I Quit! Western Medicine Proven USELESS!!!

Discussion in 'Fibromyalgia Main Forum' started by EZBRUZR, Jul 24, 2003.

  1. EZBRUZR

    EZBRUZR New Member

    I have never been one to stop,today is a new day and I have new attitude.NO MORE DRs! I walked out on the IM I have been stressing to see. This a*&%^%#le said I am Fine.Dismissed Dx of FM as well as Barretts Esophagus.Low grade temp didn't concern him.Said if I quit bumping into things and Roughhousing I would stop bruising! The bloody mucas something that will pass-Started Nov--WHEN?The just under 80lbs I have lost since Nov,65 of which I've lost since Feb---Will better my over all health in long run.The vomiting is probably just a dietary adjustment need. I cryed ALL the way home and then some!I feel so mislead and empty. There seems to be nothing but sufferage ahead,I can not take it anymore! my soul and spirit are crushed!I have never felt this empty,i'm broke.Thanks for helping me thru this past bit of time,it did give me hope until today.I am done.The possibility of good is overweighed by proof of bad. I cannot play this game anymore. Peace lisa
  2. atrinigyal29

    atrinigyal29 New Member

    Hi Lisa,
    Based on your post, it doesn't sound like Western medicine is the problem, but that rediculous doctor!! I'm so sorry that you had such a horrible experience. I can totally understand what you are going through. After seeing this horrid neurologist who basically implied that my illness was all in my head, I too went to my car (thank goodness my mother was there and drove)and cried and cried. It was just awful. Luckily, I did not give up, but was determined to find a doctor who would listen to me. Finally after looking for what seemed an eternity, I found a GP who actually listened to what I had to say. Even though he did not know what was wrong, he was determined to help me and would refer me to doctor after doctor until I was diagnosed with FM. Now I have a terrific doctor who really listens to his patients and is knowledgeable about this illness. Don't give up just yet. There are doctors out there who really do care. On this website there is a link to doctor referrals, which will help you with your search. Maybe you will be able to find a doctor close to where you live. You can always post a message here and ask if anyone knows of one in your area. Well, I hope everything turns out ok. Take care.
    Alicia
    [This Message was Edited on 07/24/2003]
  3. aduck

    aduck New Member

    I've been really really really angry and really really down, too, but I'm coming around and so can you.

    Those doctors are just inhuman is what they are. They don't have a caring bone or thought in their soles, in my opinion.

    They're NOT WORHTH YOUR GETTING SO UPSET. One day EVERYONE who EVER doubted this illness will KNOW the truth and they may feel some of what we've all been feeling and believe me, I'M GONNA LET ALL THE DOCTORS who EVER said i was a HYPOCHONDRIAC and was JUST STRESSED or whatever know exactly how I feel when the truth is finally medically proven. I'm going to visit as many of them in person as I can, and write letters to the rest and phone calls, too.

    put the doctor out of your MIND!

  4. babyzee

    babyzee New Member

    ezbruzr, I don't blame you for giving up on them - I have. I HATE HATE HATE seeing a doctor, even a nice one w/ a bedside manner (rare). Even if they know something that will help, they're not allowed to say so because of malpractice suits!!!
    Having candida has made me think A LOT about western medicine. I think it has its place in our society - but a very small place. What would we do without surgeons, for instance? But for actual day-to-day HEALTH?? I've never known a doctor that helped me with that.
    It would be nice to have nationwide integrated medicine, but it won't happen as long as pharmaceutical companies rule the roost.
    Good luck finding SOMEBODY who will help you.
  5. Jen F

    Jen F New Member

    I'm so sorry for what you are going through.

    We are a similar age and I am on my own too and been putting up with some terrible attitudes from docs sometimes. One good thing about living in a big city though is that there are many docs and I can look elsewhere for help, though even in a big city it is not easy.

    I personally feel that complaints should be made against these doctors to the Medical Association. Enough of their crap towards us and dismissing us. It's time we DISMISS THEM. They should be ...what's it called...you know, punished in at least a mild way for their bad behaviour and for not keeping up with their science. These illnesses are real and you should get some help with your suffering.

    I hope you can find it in you to get a better doctor and maybe even write the AMA about this doctor. Also, I hope you can find a way to do like me and try alternatives, though I don't know how someone is supposed to do that if they are broke! It's such a travesty.

    i hate to know that you are suffering so much, Lisa.

    Please try to get help elsewhere than this doc.

    Is there anyone on this board that lives near you and is well enough that they could lend a hand?

    Shame on that doctor.

    jen F
  6. pearls

    pearls New Member

    You have experienced what most of us have - a doctor who does not know anything about fibromyalgia - and probably thinks it doesn't exist. But it does! It has been proven scientifically that it does. This doc just hasn't learned that yet.

    Anyway, you know you're sick. You feel it every day. This doc is just one of the many who think that if they can't find anything wrong, YOU must either have a virus or you're crazy. That gets HIM off the hook - or so he THINKS! Actually, he merely looks uninformed - and is treating you badly because of HIS ignorance.


    I'm sorry you have to go through this right now. But find another doctor. Good ones who know what they are doing are out there. We promise.

    Hugs and Love,
    -Pearl

  7. Mikie

    Mikie Moderator

    This guy is a jerk. You ought to file a complaint against him, except that this would just require you to continue to have to deal with him.

    Jelly is right; you can learn a ton to help you here; however, you need a good doc who will prescribe when you need Rx meds. Isn't there a good FMS/CFIDS specialist near you?

    Please don't give up. This is just one major creep and you are better off without him. Someday, either he or someone he loves will be treated like he treated you today. What goes around comes around. Bad Karma.

    OK, gang, who knows a good doc near Naperville, IL?

    Love, Mikie
  8. teach6

    teach6 New Member

    I hope you will not give up completely. Any doctor with a brain would realize you obviously have some medical problems to have had all those symptoms in the past several months.

    I had a somewhat similar situation happen to me. I was making every effort to stay within my healthcare network when choosing a doc to treat my CFS and FM. So I went to a rheumy who was supposed to be very good for FM. He walked into the exam room with a smile on his face and I told him I was really glad to finally meet him because I had heard such good things about him. He told me I should wait until I heard what he had to say before making that kind of judgment.

    What happened next was unbelievable. With that smile still on his face he looked at me and said, "I don't believe in Chronic Fatigue Syndrome. I've been studying it for over 20 years and I have come to the conclusion it is all in the head. And, IF you have Fibromyalgia there's not much I can do for you. This was before he did any exam of me and after only reading the list of symtpoms I had brought with me.

    I was in tears. I couldn't believe what I was hearing. Obviously I never went back to his office. Instead I went to see a doc my therapist had been encourageing me to see. She was seeing him for CFS and FM and thought a lot of him. He was not in my health network, but I bit the bullet and called him anyway.

    I could tell from the person who answered the phone that I had found a totally different type of doctor's office. They mailed me the many pages of forms to fill out so I could do it a little at a time when I was feeling up to it.

    This doctor has been a Godsend to me. I was in horrific pain, couldn't sleep and became overwhemlingly fatigued just from sitting up when I first saw him in December 2001. I am now doing much better and can actually stand up for brief periods of time and even walk about a block, which I could not do when I first saw him

    There are other good doctors out there. It's a shame that so many of us have to go through these awful experiences before finding a good one. I can tell you that it is possible to find a doc who will treat you like you deserve to be treated and help you on the road to feeling better. I hope you will take another chance, after doing some research on finding another doc.

    Barbara

  9. EZBRUZR

    EZBRUZR New Member

    Linda, lend me a mountain.Jen F Canada sounds like the True American dream, relocation not out of question,Mikie-I left his office so quickly I didn't even have my blouse fully tucked in! No Payment-No Service!Jelly-i was following the game plan you recommend-I need,and have found better instructers in this board! :) try again,take 190.bek-Live with former SO due to fi distress,family has many of their issues(toxic people),never met people when I moved here from ohio-so i guess very minimal support here-just in my head *wink! YOU HAVE ALL MADE ME MUCH BETTER!! Thanks & bless ALL on Boards, lisa/Ez
  10. 2girls

    2girls New Member

    Your last post sounds much more positive & hopeful - thank God! Most of us have been in your situation, so we really do know how you must feel. My family doc of 2 years refers to FM as wastebasket. I have recently taken yet more tests to rule out lupus/sjogrens but won't get results until October. If results are negative, my doc says he cannot help me. So I am now in between docs at the moment.

    As Jellybelly said, there is so much to learn right here. I have gotten much better thanks to some great ideas on this board.

    So, have faith and please don't give up. It's a big pain in the a** running from doc to doc but I am sure you will stumble upon a good one sooner or later.

    2girls
  11. Chelz

    Chelz New Member

    Hi Lisa! So many of us have been there. I was so disgusted with the way doctors treated me too, that I actually stopped seeing doctors between 1985 through 1995. Maybe that wasn't the right thing to do, but at the time, I just couldn't take the bullcrap anymore. I started seeing doctors in 1977 when I was just a teenager, and for the next nine years, I felt I NEVER got an answer for the way I felt. My family kind of gave up on me at that time. I was finally diagnosed in January of 2002, which is a long long time since 1977. We know and understand your pain and frustration. Acutally, I think people like us who have chronic illnesses are among the strongest and we always hang on somehow. Hopefully, you will eventually find a doctor to help you, I'm hoping that for you. Hugs, Chelz.
  12. ssMarilyn

    ssMarilyn New Member

    The low temp and easy bruising are two of the biggest symptoms of hypothyroidism. Have you been to an endocrinologist about this? (don't waste your time on a GP)

    Marilyn :)
    [This Message was Edited on 07/24/2003]
  13. PaulMark

    PaulMark New Member

    FRom paul mark to lisa: I feel for you i really do, and I feel about the same way, I see Dr. Cheney annualy my dad has to give me $ to go to asheville from west ky. he's treated me for 5 yrs. and i'm sicker than ever, SO i don't have the magic answer

    I"Ve tried alterantives,

    to jellybelly i've juiced for years and the digestive enzymes i'm now sensitized to them,

    SO talking about feeling like giving up on both alternative and Mainstreamers medicine drs. i DO

    SO I can cry with you LISA and I WILL pray for you TONITE,

    ON GI DRS> i understand your dilmena there too, i'm trying to find one as madwolf says here in w. ky who THINkS outside their box, that is a tough one too,

    MY last GI dr. just said I wan't taught that in med school and wouldnl' even look at the CDSA thru great smokies,

    trying to find one here to do the heidleburg capsule test to see if I truly do have insufficinet hydrocholoric acid

    in a UCLA study 90% of CFS patients in study had hypachlordia

    ONE PROBLME WE RUN INTO lisa is what i call the "mainstreamers" (drs.) are so tunnel visioni if they didn't learn it in med school many are open to our illnesses other than run of the mill main test etc.

    I truly empathize, you can cry on my shoulder anytime, because even Dr. Cheney said in his dication of my june 03 visit I feel so boxed in everything is a CATCH 22 supps. juicing, pain, the whole illness

    THat's why there is a GOD in heaven, I was raised a good christian but we all struggle with our faith, especially after yrs. of physical suffering and emotional with CFIDS and FMS

    We woudln't be human if we didn't

    paul mark

    if you want to e mail me , i'll try to help yo find a dr. i nyour area, paulstory@iolky.com
  14. bamboo

    bamboo New Member