I'm new to board with no diagnosis

Discussion in 'Fibromyalgia Main Forum' started by Imnoangle, Oct 18, 2002.

  1. Imnoangle

    Imnoangle New Member

    All the doctors I've seen keep telling me I'm not in pain it's all in my head. I'vr been having pain in my right hip, buttock, groin area,numbness in my right leg,pain in my rihgt knee, right shoulder and migrain headaches at least once a week. I'm about to give up, no one will listen. I can't stand up long enough to ccok a meal for my faamily. It's to the point I don't want to get out of bed. At least when I lay there the pain isn't so bad. Any one have idea's. Thanks all and I hope everyone is feeling well today
  2. Imnoangle

    Imnoangle New Member

    All the doctors I've seen keep telling me I'm not in pain it's all in my head. I'vr been having pain in my right hip, buttock, groin area,numbness in my right leg,pain in my rihgt knee, right shoulder and migrain headaches at least once a week. I'm about to give up, no one will listen. I can't stand up long enough to ccok a meal for my faamily. It's to the point I don't want to get out of bed. At least when I lay there the pain isn't so bad. Any one have idea's. Thanks all and I hope everyone is feeling well today
  3. karen2002

    karen2002 New Member

    I know how you feel--I was in the same place not too long ago. I visited Doctor after Doctor--and they all raised their eyebrows and gave me "that look", and sent me on to another specialist. Knowing what I know now...Here is what I would have done differently.
    I would have consulted the "Good Doctors List" at this site, when I first suspected FM/CFS. I would have consulted with local members of Support Groups for the members recommendation of a Good Doc. I would not have spent needless time, money, and energy, blindly visiting many Physicians. Instead, those Doctors that were recommended to my by other FM/CFS patients would be "qualified" over the telephone. By this I mean I would call ahead, prior to making an appointment, asking the receptionist, "Does the Doctor treat FM/CFS patients and if so, how many?" This would keep me from having those conversations with a Doctor, begging for His/Her compassion, and Pleading for their belief of my suspected affliction. I would also ask about Meds that the doctor would normally prescribe for patients as this was a major qualifier to me. I would have saved thousands and thousands of dollars, with this approach, not to mention less disabling stress from the frustration and anger of being disbelieved.
    All that being said--I have also found that having a diagnosis...does not magically cure anything. There is still the day to day struggles of having this DD. It is a relief to have your pain and fatigue validated; given a name. I am pleased with the care I am receiving now---but a diagnosis isn't going to make FM or CFS disappear, as quickly as they arrived in my life, if ever. All we can hope for is that with care, our lives can be a bit more productive, a little less fatiqued, and a little more pain free, until the day arrives that the cause and treatment for FM/CFS syndrome are discovered. This is just my opinion, and what I have concluded, in my short time involved. Sadly, I am a "get to work, and fix it", type person. I was searching for that fix, and I have had to rethink my attitudes on that. Now its a---"What can I do to ease this", attitude.
    I do, hope you get a diagnosis soon, I know this is an important validating step in this disease. Don't let your search for a Doctor stress you, and exhaust you. Small, easy paced steps, render results, too.
    Welcome to the Board, and Best Wishes, to you! Please keep us informed of how you are doing.
  4. pepper

    pepper New Member

    Please don't give up. Someone will listen to you eventually. I can no longer stand up to cook a meal either so I have the others help me or I do it in bits and pieces over the course of the day. I have to rest most of the day. Don't beat yourself up if you have to rest. Your body is sending you a message!

    Do search for a doctor who will believe you and diagnose you. If you are in pain, someone will recognize what is wrong with you whether it is CFS/FM or something else.

    Take care and come back to this board to let us know how you are doing. Everyone here can relate to what you are going through. Pepper
  5. Information

    Information New Member

    Your message is a poignant reminder of how it felt when I first became ill. But that was 20 years ago and it is hard to imagine where on earth you must live to be having such difficulty finding a doctor. By all means, take the advice to get a name and referral from this web site. In the meantime, print some articles for your family and let them know you need their help for a while. You cetainly have my permission to take a break from cooking and cleaning for a while.
  6. Shirl

    Shirl New Member

    Hi, glad you have found our board. Many of us can relate to your dilemma, but there are a few good doctors out there that do believe in FM/CFS.

    Here is the website for the good doctor list; http://www.co-cure.org/Good-Doc.htm

    I do wish you the best, it is so hard to deal with everyday life without some help.

    Again, welcome to the board.

    Shalom, Shirl