I need help...I am really suffering

Discussion in 'Fibromyalgia Main Forum' started by llcornwell, Nov 13, 2006.

  1. llcornwell

    llcornwell New Member

    Please help.
    I don't know what to do, I am going through a dramatic increase in my symptoms and my Rhuematologist is out of town until Nov 30th. It is dibilitating. I need some advice for home remedies for pain and especially fatigue.

    I feel like I am really suffering and I don't know what to do.

  2. Marta608

    Marta608 Member

    Dear Lori, I have CFS so some of our symptoms are different since you have FM, but I do know the emotional pain and anxiety that comes with a flare. "Will it ever end????" I'm fairly intelligent most times but when I'm in a flare, I somehow cannot imagine that it will ever be otherwise.

    But it will.

    Your profile doesn't say much about your circumstances but if you can possibly treat yourself right now as gently as you can, it will help. Maybe not in one day but in a few days, it will help. Our symptoms are self-perpetuating in that the more we concentrate on them and worry, the worse they get. So sleep as much as you can. Watch America's Funniest Home Videos and the Comedy Channel, read light funny fiction. Use moist heat on the most painful parts. Take prescribed meds. Do what you can to relax and not concentrate on your pain. Don't do anything you don't absolutely have to do.

    Others with FM will be along with more help. Meanwhile, Prickles has posted helpful hints for FMers that you might want to research among the threads.

    Hang in there. It will get better.

    Gentle hugs,
  3. elliespad

    elliespad Member

    The best quick fix for pain and fatigue I know is to take DL-Phenylalanine. This is a combination of the D - and L - form of the amino acid Phenylalanine. This form of phenylalanine acts as a natural pain reliever. It will help your body make DOPAMINE AND Endorphins. Endorphins are actually far more powerful than the drug known as morphine. For pain control or as an anti-depressant take 1,000-4,000 mgs twice a day on an empty stomach. (I personally take 1000 mg, in the morning, empty stomach and this is my only pain medication.)

    It will also help your body make Tyrosine, which converts to the neurotransmitters norepinephrine, epinephrine, dopamine and tyramine. Tyrosine and its metabolites have been shown to support emotional well-being, memory and learning.

    I would say you will see an improvement the FIRST DAY, and its' effect improve over time.

    It is available in ANY health food store and costs less than $10. This is a winner!

    Hope you get some relief soon.

    Do not take this if you are taking an MAO Inhibitor
    [This Message was Edited on 11/14/2006]
  4. Cromwell

    Cromwell New Member

    from all I am so sorry you are suffering. Ellie I do have a question for you though. Is the DL Phenylalinine different from the sort that I see as warnings (This product contains Pheny something?) It sounds as if it works, but is it safe for everyone do you know?

    Love Anne
  5. Dixie_Amazon

    Dixie_Amazon Member

    I found a muscle rub in spray form at Wally World. It has been great for hard to reach places on my back when DH isn't home to rub the gel on for me.
  6. elliespad

    elliespad Member

    Phenylketonuria. An inherited metabolic defect in protein metabolism. In PKU, the liver is unable to convert phenylalanine to tyrosine, resulting in a buildup of phenylalanine in the blood, which eventually passes into the brain, causing mental retardation and other neurological problems.

    People who cannot metabolize Phenylalanine know it. They do a PKU test on every infant born in the US, 24-48 hours after beginning breast milk or formula. That is the heel prick. Anybody with this problem is WELL AWARE to avoid foods, medications, supplements with Phenylalanine, so no adult is going to take this knowing they have this problem. When I cautioned people taking MAO inhibitors, I figured those people may not be aware of the contraindication.

    But always good to give a heads up, thanks.
    [This Message was Edited on 11/14/2006]
  7. carebelle

    carebelle New Member

    I agree ,you need to treat yourself very special right now. Lots of good quite REST.Some warm baths and herbal teas to calm your sore body.
    Put your feet up and read a book .I am sure you are even more tence because your doctor is out of town.Its very scary when we are having pain and we can not get the help we need.I have both cfs/fm and when I hit a flair I know I've gone to far .I need total rest.
    I know all of this sounds like its just talk but truely it will help .Learning to treat ourselfs kind is not always easy .That means no house work for a few days.Doing only things that are easy on your body.
    I hope this helps ....Feel better soon.
  8. BostonLyme2006

    BostonLyme2006 New Member

    HI Lori,

    Hugs, Hugs, Hugs,

    [This Message was Edited on 11/14/2006]
  9. Lolalee

    Lolalee New Member

    Lori, I'm so sorry that you are suffering. I know the feeling well. I've been in a flare for the past 6 months and the only thing that helps me is to rest. I go to the library as often as I'm able and load up on books and movies. And...a biggie for me...I give myself permission to stay in bed all day if necessary. For many years I would just push through a flare until it got so bad that my body just won't be pushed.

    Another couple of bits of advice...drink lots of pure water (really helps), stay away from sugar and processed foods (too toxic), listen to your body and make yourself a priority and when you feel a little better don't try to make up for lost time.


  10. Kayleen

    Kayleen New Member

    Take Magnesium, Potassium and Calcium Morning and night.
    take Aleve 2 each morning and night
    Take Musinex DM. (make sure it is the DM)
    Dexramathorphan numbs the pain immediately.

    That helps my flares.

    Good Luck!
  11. connieaag

    connieaag New Member

    Cn you tell me what this is or what product it is sold under? Thx Connie
  12. kat-E

    kat-E New Member

    Very simply... Heat... Heating pads for short periods, hot baths/showers, hot water bottles. Etc.

    I wish there were some good quick remedies for fatigue. The best one overall is get off of sugar and processed foods.

    I hope you feel some improvement soon.
  13. llcornwell

    llcornwell New Member

    To all...

    Thanks for the support. Finally people who understand. I will try to update my profile but here is some short stuff....on me....

    I am 27/f from MD. I had been diagnosed with CFIDS (Or CFS) when I was 14. On and off, kept me out of school alot, but I had home tutors when I missed. THen I had Gastric Bypass in 2001. Felt great, lost lot's of weight. Then about 2-3 years ago, I felt like crap. It got worse. Went back to the Rhuem. now I have Fibromyalgia. It is hard on me and my family, especially since I want to start a family in April 2006 (soon). I have been to the pre-natal docs about the meds. So had to be lowered/changed. Could be why I went from my seemingly constant medium flare to a flare sent from H&*L. I have tried the heat and all the baths. Ins. won't pay for message or PT or Chiro. I have MED Assistance, they don't pay for anything. Fatigue and pain are at ubearable rates. Because of such a heavy crackdown on meds around my way it is hard to find a doc to really prescribe pain medicine. I cannot take NSAIDS because of my Gastric Bypass. I am such in a catch 22. Meds that would really help I can't take. I wish there was a medicine for energy, can't do the vitemen type. Urgh, I am going to try to get pregnant in April, I heard for the first 6 months you get a Fibro break due to the increase in hormones and I am so looking forward to a break. I just want to be well.

    When I flare really bad, I don't want to eat or drink which hurst me more. I am trying to force at least the water down now and seen some slight improvements.

    Wish me luck, I will be praying for all of you.

  14. Cromwell

    Cromwell New Member

    Thank you very much. I guess I would know by now if I had this as I am soon to be 60! Feel it would be safe to take. Anne
  15. NyroFan

    NyroFan New Member


    I would not say this is for everybody, but it is what I do.

    2 Benadryl (25mg.each
    3 Ibuprofen
    2 Extra strength Tylenol (500mg./each)

    I have checked with the doc and he was the one who told me about it.

  16. Boo3

    Boo3 New Member

    hi lori... i to suffer from CFS..i agree with what has been mentioned here....i also just go and take me a longgg calgon bath...read..anything to keep my mind "UNBUSY" on mee..
    i hope that ur feeling some better...today isnt the best day for me.. but will get through...
    i wish uu well lori and just rest rest rest....

    tc and "smiles" to ya... :)

    lil huggzzzzzzz to ya !!
  17. Mikie

    Mikie Moderator

    I find these help with pain and work to relax you. Put a cup or two of the salts in as hot a tub as you can tolerate and just soak for a while. Turn off the lights and light a candle. Wrap up in a nice soft robe when you are done and drink your favorite tea or warm milk. This helps to relax the mind and body so they can rest.

    For OTC pain meds, I don't think you can beat ibuprophen. Heating pads on sore spots help too.

    I saw a pain specialist in the beginning and had opiods on hand for flares. They can get you through times like this. Talk to your doc. He can't leave you high and dry like this. Does he have a partner who is taking care of his patients while he's gone? You might call his office to see.

    I have had amazing results with the Guaifenesin Protocol but it is a long-term treatment which requires commitment and patience. It might be something for you to consider in the future as you plan your long-term treatment regimen. The book, "What Your Doctor May Not Tell You About Fibromyalgia, by Dr. Paul St. Amand is the handbook for the protocol. You can also check out the website.

    Love, Mikie
  18. PVLady

    PVLady New Member

    A product called Emergen-C has helped me for increased energy. It has Vit C, and other electrolytes - you mix in water. The taste is fine. Most grocery stores sell it - but health food stores for sure have it.

    Do you have Soma? That always helped me when flaring. It is a muscle relaxant. For pain, if you can tolerate it, two Alka Seltzer always helped.

    You can try the warm bath with Epsom Salts and Peroxide. I buy my Epsom Salts and Peroxide at Costco - very inexpensive. You can get 10 lbs of Epsom for under $3.00. Large bottles of hydrogen peroxide also cheap.

    Rest, heating pad, Aspercream rub, don't eat sugary foods, caffeine, or alcohol.

  19. llcornwell

    llcornwell New Member

    To all:

    I am so glad I found this website. I don't feel as alone anymore. All of you are so supportive. It is so amazing to feel a part of something in this disease instead of singled out.

    My doc is out of town and his partner doesn't see patients with my insurance (Weird I know). They just have a different list of which insurances to take.

    I guess I should have added that I do have Percocet and I am on the Fentynol (Duregesic) patch. But there are times, like the past week, that the pain and fatigue beat these. I also cannot take NSAIDS like IBreauphine (spelling?) because of my Gastric Bypass.

    I started taking Prenatel vitemens because I am going off of Birth Control come April. To my surprise, this immediately kicked me out of my FLARE! SO YES! IT's OVER!!!!

    I took alot of all of your advice, hot everythings, extra rest, I even got books on Fibromyalgia and CFS.

    Thanks to you guys, I feel like there is hope. I am not the only one suffering from the "invisable" disease. (Although I see it fine :)

    Again, you all are amazingly supportive and I am so glad I have new friends!!

    ~Love Lori
  20. blue03

    blue03 New Member

    i read in natural health gin soaked raisins will greatly improve you situation, it had big article with testimonies.
    i don't have your problem, just read this week. maybe a sign?

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