I feel guilty about pain meds

Discussion in 'Fibromyalgia Main Forum' started by Flaxen, May 29, 2006.

  1. Flaxen

    Flaxen New Member

    I have been on everything....ultracet, motrin, cymbalta,celebrex...only percocet has helped. Plain oxycodone w/o tylenol is what seems to be the best relief. Why do doctors act like I am chasing a buzz or that I am a weak person who can't "tough it out". I work 2 days a week...by the time I get home, my feet and hands hurt so bad...been tested for Lupus, RA, etc. Chronic fatigue and fibro was the dx. As the Dr. put it"It's ONLY Fibromyalgia...it can't kill you". I don't want to get addicted to percoset again(went to detox last year to get off) but what was the point? I have been miserable for a year. Nothing works. My md is reluctant to prescribe as pain management because he is concerned of escalation. So, to those of you on narcs...how do you control long-term use w/o escalation. I know about tolerance. It's bad enough feeling lousy w/o feeling guilty for being sick, I feel like no one believes me. I just being a baby and seeking pain pills(Like it's fun) Yeah, they work for pain, but if you stop....and I do get depressed from them. The last drug I tried was cymbalta and I felt wired and nauseated. Not great in the pain relief area. Please, if anyone has any advice I would truly appreciate it. Thank you...Love, Flaxen
  2. NyroFan

    NyroFan New Member

    Flaxen:

    My doc gives me what I need, including percocet. He knows I am sick and takes it seriously.
    Any doctor who does not take pain control seriously should be given a second thought.

    nyrofan
  3. jake123

    jake123 New Member

    So asking for pain pills makes you feel guilty like you

    have committed a crime? You haven't committed a crime,

    you are in pain. Say that to the doctor. Feeling guilty is

    how they want you to feel, that is their problem, not

    yours.

    My headaches were best handled with Demerol. My

    headache doctor 17 years ago wrote me a prescription for

    thirty which lasted four years. I bet I've spent $10,000

    on doctors, ER's and meds for migraines over the last ten

    years. The old headache doctor retired Bless His Heart.

    What a wonderful doctor! He knew I wasn't an addict.
  4. cc0526

    cc0526 New Member

    I kind of feel the same way. I don't have an answer about taking narcs long term. I've already gotten "used" to the dose of Lortab I take. That is all we need to get labeled as a "seeker". I feel weird every time I fill my prescription at the pharmacy. I am unable to take any NSAIDs at all so I really don't have a lot of a choices to control the pain. I just try to keep to my dose, take as little as possible on the days I don't have much to do and have a little le-way for the days I'm really hurting. I am a nurse, and I've seen how addicting they can be. I don't know many people who are able to maintain the same dosage for many years. Tolerance can be a real problem. Another idea is to alternate every few months to a different drug, if you can find a second one that works. Then when you go back you may not need as much. Another drug that works for me is called methadose. This is the drug they use for heroin addicts to get off heroin. However, it is being used more and more for chronic pain. Of course you've got to find an educated doctor. The facility I work at uses this a lot lately for my patients (who have never been on heroin - they are elderly). It also had no tylenol so you don't have to worry about getting too much in from the percocet or lortab. I look forward to seeing what others have experience about this.

    Take care,
    Patty
  5. Flaxen

    Flaxen New Member

    I feel no one understands having to be consumed by how much pain every day will bring,Some days not bad. Others, hell on earth. I have had an honest talk with my doctor and he has sent me mixed messages. I don't think he gets it. I even went so far as to ask if he believes me. he said yes. If he will not prescribe I will go elsewhere. It's my life. He said he hated the idea of pain management because I would be a "legal junkie" Very hurtful. Believe me guys, I am 50 years old and tired of the pain and guilt. Thank you again for your responses. Flaxen
  6. PVLady

    PVLady New Member

    I also have fibro and have been on Subutex for 1 year with good control (no major flares).
    I also take 2 Tylenol gelcaps a day and rarely 1/2 Ultram.
    At one time I was on MS Contin and went from that to Subutex.
    My pain doctor says they don't really know why Subutex helps fibro but it does.
    Subutex is dissolved under your tongue 4x day - 4 mg each time, total 16 mg day.
    There are no issues of tolerance or addiction with this drug. It is often used to help people stop taking opiates without withdrawals.
    I know it sounds weird, but it really does work, its just that many doctors are not familiar with it - plus they must be specially licensed to prescribe it.
    Because it prevents withdrawal from opiates, usually doctors who are addiction specialists know more about it.
    I stopped the MS Contin with Subutex, then stayed on a maintenance dose for pain control.
    Also, Subutex is much easier to stop if needed.
    You might want to check it out sometime.
    Hope you are feeling better.
  7. thirkmom

    thirkmom New Member

    When I was working as a hospice nurse, pain management was the biggest part of our job. I went to lots of workshops on pain and pain management and could write pages supporting the use of narcotics for long term pain but you would get bored and I would fall asleep. My Dr. at the time was giving me (1) Lortab 7.5 mg a day. I was trying to work, take care of a family, and be in pain.

    I finally told my Dr. "Everyday I medicate my patients so they can die comfortably. Why can't you medicate me so I can live comfortably?" She looked at me and her face got a "hey the light just went on look" and she said, "what were you thinking about for pain?" I told her and she wrote me a script.

    It takes a lot more to get out of bed in pain and fatigue and get through the day than it does to lie there and die. We have a right to be comfortable. We deserve to be heard and we deserve to have the most comfortable and best life we can with the cards we've been dealt.

    Many Dr.'s are very uncomfortable with the additional charting and tracking of patients on narcotic pain meds. My PCP told all of his chronic pain patients last year that he would no longer be writing our pain med scripts and referred us to a pain clinic. The government has such a tight reign on narcotics and Dr.s are being prosecuted for writing out higher than average narcotic presricptions and are watched like hawks if there is any suspicious activity on their assigned drug #. I guess you can't blame them. So what's another $20.00 copay and another trip to the Dr.?

    Once I started going to the pain clinic, I was really quite glad for the change. They seem to be more updated with their information and they handle a larger volume of chronic pain patients so they know what's working, what's not, what's new, what's out there,and they are just more knowledgeable of what's being researched. Good Luck and don't get discouraged and settle for living in pain--you don't have to. LuAnn
  8. BlueSky555

    BlueSky555 New Member

    Hi Flaxen,

    If you feel you need meds for pain relief to get through a normal day, then you shouldn't feel guilty. Those people that aren't sick and don't understand why we don't look sick but in reality are, should feel very fortunate that they have the ability to get through not one day but every day without pain. We don't only deal with the pain but we must deal with trial and error trying to find what works the best for each of us individually.

    I suppose I am very fortunate in that I am going to a pain management clinic and my Dr. understands very well what I am going through on a daily basis. This Dr. actually has health problems and who else would understand more than a Dr. who experiences the pain. Of course, due to the profession, can not take the meds. I, for one, feel for this Dr.

    I do not feel like I'm on any kind of buzzes taking my meds. However, I can tell when the meds are out of my system in the mornings due to the pain. That's when my pain is at it's worse. I did try a different med and had trouble with it so just continued taking what I was already taking.

    I do hope you find what works best for you without feeling guilty. Sorry to get so long winded...unusual for me.

    BlueSky555
  9. wyattsmom

    wyattsmom New Member

    I feel very guilty about asking for pain meds. I now take Ultram, and Vicodin (for severe pain and migraines). Only my husband has an idea that I have them. I am afraid to tell my family...I can here it now they would say I was addicted or something and tell me I don't need them. Im sick of it, really. It is so hard for people to understand chronic pain when they don't have it themselves.
  10. JewelRA

    JewelRA New Member

    I have recently thought about the very same thing, that hospice patients get compassion and relief from pain so that they can die with dignity, but we cannot hardly get relief from pain so that we can live some sort of symblance of a normal life. I have found myself feeling jealous of people dying of cancer. Is that not a horrible statement about our medical system?

    I am fortunate that my doctor does take my pain seriously and gives me pain pills and sleeping pills. He has known me since I was 8 years old, and knows I have fought tooth and nail to not have to take medications for as long as I could. Although what I am using is starting to not be enough.

    I have abused alcohol in the past, I know the extreme difference between using a drug to get high and using a medication to make it through the next hour without screaming from the pain. It makes me furious for doctors to treat people with chronic pain like junkies.

    To the original poster: If my doctor said I was a "legal junkie" I would drop him in a heart beat. He obviously has no clue what you are going through.
  11. Flaxen

    Flaxen New Member

    Your replies mean a lot to me.My Dr. has prescribed oxycodone 5 mg. 2x day..I am off the elavil as it helped me sleep but put 25 lbs. on me. I found it lost it's effectiveness after 6 months. I will try and stay at the lowest dose, but quite honestly, I am still working thru the guilt. Flax
  12. CanBrit

    CanBrit Member

    My Dr prescribes me 10mg of morphine up to 3 times a day for my pain. I've tried all the other meds and this is what works for me. I need to work full-time so I have to try to figure out ways to get through the day.

    Most of the time, I take 1 pill at night with my sleeping meds. I find that if I get a good nights sleep, I can handle the pain better the next day. If I start to flare up more, I take an extra one. In the past few months, there have only been a couple of days where I needed to take 3.

    I'm very aware of the addictiveness of pain meds and I also worry about them losing their effectiveness. I use heating pads at work and make sure I get up and move around every 45 - 60 minutes.

    The days that I wake up and feel like I've hit a truck, I take a sick day. Knock on wood it's been working so far.

    Take care,

    Eileen
  13. ohmygoodness

    ohmygoodness New Member

    This business of fibro gives no quarter to us. This is not fun to experiment, to deal with side effects, to go back again and again to find one that works "enough". Should we be careful, yes of course we need to be our own advocates and be up on those meds that may turn out to be bad in the long run, like anyone else. But you know the medications are most covered on our health care plans, not the alternative approaches, not the health food, not the vitamins etc. Oh boy, it won't kill me -hmm I wonder how many people got depressed enough to kill themselves those in chronic pain. IT'S PAIN, who cares about the cause. Celebrex did not work for me as I don't have arthritis, fibro is not arth - Ultram did not work.
    Let your MD be concerned about someone who is not in chronic pain. Let your MD have chronic pain and then let him tell you he's concerned about escalation. Get a new MD. No-one wants to make you into a drug addict, but pain is pain. I think you are adult enought to be trusted. I am careful I monitor and adjust according to my pain, that's all you can do. I know when I can deal with it and when if i don't medicate at night I can't work the next day. For 2 years I didn't sleep, I just wanted to sleep. I am taking Lyrica now just a week, better than flexeril. Check the other posts on Lyrica. I took the books on Fibro to the doc a stack of them. Then I got a new doc. Each time they said something asinine I was out the door. One told me to lose weight I was a size 6 - he had a beer belly. I threw his exercises at him. I had practice doing this with my son who is autistic. I knew more than they did so they had better listen or I was gone.