I mentioned CFS/Fibro in my published newpaper commentary

Discussion in 'Fibromyalgia Main Forum' started by IndianPrincess, Aug 8, 2006.

  1. IndianPrincess

    IndianPrincess New Member

    Published in ISSUE 77 OF THE HOMELESS GRAPEVINE

    It is not discussed in detail but I did mention it. I will cover this in future articles that I write for The Grapevine.

    This commentary took me a week to write. It was a struggle!

    TRUTH COMMISSION PUTS POVERTY ON TRIAL

    On July 15th, 16th and 17th, the Northeast Ohio Poor People's Economic Human Rights Campaign hosted this country's first National Truth Commission to "put poverty on trial!"

    For those not familiar, Truth Commissions provide a platform for poor and working people to tell their personal stories of the economic human rights violations they are experiencing.

    Over the past year, member organizations of the Poor People's Economic Human Rights Campaign have held local Truth Commissions across this nation. Two were simultaneously held January 14, 2006 in Cincinnati and Cleveland.

    Unfortunately, due to health reasons, I was unable to testify before the National Truth Commission panel. I was so looking forward to participating as I did on the local level this past January at Trinity Cathedral.

    After dealing with a medical community that is disinterested, inexperienced, poorly trained, unbelieving and grossly uneducated about my medical condition; State and Federal agencies with their fair share of poorly trained caseworkers, adjudicators and the like; employers who resisted giving me reasonable accommodation under The Americans With Disabilities Act, I took advantage of the opportunity to vent my frustrations at the January platform.

    I gave my testimony primarily under Article 25-Section 1 of the Universal Declaration of Human Rights which states "Everyone has the right to a standard of living adequate for the health and well-being of himself and his family, including food, clothing, housing, and medical care and necessary social services, and the right to security in the event of unemployment, sickness, disability, widowhood, old age or other lack of livelihood in circumstances beyond his control".

    I spoke about how the symptoms and insufficient treatment for Chronic Fatigue Syndrome and Fibromyalgia, subsequent loss of my well-paying job as a lithographer and denial of Social Security Disability Income lead to my homelessness.

    I spent 6 months at Community Women's Shelter on Payne Avenue and was still a resident there at the time I gave my testimony. I described my own personal experiences and observations both at the shelter and on the streets of Cleveland noting that I observed that those with mental illness or the homeless are often treated like criminals. That those voicing complaints at the women's shelter may find themselves being taken to jail in handcuffs. I also said that homeless people living in shelters had difficulty getting jobs using the shelter address as home because of the overall perception that the homeless are not willing to work.

    On December 10, 1948 the General Assembly of the United Nations adopted and proclaimed the Universal Declaration of Human Rights, (Resolution 217 A -III). Following this historic act the U.N. Assembly called upon all Member countries to publicize the text of the Declaration and "to cause it to be disseminated, displayed, read and expounded principally in schools and other educational institutions, without distinction based on the political status of countries or territories."

    Despite the adoption of the above proclaimation, The Federal Medical Leave Act, The Americans With Disabilities Act and other so called federally and state mandated "safety nets" designed to keep both those with disabilities and the caregivers of the disabled in the workforce by providing the right to work, the ability to either obtain sustain employment, or provide essential medical and financial support that our tax dollars were to insure us of; the numbers of disabled who become homeless will continue to escalate as long as these mandates and laws continuously receive 'a nose-thumbing' from Corporate America and government. (Editor's Note: The UN Declaration of Human Rights was never ratified in the United States.) The tax-dollars we paid to "insure" us against these possibilities were premiums on a failed policy.

    Daily I participate in an online message board for those who suffer from the same medical conditions as myself. I read posts from other group members from around the world, fearful of lossing their homes and livelihood as a result of illness and inability to work. Many face economic disaster waiting for disability determination from the Social Security Administration. Local agencies also are not providing adequate assistance.

    This message board, like the Truth Commission offers all of us the opportunity to vent our frustrations within the system as well as seeking support from others who are "veterans" in "the war" fighting to obtain adequate medical treatment, respect from doctors and the respect and benefits we are entitled to on state and local levels.

    I am still fighting for many of my benefits and I consider myself a survivor.

    Whether or not my testimony or the testimony of the thousands of others across the nation will result in change is yet to be seen, but the opportunity and empowerment I felt during my testimony before The Truth Commission in January plus my association with The Northeast Ohio Coalition for the Homeless definitely made me feel whole again despite the obstacles I face daily.

    Cindy

    P.S. For those of you who are not familiar, the Universal Declaration of Human Rights follows:



    UNIVERSAL DECLARATION OF HUMAN RIGHTS

    Adopted and proclaimed by General Assembly resolution 217 A (III) of 10 December 1948

    On December 10, 1948 the General Assembly of the United Nations adopted and proclaimed the Universal Declaration of Human Rights the full text of which appears in the following pages. Following this historic act the Assembly called upon all Member countries to publicize the text of the Declaration and "to cause it to be disseminated, displayed, read and expounded principally in schools and other educational institutions, without distinction based on the political status of countries or territories."

    PREAMBLE
    Whereas recognition of the inherent dignity and of the equal and inalienable rights of all members of the human family is the foundation of freedom, justice and peace in the world,

    Whereas disregard and contempt for human rights have resulted in barbarous acts which have outraged the conscience of mankind, and the advent of a world in which human beings shall enjoy freedom of speech and belief and freedom from fear and want has been proclaimed as the highest aspiration of the common people,

    Whereas it is essential, if man is not to be compelled to have recourse, as a last resort, to rebellion against tyranny and oppression, that human rights should be protected by the rule of law,

    Whereas it is essential to promote the development of friendly relations between nations,

    Whereas the peoples of the United Nations have in the Charter reaffirmed their faith in fundamental human rights, in the dignity and worth of the human person and in the equal rights of men and women and have determined to promote social progress and better standards of life in larger freedom,

    Whereas Member States have pledged themselves to achieve, in co-operation with the United Nations, the promotion of universal respect for and observance of human rights and fundamental freedoms,

    Whereas a common understanding of these rights and freedoms is of the greatest importance for the full realization of this pledge,

    Now, Therefore THE GENERAL ASSEMBLY proclaims THIS UNIVERSAL DECLARATION OF HUMAN RIGHTS as a common standard of achievement for all peoples and all nations, to the end that every individual and every organ of society, keeping this Declaration constantly in mind, shall strive by teaching and education to promote respect for these rights and freedoms and by progressive measures, national and international, to secure their universal and effective recognition and observance, both among the peoples of Member States themselves and among the peoples of territories under their jurisdiction.

    Article 1.
    All human beings are born free and equal in dignity and rights.They are endowed with reason and conscience and should act towards one another in a spirit of brotherhood.

    Article 2.
    Everyone is entitled to all the rights and freedoms set forth in this Declaration, without distinction of any kind, such as race, colour, sex, language, religion, political or other opinion, national or social origin, property, birth or other status. Furthermore, no distinction shall be made on the basis of the political, jurisdictional or international status of the country or territory to which a person belongs, whether it be independent, trust, non-self-governing or under any other limitation of sovereignty.

    Article 3.
    Everyone has the right to life, liberty and security of person.

    Article 4.
    No one shall be held in slavery or servitude; slavery and the slave trade shall be prohibited in all their forms.

    Article 5.
    No one shall be subjected to torture or to cruel, inhuman or degrading treatment or punishment.

    Article 6.
    Everyone has the right to recognition everywhere as a person before the law.

    Article 7.
    All are equal before the law and are entitled without any discrimination to equal protection of the law. All are entitled to equal protection against any discrimination in violation of this Declaration and against any incitement to such discrimination.

    Article 8.
    Everyone has the right to an effective remedy by the competent national tribunals for acts violating the fundamental rights granted him by the constitution or by law.

    Article 9.
    No one shall be subjected to arbitrary arrest, detention or exile.

    Article 10.
    Everyone is entitled in full equality to a fair and public hearing by an independent and impartial tribunal, in the determination of his rights and obligations and of any criminal charge against him.

    Article 11.
    (1) Everyone charged with a penal offence has the right to be presumed innocent until proved guilty according to law in a public trial at which he has had all the guarantees necessary for his defence.

    (2) No one shall be held guilty of any penal offence on account of any act or omission which did not constitute a penal offence, under national or international law, at the time when it was committed. Nor shall a heavier penalty be imposed than the one that was applicable at the time the penal offence was committed.

    Article 12.
    No one shall be subjected to arbitrary interference with his privacy, family, home or correspondence, nor to attacks upon his honour and reputation. Everyone has the right to the protection of the law against such interference or attacks.

    Article 13.
    (1) Everyone has the right to freedom of movement and residence within the borders of each state.

    (2) Everyone has the right to leave any country, including his own, and to return to his country.

    Article 14.
    (1) Everyone has the right to seek and to enjoy in other countries asylum from persecution.

    (2) This right may not be invoked in the case of prosecutions genuinely arising from non-political crimes or from acts contrary to the purposes and principles of the United Nations.

    Article 15.
    (1) Everyone has the right to a nationality.

    (2) No one shall be arbitrarily deprived of his nationality nor denied the right to change his nationality.

    Article 16.
    (1) Men and women of full age, without any limitation due to race, nationality or religion, have the right to marry and to found a family. They are entitled to equal rights as to marriage, during marriage and at its dissolution.

    (2) Marriage shall be entered into only with the free and full consent of the intending spouses.

    (3) The family is the natural and fundamental group unit of society and is entitled to protection by society and the State.

    Article 17.
    (1) Everyone has the right to own property alone as well as in association with others.

    (2) No one shall be arbitrarily deprived of his property.

    Article 18.
    Everyone has the right to freedom of thought, conscience and religion; this right includes freedom to change his religion or belief, and freedom, either alone or in community with others and in public or private, to manifest his religion or belief in teaching, practice, worship and observance.

    Article 19.
    Everyone has the right to freedom of opinion and expression; this right includes freedom to hold opinions without interference and to seek, receive and impart information and ideas through any media and regardless of frontiers.

    Article 20.
    (1) Everyone has the right to freedom of peaceful assembly and association.

    (2) No one may be compelled to belong to an association.

    Article 21.
    (1) Everyone has the right to take part in the government of his country, directly or through freely chosen representatives.

    (2) Everyone has the right of equal access to public service in his country.

    (3) The will of the people shall be the basis of the authority of government; this will shall be expressed in periodic and genuine elections which shall be by universal and equal suffrage and shall be held by secret vote or by equivalent free voting procedures.

    Article 22.
    Everyone, as a member of society, has the right to social security and is entitled to realization, through national effort and international co-operation and in accordance with the organization and resources of each State, of the economic, social and cultural rights indispensable for his dignity and the free development of his personality.

    ARTICLE 23.
    (1) Everyone has the right to work, to free choice of employment, to just and favourable conditions of work and to protection against unemployment.

    (2) Everyone, without any discrimination, has the right to equal pay for equal work.

    (3) Everyone who works has the right to just and favourable remuneration ensuring for himself and his family an existence worthy of human dignity, and supplemented, if necessary, by other means of social protection.

    (4) Everyone has the right to form and to join trade unions for the protection of his interests.

    ARTICLE 24.
    Everyone has the right to rest and leisure, including reasonable limitation of working hours and periodic holidays with pay.

    ARTICLE 25.
    (1) Everyone has the right to a standard of living adequate for the health and well-being of himself and of his family, including food, clothing, housing and medical care and necessary social services, and the right to security in the event of unemployment, sickness, disability, widowhood, old age or other lack of livelihood in circumstances beyond his control.

    (2) Motherhood and childhood are entitled to special care and assistance. All children, whether born in or out of wedlock, shall enjoy the same social protection.

    Article 26.
    (1) Everyone has the right to education. Education shall be free, at least in the elementary and fundamental stages. Elementary education shall be compulsory. Technical and professional education shall be made generally available and higher education shall be equally accessible to all on the basis of merit.

    (2) Education shall be directed to the full development of the human personality and to the strengthening of respect for human rights and fundamental freedoms. It shall promote understanding, tolerance and friendship among all nations, racial or religious groups, and shall further the activities of the United Nations for the maintenance of peace.

    (3) Parents have a prior right to choose the kind of education that shall be given to their children.

    Article 27.
    (1) Everyone has the right freely to participate in the cultural life of the community, to enjoy the arts and to share in scientific advancement and its benefits.

    (2) Everyone has the right to the protection of the moral and material interests resulting from any scientific, literary or artistic production of which he is the author.

    Article 28.
    Everyone is entitled to a social and international order in which the rights and freedoms set forth in this Declaration can be fully realized.

    Article 29.
    (1) Everyone has duties to the community in which alone the free and full development of his personality is possible.

    (2) In the exercise of his rights and freedoms, everyone shall be subject only to such limitations as are determined by law solely for the purpose of securing due recognition and respect for the rights and freedoms of others and of meeting the just requirements of morality, public order and the general welfare in a democratic society.

    (3) These rights and freedoms may in no case be exercised contrary to the purposes and principles of the United Nations.

    ARTICLE 30.
    Nothing in this Declaration may be interpreted as implying for any State, group or person any right to engage in any activity or to perform any act aimed at the destruction of any of the rights and freedoms set forth herein.




    [This Message was Edited on 08/09/2006]
  2. louiesgirl2

    louiesgirl2 New Member

    Good for you.
  3. IndianPrincess

    IndianPrincess New Member

    Can't wait till Saturday. I'll bring you a copy of the newspaper!

    I'll also fill you in on the clinical trial I am participating in at Rapid Medical Research in Beachwood for Fibromyalgia.

    It's an existing antidepressant in Europe that is being tested for pain and FDA approval in the U.S.

    The same trial is being conducted in Middleburg Heights.

    It's listed on this site under clinical trials.

    I only do clinical trials for meds already in existence. My rheumy will keep me posted on an upcoming clinical trial for Xyrem.

    See ya Saturday at 11 at Tower City!

    Cindy
  4. rockgor

    rockgor Well-Known Member

    Can tell you are a pro.
  5. mollystwin

    mollystwin New Member

    Indian Princess you sound like a very intelligent person! What a letter!!
    Go Girl!!
  6. tlayne

    tlayne Member

    What a talent you are! I am sorry that you have this DD, but I am so thankful that you are a voice for us! Hugs, Tam
  7. IndianPrincess

    IndianPrincess New Member

    I read your post and it has inspired me to write some articles about how these DDs are causing us emotional and financial problems.

    I will put a post up for people to tell their stories about their problems regarding everything from poor medical treatment, claims being denied, trying to get help from Social Service agencies, etc. so keep looking for that post and everyone please feel free to add your story.

    I want to write about what has happened to us and how society views us!

    Cindy