I got the Results of my Mri of the Brain

Discussion in 'Fibromyalgia Main Forum' started by JerseySue, Oct 21, 2005.

  1. JerseySue

    JerseySue New Member

    I went back to the neuro yesterday to have the EMG. I hate that test. Anyway the Emg showed my nerves were a little slow, but I was getting cold as the test went on and that can slow them.

    Then the Dr. reviewed my mri results. I had one of the brain with and without contrast. It shows two bilateral lesions consistent with MS. So the next step is to go Wednesday for another Mri of the cervical and thoracic spine. Then maybe a lumbar puncture...ugh. I hope we don't have to do that one. I hate needles to say the least.
    So right now I'm kind of just trying to absorb all of this, and read info related in case I have to choose a treatment.
    Wish me luck Wed. Will keep ya's posted.
    Gentle Hugs Sue
  2. winsomme

    winsomme New Member

    sue

    i think that both chronic lyme and CFS can show lesions on MRI.

    it looks like you might be in New Jersey, and there a lot of Lyme specialists there. it might be worth getting an opinion form one one of them.

    if you want to find a lyme DR near you, go to:

    www.lymenet.com

    click on the "flash discussion" option and look for something called "seeking a Doctor"

    there are also a few neurologists that specialize in Lyme. i saw one that in Connecticut, and i know there is a very well-known one in NYC, Dr Brian Fallon.

    here is a web link:

    http://www.columbia-lyme.org/

    if you want to know the DR in connecticut let me know.

    thanks
    bill

    PS - i'm not trying to disagree with your DRs. i just thought if there is some question on your diagnosis, this info might be helpful.
  3. JerseySue

    JerseySue New Member

    guys! That's a good suggestion to check out the lyme. I have had tests in the past, neg, but I don't know what kind of test it was.
    I will definitely check it out!
    Gentle hugs Sue
  4. NanceZ

    NanceZ New Member

    There are many reasons for/ causes of lesions.

    Even a B 12 deficiency can cause them as I was told by my neurologist. So please I know it's scary but do not panic.

    If I get more concerned tha tit might be MS i'd go right to the MS clinic in Cleveland as part of the Cleveland CLinic.

    It's well renowned and easy to get into, even can make appointments on line.

    I also was told that a lumbar puncture only detects MS in 50% of the cases... so is not a very good way to determine if one has MS.

    Just my 2 cents
  5. mhammie

    mhammie New Member

    Sue,

    Just wondering how long the brain MRI takes to do? Also just wondering the reason the doctor ordered it.

    I'm scheduled for one next week, and I'm somewhat claustrphobic. I'm having it done because of ongoing headache issues & diziness.

    I hope you don't have to have the lumbar puncture.

    Mhammie

  6. Dolphin_lover

    Dolphin_lover New Member

    is also the most reliable way to find out if you have HHV-6A, one of the "suspects" in CFS. If you have to have a lumbar puncture, you should ask your doctor to check for that also. See www.wisconsinlab.com for info on HHV-6A testing. It is very hard to detect thru blood tests and frequently "hides" and is not detectable that way. I had a lumbar puncture. I was v-e-r-y nervous (have had a needle phobia all my life, so this was HUGE for me to go thru). But, it was not bad at all. My doc was very good. Also, if you are interested there is a website (one of many) for HHV-6A. www.HHV6foundation.org. Might as well have them check for as much as possible, so you don't have to go thru this again. Your in my prayers.
  7. winsomme

    winsomme New Member

    sue

    the standard lyme tests are notoriously unreliable. the company that many rely on is Igenex to do the lyme testing the specialize in lyme western blot testing.

    you get more info on this from lymenet.

    thanks
    bill
  8. browneyes259

    browneyes259 New Member

    Jerseysue. I know that those EMG's are awful!

    Anyway, you will be in my thoughts and prayers as you continue getting your testing done!

    Hugs,
    Jen
  9. emiltim

    emiltim New Member

    I just had my brain mri last night. with and without contrast. It took about 45 minutes total. They do the first series, then put an iv in so they can insert the dye (then they take it right back out). then they do another 10 minutes worth of mri.

    I am also very claustrophhobic...I took .50mg of xanex an hour before...but it didn't do much. Good thing I brought my bottle of pills with me, they had me chew(works faster that way) .5mg more. Aahhhh...then it worked just fine. lol. I almost fell asleep.

    Sue: I sure hope they get this figured out for you fast. It sucks 'not knowing'. I'll be praying for ya on Wednesday!

    -Julie
  10. JerseySue

    JerseySue New Member

    from you guys. Thanks sooo much for all of the advice and suggestions. It definitely helps.
    Mhammie-the first part with out contrast took about 20 mins.
    Then they took me out, injected the dye and then it took another 10 or so mins.

    They gave me squishy ears plugs and earphones. Then they put a cage thing over my head that was braced by a headrest. I felt like Hannibal Lector with the head cage..lol Anyway, I kept my eyes hut tight the entire time. I really wanted to get this test, and knew if I opened them I might wig out. Oh, the funny thing was the first song I heard on the earphones was " AAHHHH FReak Out!!"
    I was very nervous and held the emergency button tight. But I just did lots of deep breathing, and what I think really helped was there was a fan blowing on my face from the right side. With my eyes closed I could definitely imagine the openess.

    Dolphin Lover-That's a good idea. I will talk to the dr if it comes to that.
    I will be researching some of the good info you guys gave me, especially making sure I have been properly tested for lyme. You never know.
    So in the end, whatever it is will be ok. I figure I've been living with this for years and years. Maybe I will get some answers, and with that better treatment. Who knows.
    Thanks to everyone for all your support. You are the best!!
    I'll keep you posted.
    Gentle Hugs Sue
  11. pam_d

    pam_d New Member

    ...just wanted to echo that my lumbar puncture test was a piece of cake, too....just follow all of your doctor's and examiner's instructions....critical is to lie down completely flat afterward for the correct amount of time following the test. Also drink caffienated beverages afterward; I can't remember why, but even if you aren't typically a caffeine consumer, it really helps after this test. I remember hearing of people who had daily headaches for a year or more following a lumbar puncture because they didn't follow the aftercare procedure, and I was worried. But I laid down steadily after the test for the prescribed amount of time, added about 10 more minutes on for good measure, then stopped & got a coke on the way home (caffeine) and I never even had a slight headache!

    Good luck to you, don't worry until the final results are in---MS is so often mis-diagnosed, you really shouldn't worry until all is said and done...easier said than done, though, to be sure...

    Keep us posted, I'll say a prayer for you!

    Hugs,
    Pam
    [This Message was Edited on 10/22/2005]
    [This Message was Edited on 10/22/2005]
  12. granmama

    granmama New Member

    My son battled all the symptoms of MS for 3.5 years. He had spinal taps, MRIs and blood tests.
    His specialists kept telling him, no lesions, no MS.
    About 6 months ago, active lesions appeared.
    Still no dx for MS. I mean if it walks like a duck, looks like a duck???
    Then a few weeks ago, he woke up during the night screaming, then unable to move or speak. This lasted about 20 minutes.
    FINALLY, a dx of MS and he is now on 1 weekly Avonex injection. Avenox will help reduce the size of lesions and help stop the progression of the disease.
    Thank God, he finally is getting the help and medication he needed.
    I realize through all this that MS is hard to dx and can be misdiagnosed as well. I even heard of a lady that was misdiagnosed with MS and finally given a dx of Fibromyalgia, go figure?
    My heart goes out to all those with MS. I thought Fibro was a hard road, but watching my son has made me realize I could be alot worse off.
    Stay well and good luck,
    granmama
  13. JerseySue

    JerseySue New Member

    I am very touched by all your responses. It's a great comfort to know that I have others to talk to that can defintely relate and share themselves in a supportive way.
    Thank you for all your thoughts & prayers!
    Gentle Hugs Sue
  14. darude

    darude New Member

    I have had two MRIS showing 40 lesions and a tumor in the pituitary gland! Neuro said NOT MS and a normal course of aging. I am 55! Checking on the tumor on another MRI next month.