I went to a Lyme specialist today

Discussion in 'Fibromyalgia Main Forum' started by minimonkey, Feb 7, 2006.

  1. minimonkey

    minimonkey New Member

    And she is almost positive this is Lyme. We ordered the Igenex tests and a bunch of rather advanced labwork of all sorts. I feel so relieved to have a doc who is listening to me!!! Even though I know the recovery from Lyme is slow and painful, it beats thinking that I may have no choice but to live with these symptoms forever!
  2. neen85

    neen85 New Member

    I wish you luck with that! Please let us know what your tests reveal! I haven't been on for a while,but was among the first ones here to be diagnosed with lyme (Masters or midwestern lyme).

    After reading what you do,you might be interested in reading my other post about being fired and called mentally ill.....all because I believe in and go to a LLMD!

    I am so thankful that I have a wonderful MSW that has my back......doctors are what drove me there in the first place!!!!!! Daneen
  3. neen85

    neen85 New Member

    Do you remember what your first symptoms were when you first became ill? Mine were chronic constipation,petichial rash inside of my left thigh (groin) area,and I had a 1st degree AV heart block during my 2nd clinical rotation....had to drop out of my first because I was too ill and could not get out of bed. Daneen
  4. minimonkey

    minimonkey New Member

    My first sx were flu-like and migraine-like headaches, to the best of my recollection -- and I did have tick bites and bulls-eye rashes, though rashes of any kind are suspect.

    Then I went through a bout of CFIDS like sx-- chronic infections (urinary, respiratory), swollen glands, crushing fatigue, brain fog -- and psychiatric sx like severe depression and panic -- even dissociation and scary confusion.

    For the last few years it has been crushing spasming muscle and head pain and bizarro neurological stuff.

    I'll go read your other post.
    [This Message was Edited on 02/08/2006]
  5. neen85

    neen85 New Member

    My knees were swollen,even though I had never had a knee injury of any type...even had the PT instructor eval. me for loose jts....nope!

    Soon the crushing fatigue became too much,swollen glands then sesonal allergies. I remember not being able to stand the TV and noises the first year,but I slept most of the time anyway.

    I may have had neuro problems I was not aware of because I was really so out-of-it and slept all but a few hrs a day.

    I hope you get the ball rolling soon and have found a great doc! Daneen