I think my 11 year old son has fibro

Discussion in 'Fibromyalgia Main Forum' started by JRsCowgirl, Oct 19, 2005.

  1. JRsCowgirl

    JRsCowgirl New Member

    Have any of you heard of kids getting fibro after finishing chemo for leukemia? My son has been off chemo for 2 years and has been having chronic pain (everyday) for the last 4 months. He has missed a whole quarter of school, luckily we have year round and understanding principle and teachers. Befoe this he has had pain that lasted for a week to 10 days and then he would feel better for a month. The doctors havent taken us very seriously and tell us he is having growing pains maybe bone damage from chemo. He is tired all the time and doesnt sleep at night. He is smart and misses his friends at school. Our pediatrician mentioned fibromyalgia at his last appointment after running test for other things, Making sure that he isn't relapsing. I started looking up info on the internet and buying books and He fits the symptoms very well. I have been trying to focus on his diet and exercise. We are seeing a physical therapist now and by luck she is a speacialist in fibro and believes that this is what is going on with him too. This is my first time posting and I hope I havent made this too long. I guess Im just looking for advice on how to cope with his pain for him and me. His next doctor appointment is next week and I feel like Im a lot more informed and close to an answere. Thanks for reading JR
  2. wangotango

    wangotango New Member

    i have chronic fatigue syndrome and it sounds like what i go thru as well.get so tired at times it takes me 2 hrs to get up off the couch and go to the bed room then i cant sleep at all and i have bad pain to. my life saving event came when i seen a specialist in fibro/chronic fatigue syndrom's. even the best doc's before that keep telling me i was just depressed. good luck and i will pray for him.

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