IGeneX Results. What's It All Mean?

Discussion in 'Lyme Disease Archives' started by countfunkula, Apr 8, 2008.

  1. countfunkula

    countfunkula New Member

    Got my IGeneX results back. Doctor says that she spoke to the infectious disease specialist at IGeneX and he said that I was "unequivocally positive" for Lyme. Probably infected in the last year (which would coincide with my symptoms). However, though she's knowledgeable, my doc's not a LLMD nor has she used IGeneX before.

    I was wondering if any of the house experts here could give me their take on my results.

    IGM:
    18 kDa. -
    22 kDa. -
    **23-25 kDa. IND
    28 kDa. -
    30 kDa. -
    **31 kDa. ++
    **34 kDa. -
    **39 kDa. -
    **41 kDa. +
    45 kDa. -
    58 kDa. -
    66 kDa. +
    73 kDa. -
    **83-93 kDa. IND

    IGG:
    18 kDa. -
    22 kDa. -
    **23-25 kDa. ++
    28 kDa. -
    30 kDa. -
    **31 kDa. IND
    **34 kDa. -
    **39 kDa. IND
    **41 kDa. ++
    45 kDa. -
    58 kDa. ++
    66 kDa. -
    73 kDa. -
    **83-93 kDa. +

    I'm already on my 2nd week of Doxy, but I have another doctor who also thinks I have Lyme, but who called IGeneX a "rouge lab" and only trusts Stony Brook. Results from there are pending.

    Thanks for your help!
    /Count
  2. victoria

    victoria New Member

    also, IGenex is not a rogue lab, they just specialize in doing lyme tests which is why they have a higher success rate in detecting it. They've been fully certified as all labs have to be in order to be accepted and paid for by insurance including MediCare...

    There was somenegative PR put out a couple of years ago when they were getting their lab recertified as if there was something wrong, when all it was, was routine recertification.

    The politicians of medicine know no bounds :(

    Good luck, how are you doing? I hope they give you some flagyl routinely, it is the only thing that will dissolve the cyst form.

    all the best,
    Victoria

  3. countfunkula

    countfunkula New Member

    I'm still having a hard time shifting my mind from CFS to Lyme. I was so locked into it and committed to researching, beating on doctors and getting well that putting my mind in Lyme-mode is proving difficult. I had mentally set my mind on doing the MP which was a really hard place to go. Still, I'm happy to have something more specific to focus on and have an easier time imagining a future of feeling well.

    I say "a future" because right now I feel like !@#$%. Perhaps the worse I've felt since getting over my initial illness that kicked all this off. I assume that it's all from the Doxy (9 days in), but I can't tell. I feel super weak, fuzzy headed, nauseous and really achy. I'm still at work (have only missed a couple of days since getting sick) and I rode my motorcycle to the office, but I'm getting kinda concerned. Too many more days like this and that might have to change.

    Is this the road back to health or is something else going on? I guess it's possible to have CFS and Lyme at the same time, yeah?

    Thanks!
    CF
  4. victoria

    victoria New Member

    But there are huge overlaps in symptoms from different pathogens...

    And unfortunately some days really are hell... just keep realizing it WILL get better eventually. The first time you experience a 'good' day, hopefully it will get a bit easier to take the herxes a bit more in stride. As bad as I or my son have felt at times, that's what keeps us going along with the knowledge that things are being killed...

    We do use a lot of visualization, it helps at least on the emotional end, perhaps also the physical (who knows!).

    all the best,
    Victoria