i feel so ill pls help

Discussion in 'Fibromyalgia Main Forum' started by Jennyflower33, May 14, 2006.

  1. Jennyflower33

    Jennyflower33 New Member

    ive been feeling so ill for the past 2months - this all started in january when i had a normal virus...but i managed to go to work after 1 week off even tho i got flu like feelings on and off and felt zapped of energy. then two months ago bham! got really ill. its like flu but without the temperature cold and sore throat. i just feel so ill, nauseous, no energy, completely run down and i cant get any relief. im not in any pain, but the ill feeling is so bad. i never have a moment where i feel good. i dont knwo what to do or how to make it go. am i going to b stuck like this forever? is this the acute phase or what? anyone else get this ill feeling?
  2. Jennyflower33

    Jennyflower33 New Member

    i guess i just keep thinking the docs are missing something...
  3. usanagirl

    usanagirl New Member

    Sounds like you are just sick of being sick. I have learned many, many things regarding physicians and medications that are alarming to me. May I suggest you do some research on Dr. Ray Strand? He has several websites that are just full of helpful information and has written a few books about nutritional supplementation.

    I hope you find the answers you're looking for and wish you the best of luck!

    Love,
    Dena
  4. Jennyflower33

    Jennyflower33 New Member

    thank u. what supplements do u take? i take 4 different ones at the moment. i have been seeing a nutrionist for my hypoglycemia. he did a saliva test on me and found my cortisol levels were very high. so im on suppplements to bring down cortisol and balance blood sugar.
  5. Smiffy

    Smiffy Member

    You have just described CFS, jenny. Try to rest as much as possible, pacing yourself to do the things that must be done in small stages, resting in between. Eat as good a diet as possible, cutting out sugar & junk food & making sure you have plenty of protein & fats. If it's something new to you, you may need to sleep a lot.

    Some people have been helped by high doses of Co enzyme Q10. I'm trying the Guaifenesin protocol for this, but of cours there are lots of treatments you can check out in the library here (no cures) & you must find the one you're comfortable with. Beware of graded exercise programmes - they have made lots of us worse.



  6. Jennyflower33

    Jennyflower33 New Member

    ok, i guess i always thought CFS was unbearable fatigue and pain. i dont really have that. i have unbearbale feeling ill and muscle weakness. i am completely washed out, like ive been left to die in a gutter. does this ever go away? does anyone ever feel a little better? i just cant take another day of this.
  7. Lunatic2

    Lunatic2 New Member

    the nausea is terrible!! I take over the counter-
    anti nausea liquid by Kroger.(cherry flavor) it helps fast.
    For the muscle aches-bed rest & 10mg valium helps me.
    Yes, it will subside. it does come back too.
    sometimes the doctor will give you oral steriods too for a week or so. no longer.
    I suggest you see your doctor because you don't have to feel that bad. Get help sooner- then later.
    hope you feel better today, your in my prayers.
  8. Mikie

    Mikie Moderator

    I'm so sorry you have been so ill. The docs often call this post-viral fatigue or post-viral malaise. Usually, if it persists beyond 3-6 months, it is considered CFIDS. Thing is that the earlier one gets treatment for CFIDS, the better the chance of recover. Younger people often recover on their own if there are no more triggering events. Defective genes have recently been found in those with CFIDS. It's kind of like the "perfect storm." If one has defective genes and is exposed to a toxin, has an injury, lives with extreme stress, or gets sick, it may all come together to trigger CFIDS full blown.

    Because your illness was triggered by an infection, it would be very good to be able to identify it and get treatment. CFIDS can be triggered by fungal, bacterial, and/or viral infections. Ask you doc for blood tests to try to identify whatever it is you have. If possible, find a good doc who treats CFIDS in your area. Unless one spends a lot of money at one of the special clinics, it is pretty hard to get all the tests needed to identify pathogens.

    Some docs treat empirically with antiviral meds, like Famvir. Even if you have a bacterial infection, it may have caused reactivation of a Herpes-Family virus, like EBV. Some bacterial infections, like Lyme and mycoplasmas, make people sick and then go chronic in the system. It can take at least six months on antibiotics to get them under control.

    If the doc tells you there is nothing that can be done, find another doc, one is knowledgeable in our illnesses. Good luck to you.

    Love, Mikie
  9. Jennyflower33

    Jennyflower33 New Member

    Thank u guys for replies. i feel so rough i hardly know what to do. sick, fluey, tired and just plain ugh! i def need to find a CFS specialst mikey. r most of u from US? im from UK. i will need to get tests for ebv and stuff - what is the name of the specialist for that? my test for glandular fever (mono) came back negative. im working with a nutritionist at the moment - second one - but they both say different things really....only thing they agree on is diet. one says i have candida and parasites. other said my cortisol levels are too high which is why i feel the way i do. well i was on an anti candida diet for a month and eat probiotic yoghurt everyday....so im not sure candida was the one. now im taking supplements to reduce cortisol so i will see how that goes.....

    i am wondering if im intolerant to something...but wud it make this ill being intolerant? my symptoms are constant so its hard to say what im intolerant too! i knwo my endocrine system is def out of whack - my insulin goes too high after food, and my cortisol levels are high....its so hard to know what to do for the best.

    i am greiving for my health so badly. i feel like a relationship has ended - the one between me and my body. i used to know what my body wanted. now i never do. i miss that relationship!
  10. Jennyflower33

    Jennyflower33 New Member

    Hey there,

    yes i have been diagnosed with CFS. tests i have had are:


    Double stranded ANA.
    Addisons
    Insulinoma
    Normal blood tests
    CPK (muscle enzyme).

    thats it. im wondering if i shud have more....im yet to see a neurologist for an EMG and stuff. i have had no MRI's or scans...but docs think my blood tests indicate that i dont need them...hmmmm. ALso they are sending me to a neurologist to cover themselves...so they say. they dont think i need to see one really.

  11. Banka8

    Banka8 New Member

    Hi Jenny,

    Please look into the Marshall Protocol. Go to the top of the page here and click Library. There you will find articles by Dr. Trevor Marshall describing the theory behind the Marshall Protocol. Come and visit the Marshall Protocol website. There are many people recovering using the Marshall Protocol.

    I will be starting Phase 3 of the Marshall Protocol soon and I can hardly wait. The botton line is I'm recovering and I could never say that before.

    Take care
    Judy

  12. Jennyflower33

    Jennyflower33 New Member

    hi judy can u sum it? what excatly does it involve? is there a direct link to the protocol?
  13. jerzygal

    jerzygal New Member

    I just read the article referred to on the Marshall Protocol and while it is interesting, still it is a protocol designed not by an M.D. by a Ph.D. While that doesn't mean this idea doesn't have some value, I would want to see how many documented cures he has had. Because it does seem to require a person a longterm commitment and denying the body Vitamin D which we need daily for good health.

    As recommended in this article there is a lab test you can take to see if you even have this bacteria. I can understand the desperation behind grasping at almost anything to improve or even cure the debilitation of Cfids, but caution may be the first wise step.
    Ellyn
  14. ANNXYZ

    ANNXYZ New Member

    lyme test , and if you have two positive bands on your test , consider the possibility of lyme disease . Many of us here have been ill for years , and find we have lyme.
    Most of the tests are worthless, but I genex is reliable and more exact . Good luck !
  15. Jennyflower33

    Jennyflower33 New Member

    im from UK....i didnt even know it existed in uk...what specialist do u need to see that deals with Lyme?
  16. Jennyflower33

    Jennyflower33 New Member

    i live in a city too, altho last summer i lived ina house where my bedroom overlooked a pond and i got lots of bites that would swell up and itch. not a rash, but swellings...hmmm i forgot about this, wonder if this has anything to do with what i have now?
  17. Barbie56

    Barbie56 New Member

    Hi, Please , you must educate yourself about your health because no one else really knows how you feel. It does sound alot like lymes , and of course EBV. Alot of doctors tell their patients that they don't have momo which is true but you may have reactivated EVB. It can last for months . The depression about how you feel can also make things worst. My husband is from the UK, and I am not too impressed with the medical care there. Well I should say at least not with the old people and the way they think. It sounds like you could have CFS which is EBV. I have it and it had activated last November and I'm still not great.
    I have my bad days and good ones. I also have low grade fevers and sometimes feel like I can't even walk across the floor. Try getting a book on Chinese Medicine. I have been doing some research on it and it is really interesting stuff. I will try to get the name of this one book that talks about CFS and FM.... hANG IN THERE..Barb
  18. Mikie

    Mikie Moderator

    Grieving is part of this whole process. We go through the grieving process because we have lost our health and big parts of ou lives. I found it very helpful to get grief counseling. Good luck.

    Love, Mikie
  19. pirtpain

    pirtpain New Member

    I was recently diagnosed with CFS ( Chronic Fatigue Syndrome) and feel the same as you do. It is not unual for those with FM to also have CFS. My suggestion would be to get enough rest, pace yourself with those things that NEED

    to be done, and take vitamins. Unfortunately I have gained alot of weight the past few months because I have been laying around TOO much and have also developed Sleep Apnea. I can't seem to fall asleep at a normal time but am

    exhausted the next day. If you are experiencing the same, perhaps you may look into a sleep study. Ask your Dr. GOOD LUCK!!

    PIRT
  20. mbofov

    mbofov Active Member

    When I first started getting sick with CFIDS, I sounded a lot like you. The doctors were helpless, could not do a thing for me. The symptoms came and went, no rhyme or reason.

    After several years of that, I found a chiropractor who does muscle testing and he diagnosed me in five minutes. He found that I had different things going wrong with my digestive system (hence the stomach upset) and fatigue, because I wasn't digesting food properly, and it all made me feel sick.

    He gave me Standard Process products which helped a great deal. So, my recommendation is that you find someone who is skilled in muscle testing to help you. I also had gallbladder problems at various times, and the chiropractor again helped me a lot and saved my gallbladder. I would have been totally lost without him.

    Mary