I give up!!! If I’m too sick to have mercury amalgam removal …

Discussion in 'Fibromyalgia Main Forum' started by lilwren, Dec 5, 2002.

  1. lilwren

    lilwren New Member

    and that’s part of healing – then what in the hell am I supposed to do?! I am so tired of this DD!!! It’s like banging my head against a brick wall! I geared myself up towards amalgam removal to be able to check one more thing off my list of things that are contributing to this DD and now I’m told I can only have it done once I get better! The doc said I was too sick for a DMSA challenge test, therefore too sick for mercury removal and detox. So, since no one has ever gotten better from this DD then what am I supposed to do?! I think about suicide at least once a day and now that’s all I’ve thought about all evening. I can’t find a doctor that treats CFIDS. I give up!!! I am a burden on my husband! I can’t take care of myself anymore! I’ve been house bound for a year and a half! I can’t seem to find any hope to hold onto! I really just want to crawl off somewhere and die!!! I can’t stop crying – I can’t stop this panic attack. I just feel like it’s the end of the line – I have no where else to turn. I’m sorry for being so negative, but I have nowhere else to turn – my husband doesn’t want to talk about it anymore and I have no one to talk to. My mother and sister are alcoholics and couldn’t help me if they wanted to. I’m sorry – I know when I read posts like this I don’t know how to respond to them. I guess I just wanted to be able to tell someone – anyone – how hopeless I feel.
  2. lilwren

    lilwren New Member

    and that’s part of healing – then what in the hell am I supposed to do?! I am so tired of this DD!!! It’s like banging my head against a brick wall! I geared myself up towards amalgam removal to be able to check one more thing off my list of things that are contributing to this DD and now I’m told I can only have it done once I get better! The doc said I was too sick for a DMSA challenge test, therefore too sick for mercury removal and detox. So, since no one has ever gotten better from this DD then what am I supposed to do?! I think about suicide at least once a day and now that’s all I’ve thought about all evening. I can’t find a doctor that treats CFIDS. I give up!!! I am a burden on my husband! I can’t take care of myself anymore! I’ve been house bound for a year and a half! I can’t seem to find any hope to hold onto! I really just want to crawl off somewhere and die!!! I can’t stop crying – I can’t stop this panic attack. I just feel like it’s the end of the line – I have no where else to turn. I’m sorry for being so negative, but I have nowhere else to turn – my husband doesn’t want to talk about it anymore and I have no one to talk to. My mother and sister are alcoholics and couldn’t help me if they wanted to. I’m sorry – I know when I read posts like this I don’t know how to respond to them. I guess I just wanted to be able to tell someone – anyone – how hopeless I feel.
  3. sb439

    sb439 New Member

    Your doc may be right in saying you are too sick for the DMSA challenge test. (I wish a doctor had told *me* that before I did it.) But this doesn't mean you're too sick for filling removal, nor necessarily for detox, though you'd have to be very careful with either.

    There are other mercury tests that are not intrusive: a porphyry fraction urine test (?), saliva tests, hair analysis tests. Tests using electrical currents in your body. There is also a blood test for mercury sensitivity (i.e. not how much you've got in your system, but how your system reacts to it).

    Amalgam fillings should be removed by a specialist dentist, so-called wholistic (holistic) mercury-free dentists tend to know how to do it, including use of dental dam and intravenous vitamin C. Do some web-searching. A very good one who has experience with CFIDS is Barbara Solomon and her clinic. They may also know about non-intrusive mercury tests, do phone their practice.

    Naturally, it would make sense to have a non-intrusive mercury test done first (simple blood or urine tests for mercury tend not to be useful), to get a picture about how toxic you are or if you are mercury toxic at all.

    Then you could have one filling removed very carefully (a smaller one), with all precautions, and see whether your health still gets worse. In that case I would stop. If it doesn't get worse, you could have the fillings removed one by one over a longer period of time, with some weeks between each removal.

    And after that you could try a mercury detox program that's designed for someone who is ill, going in very small steps (again something I wish I had been told: 1/10 of what's ok for a normal person may still be too strong for someone with CFIDS/FMS.)

    All of this will take some time and searching, but can be done. Don't give up.

    Hugs,
    Susanne





  4. lilwren

    lilwren New Member

    Thank you for reaching out to me - I really am in a horrible mental state - and it makes me feel so much better to know you are out there for me! And I really am not alone - like I feel. I tried to talk my husband again and he said he does enough just taking care of me that he will never be there for me emotionally. It makes me so sad being so alone - well, I've got you guys on the board BUT I really could use a real live hug! It just hurts so much to be so alone and feeling so hopeless. I'm sure tomorrow I will be in a different, better, state of mind. I just get so tired of it all!!!! Forcing myself to exercise, eat right, stop drinking wine, stop working in the yard, stop going to the store, stop doing volunteer work, stop hiking, stop being who I used to be - it's like everything I do is something I don't want to do AND I still feel like shit! I'm so sorry for the pity party, I JUST FEEL SO ALONE!

    love,
    Sharon L
  5. JaciBart

    JaciBart Member

    I am so sorry. I am very lucky with my hubby and I do thank God for him, I see so much pain from people who have this dd and have a spouse who just doesn't get it.
    What he said was mean,he will never be there for you emotionally?????

    Marriage is designed for both partners to be loving & supportive of each other. You get what you give, sounds to me like he could use some time in a counselor's chair, good luck, please try to get him into counseling.

    Jaci
  6. Mikie

    Mikie Moderator

    Hell, I never had any tests done, I just had the damned fillings removed to get the mercury out of my mouth. A good dentist will do this with as little damage from removing the fillings as possible. It's like removing asbestos from a building; it's impossible not to get a little contamination in the process. I felt that was better than leaving the mercury in my mouth.

    I have never been tested for mercury poisoning, but I probably should since I had such huge fillings when I was a kid and played with mercury in my hands.

    BTW, after removal, I noticed no immediate improvement in my health, but over time, my FMS and CFS are improving. I don't know which of my treatments is the cause of the improvement, but it's most likely a combination of everything I'm doing.

    Love, Mikie
  7. lilwren

    lilwren New Member

    Thank you for taking time for me. You all are the only thing that keeps me going most days. The folks on this board have been such a blessing to me. I know you all have the same problems I do, yet you still take time to reach out to comfort me and I deeply appreciate it.

    Well, today is a new day and I am going to regroup. The 'holistic' doctor was so frustrating yesterday. My husband and I kept asking him - okay if she's too sick now then what do we do to get her well enough to proceed - he didn't have an answer. He jsut said I was too much of a liability. It really sucks because I am doing so many things right, and I know if I could find a doc who understood this DD I would improve even more. I have an appointment Jan 14 with another holistic doctor - I am going to keep my fingers crossed that she will be more helpful (or at least understanding). The mercury free dentist will do pretty much whatever I want, I jsut need someone to help with detox - it does frustrate me that he insists on a test - I don't want one. It's so hard dealing with doctors and their egos. Plus, it's jsut hard for me because I am so emotional all the time.

    My husband left me a note this morning - he said he was sorry and that he has emotionally distanced himself becuase it is too painful to watch me go throuhg this BUT he will try to be different. So that's a start.

    I will keep taking it one day at a time.

    love & hugs to you all,
    Sharon L


  8. AnitaQuiles

    AnitaQuiles New Member

    Hi...I am new to this message boards so I was curious as to why you have to have this removal done. I have those type of fillings in my mouth too but never heard anything about it. please reply and thanks.

    PS> I am too frustrated and sick and tired of being sick and tired!!!
    Hugs for you today!! from your fibro friends.

    anita