I started taking oxycontin every day ...(anyone else?)

Discussion in 'Fibromyalgia Main Forum' started by Suzan, Mar 28, 2007.

  1. Suzan

    Suzan New Member

    I struggled with this idea for the past year. I have been using vicoden ( 5/500's) as my pain reliever for almost 4 years, and it just isn't doing the job anymore. I had tried oxycontin a year ago..and felt awful after 3 doses..so I stopped. Now I am with a new doctor, and he is very good at LISTENING to me. He didn't push me to try anything , just gives me info. Two months ago at my appointment, I told him that I felt lousy so much of the time, and he gave me stronger vicoden to see if that would do the trick (10/325's for those who use it) Well, it provided a bit of relief...but still I had more bad days then good ones. He also gave me 15 oxycontins to use on really bad days.

    What I found was, on the days I used the oxycontin, I ended up feeling more normal than I had in years. All that daily achiness and pain was gone...and I could use a vicoden if I had break thru pain.So on an 'oxy' day..I felt pretty darn good..and was able to do many more of what I consider normal activities in a day. Always being mindful that sypmtoms were just being masked...and FMS is still what I am dealing with.

    Yesterday I called the doctor and made the decision to go on oxycontin daily. I have a trip coming up this weekend, and wanted to enjoy it! I have a new ( moved from WI TO KY one year ago) and we have a large yard and are putting in new gardens and I want to dig!-at least a little bit!
    And I think taking the oxycontin is going to give me a bit of my life back. I also still have a scrip for vicoden for break thru pain.It seems I found a doctor who believes in the pain FMS causes..and that I deserve to be pain free!

    I do think about what if I want to go off it at some point..and what will happen down the road if the oxycontin ceases to work well. I would prefer to not take any drugs at all..but have realized that for myself, I want quality of life again...and maybe this will help provide it!

    If you take this drug on a daily basis..I would love to hear about your experience with it, and how it has affected how you feel daily. Are you able to have a better quality of life? Or have you used it..and had to progress to something stronger? Or have you used it and then detoxed off it?

    For now..I am thrilled to be feeling this close to normal..and I am hoping that it lasts! I would be so happy (and so would my husband) if this daily pill gives me back some of my life. I have had about 1 1/2 years where I have been sidelined most of the time..I have some hope that my days will be better..for the first time in a long while!

    Suzan
  2. msurina1

    msurina1 New Member

    Bad for Fibros.

    I take oxy 80 mgs 4 times a day with 800mg of Ibuprofin with each dose. I could care less about addition. I can not understand why so many here are having pain. No one has to suffer,
  3. msurina1

    msurina1 New Member

    Bad for Fibros.

    I take oxy 80 mgs 4 times a day with 800mg of Ibuprofin with each dose. I could care less about addition. I can not understand why so many here are having pain. No one has to suffer,
  4. glenda2

    glenda2 New Member

    hi Suzan
    where in kentucky are you i am also in kentucky. what dr. gives you oxycottin? i have vicodin and ultracet and somedays niether works but for the most part vicodin is the best. i have a long list of other meds they may help vicodin work better but i would be here all day if i listed them and my hands do not work to well right now. just wondering where you were.

    glenda
  5. kmelodyg

    kmelodyg New Member

    I have been on every drug imaginable. Oxy's do usually work really well for me, but Methadone works the best. It is longer lasting and usually you will not have to increase your dosages in the future because of your increased tolerance.

    You may want to read my latest post, "Coming back from Hell". I am certainly not preaching, but we all have to be careful with these meds! It can really start to take over! Pain really sucks, dosen't it??

    Good luck hon!
  6. mujuer

    mujuer New Member

    with it since you just started taking it. I am allergic to it and didn't find out until after a surgery. It made me itch like poison ivy so be watchful for side effects. Do you think you are feeling better possibly due to a change in weather? I know when I am in warmer weather I feel really good. Just a thought.
  7. MoreBoo

    MoreBoo New Member

    I've been taking this medication for approx. 4 years. I have noticed that since I cannot combine it with ibuprofen (due to acute gastritis-hospitalized 4 days) that it doesn't work very well at all.

    My primary MD treats me now, but I'm considering asking to be referred to a pain clinic.

    Mostly I just want to know why people say vicodin is bad??
  8. razorqueen

    razorqueen Member

    hi Suzan,

    glad you have found something that is working better for you. I have been on OXY-IR since August of 06. I am aloud to take 1 5mg tablet 4 times aday. What I have been doing is taking 1/2 a tablet 3x/day[roughly every 4 hrs] and then a full tablet at bed time.

    I have noticed that at the dose I have been taking[well under my aloud dosage] it hasn't been working as well. I am now taking a full tablet at bed time, and a full tablet in the early am [5-7am], a 1/2 tablet at 12:30 ish and today I took a full one at 5pm.

    I don't know if you read my post about anxiety and L-Tryptohpan, but I noted on that post that maybe my anxiety could be from my oxy-ir not working at the dose I had been on. I don't know if it can work that way. I really like the OXY-IR but it is only short lasting. The first "real" pain killer I was tried on was Morphine Sulphate and that was NOT good for me. It totally srewed up my GI tract and made it hard for me to urinate.

    I can't see my dr till April 26, unless I can somehow get in contact with him to help me straighten out my new anxiety issues!

    Good Luck,
    Raz
  9. Clay2

    Clay2 New Member

    I have myofascial pain rather than fms. I went from vicodin, which wasn't strong enough and takes an hour to kick in, to percocet, which kicks in faster but wasn't all that reliable for me for some reason, to plain morphine. I got the morphine today. It's supposed to last 6 hours, but the 10 unit tab is so tiny I have little faith. The cycle of three hours and pain with vicodin and percocet made me crazy.

    My primary care doc is actually really good about giving this stuff out.
  10. Suzan

    Suzan New Member

    It is always reassuring to hear from others dealing with the same issues.
    I will try to answer your questions!
    I DO understand about not overdoing things and pacing myself, although like most of us..sometimes I get tired of NOT doing things...and then I DO overdo it ..and pay the price! But when I referred to digging in the garden..I just meant putting in a few plants, not really working hard ..I leave that to my husband these days..LOL

    As for where in KY I am..I live in Spencer County, The doc I am seeing is a GP..he is a very practical guy..and does believe in fibromyalgia and treats some other patients, and seems to be very willing to work with me to feel better, and listens to my concerns about meds and seems to believe me when I tell him how I am feeling, and what is causing me issues. If that is near you ( can't remember the name of who asked!) I would be happy to give you his name.

    I have the same issues that most of us seem to have with pain meds. Sometimes they work great..other times I can take what seems to be a LOT of meds..and feel like I didn't take a thing....most times I get some relief, but not 100% relief from the pain ever. That part makes me crazy...why can't they figure out something that really helps all the time???? Hopefully someone that is researching will be able to find a solution for us all soon.

    I was taking the oxy on an as needed basis for a while...but I am at a point where I am having so many bad days, that I feel like I just need to take it daily...in hopes that I have more good days than bad.
    I am finding that the oxy seems to take care of that general achieness and flu like feeling , but for the really strong pains at the fms points...THOSE STILL HURT! even when I take the vicoden for that ..I seem to still be in more pain than I should be.

    Again thanks for taking the time to comment..I really appreciate hearing from you!
  11. Gly

    Gly New Member

    Hi Suzan,

    I take 10 mg of Oxycontin every morning and have done so for a few months now. It takes about 45 minutes to take effect when I wake up achy. After exactly 6 hours I can feel that it's not working anymore, even though it's supposed to last 8-10 hours. I don't have much energy at all in the afternoon so, unless there is something I absolutely need to do I don't take another Oxycontin.

    For breakthrough pain I find Emtec-30 plus .5 mg Ativan helps a lot. Emtec-30 is like Tylenol 3, without caffeine. A full mg of Ativan puts me to sleep but .5 mg with a painkiller makes the pain medicine more effective for me and actually gives me energy. I guess it's just that the pain can be so draining.
  12. Suzan

    Suzan New Member

    I don't know enough about your other meds to respond about them, but my oxycontin is 20 mg..and at this point I would say it is lasting the 8 to 10 hours it is supposed to last. Although I imagine at some point..just like with vicoden, I will notice a decrease in that time.
    Maybe you would get more relief from the oxycontin with a bit higher dosage?
  13. Shawnine

    Shawnine New Member

    Hello Everyone,

    I was diagnosed with FM about 5-6 months ago and was done so by a internal med MD. He put me on lyrica, lexapro, requip and vicodin(one every 6 hrs). Now he is telling me that he can't keep prescribing me the vicodin because he does want me to become addicted to it, so now I'm in extreme pain and no pain meds to take for it. This condition is still new to me and still getting use it having to take all these meds everyday. I guess what I'm looking for is some help from those who have had FM for awhile.

    Thank you for any advice.....

    Shawn
  14. naturebaby

    naturebaby New Member

    I've been taking low-dose oxycontin for about 3 years now. Started at 10 mg., twice daily. Two years ago, it was bumped up to 20 mg., twice daily and that has been working really well. I have Tylenol 3 (with codeine) for breakthrough pain. That is working less well these days, so hope to talk to doctor about a better breakthrough pain med and/or one of the antidepressants now being prescribed for pain.

    My experience with oxycontin has been very positive. I can function reasonably well thanks to this medicine. I do find it doesn't seem to last the full 12 hours it's supposed to, but breakthrough pain meds help get through that rough few hours.

    I do recall feeling a little "off" when I started (or increased) this medication. There were periods of nausea, itching and dizziness and certainly, I made sure that I did NOT drive for the first few days. These symptoms disappeared in about a week, after my body became accustomed to the medication.

    As long as it isn't abused, in my opinion, oxycontin at low doses is one of the most important "tools" in my "fibro toolbox". Please, though, DO be cautious about discussing this med with other people, and keep it locked up in a private place so no-one has access to it but you. There have been horror stories lately of break-ins and hold-ups by oxycontin abusers. Shred your prescription receipts (if you don't need to submit them) and always rip off and destroy labels from your empty bottles so they aren't found in your trash.

    I hope your experience is as positive as mine is! Keep us posted on how it's working for you!

    Wishing you well, nature
  15. Jana1

    Jana1 New Member

    I take 20 mg and 20 mg of methadone twice a day. I also have Darvocet to use if I need it. I have been at this same dose for about 3 years and it works just as well now as it did at the start.

    I had no problems starting on it, I was just thankful that my doctor worked with me to find the combination that got me out of pain for most of the day.

    I hope you have the same success with it as I have.

    Jana
  16. PVLady

    PVLady New Member

    You have a very legitimate concern to wonder what will happen when you might want to stop Oxy down the road.

    I was on MS Contin (similar) for nine months. I began getting tolerant and my body was asking for more several hours before the next dose.

    With me, I had severe side effects with my digestion - contipation, rashes/sores, nausea, no appetite, etc. (I lost over 50 lbs then got gallstones).

    I had already decided I could never increase the dose so I made the decision to go off the MS Contin. I was terrified because I knew I would have withdrawals and I am not good at tapering.

    My pain specialist put me on Subutex and I was able to transition right off the MS Contin with no withdrawals or bad feelings.

    As it turned out, Subutex also treats pain, so I stayed on a maintenance dose for 2 years now.

    Subutex is different, it is a mild opiate but only affects certain receptors in your brain - not the same as regular opiates. With Subutex, you never develop tolerance in fact they say less is more. You dissolve it under your tongue.

    I have been on 16 mg for 2 yrs but tapering to 12 mg and down again soon. I want to see if I can do without it.

    Contrary to what some people say, I have used this drug and it is very safe. It is used to help you get off opiates.

    Anyway, it is easy to taper off from. If you take Oxy, just remember there is Subutex if you ever need to get off it with no discomfort.

    You will read stories on the internet that for drug addicts, Subutex is their drug of choice. That is ridiculous. You get no high feeling from it, and if a addict if stupid enough to inject it, it is very dangerous.

    My pain doctor has 11 fibro patients on Subutex doing very well. I like it because there is never tolerance issues.

    Bottom line, yes take the OXY and be happy. If you ever need to stop it, find a doctor who prescribes Subutex.

  17. blkkat

    blkkat New Member

    suzan real fast I'm very tired. and doxy didn't read your whole post but i think you'll get what I'm saying. i take 5 mgs oxycodone not w/tylenol sorry cant spell. but just straight oxycodone cause its not as bad on your liver.

    anyway -5mgs oxycodone 6 x day on time/ plus 10 mgs oxycontin time release 2 x day why because just taking oxycodone i always watched the clock and had NO life and in constant pain after 2.5 hrs but adding 10 mgs oxycontin 2x day ,well has saved my life!!!

    i tried methadone /and morphine made me so sick. DRS don't like to give these(same ) drugs but if you can try them both just be careful- when you feel you need 2 oxycodones that's when you tapper back for a few days - then at least for me it gets me back on track.

    hope this helps GOD BLESS---BLKKAT
  18. Wisteria_

    Wisteria_ New Member

    Suzan,
    I'm very new here...(first 5 min.!) I have to respond to your post.
    I was on Oxy a several years ago. At first it worked, but then I must have developed a tolerance very fast because in several months I was taking 40 mg. three times a day, then before I knew it, 80mg. I hated it. I asked my doc to please wean me off and find something else for me and he agreed. It was horrible. Withdrawals for me meant nausea, vomiting, hot flashes, sweats, freezing chills, anxiety. I remember going fishing with my husband in August, it was 90 degrees and humid, and I had to go back to the car to get a sleeping bag to wrap up in because I was so cold. My doc did give me valium to deal with the anxiety, and it helped take the edge off. It took several weeks to wean off and every time the doc decreased my doseage I would go through 3-4 days of withdrawal symptoms.
    On a very personal note, I hope it's ok to be frank here, one of the things I hated most about being on oxy was that my libido was nil. I could not have an orgasm ever, at all while on it. It was doing a number on my previously wonderful relationship with my husband. I also despised knowing that I was physically dependent on it.
    I'm resigned now to knowing that I'll be on meds for the rest of my life, and that there is a huge difference between addiction and dependence. I accept that, I guess because I don't have a choice. But at least now I have meds that while I know I'm dependent on, don't give me the horrible side effects that oxy did.

  19. Suzan

    Suzan New Member

    I have had the best week I have had in several years, more energy..way less pain..and I am feeling almost normal. I realize of course I still have FMS and have to live life with that in mind. But the oxycontin is helping me have some normalcy so far. I havent had any flu like sypmtoms, nor any of the stiffness and aches. There has been some break thru pain..but not too much.

    I even made a road trip-left Friday morning, returned home Tuesday night..and I was able to enjoy most of the trip. I didn't get too exhausted, and didn't have much pain to deal with. I even went shopping for a short while with my daughter, and enjoyed it. What a luxury that was!

    I am sorry to hear that some of you have had bad experiences with that drug. But as we read on this site, there are negative experiences to go along with every positive one someone posts. For me..at this point, I am glad that I made the choice to try this drug. I am not sure how I will fare in the future..if I will have to take more..if I will have horrendous withdrawal story. But for now, I am trusting my doctor...and enjoying feeling closer to normal than I have in several years!