i want to test for lyme just to rule it in or out

Discussion in 'Lyme Disease Archives' started by bakeman, Apr 11, 2008.

  1. bakeman

    bakeman New Member

    i guesss everybody says igenex is the best? is it?

    who draws the blood?

    i normally go to quest diagnostics so i don't know how i can get my blood to igenex?

    thanx bake
  2. victoria

    victoria New Member

    and then get your doctor to sign the orders... IGenex is the best because they specialize in Lyme testing and handle the blood sample better than the other labs.

    When my son had his testing done, Quest drew the blood but sent it to IGenex. It's my understanding that any lab will do this for a relatively small fee.

    I'm really happy you're getting this done!

    But remember that if one's had it a long time, it may only show with a couple of + bands, if that, as it goes 'underground' inside our blood and tissue cells, can rarely be actually found in the bloodstream on its own...

    So it's really a clinical dx, which even the CDC says online. I hope you also find a good LLMD to at least help interpret it for you... altho there are good posts here also as to how to 'read' it.

    all the best,

    [This Message was Edited on 04/11/2008]
  3. bakeman

    bakeman New Member

    anyone know of a good lyme doc in east PA?

    [This Message was Edited on 04/12/2008]
  4. wld285

    wld285 New Member

    Good luck in finding a good LLMD near you, and if you do hope you can afford it. Seems as if all the good ones are very expensive and do not take insurance. I have spent tons of money the last 20 yrs. trying to find out what was wrong with me. I started at the FFC in Philly a couple yrs ago (spent ALOT of money). Then I started with Enlander last Sept. for CFS treatment. He is the one that found the Lyme. He takes my insurance so going to stick with him for awhile, depending on how he does with the Lyme. Too early yet to tell if he's going to do the right thing.

    Good Luck
  5. bakeman

    bakeman New Member

    im going to check it out. thanks
  6. connieaag

    connieaag New Member

    to get the results faxed to your doctor. I called them after 10 working days and they faxed it that day to him. I have read others taking 2 weeks or so too.
  7. munch1958

    munch1958 Member

    Quest WB leaves out the most Lyme specific bands because of the now defunct Lymerix vaccine.

    This is why:

    The Dearborn Michigan Conference, 1994

    -The Standard Testing Criteria was Revised- ~How the test was spun~


    From personal (and expensive) FFC experience, my Quest test picked up only Band 41. My Igenex test shows lots of
    IND and postive bands including 31, 34 and 39.

    What "ticks" me off about FFC is the 2 page letter from the doctor telling me I didn't have Lyme! If you read FFC protocol creator Dr Holtorf's website you'll see why I do have Lyme. Link to site, all the revised WB criteria plus other info, my treatment history and my WB results are in my profile.

    Why didn't the Revised WB criteria trickle down to the FFC doc? Gee,were they too busy selling IVs and pushing supplements? It clearly states that I'm positive two different ways.

    Bakeman: Glad you are getting tested!!! I hope Bigmamma does too.

    My brother is PJ1954. We both have Bb and Babs. I have Bart too.

    Molly and Dar have it. Siblings with Lyme Unite![This Message was Edited on 04/22/2008]
  8. munch1958

    munch1958 Member

    The sicker you are with Lyme the less chance your body can make antibodies. The tests only checks for ABs not the bacteria itself. So they are measuring your ability to fight off the bacteria. Lousy immune system = no ABs.

    Here's 27 reasons from CanLyme:



    Recent infection before immune response

    Antibodies are in immune complexes

    Spirochete encapsulated by host tissue (i.e.: lymphocytic cell walls)

    Spirochete is deep in host tissue (i.e.: fibroblasts, neurons, etc.)

    Blebs in body fluid, no whole organisms needed for PCR

    No spirochetes in body fluid on day of test

    Genetic heterogeneity (300 strains, 100 in U.S.)

    Antigenic variability

    Surface antigens change with temperature

    Utilization of host protease instead of microbial protease

    Spirochete in dormancy phase (L-form) with no cell walls

    Recent antibiotic treatment

    Recent anti-inflammatory treatment

    Concomitant infection with babesia may cause immunosuppression

    Other causes of immunosuppression

    Lab with poor technical capability for Lyme disease

    Lab tests not standardized for late stage disease

    Lab tests labeled "for investigational use only"

    CDC criteria is epidemiological not a diagnostic criteria

    Lack of standardized control

    Most controls use only a few strains as reference point

    Few organisms are sometimes present

    Encapsulated by glycoprotein "S-layer" which impairs immune recognition

    "S"- layer binds to IgM

    Immune deficiency

    Possible down regulation of immune system by cytokines

    Revised W.B. criteria fails to include most significant antigens