I know I have asked this before, but I am freezing

Discussion in 'Fibromyalgia Main Forum' started by Sheila1366, Nov 11, 2005.

  1. Sheila1366

    Sheila1366 New Member

    What is the deal with this constant cold chills I am having with no fever?Does anyone know what this might mean?I called RD today to ask about it,she must had been pretty busy and never called me back.This is such a real problem along with the pain and faitigue that is always apart of it.
  2. LittleBluestem

    LittleBluestem New Member

    You will feel more cold at a given tempurature, the dryer the air is. Most furnaces dry the air. Adding some humidity to the air in your house may make you feel more comfortable and will be better for your furniture, as well.

    You lose a lot of your body heat through your head. I wear a bandana 'kerchief' on my head indoors in the winter.

    I also have an electric matress pad for my bed. I use my 'Bed Buddy' to help keep warm, even when I don't have sore muscles.
  3. Wassy

    Wassy New Member

    I'm always cold. Its ridiculas. I wear loads of clothes and still shiver away. Its a pain in the butt with my partner as he is always boiling so the window is open and I'm sat with 8 layers on and a blanket and still shivering away. Don't have an answer though I'm afraid.
  4. Sheila1366

    Sheila1366 New Member

    I have cold chills not just feeling cold.The chills you get when you have a fever and I get to feeling real tired and start hurting.I will actually break a sweat and feel better.But I am not running a fever.Does this sound the same to all of you?
  5. elsa

    elsa New Member

    Hypothyroid comes screaming to mind. Also very easy for doctors to miss ... if they run only the three standard thyroid tests.

    Very, very common in people with CFS/FM .... Read a study not long ago that had really high % numbers of people with both hypothyroid/CFS.

    If you haven't had free t3, free t4 and rT3 tested yet, then go for it.

    The compounded treatment produced noticable results for me immediately. Not at optimal dose yet as it takes time to build up slowly, but it is effective to a degree immediately.

    I am starting to reseamble myself prior to CFS/FM temperature wise. I used to love the fall ... then got to where I could not stand anything below a Southern-Winded 75 degrees.

    Starting three days ago, in typical Tn. fall climate, I was walking around outside, heard the leaves crunching under my feet and just looked up ... smiled at the sun ... took a deep breath and said to myself "what a beautiful day".

    A few minutes later I stopped dead in my tracks ... "What did I just say? ... It's a beautiful day? It's cold outside, you don't like cold ... My God, I'm getting better."

    I cannot describe how wonderful (and emotional) that moment was for me .... last two days were more of the same. I am so thankful to have found a doctor who is very educated in anti-aging hormone testing and replacement who has a strong interest in treating CFS/FM. He treats all with bio-identicals. Wonderful ....!!

    Please try to get tested by a similar doctor as I did. The solution to the problem is so easy, yet getting the proper help is not. I have vasilated back and forth between being down on my knees thankful and so angry I could spit nails.

    I really think it could make a world of difference in your life.

    Take care,

    [This Message was Edited on 11/12/2005]
  6. ulala

    ulala New Member

    chills, etc. Take your temp at these times that you feel really cold. Your temp. will probably be at least one degree below normal.

    I moved from NJ to Calif. becuase I was just too cold there! I still get cold at lot in Calif., especially when I feel really tired and I have found that my temp. at these times has always been from 97.7 to 97.2.

    I just started taking a combo T3/4 thyroid medicine three days ago and am feeling a little better.

    I think anyone who gets these chills HAS to get T3. I have been begging doctors for years for this and they all say my thyroid is normal. I finally found a doctor who will prescribe T3 and am hoping this will help with this freezing horrible feeling. Don't give up until you find a doctor who will prescribe this for you to try.

  7. Wasabi

    Wasabi New Member

    I have been the same way--chilled to the bone. Since I started T3 replacement, I've been much better. (You can read my previous posts titled "Cold" and "I love my T3.)

    I think it's important to have your thyroid tests read by a doctor who is familiar with our illnesses. Even if your T3 levels are fine, too much of it may be getting converted to Reverse T3.

    Also, your hormonal levels may be off. I have Oxytocin injections too. Oxytocin is a hormone, and it helps your body regulate its temperature. Essentially with FM/CFS, our internal thermometers are often "broken," and so we are unable to regulate body temperature.

    I'd definitely look into T3 and hormonal replacement therapy, such as the FFC offers. Some other FM/CFS specialists (like mine) treat this too, but I mention the FFC, because they have a number of clinics around the country.

    Good luck!

  8. CAAnnieB

    CAAnnieB New Member

    Hi Wasabi!

    I recently posted about being freezing cold all the time. Yesterday, I was SO cold that I couldn't stand it! It is a terrible feeling to be frozen to the core, even when wrapped up & on a heating pad! My coldness has gotten WAY too extreme for me to put up with anymore...

    I am thinking about going to Dr. Michael Powell. Isn't he your Dr? Is he treating your Thyroid based on your lab work or based on your symptoms? I've had some testing done...all within normal range, but I'd have to recheck to see if I had the rT3 tested as Elsa suggested. I don't think so.

    I called my insurance & Dr. Powell is one of their providers. Yeah! But I'm curious about the Lab work he orders. Does he only use a certain lab? If it's not covered by my insurance, it could be too pricey for me. That's why I asked if he would be willing to treat based on symptoms...

    Is there anyone else on the board who sees Dr. Powell? What is his personality like?

    It would be a couple hour's drive for me, but if he's worth it; I'll go gladly...I really want to figure out these hormonal issues.


    Sheila, you are definately NOT alone! Brrrrrr....Hope that you can find a Dr. who will diagnose & treat the cause of your cold chills.

    [This Message was Edited on 11/12/2005]
  9. CAAnnieB

    CAAnnieB New Member

  10. elsa

    elsa New Member

    In case you have had this test done and can look it up, I thought I'd give you the "optimal" number for rT3. Keep in mind though that labs have the right to come up with their own reference ranges and that optimal numbers are not an exact science.

    When dealing with rT3 the number pg/ml should not be greater then 145. ... The reference range on my lab work is 90-350. Geesh, reference ranges are unbelievable sometimes!

    If memory serves, it should reflect about 1/3 of the free T3 number ... but don't bet the farm on my memory tonight!

    Just for fun: Free T3 - 370

    Free T4 - 1.5 .... But another excellent lab and diagnostic source says that T4 is decreased in hypothyroidism ... their ref range is 4.5 - 12.0 Mine was 1.3

    See what I mean about the "not exact science" thing?! Good docs go with the symptoms and use the blood test as a resource and importantly, a base-line to look back on in further testing after treatment.

    Take care,


[ advertisement ]