Hi, I prepared for this yearly appt for weeks. Last year I asked him to sign an order for an Igenex lyme Western Blot and he told me I was wasting my money and all I needed was a lyme screen. Of course that was negative, and he wouldn't go any further. This year I began my lyme research about 2 or 3 months ago. I actually already found a Dr to order the Igenex test (my FM Dr in FL who does phone consults). I'll be having blood drawn for that on Mon, Jan 5. I wanted my PCP to understand that alot of the symptoms for FM, CFS, MS, etc and Lyme overlap. I wanted him to know that current lab testing is flawed when not done at a good reference lab like Igenex, and that the CDC criteria is flawed and outdated and does not take all bands into consideration. I just wanted him to see that lyme has never been ruled out for me or really even given any consideration. At first my PCP seemed like he was brushing off what I was saying, but I had alot of scientific info commited to memory from Dr Burrascano's paper and the ILADS Guidelines. Finally I could see that he seemed to mellow and said that he would read any information that I could provide him. That's when I whipped out my folder of lyme information that I had printed for him and I had all the important parts highlighted! I gave him a copy of Dr Burrascano's paper which he said he had never read. I also gave him the ILADS Guidelines, plus Dr Bleiweiss's essay "When to Suspect Lyme", the CDC page that states that their case definition of lyme is not intended to be used in clinical diagnosis, the Townsend Letter for Doctors and Patients:"Comparison of specificity and sensitivity of Igenex Western Blots using Igenex criteria and CDC criteria for a positive Western Blot", the Public Health Alert page by Dr James Schaller called "Western Blots Made Easy", and some info from Dr Charles Crist's website. In addition I threw in some info from Dr Jacob Teitelbaum regarding treating high viral IgG titers with antivirals. My PCP thought it was ridiculous last year when I told him Dr Dantini in FL had prescribed antivirals for me. I told him that he is the Dr who ordered the Igenex test for me...and he said, "Oh, that Dr who never saw you".... That's when I told him "He is the Dr under whose care I improved 50-70% last year taking antiviral meds and doing an elimination diet."....I since have gotten worse since Feb 2008 with severe neck and shoulder stiffness and pain. Anyways, it went as well as I expected. I didn't go in with too many expectations. I was just happy that he agreed to read the information. I don't think he expected me to instantly present him with all that lyme information. He said he would give me some info too and he did. (I read it when I got home and it is all about the guidelines used by the IDSA which are considered to be outdated and flawed by the ILADS and Dr Burrascano. It wasn't very good information at all.).....anyways .... He seemed a little flustered and at that point closed his laptop and proceeded to go towards the door to leave. I even had to say to him before he made a quick exit, "So do I need any routine labwork...ie: cholesterol, etc?" He said "Oh, yes, I'll take a look and order it". Then he left. I found that the best way to approach any Dr who is "underinformed" is to go very informed and have all the best info printed out for him. It's hard to argue with papers written by experts in the field. I told him that I'm not saying I have lyme, or don't have lyme, but that I need to investigate it further and I will never stop my quest until I get better. I told him I don't want to take a bunch of drugs to cover up symptoms, I just want to get well. He told me he would be glad to take a look at the results when I get them from Igenex. So....everybody, don't give up trying to educate your Dr's....Dr's think they know everything and we all know they don't. Even if I don't have lyme, maybe that info will help him diagnose someone else properly. Happy New Year to everyone!!