed the concern that maybe an earlier appointment would be better, because this thing had pretty well taken over my life. She told me to call my pcp and ask him to call the neuro personally and they might be able to get me in sooner. Well, for the next few days, I tried to get this phonecall coordinated between my pcp and the neuro. Nothing happened. I left messages for my pcp, but they were never given to him. I expressed my disappointment to the pcp's nurse and asked for her help in getting this accomplished. I also called and spoke with the office manager about the same thing. I described the attacks to both of them. Again, I did this on the advice of the neuro's nurse who told me it would help get a quicker appointment. Well, no one called, so the thing fell through and I am left with the March 31 appointment. Never once did I get rude or angry, although I was scared and upset by what the frequent attacks were doing to me. In fact, I had to go in to see the same fill-in doctor 2 more times for some kind of help with the next couple of attacks -- he was filling in for my pcp who was still out sick, so I did not have an appointment. I just showed up and was worked in to see the fill-in. He added Lasix to help with the fluid buildup in my ear, but that was all he could do. Anyway, today, 3 weeks after the start of all this, I went on my scheduled pcp visit. My pcp was there and he looked in my file and told me that he could not see me as a patient any more, because I had gotten demanding with the staff about getting in to see the neuro sooner. I could tell that the two staff I had talked with did not tell him the whole story, so I told him everything that had happened and that the only reason I even asked them to ask the doctor to call the neuro was because I had been told to do so by the neuro's nurse. I told him that obviously they had not described the full extent of these attacks and that I had had 8 violent episodes within the last 3 weeks. What else was I supposed to do? Thank heaven I was able to give him exact dates, times, and descriptions of the attacks from my journal (which I am glad I took with me). Well, I am glad to say that he was horrified by what I told him I had been through with those attacks and he was not told how serious they had been. He told me to forget what he said about not being my doctor any more and then promptly prescribed an increased dose of the Lasix and added a new prescrip for Valium (which, I found out, is a common med used to help reduce the frequency and intensity of the attacks). He also made a follow-up appointment for me in 2 weeks to see him and said that the Meniere's would certainly make my FM and CMP even worse during and after the attacks, so he was glad that I had the massage therapy to use for that. He did say to have the therapist avoid the upper right side of the neck, jaw, and ear area until the neuro finished his exam of me, in order to hopefully avoid stirring things up. I got the impression that he was also going to inform his staff to listen better to a patient who came in with these symptoms in the future. Anyway, everything is okay with our doctor-patient relationship and I am so glad. We even got a chance to discuss the SSD paperwork I am dealing with. He fully backs me up on that. He told me that he clearly remembers all the times I came in to see him to get help for all-over pain, between 1993 and 1998 (before I was officially diagnosed with these DDs) and offered to do a supplemental letter to the SS for me stating all this. It seems that Kaiser had lost my records from that time period when they left Texas, so the SS did not receive them. Anyway, he is going to do a detailed letter and give it to me to send with my appeal. So, here's hoping everything works out. Now, I just have to get through the next few weeks, waiting to see the neuro about treatment for this Meniere's. I hope they get it under some control because it is greatly increasing my pain from FM and CMP. Sorry for the length of this post, but I really needed to vent!