I had my first visit to the pain management doc

Discussion in 'Fibromyalgia Main Forum' started by Kinsie, Dec 28, 2006.

  1. Kinsie

    Kinsie New Member

    I got my medical records, and a printout from the drugstore showing a 6 month history of what medication I've taken, and took it to the doctor yesterday.

    I had no idea how it would go, I've never been to a pain management specialist before. They had me fill out a whole lot of paperwork. Then, they took my blood pressure, pulse and blood sample. After that, they ushered me in to see the doctor in his office.

    The doctor talked with me for over an hour, going over the paperwork I'd filled out, and asking addiitional questions. I was curious as to how he would approach the subject of FM. I was very impressed. (I was reading his dipolmas when he was out of the room, and it looks like he graduated from Baylor Medical School, and he is a neurologist. He has just now started specializing in pain management. After evaluating everything I told him, he prescribed Ultram and Neurontin. I've seen these drugs discussed here on the board. Does anyone else take that combination? I don't know which one ( or maybe both) is making me sleepy!!

    He said we would start out with these 2 drugs, and go from there if they don't work to something else. I sure hope I get some help from this medication. I've never really had anything to take that did much for me.

    Is this typical of how your first viist with a pain doctor goes?

    Kinsie
  2. HoosierTim

    HoosierTim New Member

    I don't mean to be the bearer of bad news, but for me, a male, Neurontin made me pass out in the mall.. A neuro gave me the stuff.. A real pain doc / Anthesiologist typically will in my experience guide one away from the latter terrible Neurontin, although I've heard it helps some, but again I had a terrible experience with it. They say Neuro's are the worst about using Opiates for pain.. I don't know why, but I've heard this.. Check out www.drfisher.org in case you're really intererested in true pain management theory. Harvard trained doc.. Great guy!

    Tim
  3. gidgetsmom

    gidgetsmom New Member

    Before I went for my first appt. they had me fill out a HUGE amount of paperwork also giving them permission to contact previous dr's files, xrays, bloodwork, etc.

    At my first appt., the nurse went over all the paperwork making notes along the way. The dr. did the same when he came in. Then he started the physical exam that had me in tears because of the pain. The whole appointment lasted almost 3 hours.

    BUT, like Tim said, anesthesiologists make better pain docs. They specialize in how to stop pain. Personally, I would question why he just now started specializing in pain management.

    I don't know anything about neurontin, but I did take the Ultram for about 8 months before I went to pain management. I got good results with it, but developed a tolerance to it quickly. My pain management dr. was more comfortable with me on 3-4 lortab a day vs. 8 ultram.

    I also found that taken to close to bedtime, the ultram kept me awake. Like I said before, don't know about the neurontin. I take 75 mg. amitriptyline for sleep and pain at bedtime too.

    (I have fm)
    Hope this helps you some!

    Shelley

  4. Lendy5

    Lendy5 New Member

    Hi Kinsie -I have tried the Ultram with no relief but many here on the board have had alot of relief with it.

    So far I haven't tried the neurontin but prior to me being diagnosed with fibro I was referred to a pain specialist. I didn't know it at the time but when I had my initial visit I evidentally signed a contract that stated I would not seek another doctor for any pain relief.

    The contract was for one year and haunted me for several months because my pain specialist would not prescribe anything stronger than elavil. I just wanted anything that would work but everything I knew that did work I couldn't get.

    I have always wanted to try another pain specialist but because of all my problems no one doctor is going to treat all and I have to see several specialist. I know there are some great docs out there but not in this area.

    I finally found a D.O. (Doctor of Ostheopathy) out of town and he is very compassionate and willing to try anything that works.

    Good Luck and I hope this works out for you.

    Carolin
  5. dinkbay

    dinkbay New Member

    Hello kinsie,
    Just wanted to tell you that while I have not been to a pain management clinic myself, my personal doctor has prescribed for me the neurontin and I do not have a problem with it and I have taken it for several months now. It has been so much of a help for me personally to ease my pain. I am not familiar with the ultram you mentioned. If I were you I'd give the neurontin a try and see how it does for you.

    Good luck to you and I hope it works for your pain.
    Soft hugs.

    dinkbay
    [This Message was Edited on 12/28/2006]
  6. Kinsie

    Kinsie New Member

    I really appreciate your replies. One reason I think this doctor is now specializing in pain management is because our city has grown a lot, and we did not have a specialist. I'm starting to see all kinds of new doctors in our area.

    So far, I've been kind of drowzy, but I'm sure that will pass.

    Again, I always appreciate everyone's input!

    Kinsie
  7. susabar

    susabar New Member

    Hi !!

    Neurontin gave me really bizarre dreams so I stopped taking it.... I hope you have better luck !!!

    Susabar
  8. RedHeadEMT

    RedHeadEMT New Member

    For me, the Ultram was great for my milder pain, but after 6 months or so, it just didn't work so well anymore.

    The Neurontin REALLY helped my pain tremendously, but made me wicked tired and gave me terribly blurry vision. When I got hired to work on the ambulance and knew that I would be driving an emergency vehicle, I sadly had to get off of the Neurontin.

    Hope it works well for you! Also, the drowsiness SHOULD get better as you take it longer.


    Take care!!

    K
  9. Kinsie

    Kinsie New Member

    Again, I really appreciate all that have replied!

    Kinsie
  10. getfitat40

    getfitat40 New Member

    You've had a lot of good advice here - I just wanted to add that all of us (each of us) reacts differently to meds and you need to listen to your body's signals which are unique.
  11. kat1957

    kat1957 New Member

    Did the Dr. start you on a low dose of the neurontin? That drug did help my pain but OMG it made me SO sleepy! Even a low dose gave me a drugged feeling. It is definately one you have to start out low and build up to a higher dosage. The ultram for me was awful! Only thing it did was make me have weird feelings and thoughts in my head and also drugged feeling. So I did not have good results with those drugs at all.

    I have to agree with others that said those are not typical of pain Drs prescribing habits. Or not in my experience. I got those drugs from my former family Dr who was scared to death to prescribe anything for pain. And also who said Fibro was NOT treated with pain meds even though he admitted to knowing little about the illness. Notice I said "former" family Dr? That is why!

    Kinsie, what levels of pain have you been experiencing? I know all of us are different. When I was dx 14 yrs ago I could manage with milder meds but now I can't. I have nerve pain now and it is a whole new ballgame! Just make sure the Dr. understands your level of pain. Like describing it on a level from 1 to 10 can help. I have a wonderful pain Dr. that I never have to explain or justify my pain to him. He "gets it" and I am so thankful for him!

    Good luck with your meds.

    Kathy
  12. FMsolider

    FMsolider New Member

    Please, be careful with the Neurotin. For some it works so well and for others scary things happen. I became suciadal after 2 days of it. After tons of evulation they detrimed that it was from this drug- and not from depression, cicrumstances ect...Ultram to me was a joke - might as well take a placebo. Sounds like a good doc there- who is willing to help find a great combo for you. It may take time - but hang in there!
  13. romanshopper

    romanshopper New Member

    I take neurontin 2400 mg - but initially was given that for neuropathy, which I also have. It helps with the fibro too.

    I was given ultracet also for it, but it was expensive, so I switched to tramadol and just add in my own tylenol - it is much more affordable that way.

    The last 2 weeks have been great - the addition of celebrex has brought me some sunshine. my 'cocktail' is neurontin 2400 mg a day, celebrex 400/day, and mirapex .5/DAY tramadol/tylenol as I need to add to it.

    Hopefully this will keep working. It has been nice to feel human. This week is my period, and so far, knock on wood - even that is going ok. Normally I'd be in the bed all week.
  14. Kinsie

    Kinsie New Member

    So far the only side effect I have had is being kind of sleepy.

    I will have to say even after only 3 days I was able to walk further today during my daily walk. Compared to what I was taking, I think these 2 medications may help some. No weird feelings or dreams ( yet, anyway).

    Kinsie
  15. PVLady

    PVLady New Member

    I had better luck with Ultram and Tylenol. Before taking any new drug, carefully read the side effects and precautions.

    You know your own body better and will know what problems to look for. I have spent so much money on prescriptions for drugs I did not take. I am sure you will take Ultram, but I don't know about Neurontin. Also, research drug interactions with any other meds you take.

    It is all trial and error, so if you try these meds just make sure to let your doctor know if they are not helping. He will probably try different combinations of meds until they hit on what works for you.

    It sounds like you found a good doctor.



  16. kmoss55

    kmoss55 New Member

    I have been takin neurontin for about 8 months. It really helps with the pain of fibro. It does ,however, make me sleepy, even after 8 months.
    I am glad that the dr. put me on this.
    Hope it helps you!

    kathy
  17. Aberlaine

    Aberlaine Member

    I had an appointment with an anesthesiologist who also specialized in pain management. This was over two years ago. He put me on the generic of Ultracet. My family doctor put me on diclofenac. Before my knee surgery three weeks ago, I could get away with one diclofenac and one Ultracet a day. Now I'm on Darvocet, three times a day, and at times it doesn't help.

    I think, because my surgery was in my knee, I'm compensating for the pain and my posture has gone to heck! I'm developing all sorts of trigger points in my thighs and lower back. I'm hoping that, once my knee heals completely, I can go back to the Ultracet.

    Nancy
  18. nightngale

    nightngale New Member

    I have been on one or two pills a day, and do ok, I can actually drive and it helps me function. I have noticed as it wears off I get grouchy and moody. I also tried Neurontin it made me feel weird and anxious. Maybe you should try the two meds seperately to see the side effects you get.
  19. RedHeadEMT

    RedHeadEMT New Member

    Hi Kinsie,

    I also wanted to mention something real quickly...

    I'm surprised that so many people find it "weird" that your pain doc has started you on these meds. In my experience, it is a GOOD sign when a pain doc starts off slow, especially if you have not had any pain-related rxes before!

    I would question your pain doc if he immediately rxed something really strong without first trying something with less side effects. For what it's worth, I think it's a great thing that he is starting you off on these meds. I think that you should be fair and give him time to work with you. I'm sure that if these meds do not work, he will try you on something else, something stronger, etc.

    Anyways, that's my two-sense!!!

    Take care,

    K