If I have PPS can I still be on this board

Discussion in 'Fibromyalgia Main Forum' started by 1975jet, Jun 22, 2006.

  1. 1975jet

    1975jet New Member

    Hello everyone- Boy today I feel like typing my heart out-
    just need to know if I do have PPS(post polio Syndrome) can I still talk with you guys- I feel attached to you all now....

    I sure hope I can....
  2. rockgor

    rockgor Well-Known Member

    Have you visited the arthritis board and the depression board? They might be helpful too.
  3. tlayne

    tlayne Member

    I say once a part of my family, ALWAYS a part of my family! Please stay! Love, Tam
  4. mrdad

    mrdad New Member


    Hey, why not. They let me in didn't they?? And I represent the lowest standard of excellence!! I'm glad you"re here. It will be "more funner" now.
  5. mme_curie68

    mme_curie68 New Member

    I don't see why not. PPS is a different label, but it seems like many of the problems are similar.

    "Post-polio syndrome (PPS) is a condition that affects polio survivors anywhere from 10 to 40 years after recovery from an initial paralytic attack of the poliomyelitis virus.

    PPS is characterized by a further weakening of muscles that were previously affected by the polio infection. Symptoms include fatigue, slowly progressive muscle weakness and, at times, muscular atrophy.

    Joint pain and increasing skeletal deformities such as scoliosis are common.

    Some patients experience only minor symptoms, while others develop spinal muscular atrophy, and very rarely, what appears to be, but is not, a form of amyotrophic lateral sclerosis (ALS), also called Lou Gehrig's disease.

    PPS is rarely life-threatening." - sounds infuriatingly just like some of our docs, doesn't it??

    I say stay.

    Hugs,
    Madame Curie

  6. Hope4Sofia

    Hope4Sofia New Member

    Most of us don't really know what to call our ailment! We all question our diagnosis and are constantly searching for better answers.

    I'm interested in how you discovered your diagnosis. I've had trouble even getting any tests run.

    It's good to have your input here.

    Sofi
  7. 1975jet

    1975jet New Member

    Thank you all for making me feel welcomed... I'm not sure how I got into reading about PPS BUT- I had mild polio when I was 5 or 6- I was born in 1956 and I remember my mom telling me the doctors said I was born with it and should grow out of it. I was luckier that alot of the polio patients- I did not need the brace or worse to be put in the 'iron lung' - looked like a horror movie.

    I even remember my specialists name - my family doctor was the one that discovered it and they said in time I should grow out of it. Which is something alot of polio survivors did. The worse thing I had to do was where special shoes with the heel built up on one shoe(not very cute looking)- when I got a little older they built my shoe up on the inside- it was better to hide it.

    It affected one limb which was shorter, thinner than the other. I have pictures when I was little- and you can tell in the dresses my mom dressed me in. Not Pretty...

    Polio, to us survivers was controlled after time and alot of us seemed to succeed in life with excel.... Which now they are finding we have abused our bodies and need to conserve to preserve- BUT I have see, when I get my insurance(another story) what tests I have to go through to rule out everything including FM and CFS.

    So people that have had polio even mild cases BEWARE that you maybe be not diagnosed correctly. Go on google and look up post polio syndrome(Dr. Bruno in NJ has done some amazing work to get people aware)Lots of info on there...

    Bless all