I hope this doesn't come across wrong...kind of a rant...

Discussion in 'Fibromyalgia Main Forum' started by dragon06, Mar 28, 2006.

  1. dragon06

    dragon06 New Member

    I hope this doesn't come across wrong...I read posts everyday about people in pain/meds and I just feel like I need to say this.

    (or any other meds for that matter)

    You have an illness that is debilitating. There is nothing wrong with taking medication so that you can live your life, so you can function, so you don't have to sit in tears in pain.

    It really bothers me when I see people hurting cause they think there is something wrong with taking medication if you need it.

    I know that the way some other people respond to the amounts of meds we have to take is discouraging but we have to learn to put that aside and take care of ourselves.

    If people are able to find supplements and alternatives to meds that work for them then I think that is wonderful! I applaud that! But we all must understand that that will not work for everyone.

    Please Please Please don't shy away from taking medication because you think that taking meds means you are giving in to this dd.

    I look at it in the opposite way. If taking the meds means I can get out for a day, or do the laundry or go on a date with my husband etc. then the meds are helping me to BEAT this dd. They are my weapons to put this dd in it's place!!

    No matter what other people say or the unbelieving doctors say, there is nothing wrong with it!

    If anyone comments just tell them to go fall down thier stairs about 5 times in a row and then multiply that feeling by 10 and then tell you they wouldn't want something for the pain. And then tell them to live with that pain for the rest of thier lives with no breaks, not to mention all the added extras like IBS and so on...

    I watched my mom live with this for 22 years so far and I am currently living it and I say if there is a chance that meds will take away my pain for a little bit or even the edge off then I will gladly take them, that is what they are for.

    Please don't get me wrong I am not saying that alternatives don't work, I know some work for some people and that is great.

    What I am saying is we need to get rid of this stereotype or beleif or whatever it is so that people can feel like they actually have a choice. So people don't feel like they can't take meds or that taking meds means they are giving up! It needs to be a free unbiased choice!

    I am sorry if I have offeneded anyone as I have not meant to and sorry this post ended up being so long.
  2. Thistledown

    Thistledown New Member

    My mother-in-law who is a nurse once said to me that diabetics have to take medication to live because their body doesn't work properly by itself, and people with other conditions have to take medication for a lifetime.

    If you can live WELL without them, then do so, but DO NOT feel the need to avoid medication because of shame. Medication is there to help us live to our full potential, whether as a short-term or life-long aid. Only you can decide what your quality of life is and what you need to do to make it the best it can be. Don't let anyone push you around
  3. rosemarie

    rosemarie Member

    Bless you for what you said, YOu just made my day. I needed to hear this from someone who understands this pain and how bad it really gets. I do take my narcotic pain pills but I have to deal with family to hates it that I take them at all. And I have been told by family taht I am addcited to them too. and the funny thing is I don't talk to them about what I am taking or what I am on. They know I am taking something and they blame the pain meds for my being so sleepy and that is not why I am , I have and am still in one of the wrose flares I have ever had, and I hate this dd. But thank you for saying it is OK to take my meds.

  4. dragon06

    dragon06 New Member

    Not everything I have tried has worked and I have had some with bad side effects but I came out of them ok.

    If there is a chance it will help me feel better then dammit I will try it!
  5. libra55

    libra55 New Member

    I agree with you. Bless you for saying it.

  6. mme_curie68

    mme_curie68 New Member

    No one should have to suffer in pain - period. Here in the Boston area, many of the area hospitals have a "Patients Bill of Rights" for pain relief.

    People who hold back from taking pain medication as prescribed when they NEED it are doing themselves a disservice. Why? Because if you wait until the pain is really bad to take it, clinical studies have shown that the actual relief effect and reduction of pain that the medication provides is LESS than if you took it before the pain builds up into a crescendo.

    Even though I am a career chemist I believe that conventional medicine and alternative medicine are not mutually exclusive. I think integrated treatment to find whatever works best for the patient is the way to go.

    If you have a pain med that helps, TAKE IT. If you have a supplement that helps, TAKE IT. If acupuncture, massage, Reiki, whatever helps, DO IT.

    Madame Curie
  7. Smiffy

    Smiffy Member

    I agree, but the only pain killers that touch my pain also make my brain too fuzzy to function. This means deciding between getting anything done in a day or having a day without pain. I'm quite sure that there are better painkillers out there, but my doctor's haven't prescribed them for me.
  8. Mikie

    Mikie Moderator

    For those with chronic pain taking opiods is unfounded. A very, very small percent of those people become psychologiaclly addicted to their meds. They can develop physical dependence and tolerance, but these are normal physical reactions and not psychological addiction. Many docs don't even understand this distinction.

    I made a personal choice to try the Guai treatment because, like Smiffy, pain meds relieved my pain but the side effects were more than I wanted to deal with. The Guai works so slowly that I still had to take my Morphine for about a year into the Guai treatment. I never felt stigmatized because I was taking the Morphine; I needed it. I'm glad I tried the Guai because it has been a God send. It has allowed me to get off opiods for all but injury or the occasional flare from out of the blue. The Guai isn't perfect but I can't tell you when I last had to take anything stronger than an OTC pain med. I do believe that the Klonopin, which I'm trying to wean off of, has helped my pain too.

    I have always recommended that anyone who has a problem getting the necessary meds from docs see a pain specialist who understands our kind of pain and believes in using meds to manage that pain.

    Love, Mikie
  9. pemaw54

    pemaw54 New Member

    My sweet husband is the 1st to ask, DID you take a pain pill. or Go take a pain pill. I dont know what I would do without him behind me. Noone else begins to understand what we go through. Ive been up the last 2 nights with the kindof pain you would do anything to make it stop. Please pray for me because I cant seem to pray for myself

  10. futurehope

    futurehope New Member

    I understand having to take meds for pain (especially when severe).

    If I did not take meds for my Panic Disorder, I would probably not be here today.

    I do not take much in the forms of other meds., I guess I have this fear that it will hurt my organs, as some meds do. But if it comes down to "have to" for severe pain, I definately would.
  11. ericdinbstn

    ericdinbstn New Member

    I have to agree. I've been suffering with this dd for years and only last week did a doctor finally acknowledge that there was actually something wrong and for the first time I was given an actual diagnosis of Fibro. I'm now on four medications to control pain, help me sleep, etc. and I'm grateful for every single one. I can finally live my life. I'm not totally pain free, but I have more energy and the pain is at least to a point where it doesn't have to be the first thing, last thing, and everything in between thought of my day.

    Thank you for saying what you said. People raise their eyebrows when I tell them how may scripts I have.

  12. Yucca13

    Yucca13 Member

    Most of the pain doctors I have encountered believe in keeping a steady level of pain medication in your body.

    I have a duragesic patch that I change every two days (every three wasn't enough). The only side effects I feel occasionally are sleepiness and some sweating. I had the sweating from Vicodin also.

    I have breakthrough pain medication also The doctor will change that every three months to another medication so that my body will not become too used to one and not work as well.

    When the pain med makes me too sleepy to function, I also take Provigil. I become depressed if I can't function due to pain or sleepiness so I believe in doing what I can (other modalities also like exercise, eating right, etc.) to keep me keepin on keepin on. I do not allow anyone to make me feel guilty. They do not live in my body :)
  13. mamaeagle0103

    mamaeagle0103 New Member

    I am sooo depressed since my diagnosis. I am a sober member of AA and am fully aware of my alcohol addiction. Hell, I drank because of the amount of pain I was in. I now have to take pain meds and, because of my alcohol addiction, I can't really even share the issue with my group. I am going to try to talk to my sponsor tonight about it. She has HEP C and if anyone could understand a chronic illness you would think it would be her. I just have a feeling it isn't going to go over well and in that case I will have to split ways. I can not have a sponsor that I can not go to with EVERY aspect of my life. I am scared but it has to be done. I feel so distant from my AA homegroup since my DX 3 weeks ago. I just really can't talk to anyone there about it because I do choose to take narcotics when my pain is bad, I have had no other choice. I have a 3 and 5 year old to raise and be home with all day. It is not easy. I am grateful that my symptoms are not as severe as others, but when they flare, watch out!!! Thank You again for your post and putting this out in the open.
  14. kaiasmom

    kaiasmom New Member

    I think it is really sad that so many people are out there suffering. I am one who needs pretty heavy duty pain meds to have any level of functionality, or quality of life. So, I take them, so I can function & enjoy life - a little anyways. It's not like I'm ever pain free, but without my meds, I would be lucky to make it out of bed every morning. Much less to be able to work & take care of my kids.

    Just my two cents. I agree that if people can get by with supplements, or other treatments, that is wonderful for them. I just hope that they can also understand that what works for them, doesn't necessarily work for me.

    Take care,

  15. Cromwell

    Cromwell New Member

    I think people should do just exactly what you say, whatever works for them and they feel OK with. I only wish I could take something for the pain that did not upset my tummy so much.

    Your post was fine.

    Love Anne C
  16. NyroFan

    NyroFan New Member

    It is a delicate balance. I am loaded up with meds and have no regrets.

  17. Sheila1366

    Sheila1366 New Member

    After spending 2 days without hydrocodine I am going to have my husband go with me to my next appt. this Friday and ask why was I not given anymore pain meds.

    Yesterday and last night I felt like I could just end it all just to stop the pain.I have nothing to stop it.SO I took 2 klonopin to knock me out.I don;t want to overuse that drug when a simple pain pill every 4 to 6 hours would due the trick. Atleast enough that I won't feel like a zombie.

  18. deb06

    deb06 New Member

    I think you just brought to light an important issue only. I also went to treatment for alcohol. Only because I knew I could not continue using alcohol to deal with my chronic pain, depression, anxiety, sleep disorder etc. I drank to keep my life, keep working etc.

    Until I knew I could not continue. I was using alcohol to medicate myself.

    I quit work. Went to outpatient. I tried to live with nothing to help with the pain. I COULD NOT.

    All my doctors have been told I went to treatment.

    My primary then sent me to a rheumy and I was put on oxycodone and hydrocodone and have been on the same dosage for 3 plus years.

    I also don't go a AA for the reason you mentioned. They would think you were "using".=-cheating somehow.

    They wouldn't say anything about my blood pressure meds or thyroid meds but certainly would about pain meds.

    I also benefit far more from this message board because I have never had a desire in 6 years now to have a drink of alcohol.

    I knew I had to quit drinking before going on proper medication.

    The Judge in my first case saw this in my record and determined that I had "drug seeking" behavior to deny me. The second Judge saw that I had no problems for years and had been drinking prior because of the pain. He had compassion- saw the truth- and gave me benefits.

    If I could have gotten by without pain meds- I would have. I tried to. I am thru letting people try to make me ashamed to try to have some quality of life here.

    In other words, I totally understand where you are coming from.

    Luv, deb
  19. tandy

    tandy New Member

    I'm not even able to read all the replys here
    due to PAIN. But I just wanted to thank you for this post because I feel exactly the same.
    This DD is terribly horribly painful!
    and without meds I can't do basically anything most days~

    I go without narcotic pain meds only because not one dr. out of 5-6 will write me a script!!
    sure,..over the yrs I've gotten occasional scripts but NEVER a refill! what do they think?? that in 10 days when the pills run out,.,I'll be better??
    we all know the answer to that one,unfortunately.

    I'm still tryin to get 'heard'
    I'm functioning at about 20% at best.
    Thats not living!

    I wish by showing this post and its replys to one of my drs. they would then help me. But I doubt it.

    I'm glad you brought this up,..it effects many of us living with chronic pain.
    Pain needs to be addressed!

  20. kriket

    kriket New Member

    How do yall get your doctors to prescribe such powerful pain med. My doctors will not even budge. I'd take them too, if I could get em. Forget everybody that tells you you should'nt take em. At least yall have something to take that's not something totally rediculous for pain like an antiinflammatory!!! Oh yes, I've been to doctor to doctor to doctor. I just get so aggrivated w/ doctors in general. So sorry-hit a sore spot-Had to vent!!!!!