I'm confused about treatment of CFS

Discussion in 'Fibromyalgia Main Forum' started by prettyblueiris, Mar 28, 2006.

  1. prettyblueiris

    prettyblueiris New Member

    My daughter was diagnosed with CFS. She's had to change from a full-time student to part-time and doesn't make it to school very often. Has anyone had success with Dr. Teitelbaum's supplements? If so, which ones?
  2. berrytired

    berrytired New Member

    I'm not. This is what I'm going to try. I just got it off of a website that is a Canadian Magagine www.alive.com look it up and type in CFS. There is a story in there and at the end it gives you supplements for CFS. I'm interested because I thought it norrows down what I'm taking...I have a cupboard full. So, I'm going to give this a try...if you can't find it let me know and I'll type them out for you. Worth a shot.
  3. Pianowoman

    Pianowoman New Member

    You can search old posts on this board at the top left of this page. There is a lot of information about Dr Teitelbaum.

    There is also a Library on this site with information about how different Doctors treat CFS.
    If you stick around on the board for a while, you will learn more. Ask more specific questions if you wish.

    Good luck to your daughter.
    Kathy.
  4. greatgran

    greatgran Member

    Would you please list the supplements that you were speaking of..I tried to get into the site which I did but could not bring up the supplements.

    Or anyone that got into the site.

    Thanks,
    greatgran
  5. prettyblueiris

    prettyblueiris New Member

    Greatgran: I'm thinking about purchasing From Fatigued to Fantastic and undenatured whey protein. The site is www.immunesupport.com and then go to the "Store" section. Then highlight Energy and then Immune Support. Hopes this helps.
  6. berrytired

    berrytired New Member

    Now the reason I thought this might be of help is because when I looked in my medicine cabinet I thought...geesh...look at all this stuff and I really wanted to norrow it down.

    Multivitamin with minerals
    Vitamin A - 25,000 IU Daily for six weeks, then reduce to 5,000 IU for maintenance. Helps regulate immune system
    High Potency B- Complex - two caps. daily (metabolism and energy production.
    Vitamin C - 1,000 mg or bowel tolerance.
    CoQ10 - 100 Milligrams twice daily. Increase natural killer cell and antioxidant activity.
    Astragalus - One cap.(500 mg)twice daily. Stimulates antibody production and white blood cells.
    Licorice DGL - Up to one gram daily. Increase blood pressure for those that have low.
    Sterols and Sterolins - two caps. 3x daily for six weeks, then one cap. 3x daily.
    Protein powder - One to two scoops daily.
    Lactobacillus acidophilus - the good bacteria
  7. berrytired

    berrytired New Member

    If you want the chart so you can print it off a put somewhere go back into the site. Type in CFS in the search, this will come up with an article Chronic Fatigue Syndrome
    by author Sabitri Ghosh. Scroll down and you'll see in bold letters PDF table of supplements to combat CFS, click on that and it should come up. Or try this below

    http://www.alive.com/site_4/249_54_table.pdf
  8. greatgran

    greatgran Member

    I have most of the supplements and have tried them along with the no sugar etc. diet but sorry to say can't say they helped..I can say don't think they hurt, don't recall any reactions which is a plus for me..

    Good luck and keep us posted.
    greatgran
  9. Michelle_NZ

    Michelle_NZ New Member

    Hi folks

    I see a CFS specialist here in NZ and she is rather sceptical of supplements. She does recommend Omega 3, EPO, Vit B12 shots.

    However she does NOT recommend taking a Vit C supplement. She says that with CFS the immune system is in overdrive and too much Vit C just stirs it up. She told me one peice of fruit a day is enough.

    Cheers
  10. alaska3355

    alaska3355 New Member

    It helps to move toxins and heavy metals out of the body...I would do further checking into the benefits of vitamin C. Terri
  11. foxglove9922

    foxglove9922 New Member

    Is your daughter in high school or college. Laws require that disabled children also receive an education. My daughter spent her senior year in high school with a home bound tutor and was able to walk across the state to get her diploma.

    She's still very ill and only taking 2 courses per semester at college but refuses to give into this dd. It will take her quite some time at this pace but she hopes to become a RN.

    I too will be heading back to college this fall, parttime.

    best wishes........foxglove
  12. prettyblueiris

    prettyblueiris New Member

    My daughter is in cosmetology school. They have accommodated her in some ways but they keep telling her that maybe this isn't the profession she should be in. She loves doing hair though. We have told them that she can work part-time and in the afternoon when she has a little more energy. I wish I could find something to give her even 50% more energy. I think she could function okay at that level.
  13. prettyblueiris

    prettyblueiris New Member

    I went on that website and found the supplements. It sounds similar to the supplements Dr. Teitelbaum suggests. My daughter is a vegeterian and that article suggested eating more fresh vegetables, fruits, and whole grains. I have been preparing more processed foods for dinner so I guess I'll have to start cooking more from scratch and see if that helps her any. Although I'm not looking forward to that!
  14. berrytired

    berrytired New Member

    Yah I thought they were along the same lines as Dr. Teitelbaum. I mean, I take other things such as Coenzyme Q10 etc. I hope she starts to feel better or at least has better days than not. Everyone will experience different results.
  15. berrytired

    berrytired New Member

    Well those "good" foods will help with her IBS. I eat that way and am rairly bloated.
  16. victoria

    victoria New Member

    is not for increasing BP - it is the deglhycerrinization (sp) (but is the DGL part of term) of the licorice that removes the part that stimulates the adrenal glands. It is very helpful for stomach hyperacidity and ulcers, that's why I take DGL licorice.

    Have you had your daughter tested for Lyme? Worth a try.

    That is what my son has, his presenting physical symptoms were low BP, low pulse, lost weight, migrating aches & pains, and unrefreshed sleep....very bad memory suddenly, hyperirritable; before that he had a sudden major bout with depression/anxiety.

    He is now 18, he had to drop out of several semesters of HS and reduced schedule during other semesters, finally just went and got his GED.

    His physical symptoms didn't start until about 18 months ago, neuro almost 4 years ago. He is taking (regular) licorice which helps.

    He mirrored my symptoms (I am dx'd with CFS); I am responding to an experimental protocol for bugs of various kinds, I think it is probably what I have as well.

    I have the fatigue, some of the joint aching, and brain fog & memory problems as does he, but not the anxiety/depression/hyperirritability.... He actually has much worse problems in every way than I do, but hoping that age is on his side as he gets treatment.

    And, as we all know all too well, each of us is just a little bit different!

    hope this helps,
    Victoria


    [This Message was Edited on 03/31/2006]
    [This Message was Edited on 03/31/2006]