I'm glad I have fibromyalgia

Discussion in 'Fibromyalgia Main Forum' started by millennia, Oct 17, 2006.

  1. millennia

    millennia New Member

    OK, maybe the title of the post is a little misleading, but I think that some of you guys can probably relate to how I feel. For so many years I was told my problems were all in my head. My doctor flat out told my mother that I was a hypochondriac and not to indulge me (when I was younger).

    That doctor had all the info at his fingers, all the seemingly unconnected symptoms that together make up a textbook list of fibro symptoms. And all the times that I complained about my heart, he never even ordered a single test. I finally left him when I got a new insurance that he didn't take. It was the best thing that could've happened.

    I went into the new docs office with a list of everything that bothered me, no matter how stupid or unrelated it seemed. I figured he should know right off the bat that he was dealing with a hypochondriac! Instead I read him a list of symptoms to some illness that I had never heard of (fibro, which is now all I ever talk about, read about, etc.).

    This doc sent me to specialists to look into every little complaint I had. He sent me to the greatest cardiologist who diagnosed me with MVP and after having me wear an event monitor for 2 weeks, sinus tachycardia. My heart beats so fast. Everyone always told me that I was just a nervous person, that I over react to everything, that I was a big baby. I feel so vindicated to have a team of medical professionals standing behind telling everyone in my life "This girl is really sick and you guys have been torturing her, her entire life".

    It is not all in my head. It is so nice that people finally believe me.

    So while it stinks that I don't have an illness that a round of antibiotics could take care of, I'm so happy that people finally believe that I'm ill. Is that crazy?
  2. 69mach1

    69mach1 New Member

    it is nice to receive that confirmation that you know you had something not right w/you. you just didn't know what the heck was wrong w/you.

    i know how you feel.

    my favorite come back to say to people when they have been not so understanding is: well, if you ever get i will be there for you as much as i can because i know how painful it is.

    so far my son has been dx with all the upper trigger points, and complains of neck and back pain often....he would have leg pains so badly when he was a kid he couldn't sleep.

    he did have osgood-schlater's disease at his knees. growing rapidly.

    now he has ibs. and he has been in e/r/ last year they thought he was having recurrent appenditicitis.

    but now he was in that dire pain where he wanted some morphine last month. turns out he has ibs. am i waiting for the official i can't go to work cause i hurt so darn bad mom? yes i am. but that is ok. i will understand. and treat him better than he or his father or some other morans did.

    jodie
  3. Dixie_Amazon

    Dixie_Amazon Member

    I know exactly what you mean. After years of doctor visits I was diagnosed yesterday. It was a relief.
  4. Suzan

    Suzan New Member

    But many of us know exactly what you mean! And there are even times WITH the diagnosis...people still will look at you like you are crazy..but our symptoms don't seem to make much sense at times. But, I too felt a bit of relief having a name for what was going on with me!
  5. mindbender

    mindbender New Member

    When I was younger fortunately or unfortunately I did not complain of my pains. I was always treated with the," its nothing, now go away." I say this not for simpathy, but to point out a wrong way of thinking. I was a strapping young boy. Strapping young boys don't have medical conditions. Uless they have to stay in bed or something. I was very happy to hear I had Fibromyalgia. It only made sense to me. Just like I did not complain as a child, I also did not complain as an adult. Oh I complained, yes, but not about physical problems. People around me called me a complainer and still do. I complained because the world didn't go my way. I did finally go to the Dr. I had to. The Fibro hit me so hard and painful that all I could do is run to the bed and scream until I passed out, and it kept occuring. Finally, it would all stop. My meager existance would finally come to a hault. What I'd been fighting wasn't the world, it was a horrible disorder that was attacking my brain and my body. I had been right all along. All the people weren't there to witness it though. Nor were they there to help me. This was a blessing in disguise. Now no one is near to bother me. I like that. I am happy that now I can rest, and that isn't even enough sometimes. I am happy now because I'm not fighting against the world anymore. I'm happy because even if I wanted to, I couldn't.

    Thanks for the thread,
    Dan
  6. Bruinz

    Bruinz New Member


    I am glad they came up with a diagnosis for you and the rest of us. It is nice to have a name for what we suffer.


    I would be happy if....

    People gave this illness the respect it deserves.

    Thanks

    Bruinz
  7. millennia

    millennia New Member

    People who have known me for years and know about my ever growing list of illnesses say things to me like, oh but this is recent or you never had these problems when you were younger.

    I never complained about it, because I thought my friends and family would think I was crazy. I thought I was crazy.

    It doesn't make sense that the pressure from the chair against my body should hurt, it doesn't make sense that my heart would start to beat super fast whenever I would lie down. My problems went against common sense (which is anything but common).

    It is nice that I now have a name to these feelings, to the things I knew were wrong. It's to be able to show people info that supports that I'm not a drama queen. But more than anything else, it's nice that I no longer feel the need to doubt what I know is going on in my body.
  8. NyroFan

    NyroFan New Member

    Millinia:

    Yes, it is a relief to finally get a name for the symptoms.
    I have it in writing over and over again in my medical records.

    nyrofan