I wonder if I have what you guys have

Discussion in 'Fibromyalgia Main Forum' started by mburke, Mar 6, 2006.

  1. mburke

    mburke New Member

    Can someone review my symptoms below and let me know if you think I have what you have?

    Headache - I have a headache about every day...sometimes it moves around when I move my head. Sometimes I take migraine meds.

    Type A - I don't know how many people have told me I am type A.

    Muscle pain - I wake up sore in my neck and upper back often. I catch myself holding things too tightly and just tightening my muscles for no reason...I could just be watching TV and have to tell myself to relax my shoulders.

    Depression - I currently am taking medication for depression and feel that it is under control.

    Tired - I have been tired a lot lately.

    Doctor - My doctor seems to think my symptoms are no big deal, but this is really effecting the quality of my life.

    Help please:)
  2. ilovecats94

    ilovecats94 New Member

    Hi Mburke! You are wondering if you have FMS? Yes, the all the time headache I had before I was dx'd with FMS. Also the pain in my upper back/neck/shoulders and even my face, especially was bad.

    I didn't have depression, though. I was tired a lot but then I have diabetes and that can make one tired a lot even if your sugars are in the good range.

    I was first dx'd by a PT. Then had tests to rule out certain things. Saw a neurologist, then back to my family doc and that pretty much gave me my FMS dx.

    I had never heard of FMS before so didn't know what it was. I did a lot of reading in magazines and found articles on it and saved all of them.

    I was always a nervous person prone to anxiety all my life. I guess you could say I was a type A.

    When I saw the pain specialist he said I had FMS, but then he said he didn't believe in it. He tried acupuncture but it just made me worse, very weak for about 4 days.

    My family doc put me on Zoloft first and it made me much worse. Then she tried Prozac and within 6 hours of taking it I felt less pain. That was just 10 mg. She upped it to 20 mg. and I have been on that ever since 7/1996. I also use Xanax to help relax my muscles.

    Right now I don't have a problem sleeping. But I to take a Xanax before I go to bed, so that may have something to do with it plus the diabetes.

    Hope I have helped you some. I am still being treated by my family doc for FMS.

    Hugs,
    Faye
  3. chopindog

    chopindog New Member

    I think the biggest yes sign is that it is getting to the point where it is effecting the quility of your life.

    Do more research about CFS and Fibro and bring the info to your doctor. If he still isn't paying attention then try to find a doctor who does know and does believe in CFS and Fibro.

    I hope to god that you are simply just worn down, and are under to much stress, and that the cause of you symptoms are not CFS and fibro.

    But I think you need a open minded doctor who will listen to your worries and acknowledge them.

    Joy
  4. mburke

    mburke New Member

    Thanks for replying. I have never heard of this before until I was searching on google for an answer for my symptoms. I will definately be doing some more research on this.

    I am having an MRI done on my brain tonight...will that tell me anything.

    I have a full time job...but it seems a lot of people on the board are not working due to this syndrome...am I mistaken?
  5. Greenbean7

    Greenbean7 New Member

    The MRI will rule out some other things like MS, but it won't help to varify a diagoses of FM. There is no one test that can say you have it. That is one of the most frustrating things about this disease.

    I was lucky and my doc connected the dots after I had all these different problems with pain and made the dx before I knew what it was! Most are not that lucky and go a long time before they are diagnosed.

    Check the info on trigger points. That was one of the things my doc used to dx me. Rhuemy did the same thing, but basically said, yup, you got it, see ya! Last time I went to a rhuemy!

    Also was sent to a neuro and found out I have mild seizures. I always wondered what those were! He did an MRI of my brain and an EEG. Nothing showed on the MRI (no brain, no nothin!, just a big old empty space!) so he ruled out MS, but the EEG showed brain seizures. I didn't know for all those years that I was having seizures, thought everyone had those episodes!

    There is an overwhelming amount of information out there so if you need help wading through it, this is the place. There are some really knowledgable people on this board and they are all more than willing to help. I'm not one of them, but hey, I can help, too!!

    Hugzz
    Greenbean

    Stop and smell the puppies!
  6. tandy

    tandy New Member


    A brain scan will show abnormalties that sometimes DX
    MS.
    back to 'could I have what you have?'
    well,..
    All you've said does appear to be the early signs of my Fibro. But you have'nt said how long this has been going on?(or did you?) lol
    I've had times like you've described go on for a few weeks at a time,..then go away as mysteriously as they came.
    I knew something more was going on with me when months turned into years. And more parts of my body were effected. But it took 5 drs. and 2 yrs to get this Fibro DX. I was happy to know what was happening to me but I was'nt happy when I read all about the disease.
    I sincerly hope you find its something other than FM.
    Fibro is not life threatening at all,.... but it sure makes you feel as if it is. and the treatments or meds hardly help. And most times it progresses. I'm just speaking from my 12 yrs experience.
    Look around and research all you can.
    and demand answers from drs. cause so many times things are dismissed as depression only~
    hope this helps :)
    Hugs
    Tandy
  7. mburke

    mburke New Member

    Well someone asked about how long I have been experiencing the symptoms expressed in my first message…about two years for the muscle problems.

    Let me start from the beginning. I am going to list EVERTHING that is ‘wrong’ with me so someone can possibly help me put the pieces together. I am spilling my guts here cause I really think you guys can help me figure this out. I am sure some of my issues are unrelated to each other, but I am just going to throw everything out there. Thanks again everyone.

    • 1998-2000
    o Fainting Spells - maybe 4 per year
    o Migraines – maybe 4 per year

    • 2001-2002
    o Fainting spells gone
    o Occasional Migraines – approx. 6 per year
    o Hemorrhoids

    • 2003-2004
    o Migraines – 10 per year
    o Hemorrhoids worse
    o Got Married,
    ? now have genital herpes (very bad outbreaks)
    ? it stings when my husband comes inside of me
    • 2005-2005
    o Migraines go in spurts now (I will have 20 per month and then have 4 the next month)
    ? Most of the time I wake up with them, or they wake me up
    o hemorrhoids even worse now
    o genital herpes now manageable with occasional mild outbreaks, it still stings when my husband comes inside of me
    o diagnosed with depression (not sad about one particular thing just overall depressed) dr. put me on Leprexo and Effexor (probably not spelled right)
    o Muscles very tight in neck and upper back, not sure why
    ? Thought I pulled something in my neck, Went to chiropractor which over a period of 8 months the treatment of massage, ultrasound, and adjustments helped me feel better
    ? Then all the sudden I thought I pulled something again, I went back to chiropractor and treatment did not help as much so I am not going to him anymore.
    ? I wake up with muscle soreness at least 4 times a week
    • 2006
    o Migraines lessened to about 2 to 3 times a week but I FINALLY found a medicine that does not make me sick (Excedrin Migraine- can you believe it?) and they are manageable.
    o hemorrhoids still bad
    o genital herpes managed
    o it still stings when my husband comes inside of me
    o Depression under control with meds
    o Muscles very tight in neck and upper back, not sure why
    ? I catch myself tightening my muscles for no reason; I will be watching TV and have to tell myself to relax my shoulders and about 3 seconds later have to tell myself again. This is crazy.
    ? I noticed that I am gripping things too strongly
    ? One day I woke up and my butt cheeks were very sore. I must have been clinching them all night.
    ? I have noticed in the past year that I would tense up my hands and arms for no reason…but now this has spread and become more frequent and intense.

    I know this is long. Thank you so much for your time. I appreciate all responses.
  8. JLH

    JLH New Member

    I am so glad that you found us. I hope we can help you figure out some of your problems!

    When you have a chance, fill out your profile so that we can get to know you better. Sometimes, it also helps us to help you better. You can read mine by clicking on my name in the left column of this reply.

    * Regarding your headaches/migraines and pain in neck and upper back ......

    - it may be something as simple as the wrong type of pillow and a bad mattress/box springs.

    - have you ever had an x-ray, CT scan, or MRI of your neck and spine? You may have a lot of problems that you are not aware of. I always woke up with headaches and neck & back pain. I had a CT of my neck and spine and found out that I had a ton of problems which contributed to my pain. Here is what I found out was wrong:

    Cervical Spine (neck): degenerative disks, bulging disks, thecal sac effacement, bone spurs, paramedian disk herniation, moderate spinal canal stenosis, compression of exiting nerve root, severe cervical spondylosis, and facet arthropathy;

    Thoracic Spine (middle spine): bone spurs, arthritis;

    Lumbar Spine (low back): pinched nerve between L4-L5 & S1, degenerative disk disease, spinal canal stenosis, impingement in anterior subarachnoid space, and severe degenerative osteoarthritis of facet joints.

    So, as you see, you could have other problems causing your neck and shoulder pain ...... even if you do have fibro.

    - I have fibro and cfs as well as arthritis, osteoporosis, and systemic lupus--all affect my muscles and/or joints, and cause me pain and stiffness. You may want to be evaluated by a Rheumatologist to see if you have fibro and/or other muscle/joint problems.

    - I have always had 2 types of headaches. One was tension due to the high stress live that I lived. I worked a long way from home (a 75 min. drive, one way) and worked long daily hours (8-10 hrs.) as well as a lot of unpaid overtime) for 30 years. I went back to work in 6 weeks after the birth of each of my 3 children.

    My doc put me on Zoloft, and later Prozac, to help with the tension and as a preventative to the tension headaches. I was also tried on a beta blocker (Inderal) as a preventative for the headaches. The anti-depressants really helped a lot to control the tension headaches.

    My miagraines were harder to control. I had them for 15 years before I found out that HORMONES played a huge part of why I had them!

    You should consult an OB-GYN doc and have some blood work done to study your hormone levels to see if that is what is causing your miagraines. Once I had a hysterectomy, my miagraines just about disappeared.

    I now only have miagraines if I eat the wrong foods. One of the main things that will trigger a miagraine now is Aspartame--the sweetener in most diet pop! If I drink more than 1 can of diet pop, I get a miagraine every time! You also can not drink alcoholic beverages, especially wine. The nitrates in hot dogs, some lunch meat, also will trigger one. You can't eat aged cheeses, food with MSG, and there is a whole list of food--you can probably do a search on the web for miagraines and find out more info.

    * Depression and Tiredness/Fatigue

    - I'm glad that your medication is helping your depression. If you find out that you have fibro, you might want to try Cymbalta, it is a fairly new antidepressant that helps with our fibro pain. I take it and love it--it has really helped me. Neurotin has also helped my pain.

    - If you can manage to walk, starting out at 10 minutes a day, it will help your fatigue, believe it or not, and will prevent your muscles from breaking down. If you can later manage to walk more, it will help.

    * Sexual problems with husband.

    - When you are at your OB-GYN, you need to talk this over with him/her. I don't know if this could be a result from your gential herpes or it could also be a continuing infection.

    Diabetics has frequent yeast infections which could cause this problem.

    With fibro, there is also a problem with yeast. You can do a search at the top of this board for yeast.

    You could also have a problem with extreme dryness. According to your age, it could be perimenopause (late 30s to 40s) or menopause (50s). Another problem that sometimes goes along with fibro and lupus is called Sjogren's Syndrome which causes dry eyes, dry mouth, swollen parodid glands .. but I don't know if it causes vaginal dryness.

    * Your muscle tightening.

    - I don't know if your muscle tightening would be fibro or not, but it may be due to anxiety. You might ask your doctor if you need something for anxiety. But I don't know if you could take with when taking something for depression. Probably not. Maybe there is a different med that would help both--your doc would know.


    I hope some of this information has helped. The replies that you have already received have also provided a lot of informative facts for you.

    Any more questions, just ask us!!

    Hugs,
    Janet
  9. JLH

    JLH New Member

    FIBRO SYMPTOMS LIST

    Here is a list of fibro symptoms that you can look at.

    Fibro Symptoms List

    GENERAL
    ____ Fatigue, made worse by physical exertion or stress
    ____ Activity level decreased to less than 50% of pre-illness activity level
    ____ Recurrent flu-like illness
    ____ Sore throat
    ____ Hoarseness
    ____ Tender or swollen lymph nodes (glands), especially in neck and underarms
    ____ Shortness of breath (air hunger) with little or no exertion
    ____ Frequent sighing
    ____ Tremor or trembling
    ____ Severe nasal allergies (new allergies or worsening of previous allergies)
    ____ Cough
    ____ Night sweats
    ____ Low-grade fevers
    ____ Feeling cold often
    ____ Feeling hot often
    ____ Cold extremities (hands and feet)
    ____ Low body temperature (below 97.6)
    ____ Low blood pressure (below 110/70)
    ____ Heart palpitations
    ____ Dryness of eyes and/or mouth
    ____ Increased thirst
    ____ Symptoms worsened by temperature changes
    ____ Symptoms worsened by air travel
    ____ Symptoms worsened by stress


    PAIN
    ____ Headache
    ____ Tender points or trigger points
    ____ Muscle pain
    ____ Muscle twitching
    ____ Muscle weakness
    ____ Paralysis or severe weakness of an arm or leg
    ____ Joint pain
    ____ TMJ syndrome
    ____ Chest pain



    GENERAL NEUROLOGICAL
    ____ Lightheadedness; feeling "spaced out"
    ____ Inability to think clearly ("brain fog")
    ____ Seizures
    ____ Seizure-like episodes
    ____ Syncope (fainting) or blackouts
    ____ Sensation that you might faint
    ____ Vertigo or dizziness
    ____ Numbness or tingling sensations
    ____ Tinnitus (ringing in one or both ears)
    ____ Photophobia (sensitivity to light)
    ____ Noise intolerance



    EQUILIBRIUM/PERCEPTION
    ____ Feeling spatially disoriented
    ____ Dysequilibrium (balance difficulty)
    ____ Staggering gait (clumsy walking; bumping into things)
    ____ Dropping things frequently
    ____ Difficulty judging distances (e.g. when driving; placing objects on surfaces)
    ____ "Not quite seeing" what you are looking at



    SLEEP
    ____ Hypersomnia (excessive sleeping)
    ____ Sleep disturbance: unrefreshing or non-restorative sleep
    ____ Sleep disturbance: difficulty falling asleep
    ____ Sleep disturbance: difficulty staying asleep (frequent awakenings)
    ____ Sleep disturbance: vivid or disturbing dreams or nightmares
    ____ Altered sleep/wake schedule (alertness/energy best late at night)



    MOOD/EMOTIONS
    ____ Depressed mood
    ____ Suicidal thoughts
    ____ Suicide attempts
    ____ Feeling worthless
    ____ Frequent crying
    ____ Feeling helpless and/or hopeless
    ____ Inability to enjoy previously enjoyed activities
    ____ Increased appetite
    ____ Decreased appetite
    ____ Anxiety or fear when there is no obvious cause
    ____ Panic attacks
    ____ Irritability; overreaction
    ____ Rage attacks: anger outbursts with little or no cause
    ____ Abrupt, unpredictable mood swings
    ____ Phobias (irrational fears)
    ____ Personality changes


    EYES AND VISION
    ____ Eye pain
    ____ Changes in visual acuity (frequent changes in ability to see well)
    ____ Difficulty with accommodation (switching focus from one thing to another)
    ____ Blind spots in vision


    SENSITIVITIES
    ____ Sensitivities to medications (unable to tolerate "normal" dosage)
    ____ Sensitivities to odors (e.g., cleaning products, exhaust fumes, colognes, hair sprays)
    ____ Sensitivities to foods
    ____ Alcohol intolerance
    ____ Alteration of taste, smell, and/or hearing



    UROGENITAL
    ____ Frequent urination
    ____ Painful urination or bladder pain
    ____ Prostate pain
    ____ Impotence
    ____ Endometriosis
    ____ Worsening of premenstrual syndrome (PMS)
    ____ Decreased libido (sex drive)




    GASTROINTESTINAL
    ____ Stomach ache; abdominal cramps
    ____ Nausea
    ____ Vomiting
    ____ Esophageal reflux (heartburn)
    ____ Frequent diarrhea
    ____ Frequent constipation
    ____ Bloating; intestinal gas
    ____ Decreased appetite
    ____ Increased appetite
    ____ Food cravings
    ____ Weight gain (____ lbs)
    ____ Weight loss (____ lbs)


    SKIN
    ____ Rashes or sores
    ____ Eczema or psoriasis



    OTHER
    ____ Hair loss
    ____ Mitral valve prolapse
    ____ Cancer
    ____ Dental problems
    ____ Periodontal (gum) disease
    ____ Aphthous ulcers (canker sores)



    COGNITIVE
    ____ Difficulty with simple calculations (e.g., balancing checkbook)
    ____ Word-finding difficulty
    ____ Using the wrong word
    ____ Difficulty expressing ideas in words
    ____ Difficulty moving your mouth to speak
    ____ Slowed speech
    ____ Stuttering; stammering
    ____ Impaired ability to concentrate
    ____ Easily distracted during a task
    ____ Difficulty paying attention
    ____ Difficulty following a conversation when background noise is present
    ____ Losing your train of thought in the middle of a sentence
    ____ Difficulty putting tasks or things in proper sequence
    ____ Losing track in the middle of a task (remembering what to do next)
    ____ Difficulty with short-term memory
    ____ Difficulty with long-term memory
    ____ Forgetting how to do routine things
    ____ Difficulty understanding what you read
    ____ Switching left and right
    ____ Transposition (reversal) of numbers, words and/or letters when you speak
    ____ Transposition (reversal) of numbers, words and/or letters when you write
    ____ Difficulty remembering names of objects
    ____ Difficulty remembering names of people
    ____ Difficulty recognizing faces
    ____ Difficulty following simple written instructions
    ____ Difficulty following complicated written instructions
    ____ Difficulty following simple oral (spoken) instructions
    ____ Difficulty following complicated oral (spoken) instructions
    ____ Poor judgment
    ____ Difficulty making decisions
    ____ Difficulty integrating information (putting ideas together to form a complete picture or concept)
    ____ Difficulty following directions while driving
    ____ Becoming lost in familiar locations when driving
    ____ Feeling too disoriented to drive



  10. Hope4Sofia

    Hope4Sofia New Member

    that many of us have had all the tests in the world done. A lot of the times the tests are normal. It'a almost more frustrating not to have something on paper to prove we hurt. I have had multiple ct scans, MRIs, EEGs, X-rays. I don't know what you'll find and it is worthy to look but don't give up if it comes back inconclusive.

    I would suggest blood work. That is actually something I never had done (any more than typical tests for preg). I just had them done and I go in tomorrow for the results. they can tell you if there is an autoimmune/endocrine problem which is important to rule out.

    I also thing you need a doc who will listen. It took most of us years to piece this together. (15 in my case) A rheumatologist can be very helpful in diagnosing FMS. (Would have liked to have known that sooner.)

    Take care and let us know what you find. Your always welcome to ask questions here. Everyone is very helpful.

    Sofi
  11. msmac

    msmac New Member

    for headaches some suggestions, if they are fibro or muscle/tenson type: with your fingers, carefully explore the long bands of muscle down the side of your neck. You may find spot(s) that are painful areas, and if you use pressure there they will release and the headache will stop.( I suspect these are related to fibro, but also anyone could get them.) I have to keep doing this, but it is more reliable than vicodin for cure. Also, with your hands nearly together on the back of your head, pull down towards chest, stretching the back of neck where it joins head for a few seconds, then release; do this often, also, and this may help. I actually got some relief from the new roll on headache relief that just came on the market. There are also eye exercise/stretches that may help youro headaches, and don't forget the old heat on back of neck and cold on temples and front of head if you are home and able to try.
  12. butterfly83

    butterfly83 New Member

    Maybe you have Fibro, but its really a diagnosis of exclusion, so you need to check into other factors that could be the cause of your symptoms.

    The headaches/muscle tension could be tied. Have you ever sought help in relieving the muscle tension? Chiropractors, massage therapists or physical therapists could all be helpful in that area. Swimming can also be a great release for tension on those trapezius muscles that are at the top of your back.

    The added depression makes me wonder about your thyroid function. Have you ever had blood tests to make sure its normal? Abnormal hormone levels can lead to fibro like symptoms, which also include fatigue, muscle pain, depression, headaches, etc. I would definately look into that.

    So like i said, you can't really jump right to fibro, because so many other illnesses have similar symptoms. Unfortunately, you have to look into a lot of them before you can settle on a Fibro diagnosis.

    BUT if your doctor is not being helpful with your symptoms, i would definately find a doctor who is. Like you said, these symptoms alter quality of life, so just that should make them something worth a doctor looking into.

    Good luck!
  13. Noahvale

    Noahvale New Member

    I have been here for exactly a month now and I gotta tell ya, I love everyone;You will too!! If you have question there are lots of people here to help answer it or have suggestions for you. If you have suggestions for someone else, don't be afraid to give them a holler!!

    Welcome again Mburke..Your gonna love this place!

    God Bless you, and good luck to you with your health!

    Noahvale==Kathy
  14. Slayadragon

    Slayadragon New Member

    Some people on this board (especially those with primarily fibro symptoms) may disagree, but I'm of the camp who believes that the defining characteristic for CFS is whether how well you recover from physical exercise or emotional stress.

    If you push yourself to do things when you're feeling tired, do you feel significantly worse the next day (or shortly thereafter)? Or do you feel about the same?

    If you have a good workout (a bit more than usual), does your energy level plummet the next day? Or is it about the same as or better than usual?

    CFS sufferers generally feel much worse when they push themselves to do things. This is not the case with most people (unless you're _really_ working hard and/or are sleep-deprived).

    I tend to think you don't "really" have CFS yet, but that you're at risk for getting it (especially if you have the evil genes that predispose you to it). Try to slow down.

    I wish someone had given me that advice when I was feeling like you are now. Then I might not have slid into this thing, after which it's basically impossible to get out.