I just have to say this post is getting SO MUCH FEEDBACK!! Is anyone here on oxycontin????? I need some input.. PLEASE! and an added note to MADWOLF.

Discussion in 'Fibromyalgia Main Forum' started by lindasue, Oct 28, 2002.

  1. lindasue

    lindasue New Member

    Hi,
    I have had a hell of a weekend......PAIN, Pain, pain....I finally went to the ER on Sat. after talking with my dr. and got a shot of demarol. It helped...I am presently taking 100 mg. of Ultram 4 times a day. And then .2 to .5mg. of klonopin during the day for break through pain. AND .5 klonopin along with 1 to 2 10mg. of flexaril at night to help me sleep. Oh, I forgot to say that the dr. ALSO had them give me a steriod shot at the ER for pain. Well, that wrecked the demarol.....I was so hyped up from the steriod that I couldn't sleep.....I was a wreck!!!!!
    Well, yesterday a friend of mine gave me a 20 mg. oxycontin and I took it yesterday afternoon. THE PAIN WAS FINALLY GONE!!!! I took another one before going to bed along with the .5mg of klonopin. I had a great nights sleep and DID NOT wake up with pain this morning.
    I called my dr. to see if he would prescribe the oxycontin for me instead of all the other stuff I am taking and he wouldn't......I don't know why it is ok for me to take all these other pills and they don't really help and I can't get the oxycontin.....Does anyone out there understand this kind of thinking on my drs. part....If you have any answers for me I would appreciate hearing from you.....Am I just missing something???????
    I really need some input...
    Thanks all,
    Love,
    Linda
    [This Message was Edited on 11/03/2002]
    [This Message was Edited on 11/03/2002]
    [This Message was Edited on 11/07/2002]
  2. lindasue

    lindasue New Member

    Hi,
    I have had a hell of a weekend......PAIN, Pain, pain....I finally went to the ER on Sat. after talking with my dr. and got a shot of demarol. It helped...I am presently taking 100 mg. of Ultram 4 times a day. And then .2 to .5mg. of klonopin during the day for break through pain. AND .5 klonopin along with 1 to 2 10mg. of flexaril at night to help me sleep. Oh, I forgot to say that the dr. ALSO had them give me a steriod shot at the ER for pain. Well, that wrecked the demarol.....I was so hyped up from the steriod that I couldn't sleep.....I was a wreck!!!!!
    Well, yesterday a friend of mine gave me a 20 mg. oxycontin and I took it yesterday afternoon. THE PAIN WAS FINALLY GONE!!!! I took another one before going to bed along with the .5mg of klonopin. I had a great nights sleep and DID NOT wake up with pain this morning.
    I called my dr. to see if he would prescribe the oxycontin for me instead of all the other stuff I am taking and he wouldn't......I don't know why it is ok for me to take all these other pills and they don't really help and I can't get the oxycontin.....Does anyone out there understand this kind of thinking on my drs. part....If you have any answers for me I would appreciate hearing from you.....Am I just missing something???????
    I really need some input...
    Thanks all,
    Love,
    Linda
    [This Message was Edited on 11/03/2002]
    [This Message was Edited on 11/03/2002]
    [This Message was Edited on 11/07/2002]
  3. cpalance

    cpalance New Member

    a very addictive drug. It is a schedule 2 or something like that. You have to have triplicate prescription. It is not something they can just call the Pharmacy for. I know alot of docs don't like to do that level of drugs unless that is their speciality. You know Pain Management. Anyway, I guess alot of people misuse it, so they don't like to prescribe it as you can die of overdose.
    I realize that is a pretty simple explination, I am sure a nurse or someone who knows more about drugs will be along to explain it better.

    Glad you got some relief,

    Cindy
  4. Duffsangel

    Duffsangel New Member

    In my opinion, most doctors are more worried about being "Doctors that prescribe narcotics" than they are about their patients in chronic pain. The most I have gotten so far is Hydrocodone (5 mg, the lowest amt.) and now I am taking Norco (less tylenol to hurt the liver). It helps, but I am only allowed 8 pills a month!! Obviously these doctors we are seeing have never experienced chronic pain of any sort!
    I'm sorry you are in this predicament...a lot of are.
    hugs to sustain you,
    Tammy
  5. allhart

    allhart New Member

    oxy was the best med i ever used for pain didnt have any withdraws after stopping it and i had no side effects but everyone is differnt,go in and talk to your dr tell him why you want it also ill try and find some info for you to take to your dr as soon as i get a chance,there is alot of abuse with oxy so much so some are trying to get it banded thats why your dr might not prescib it
  6. lindasue

    lindasue New Member

    Thank you so much for the imput so far.....I can see the problem with such a STRONG and I suppose addictive drug. I know for myself, I haven't felt any pain today.....but I sure can feel the affects of this stuff.....I have cleaned my house and done more than I have been able to do in one day for quite a while.....HOWEVER, I wouldn't dare leave the house. I just don't feel "together" enough in my thinking (and as you all know so well our thinking isn't the best anyway). I have also felt somewhat anxious at times........So. I think I'll stick with what I'm taking now. I made an appointment to see my doctor for Wed. at 4pm and I'll talk with him about something else or just stick with what I am on now and see what happens.
    Thanks again ......
    Much love,
    Linda
  7. cpalance

    cpalance New Member

    How in the world do you get by with 8 pills a month? I take 8 Lortab 10/500 every day.
    God Bless You,

    Cindy
  8. cpalance

    cpalance New Member

    How in the world do you get by with 8 pills a month? I take 8 Lortab 10/500 every day.
    God Bless You,

    Cindy
  9. lindasue

    lindasue New Member

    Well, now I am really going to give this some thought...I appreciate the input so far and I really have had a PAIN FREE DAY !!!!! The first in sooooo long. I know you understand what we go through. The first thing a doctor asked is "Where is the pain"......DANG it is all over!!! They look at you like you are nuts.....How do you explain that every fiber of you body hurts....it is like your bones are being attacted from the INSIDE OUT!! Then they really think you've lost it......I had the doctor in the ER ask me, now get this......the very first question...."How MUCH do you DRINK"?????? I DON'T DRINK! I told him and he just stared at me...honestly for about 30 seconds...like I was lying to him.....THe JERK!!!!! I'm there for almost 3 hours and they still hadn't given me anything for the pain.....and I cried like a baby (I'm a 53 year old (sometimes young) woman..) I would sit for a while and then have to stand up and walk (the little I could walk) and then sit again....they really treated me like I was just there to get a DRUG FIX!!!! And my own Dr. called and told them to give me the shot of demoral!!!!! I hate the way we are treated with this DD. And now I take so many pills I can't keep up with which one I take when, anymore. I'm sorry.....I just need to cry out! I know many of you have been treated so badly regarding this DD. I have read your posts about how your family, friends and docs don't believe you are really even sick....This sucks!!
    I know I have started rambling and probably not making much sense....I'll keep watching for your input and try and see what the doc says on Wednesday....THANK YOU, THANK YOU, THANK YOU for giving me help, love and above all "understanding".....
    Much Love,
    Linda
    [This Message was Edited on 11/03/2002]
  10. achy

    achy New Member

    20 mg 2X day with percocet 7.5 for breakthru.
    It has helped better than anything else, but I am still in pain.
    I spoke to my sis last night...she works for hospice. They cannot get oxy for their cancer patients! They have had to Rx Methadone. She could not believe I could get such a "strong medication" fors something like fibromyalgia.
    I can't get her to understand how bad I hurt, even though she has a bad back....anywho
    Drs don't Rx it because of the abuse potential. Druggies cut the pills in half or even snort them to get high. So, the rest of us have to pay for their stupidity.
    Sit down and have a long talk with your doc. It helps if you've been a patient for a while...it's a trust thing. My doc said I know you're in severe pain...I know your not going to sell them, or abuse them, So I don't have a prob. with Rxing them. I even get a 90 days supply at a time, thru my ins program.
    write down the exact kind of pain, where, how bad, how long it last, how often for 1 week & take it to your doc.
    Do not be over dramatic. simple is better.
    If he still does not agree, seek out a REPUTABLE pain clinic.
    Good luck
    Achy
  11. lavender_butterfly

    lavender_butterfly New Member

    LOL!!! You go, girl!! Tell those salespeople where to go!

    Well, I am on percocet. I wish I had the pill bottle with me today, but I do not. So I am not exactly sure of the milligram dosage of each pill. All I know is that taking a whole pill at one time is NOT an option for me at all! I can hardly stand up and nothing makes sense to me if I take a whole one and my tummy does a real number on me, too.

    The kind of pill that my doc prescribed for me can be cut in half. I asked the pharmacy and they told me it was okay to do that. So I take a half pill, twice a day. Sometimes, I take three, if I am having a really bad day or if I am awake for much longer than normal. I do have some unpleasant side effects, but in my opinion, they are small in comparison to the pain I was in. I do get spacey and very dizzy sometimes. I get nauseous quite often. And if I am already tired when I take it, I have to struggle to stay awake. At night, that is great. At work, not so great! LOL!

    When I was first diagnosed, my doctor prescribed naproxen for pain. Which did almost nothing. I went to talk to her about switching my medications around and I thought I would have a fight on my hands. Just the opposite!! She was super excited that I had done my research and I was so involved with my own treatment. I asked her what she would recommend for pain. She told me percocet, right away, without hesitation. She then went into a very, very long story about her own professional responsibilities when prescribing these types of medications, problems she had experienced in the past with patient abuse, and advised me to be very careful. I can understand her caution, simply because of all of the experiences of other people that I have read, being refused narcotics, etc. When I need a refill, I have to go to her office and get a hand written script. No refills, no phone refills, nothing.

    This was my first month on percocet and I feel like I almost have my life back. It made such a huge difference in my level of pain. I can actually function and continue to work and to me, that is a miracle. I know it is not a cure. I know I need to work hard towards finding some other way to manage my pain. But for now, it is such a blessing.

    I had to call her office yesterday to get a handwritten script. The nurse was horribly rude to me and treated me like a filthy, drug-grubbing addict. Her attitude was repulsive. She told me she doubted that my doctor would just write out another script and leave it at the front desk for me. I gently advised her that it never hurts to ask, so please ask for me. She called me back and left a VERY begrudging message on my voicemail. My script is waiting for me at the front desk right this very minute. YAY! I am going to be sure to share that little bit about the nurse with my doctor when I see her in her office next week...

    I wish you the best of luck! Thank you for allowing me to share my story. I send you bright wishes for a wonderful doctor who will help you manage your pain!
  12. pamela

    pamela New Member

    People like the nurse Lavendar just explained make me sick. The world is full of them and it bites. I think rude people that sit behind a desk like that and leave nasty messages are totally unhappy in their world. If I were you lavendar I would tell her Dr. boss about her attitude!!!! Just thought I would get that off my chest. Cheers!!! pamela
  13. cdnjewel

    cdnjewel New Member

    Hi there
    I have been on oxycontin for over a yr......it is THE only drug that has helped me get rid of most of the pain and I take 20mg twice daily they are 12 hr time released. There is a big controvercy over this drug in that street drug addicts crush and snort the drug for a heroine like high. I have seen doccumentaries on it. These pills are not to be broken down in any way shape or form. If I didn't have the oxy I don't think I'd be alive today...to be honest.
  14. toots2

    toots2 New Member

    Speaking as someone who has taken oxy in the past, I would never take it again. As far as I am concerned it is much too strong a narcotic for fibromyalgia pain. I realize we can hurt terribly, and I do almost everyday. I took oxycontin for a year, and yes, was almost completely out of pain. I also was addicted, euphoric most of the time, constipated to the point that I was having problems with my colon, and slept most of the time. A little oxycontin goes a long, long way. My dr. had my dosage too high. I never abused but knew it had me hooked. Got off of it slowly and had horrible, horrible withdrawals. Craved the drug for a month after quitting it. My dr. says it is the closest thing to a heroin high. Good thing I stopped it as my insurance carrier decided they would pay for oxy only if it was prescribed by an oncologist and for terminal cancer pain only. THIS IS NOT A DRUG THAT SHOULD BE USED FOR ANY LENGTH OF TIME AND DRS. KNOW WHAT THEY ARE DOING WHEN THEY REFUSE TO PRESCRIBE IT. There are other medications not as stong. We cannot be out of pain all of the time. As my pain specialist says, the most we can hope for is about 40% pain relief. Narcotics are not always the answer. Toots
  15. azcrum

    azcrum New Member

    A friend of mine was on this last year for a back injury. He got addicted to it to the extent of writing his own prescriptions from a stolen RX pad. He got caught and went into detox. I have heard this is a very addictive pill and I wouldn't take. I too, take Ultram along with muscle relaxers and effexor. And I will agree with you, a narcotic is going to bring you more relief than the Ultram but my Dr won't give me narcotics. Alot of them won't.
  16. Shroomer

    Shroomer New Member

    Bravo RN, I agreed 100%, It is a great med for some, and as you say obviously can be abused like many other drugs out there. I have been on it for the past four months, and it has made my life worth living, Pain is something no one in this day and age should have to put up with (for extended periods of time). I tried many other meds that didn't work for me, and to have hit this one that gave me a life back has been a godsend. If there is a drug out there that helps a person manage pain daily, then yes GO FOR IT, and yes there are side effects, but as for my case the benefit of having my life back far outweighs the side effects.
  17. musette

    musette New Member

    I too am on Oxy 20 mg X 2, plus oxycodone for break through. I was at the level of it hurt to sit, sleep, walk, or breathe most days. I finally saw the Pain Management doctor and he immediately stated that he could help. He did exactly what he said he would. I am not pain free by any means, but the improvement is phenomenal. I can actually go to a movie with my kids. I can cook a meal for my family. I still have days of extreme discomfort, but I have a part of my life back and I will take part over none at all. Hopefully you can find a Pain specialist in your area and see him or her. I have seen every type specialist there is in the area and some think Fibro is in your head and doesn't really exist, and yes some think you are drug seeking. My response to those individuals were you wouldn't know until you are in my skin and I just was persistent until I got to somebody who told me I wasn't crazy, he understood, and told me he could help and he did. Good luck, I will keep you in my prayers.

    Musette
  18. Dukate

    Dukate New Member

    Dear Linda, I am 64 and have had cfs,fms since age 44. Two years ago my family doctor who has been working with me over the years on dealing with these awful things put me on oxycontin. It was his choice. It is also the choice of many of the big name doctors when your pain cannot be controled with other drugs. Depending on what state you live in, yes, it can be a pain getting the scrips filled. But once you are established with a drug store you will be able to get your oxycontin, (hopefully) without any problems. I highly recommend it. The biggest thing it does it keeps you from constantly going up and down with the pain. Once you get on the right dose for you, which can take a little time, you will find that your pain is better controled. You are on a schedule of taking the oxycontin so you don't wait until you are in pain to take it, you take it before you reach that point. There are some side affects as with all drugs. Itching is common. That went away with me in a couple weeks. Constipation is also a problem so ask your doctor for something to help with that. That stays with me unfortunately. It is a controlled substance so there are no refills, you need a new prescription each month or for however long your doctor prescribs, my gives me enough for a month. He is an exceptional doctor and person. All I can hope for is that you have a regular doctor that will work with you. I know how hard all this is but hang in there and push for the kind of help you need. I live in Florida and this state is crazy when it comes to dispensing narcotics so it wasn't easy. If I can be of any help please feel free to e mail me at Borene1@aol.com.
  19. toots2

    toots2 New Member

    I see that I have offended some here and I'm so very sorry. When I get on my soapbox about oxycontin, my aggression comes out. I should have explained my situation better. Like I said, I was on a high dose of oxycontin, 120 mgs. a day to be exact. That is way too much oxycontin for anyone to take over a long period of time. I see that some of you are taking 20 mgs. twice a day. Had my dr. prescribed that dose, I'm sure I would have been fine. It definitely is a wonderful drug for pain relief. I was just taking too much. Didn't know a thing about it when he prescribed it. Also, I live in Ky., where the major drug epidemic occurred. The effects of oxycontin were on the news, t.v., radio, magazines, etc., and this went on for months. I am sincerely happy that those of you who take it are getting good results and that your pain is much better. The only thing I would advise is to watch having the dosage increased. As with any pain medication, it looses its effectiveness after a while. My pain specialist says this is especially the case with oxycontin. I am all for taking pain medication and take it myself. I could not do without it, believe me. I just had a bad experience with oxy because I was taking too much. I wanted others to know this could happen to them. I did cut back slowly but still had withdrawals, horrible withdrawals, in fact. I wouldn't wish that on anyone. It was months before I felt normal again and did not crave the drug. Again, I am sorry to all of you who have found relief with this drug. I know what it feels like to hurt every day. Hope I am forgiven. Toots
  20. lindasue

    lindasue New Member

    Y'all have been just GREAT!!!!! However, I'm still not sure what I am going to do about this...I was supposed to go to the dr. yesterday at 4pm and I had fallen asleep....which was needed... and didn't wake up until about 4:30 so I called and rescheduled. I'm seeing him at 2:15 Friday... I'll talk with him more at that time....
    Thank you sooooo much!
    I'll of course keep ya' posted!
    Love and hugs,
    Linda Sue