I have been researching this horror for the last 2yrs since my dx. It took me 8 yrs to be dx. I take Percocette and wear a low dose Duralgesic patch, without which I think I might not make it. It took many docs and alot of experimentation with every anti-inflammatory on the earth,(which didn't help at all). Some screaming and crying, and taking all the info I could find about this disease to my doctor to get where I'm at. I take Trazadone at night to sleep and usually sleep through the night. I refuse to up the dose on that because of weight gain. My husband is disabled from a motorcycle wreck that broke his neck. He is not paralized, but can't work or do much. Little lone take care of me. I am feeling like being on the "pitty pot" tonight, as the cold weather and aches and pains are just so overwhelming! The last week I haven't had much relief and I just feel like staying in bed forever. I have just about lost the will to go on sometimes. Thank god I have children, for them I live. (14 and 11) Sorry for the vent on a first meeting, I am just miserable today....I will enjoy reading all of your posts, when I can, in bits and pieces. Hugs, Kris Are there pictures of everyone anywhere? It is nice to have a face with a name.