IBS??Were you tested first???

Discussion in 'Fibromyalgia Main Forum' started by Applyn59, Jun 2, 2003.

  1. Applyn59

    Applyn59 New Member

    Hi,

    To those with IBS. Were you tested for other things
    first or do you just assume it is IBS since that goes
    with FMS?

    I have horrendous digestive problems that I need to get checked out. I did have my gallbladder out due to Hida Scan showing non-functioning gb. I also
    have GERD and hiatal hernia. There have been weeks
    when I was either vomiting or having diarhhea daily or both! Also have severe shoulder blade pain that I want
    checked out as well.

    I can't get thru a meal without running to the
    bathroom. I get cramps, etc. Mostly diarhhea
    but it changes once in a while. I take
    acidophilus daily and it doesn't seem to be helping.
    Sometimes I wonder if it contributes to the diarhhea, but it helps me with the nausea. I use Pepto Bismol
    and Tums a lot, along with Prevacid.

    The one thing that I have found that helps gas the
    best is charcoal capsules. However, if you are
    on meds and vitamins, it will interfere with
    their absorption. If you are not on anything time-released I think you would be able to take
    it as long as it is at least one hour prior to pill
    or two hours after.

    I worry all the time that I have chrons, or celiac or
    colon cancer. Both my maternal grandparents
    had it. I also say it's IBS but I don't know for a fact
    because I have never been tested, other than
    fecal blood test to screen for colon cancer. The
    GI that did my mother's colonoscopy said I should
    get one starting at age 40. How nice - just what
    I don't need. However, I need to find out what is wrong
    with me. I guess I am one year overdue.

    Doesn't seem to matter what I eat. It always happens.
    Am wondering if it's bacterial infection. I have so
    many problems (like you all) that I don't even know what
    to tackle first. I have been bedridden the past year
    due to extreme exhaustion and constant flu or cold.
    I don't get up until 4 or 5 pm and can't imagine getting
    ready to go to a dr. The GI in town take months to get
    in with, also.

    Any advice appreciated.
    Lynn
  2. Dara

    Dara New Member

    of FMS. In fact, the first time I was a freshman in high school, let's see that's been 43 years ago. At that time they said I had a spastic colon, which I believe is basically the same as IBS. I react to emotional stress, foods, extreme fatigue seems to bring it on, eating in restaurants, and my one doctor said he thinks I'm allergic to sulphites which also really gets the IBS going. My Grandfather on my Mom's side also had colon cancer, I haven't had a colonscopy yet, know I should, but I'm too chicken to do it just yet.

    Dara
  3. Applyn59

    Applyn59 New Member

    Thanks for reply. How did they test you without colonoscopy? I am not too thrilled with the prospect of having one myself. My mother had one last year at age 71 for the first time. She didn't even have a polyp! We were amazed. She has breast cancer and we thought
    she would have colon as well, since at the time of
    the test, we were led to believe she had ovarian
    cancer as well. The GI gave me age according
    to family history. In all of my research I have found
    that breast, colon and ovarian cancer are all related
    to same gene.

    They have a new colonscopy that is done via
    MRI type thing. WOuldn't that be nice? We even
    have one in my dinky town! However, I actually
    am most afraid of the prep and there isn't any
    difference. I don't think the MRI can detect
    smaller findings either, though. Just wondering
    how they knew it was IBS. What kind of tests did you have?

    Thanks,
    Lynn
  4. Elbryan

    Elbryan New Member

    I went through a multidude of testing for the IBS long before I was DD with FM
  5. tandy

    tandy New Member

    by process of elimination?? I had a few tests to DX mine. I had alot of gut issues....still do.The severe cramping,alot of foods bringing it on,with mostly diarreah.Almost daily,constant stomach ache/tenderness.Bloating,gas,etc. I believe the first test was the FUN barium enema!!eeek! Then I had the colonoscopy followed by endoscopy.The only problem found on the colonoscopy was internal hemeroids,and imflammation.
    So the DX of IBS was made~ I still have a hell of a time with it!! Best of luck to us all!! I just wanted to add.....Next I'm going to be tested for allergys or food senstivitys~Just to see if maybe thats the root of the problem. Take care,
    Tracey
    also:The colonoscopy is not too bad.Your put out so you feel almost nothing!!The prep you take the day before is the nightmare!tastes really bad,and ya spend every minute in the bathroom for the next 10 hrs!!
  6. athome

    athome New Member

    HI THERE--

    I KNOW IT'S HARD FOR YOU TO GET YOURSELF TO A GI, BUT DO SO. SCHEDULE NOW IF IT TAKES SO LONG TO GET IN. A COLONOCOPY IS REALLY IMPORTANT TO RULE OUT CANCEROUS CONDITIONS IN THE COLON.

    HAD SAME PROBLEMS BUT MY INTERNIST ALWAYS HAS SPECIALIST CHECK UT THESE THINGS---SAYS CAN'T AFFORD TO JUST ASSUME IT'S FMS RELATED.

    SHE ALERTED THE GI TO MY HISTORY AND NEED TO BE COMPLETELY PUT UNDER FOR THE COLONOSCOPY. FOUND ONLY MILD DIVERTICULOSIS, SO IBS WAS THE DX.

    HAVE BEEN HAVING MORE TROUBLE, PLUS INEXPLICABLE WEIGHT FLUCTUATIONS, SO WILL HAVE ANOTHER COLONOSCOPY SOON.

    WHEN I AM AT MY WORST WITH THE CRAMPING AND DIARRHEA, I SUBSIST ON TOFU & BANANA SMOOTHIES.

    I ALSO HAVE DIFFICULTY WITH DAIRY PRODUCTS WHEN THIS IS BAD, SO I LIMIT YOGURT.

    NANA
  7. Cara-Sue

    Cara-Sue New Member

    i had a colonoscopy done plus i had the scopy done down my throat(i cant remember what that test is called).i also couldnt get thru supper without going.i couldnt do restaraunts either.
    i found a over the counter drug called *bentylol*to help alot.you only take it when you have the cramps or diahria.i found that was the only thing that helped.oh also try a heating pad on your tummy..it makes it feel better.
    hope you feel better soon
    cara-sue
  8. Nancy39

    Nancy39 New Member

    I had to jump in here and encourage you to schedule an appointment and get a colonoscopy. It may help to relieve your symptoms just to know that there is nothing wrong. Since you are at risk due to family history it is also important. I just had a colonoscopy done because I had some black stools and a little blood. All came out fine with the test, just some internal hemmroids. I had the colonoscopy done last week and I have felt better ever since- mainly because now I have the peace of mind knowing that there is no majory problem.

    I have come to realize that a lot of my symptoms are worsened, if not due to anxiety. The more I think about health issues, the sicker I feel. Once I get a test done and it rules something out, I feel better. Hmmm... shows what anxiety can do to our bodies. And every time I get worried about something- sure enough I get diarreah - even more so than normal. I think the stomache is one of the biggest things effected by stress.

    From the sound of your post, you are are indeed concerned about health issues and I cannot urge you enough to go to the doctor and get them checked-out. If you can't get one doctor to take you seriously then go to another and another until you find the right one. That is what I did and I am glad I did. The anxiety might have put me in the looney bin by now.

    Best wishes, Nancy39
  9. goingslowlycrazy

    goingslowlycrazy New Member

    I had a Sigmoidoscopy (following a barium enema - which, as someone rightly said, was by far the most uncomfortable bit of the whole procedure...just stay within running distance of a toilet for the day...).

    I had to have this as I had had some bleeding which turned out to be caused by internal haemorrhoids. My other symptoms (alternating diarrhoea, constipation, bloating and gas were what brought them to the IBS diagnosis).

    I agree with everyone else that you really should get tested, with your symptoms and your family history.

    I feel as if you also agree...as you are asking the question - so you must be thinking about doing it.

    Go honey - it really isn't that bad and is well worth the relief to know that nothing sinister is going on.

    Let us know how you get on,
    hugs
    Mary x
  10. Princessraye

    Princessraye New Member

    I had the colonoscopy.
    I went through hell with IBS for 7 years and for the most part was told I had to live with it. I used to crawl from the toilet to the bed and ask God to please let me die then I would have to get up take a shower and work. I know how horrible this is.
    Finally an ear, nose and throat Dr. was treating me for strep throat and saw yeast in my throat. She treated me for that for 2 weeks and my IBS was gone ! I told her and she said did you take a lot of anti bioitics in the past? I said tons. She said well that yeast must have been all through your digestive tract all these years. It was like a miracle. that was four years ago. I take acidophilus and only have a problem on occasion, usually restaurant food.

    If I had to do this over again, I would ask that your stool be tested for bacteria, yeast or anything else that could possibly show up.
    Please don't take any over the counter yeast products, anti biotics ,etc before getting tested as this could clear it up just enough so that it won't show on the test.
    I am praying for you . I really do know how bad this can be. This is not the answer to everyone's IBS but it was mine.
  11. Applyn59

    Applyn59 New Member

    to everyone who responded.

    Yes, I do intend to get this checked out because
    I have to. The when is the problem.

    I have had the barium upper GI series many years ago.
    I think if I did that now I would vomit and get dizzy.
    Had endoscopy prior to GB out. Everything was fine
    there.

    Princess, do you mean I shouldn't be taking the
    acidophilus either??? I hate having to worry about not taking something to get better so it will show up.
    However, that is what we have to do so many
    times.

    I am glad you found your reason. I often
    think I have yeast problems as well.

    What I need is a good alternative med. dr. who
    takes insurance! That's a laugh. Oh, well.
    I don't mind spending money when it gets me
    somewhere.

    I appreciate the input from you all.
    Lynn
  12. Dara

    Dara New Member

    and also a sigmoid something or other. Not as bad as a colonoscopy, but close. I am supposed to have a colonoscopy because about a year and a half ago I had blood in my stool. I was really sick, and I think it was kind of virus. I have convinced myself if it was anything more than that I would have had the blood since then and I haven't. I do take a prescription for the IBS or spastic colon or whatever term they are using now. It slows down the colon and sometimes relieves the cramping.

    Dara
  13. Princessraye

    Princessraye New Member

    I think the acidophilus is OK. It don't think it gets rid of anything as severe as what you are going through. It just adds some healthy bacteria.
    I know some people on here use anti yeast treatments and if this is your problem then I am concerned the test may not show it....like you get rid of just enough that the test would come back negative. I really hope it is yeast or a bacterial thing , at least those can be treated.
    It was a miracle for me after seven years. I pray you get one too.

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