I don't know what to do!

Discussion in 'Fibromyalgia Main Forum' started by Niki43, Sep 23, 2005.

  1. Niki43

    Niki43 New Member

    Hi everybody,I just been diagnosed with Chronic Fatigue Syndrome....I am weak,it feels as though my brain burns out,there's also a constant noise in my ears.My doctor had assured me that there's nothing to be worried about.He even told me that there's no need to take a medicine.Could anybody please tell me if this illness is serious and what should I do to feel better!Thank you very much. Nikole
  2. mollyq

    mollyq New Member

    I'm sorry that you have been diagnosed with CFS. I have it, too. It is important that you get take extremely good care of yourself, get plenty of rest, eat a healthy diet and drink enough fluid. There are actually many different medications that people take for the wide range of symptoms you can have with this illness; there isn't one medicine or type of medicine that works for everyone.

    This site is a great place to start. I've only recently found it and there seem to be a lot of people with experience with CFS here. There are a number of books you could read, although I'm blanking (you know, the brain burning out thing) on titles. I bet someone else will be able to recommend something good.

    Take care of yourself and try not to panic. Life does go on...

    Molly
  3. lbconstable

    lbconstable New Member

    So glad you found your way here. This is a really great group of people.

    I would find a new doctor. IMHO the average doctor is quite ignorant about all that is effected by CFS or worse is misinformed...

    The last several years have brought about a better understanding of CFS. Of course there's a lot of questions still to be answered, but we have some good starting points.

    I have finally found two practitioners that I can talk to, I can ask any question that comes to mind, and feel as though my concerns have been acknowledged, and I trust their judgement. This has been the first step in me getting effective help.

    Personally I prefer as natural an approach as possible and still want a prescription when I think it will aid in the overall healing process. I found these two practitioners that see health and healing similar to my own viewpoint.

    Treating CFS is long term. Each of us are so individual. Finding appropriate treatment usually takes quite some trial and error. So a collaborative effort between yourself and your practitioner is quite important. In order to develop a collaboration one needs to be able to have a dialogue with one's health professional and both the patient and the practitioner probably need to have similar views on best treatment options.

    There is help! I've been symptomatic for at least 25 years. I had gotten much worse over the last 3 years or so. Since I started educating myself and working with knowledgable professionals I've improved immensely. I'm very encouraged about regaining 100% of my health.

    You'll find this site a great resourse for information, support, love and even a good laugh now & then!

    Love & Light, Laurie
    [This Message was Edited on 09/23/2005]
  4. elsa

    elsa New Member

    I'm sorry you have this illness. It can be terribly frustrating at times. The noise in your ears is not uncommon and even has a name ...just can't recall it at the moment. LOL

    You need to find a different doctor. He may be the nicest thing in the world, but he is in the dark ages where CFS is concerned.

    Too many research results... Too many treatment plans have
    proven his statement about medicine and CFS all wrong.

    Quality of life while treating underlying problems is not only possible, but a common place proceedure.

    Maybe look at the "good doctor list" here at Prohealth or look into the FFC posts that some of the members have listed. You might find some answers in getting the proper help.

    Take care,

    Elsa
  5. smiffy79

    smiffy79 New Member

    i know exactly how you feel, because the drs dont quite know whta to do with us they diagnose then ship us out.

    i was more or less abandoned after my fms diagonsis and left to find info for myself. i am glad you found us here i didnt find rthe board until a few months had passed of trying on my own only then to find yes i was getting medication but the gp was treating for something completely different the fool.

    i changed drs and found an angel by accident! i have fms,cfs,raynauds,ibs and on and on. the brain burn out is actually cognitive dysfunction. fun aint it!

    keep plugging on until you find a dr worth his salt. i you shouldnt have to i know. all you can do for yourself is to pace through the day and look after your self.
    only you can tell when its getting too much and when you need to stop and rest, and i like many here have found when we dont stop when its enough we make our selves much sicker. i have pushed myself until i have been physically sick and it could have been avoided.

    at the mo my gp is trying me on an ms drug as some of me(cfs) symptoms actually parallel ms just as fms is often mistaken/misdiagnosed as r/arthritis.

    eat healthy and rest often.smiffy.
  6. Mareeok

    Mareeok New Member

    I would definately look for a new doctor. I don't have CFS but that doesn't sound like the right advice. CFS is serious. I'd get a doctor who wasn't absent the day they covered that in med school.
  7. Rosiebud

    Rosiebud New Member

    I agree with everyone else, you must find a doctor who will take your illness seriously, 'nothing to be worried about' - you will need medication, supplements and someone to support you.

    Dont push yourself, if you are in pain or feeling tired, then you have to rest. Pushing yourself only makes CFS worse.

    Like smiffy says, eat healthily, take supplements and rest.

    There is lots of info to be found here. Type into search at the top left hand corner and you will find lots of information or just ask.

    love
    Rosie
    [This Message was Edited on 09/24/2005]
  8. Dee33K

    Dee33K New Member

    I'm glad that you have found us.

    You may be referring to "Tinnitus", ringing in the ears.

    I work for a DDS, TMJ specialist. I am Office Manager and have seen a lot of other diseases associated with the TMJ with our patients. One of the things my Dr. has suggested for this is actually an old remedy that may help you. It has helped one of our patients last month. Valium is what he prescribed for her and it stopped the "noise in her head", as she described it.

    With me, my illness has been more pain than fatigue, but that may be because I just won't give in to it. My Dr. tried to get me to quit work and told me to "get off the internet". I guess you see who won that fight.

    I have slowly gotten better these last 2 years. I feel like my adrenals were just worn out. I do warm pool therapy, eat better and take supplements. Topamax for the pain and flexeril for sleep and muscle relaxing. I make sure to get more rest and pace myself much better than I ever did before. Chiropractic got my spine in much better shape when it went haywire and I am much more aware of staying balanced with my mental, physical, spiritual and emotional. I really believe stress is a major factor.

    Blessings on your journey.
    Dee