I'm desperate people!! Need your opinions

Discussion in 'Fibromyalgia Main Forum' started by phoebe1, Sep 28, 2005.

  1. phoebe1

    phoebe1 New Member

    My problem is my stomach/bowels, I have tried changing my diet, antacids, every type of fibre you can think of, laxatives, exercise, stomach massage etc. I can't even remember all the things I've tried, I've also gone through 3 litres of aloe juice in the last 3 weeks and NOTHING!

    I am sorry to put it so bluntly but I literally have the proverbial pain in the *** and permanently look like I am 6 months pregnant.
    I am seriously considering a colon irrigation, please give me both sides of the story, good and bad, and also can I go if I have gastritis?

  2. kathleen1437

    kathleen1437 New Member

    I take it you have been down the whole food intolerance testing thing . I know in Scotland that we can go to our local chemists/pharmacy ,in the first instance you can get a free basic test ,then you have to pay for the next two stages ,they are of course more intense testing. I would think in your line of work ,you may well have gone down this line.
    My husband has had Irritable bowel for many years and has done the whole change of diet thing and different medicines which offered short term relief . He decided on colon irrigation and he saw a real improvement ,he felt great ,the bloating disappeared . How long this will last for we just cant tell.
    The thing is it worked for my husband ,thats not to say it will for anyone else, but as with everything thats the chance you take.
    As with FM I say its worth a go if it will help and improve quality of life .
    Good luck with whatever you decide to do.
    Wishing you a speedy resolve.
    take care
  3. PepperGirl52

    PepperGirl52 New Member

    You haven't had a BM for three weeks?? If that is the case, you need to get to the ER today!!

    If you are going off and on-loose stools, but not complete, you DO have a blockage, and it needs to be treated ASAP!

    Since my docs put me on methadone, I have started having major problems with my bowels, too. It IS a pain in the ****!!! I know where you're coming from!! Sometimes it's days before I can get anything going, and it's scant at best.

    You may have to use a fleets enema to get you going, then go to the pharmacy and ask the pharmacist for a recommendation for something to keep you regular-like magnesium, lactulose, etc. Good luck!! PG
  4. phoebe1

    phoebe1 New Member

    Thanks for responding, I have had BM's here and there but they are so small and hard and actually painful to get out, I wouldn't be surprised if I have a blockage.
    Kathleen, I haven't done the food testing because it doesn't matter what I eat it seems like everything gives me a reaction, even when I haven't eaten for hours and my stomach is empty, it is still bloated and crampy.
    I don't really want to do a fleet enema because of the horrible cramps and it only empties the rectum not the whole colon.
    Magnesium and lactulose doesn't do anything for me, maybe I'm too far gone for things like that?
    That's why I'm considering the colonic irrigation, I feel like I'm being poisened by my own gut!

  5. rileyearl

    rileyearl New Member

    Hi Phoebe,

    My system works like yours--or I should say doesn't work, like yours.

    I've had good luck with a tea called Smooth Move. It has senna in it and has done the trick when laxatives have not. Sometimes I have to drink a cup for two nights before it works, but usually one cup will do it. You can find it at most drug stores. Funny name, huh?

    I hope you have relief soon. It's agony, I know.

    Take Care!

  6. ruby711

    ruby711 New Member

    You should probably go to a gastro doc and maybe try a medication at least until it resolves. My recent episode resolved itself with walking and super seed by garden of life taken with water or juice 3x per day. I also used 2 senna tabs everyday for awhile, but then found the walking and super seed to work better after that.

  7. sunflowergirl

    sunflowergirl Well-Known Member

    To get bulk to move things easily you NEED WATER. You are supposed to drink l/2 your weight. In other words, if you weight l20 lbs. you drink 60 oz. of water. I used to have terrible problems along those lines until I began taking magnesium oxide 500 mg. every night. I rarely have any gas anymore because it is like a very mild laxative.

    I also hope you have stopped drinking any milk and cut out sugar. If things aren't moving, sugar ferments down there and causes gas.
  8. Mareeok

    Mareeok New Member

    the Epson salts? Thanks.
  9. Mareeok

    Mareeok New Member

    Thanks a lot.
  10. neen85

    neen85 New Member

    3 capsules (500 mg each) of pantothenic acid. GNC sells them for around $10.00 a bottle,can't remember how many..for those in USA. I take 3 capsules three times a day. I have read this also helps adrenals. This would be a long-term treatment to keep things going,not for immediate relief. Daneen (plenty of water also!!!)
  11. Nadineg

    Nadineg New Member

    I used a new product that they came out with, just for IBS. It is very good and you get NO CRAMPING. It works very good. You can get it at any drug store. It is by the antacids and laxatives. You can take it even if you do not have IBS. But it does sound like you do.It will clean you out.
    It is called Digestive Advantage IBS.
    I hope this will help you. You can get this product in most drug stores.
  12. JLH

    JLH New Member

    As you know, the best thing for you to do is to call your doctor, tell his nurse the problem, and ask if there is anything over-the-counter that will help you.

    Then, if he wants to see you instead, GO!!! If it turns out that he can't help you, have him refer you to a Gastro specialist.

    My FIL had this problem, and we called our pharmacist who gave (sold!) us this little bottle of stuff that he kept behind his counter. He said it was the same stuff that he would be given had he gone to the ER.

    Also call your pharmacist and explain situation--and ask for his recommendations.

    Hope you can get some help soon, and get some relief!

    You know, we can't always rely on home remedies--sometimes we have to go to the doctor!

    Take Care,
  13. razorqueen

    razorqueen Member

    works for me best, (if I take it regularly) In Canada we can't get Digestive Advantage IBS, but we are going to Grand Forks at the end of Oct.so I will see if I can get some there! Panothentic Acid didn't do much of that at all for me, along with BComplex-100's. But I wasn't taking a high dosage of it.
  14. phoebe1

    phoebe1 New Member

    You have no idea how much I appreciate your advice!
    Most of the prodcts mentioned like Smooth Move and Digestive Advantage IBS is not available in my country, and with the accompanying nausea, I can't get down the epsom salts.
    Stormy, I think you are right, it's time to go for a complete colon cleanse, at this moment I feel like nothing I do is helping because of all the horrible things that are stuck in my colon, and that I really need a kickstart.

    Last night was terrible, I will be surprised if I didn't give myself hemmorhoids. I have tried senna but it gives me bad cramps, and the milder things just doesn't do anything. I just think I've reached a point where some drastic action is necessary. I am already taking magnesium (high dosage), fiber and probiotics for the past year and it hasn't made any difference, I also drink a lot of water. I will look into enzymes and pantothenic acid.
    Thank you for helping me make a decision!

    [This Message was Edited on 09/29/2005]
  15. tansy

    tansy New Member

    decided upon a more gentle approach because there was such mixed feedback on this treatment after it became more popular in the 80s. I also used to have chronic gastritis but thankfully this is now a rare problem and of short duration when it recurs

    There is a probiotic-like strain that’s relatively cheap to buy in the UK, it’s action makes it an excellent choice for constipation etc and it is considered more effective for gut dybiosis than the more usual probiotic strains that are often recommended. The article below describes the possible benefits from using Lactobacillus Sporogenes, which is also one of the key ingredients in threelac which many find works well for candida. Lactobacillus Sporogenes is considered very effective for constipation.

    Hope you find a solution soon.

    Love, Tansy

    "Lactobacillus sporogenes"

    Alternative Medicine Review, August, 2002


    Lactobacillus sporogenes is a gram-positive, spore-forming, lactic-acid producing bacillus. It was originally isolated and described in 1933. The organism requires a complex mixture of organic substrates for growth, including fermentable carbohydrates and peptides.


    Subsequent to oral administration, L. sporogenes passes through the stomach in its spore form and upon arrival in the duodenum, germinates and multiplies rapidly. (1)
    Estimates suggest the average duration of time between oral dosing and germination is four hours. (1) After germination, L. sporogenes is metabolically active in the intestines, producing lactic acid.

    L sporogenes is considered a semi-resident, indicating it takes up only a temporary residence in the human intestines. Spores of L. sporogenes are excreted slowly via the feces for approximately seven days after discontinuation of administration. (1)

    Mechanisms of Action

    Despite the transient nature of this organism in the digestive tract, the changes this lactic acid bacillus produces shift the environment in support of a complex gastrointestinal flora.(1,2)

    The mechanism of action is presumed to be a result of improving gastrointestinal ecology by replenishing the quantity of desirable obligate microorganisms and antagonizing pathogenic microbes.(2,3)

    Two isomeric forms of lactic acid can be produced by lactic acid-producing bacteria--dextrorotatory (D (-)) lactic acid and levorotatory (L(+)) lactic acid. L(+) lactic acid is completely metabolized in the body; however, D(-) lactic acid is not completely metabolized, resulting in a degree of metabolic acidosis. L. sporogenes produces only L(+) lactic acid. (1)

    L. sporogenes is assumed to produce bacteriocins (2) and short chain fatty acids. As the organism grows, it assimilates and incorporates cholesterol into its cellular structure. (1)

    L. sporogenes possesses significant [beta]-galactosidase (lactase) activity in vitro. (4)

    Clinical Indications

    Lipid Disorders
    Administration of L sporogenes to rabbits resulted in a 90-percent inhibition in the rise of serum cholesterol secondary to feeding of high cholesterol diets. (5)
    Oral L. sporogenes supplementation (360 million spores/day) decreased total serum cholesterol from an average of 330 mg/dL to 226 mg/dL in 17 subjects with type II hyperlipidemia over a three-month time interval. HDL-cholesterol increased slightly. No changes in serum triglyceride levels were observed. (6)

    Digestive Disorders

    In laboratory animals with bacterial dysbiosis, L. sporogenes supplementation inhibits growth of pathogenic microorganisms and results in renewal of desirable obligate gastrointestinal organisms to normal levels. (3) Reports suggest that supplementation produces a rapid resolution of acute gastrointestinal infection induced by pathogenic bacteria in calves)

    It has been reported that the efficacy of treatment in patients with bacterial dysbiosis receiving L sporogenes was 20-30 percent higher than traditional probiotics such as Lactobacillus acidophilus of Bifidobacteria. (2)
    Seventy percent of individuals suffering from chronic constipation treated with 300-750 million spores per day of L. sporogenes for two to 10 days experienced an amelioration of abdominal distention and a normalization of stools. (7)

    Reports suggest a benefit in neonatal diarrhea. (7)
    Aphthous Stomatitis

    Reports suggest efficacy in the treatment of aphthous stomatitis with resolution occurring within two to three days. (8,9)


    Vaginal administration of L. sporogenes was investigated in non-specific vaginitis. Subjects with Trichomonas or Candida vaginitis were excluded from the study. Complete relief of pruritis and discharge was reported by 93 percent of subjects. Postmenopausal subjects had a slower response to therapy. (10)

    Toxicity and Side Effects

    Acute toxicity studies in animals have been conducted with doses as high as 50 g/kg for seven days. No abnormalities, either during supplementation or in the period after withdrawal of the supplement, were observed. Chronic supplementation of doses as high as 5 g/kg for 15 months in animals results in no observed toxicity. In humans, adverse reactions following supplementation have not been reported.

    A reasonable dose is 100 mg two to three times daily. Each 100 mg contains approximately 1.5 billion colony-forming units.

    (1.) Majeed M, Prakash L. Lactospor(R): The Effective Probiotic. Piscataway, NJ: NutriScience Publishers, Inc.; 1998.
    (2.) Voichishina LG, Chaplinskii VI, V'iunitskaia VA. The use of sporulating bacteria in treating patients with dysbacteriosis. Vrach Delo 1991 ; 12:73-75. [Article in Russian]
    (3.) Smirnov VV, Reznik SR, V'iunitskaia VA, et al. The effect of the complex probiotic sporolact on the intestinal microbiocenosis of warm-blooded animals. Mikrobiol Z 1995;57:42-49. [Article in Russian]
    (4.) Kim YM, et al. Studies on the production of [beta]-galactosidase by Lactobacillus sporogenes. Properties and applications of [beta]-galactosidase. Korean J Applied Microbiol Bioeng 1985;13;355-360.
    (5.) Kumar ORM, Christopher KJ. Feeding of L. sporogenes to rabbits. Ind Vet J 1989;66:896-898.
    (6.) Mohan JC, Arora R, Khalilullah M. Preliminary observations on effect of Lactobacillus sporogenes on serum lipid levels in hypercholesterolemic patients. Indian J Med Res 1990;92:431-432.
    (7.) Dhongade RK, Anjaneyulu R. Maharashtra Medical J 1977;23:473-474. [abstract]
    (8.) Mathur SN, et al. Sporlac therapy in treatment of apthous stomatitis. Uttar Pradesh State Dent J 1970;11:7-12.
    (9.) Sharma JK, Kapoor KK, Mukhija RD. Clinical trial of Sporlac in the treatment of recurrent aphthous ulceration. Uttar Pradesh State Dent J 1980;11:7-12.
    (10.) Shirodkar NV, Sankholkar PC, Ghosh S, Nulkar SM. Multi-centre clinical assessment of myconip vaginal tablets in non-specific vaginitis. Indian Pract 1980;33:207-210.[This Message was Edited on 09/30/2005]
  16. dorrene

    dorrene New Member

    Sounds like this has been going on for quite a long time and you have been doing all the right things. Also you are too young for all this.
    Having a "weak" colon can be a sign of low thyroid and that can happen with someone your age, and also with fibro..it happen the same way to me.
    Find a "holistic" doctor to check this out. The lab test they do is not very accurate, so sometimes you have to go on the symtoms. The normal doctors won't treat you unless your test comes back very low. But a lot of times your body is producing thyroid but not able to use it. So even if your test comes back normal you really may still have a thyroid problem. A colon clease will make you feel better for the short term. Seeing a doctor right away to make sure it's not something serious would be a good idea.
    Be Well,

    [This Message was Edited on 09/30/2005]
    [This Message was Edited on 09/30/2005]
  17. razorqueen

    razorqueen Member

    can we please have an update as to how this worked for you? It is something I am seriouslly considering!

  18. suzetal

    suzetal New Member

    It has worked wonders for me.You need to take it every day even if things get better,It did work took about a week but I Finlay got relief.

    I checked with my doctor to make sure it was OK to try and she gave me the OK.

    Good luck
  19. razorqueen

    razorqueen Member

    you will notice it is an old thread. I dug it up from a search I was doing on colon irrigation. I just wanted to see if she had this done and what the results where. Its not like you can pm anyone here, lol.

    Wakemeup, can meds cause this gastroparesis?
  20. razorqueen

    razorqueen Member

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