Discussion in 'Fibromyalgia Main Forum' started by suzetal, Aug 25, 2005.

  1. suzetal

    suzetal New Member

    I need help . Have had many test to try and find out whats causing this. All test were fine./
    I'm trying Degesterin I'm following everything they say to do. Even over the counter meds nothing is working.
    I have soiled myself many times sooooooo embarrassing . I'm 52 yrs old have FM .I have no control over this. Its been going on for 6 months now.
    Does any one have any suggestions. I cant go anywhere without having a problem.
    Doctors a baffled. Please help if you know of anything.
  2. yuckie

    yuckie New Member

    Like you, my IBS was out of control. It turned out to be food sensitivities. Have you had any food allergy (or sensitivity) tests done? I did a blood test that looked for food allergens in a number of food groups. I was sensitive to wheat, dairy, citrus, eggs, nuts and the list goes on. I cut all of the offending foods out of my diet and was better immediately. If you haven't looked into this, I strongly recommend it. My test was done by a naturopathic doctor. I'm not sure if the western medicine docs do this type of testing. It cost about $400 and the results have been "priceless". Take care, I know how difficult this can be.
  3. suzetal

    suzetal New Member

    I will ask my doctor .I'm sure she will give it a try.She does what ever I suggest shes GREAT.
    Ill try anything I need it to go away.
    Thank you so much.
  4. thomasina

    thomasina New Member

    Not liking what I'm reading. My stomache has taken on a hard, lumpy, & soreness. I have NO clue how to treat it. I see a Specialist in Sept.
    Mother thinks I need to be there sooner. I'm all puffy and afraid to eat and actually GAINED weight!!! How is this possible???
    Sure would like to know the story about this. It's new to me.

  5. tandy

    tandy New Member

    I know you said you tried OTC products and none helped but,... Have you tried those Amodium ??not sure if I have the spelling right?
    But I have suffered for yrs from IBS diareah,..and that Amodium is the only thing that does help me.

    Its not instant relief from all my stomach pains,..but it does stop the diareah~
    For me, almost too well.
    Sometimes I then can't go for 2-3 days.
    So its not something I take alot of.
    Just when it gets bad. like when I've been on the toilet 6 times a day.
    I know how you feel~ My IBS is out of control!!

    I think I need to get allergy tested too. I've heard that alot of food allergys and or intolerances can show up as IBS/stomach troubles. and once you eliminate the offending foods,...it clears up your gut issues.
    Best of Luck~
  6. nancyneptune

    nancyneptune New Member

    I have this problem too, and it's getting worse. I developed IBS in 1991 when I started having panic attacks.
    I've had to have diarrhea between 4 and 6 times a day for years.

    I don't know of any way to make it stop, except SOMETIMES when I eat a lot of insoluable fiber, it stops for one day.

    Usually I have it so bad that I have to get up from the table where ever I am and go to the bathroom. I can't even finish a meal in peace.
    Many years ago a Gastroenterologist doc gave me something, I think it was Propulsid, and it did not work.
    I'm thinking about starting to take Immodium whenever I need to go out an eat, so I don't have to go while I'm out. I have no idea whether this will work or not.

    I wish someone knew what to do. If your doctor doesn't even know, what are we going to do?
  7. Tigger57

    Tigger57 New Member

    Why is it that it is so embarrassing when you soil yourself and you all alone? I had it happen the other night.

    I take Lomotil and chew Immodium like they're candy until it stops.
  8. suzetal

    suzetal New Member

    Immodium I tried it it did not help. Sure I went a little less .But I still had it.
    I was at the store when it happen today had to leave everything at the register .
    Ill have the allergy test done and see if they find something .
    Ill let you all know.
    Thank you all
  9. helpeachother

    helpeachother New Member

    Hi Sue, sorry for your suffering.

    Just a thought; My Dad developed chronic diarrhea after a stressful incident (5-way bypass surgery) and it was literally killing him.

    He lost so much weight and water that it was hospital time, but my Mom did some research and found out about celiac disease and sprue which are basically WHEAT (gluten)ALLERGIES. (Runs in families-familial)

    So many foods contain wheat and gluten in lots of disguised forms.

    Anyway, he stopped all wheat and gluten and INSTANTLY stopped having any problem in that area. He then had the tough task of eating lots of ice cream and yummy foods to get the weight back on.

    I hope you can pin this down-dont give up trying. Peace
  10. Jeanne-in-Canada

    Jeanne-in-Canada New Member

    I've been meaning to tell her she probably has celiac sprue. The standard lab test isn't very accurate for it, it's hereditary and they don't pick that up, and they tend to only detect the disorder when considerable intestinal damage has occurred.

    She was taking Questran (cholestyramine) for high cholesterol, but it also happens to act as an antidiarrheal and she said that worked. Yes, that's the same drug I and others have used for neurotoxin flushing.

    I vascillate between IBS-C & D w/ the C being predominant. I've gotten much better w/ gut healing by enzymes, aloe, ginger, marshmallow etc. It's a balancing act though, but many days I'm just plain normal.

    When I get the diarrhea days, I've found natural ways and the right foods to stop myself from having what I call the Hershey squirts all day. I used to take ibuprophen for that terrible gut irritation, I just drank draino feeling you get left w/ and to bring down the painful bloat. Now I use both proteolytic and digestive enzymes instead, works better and heals. No dangers of gut erosion.

    foods I've found that bind me up w/out causing rebound constipation:

    #1 celery (best source of insoluble fibre)

    - white rice cereal w/ very watery goat milk sits well when I feel "squishy"

    - Cheerios is alright too

    - white Ace Baguette (it's a chewy unbleached flour, barley flour combo w/ a sourdough starter) sold at Loblaw's, Independant Grocers, and Loeb has a similar one

    - black tea (aka Orange Pekoe) really settles the stomache too)

    - parboiled rice

    - rice crackers

    - potatoes

    - a combo of soda crackers and tea is very good (for nausea too)

    - marshmallow root (very cheap at bulk herb stores, contains over 30% pectin, also a heavy metal chelator, used to be a food for peasants

    on those days I AVOID:

    - coffee, cheeze, most dairy, whole grains, eggs, beef

  11. mjgkennedy

    mjgkennedy New Member

    I know what you are talking about. All my life I suffered from Diarrhea.

    I went for allergy testing a few years ago and the main offender was Dairy especially Milk Chocolate. Also White Sugar.

    I also have Candida and have to avoid anything with Yeast.

    I am much better since cutting out Dairy and Yeast and white sugar.

    Hope you get help soon as its terrible going through what you are going through right now.

    Pray you will get relief soon.

  12. Lurlasgirl

    Lurlasgirl New Member

    and the most help I've ever had from doctors is to say it's IBS ...

    totally unrelated to the IBS, I practically stopped eating anything made with wheat and most sugars, and started eating more brown rice and potatoes with their skins on ... I don't really know which of the steps caused the improvement, but I suspect that it's removing wheat and sugars ... cause if I decide it really doesn't matter, and its okay to have a doughnut - then I really pay for it! sometimes I can eat whole grain breads, but only if they're really made from whole grains, and not from white flour with a handful of whole grain thrown in "for pretty"

    I really hope you're able to find some relief!
  13. Christinawensell

    Christinawensell New Member

    I too have been having this problem for the past 8 months

    and I can't go anywhere. I am so worried about having an


    I am only 36 years old and a mother of two teenage

    daughters, so I try to stay out of the lime light to avoid

    embarrassing situations for them.

    My gastrologist last week suggested Immodium also he said

    to start out with one in the morning and if I still was

    having issues to do one in the am and then one in the

    afternoon. This seems to be lightening it up. Thank


    My suggestion is to contact your doctor. My doctor just did

    5 biopsy's on my colon to make sure the diarrhea is not

    caused by colon cancer(which runs in my family).

    Hope you feel better soon.