I'm new

Discussion in 'Fibromyalgia Main Forum' started by dazedconfused, Jan 1, 2006.

  1. dazedconfused

    dazedconfused New Member

    Hello everyone, I was just diagnosed with fibromylgia about 1 1/2 months ago. I am on several meds and a muscle relaxer if needed. I just have general achyness and some times flare up in certain areas. But I am extremely tire pretty much all the time. I go in a few days for an ultrasound because my family doctor is checking to see why I am have bowel problems. I think it is IBS. But as you know they have to rule out everything else. I am unemployed and I don't see how I will ever be able to hold down a job. Any comments will be appreciated.
  2. lenaw70

    lenaw70 New Member

    Wecome to the board! There is a lot of help in here.

    As far as the IBS, many many many of us have IBS. I and my doctor are exploring the link there. She thinks some or MOST of my aiments come from lack of nutrition aborbtion.

    Well, nice to meet you,
    Lena
  3. tonia1990

    tonia1990 New Member

    Hello im new here too and i would just like to say welcome.I found everyone here very helpfull.Good luck with your ultrasound.
    Tonia
  4. zerped

    zerped New Member

    Welcome. Sorry about your employment situation. As soon as you are able, I suggest beginning tbe application process for Social Security Disability Insurance (SSDI). You can always drop out of the process if you find work you can do, but the process is so slow and laborious, by next year you'll be glad you started now. Some people have gotten all through the steps in less than a year, but I'm entering Year 4, and may have my payments begin around May. Don't mean to sound discouraging. The bad news is that we all have some unpleasant stuff to deal with. The good news is that we get to go through it with people who've already survived whatever we are dealing with.
  5. Musica

    Musica New Member

    Are you Dazed & Confused from the RA board?

    Yes or no - welcome! I don't have a firm RA diagnosis yet - you know how that goes - but per rheumy's last notes and letter to sleep doc, I don't have "overt" fibro, but may have early fibro.

    I am currently trying to get the ingredients for the "Shake" that is talked a lot about here. I'm hoping it will help the achiness, but it sounds like it may help your tiredness, as well.
  6. dazedconfused

    dazedconfused New Member

    Hi and no I am not the other dazed and confused. If and when you get the ingredience for the shake let me know. I will try it. I have to do something I don't even get my house work done anymore. Plus I am going to PT and that is taking up alot of time as well. I don't know how much longer I will be able to drive I am so tired.

    Thanks to everyone.
  7. JLH

    JLH New Member

    Welcome to the family!! You sound like you have fibro. After experimenting with everything, what works best for me is Cymbalta, Neurotin, and Zanaflex at bedtime. I have also had a sleep study and find that I have obstructive sleep apnea. For that, I sleep with a CPAP machine and oxygen.

    I retired early due to my poor health--I have a ton of problems! (see my bio)

    Here is a list of some other problems that are involved in fibro -- just FYI .....

    Fibro Symptoms List


    GENERAL
    ____ Fatigue, made worse by physical exertion or stress
    ____ Activity level decreased to less than 50% of pre-illness activity level
    ____ Recurrent flu-like illness
    ____ Sore throat
    ____ Hoarseness
    ____ Tender or swollen lymph nodes (glands), especially in neck and underarms
    ____ Shortness of breath (air hunger) with little or no exertion
    ____ Frequent sighing
    ____ Tremor or trembling
    ____ Severe nasal allergies (new allergies or worsening of previous allergies)
    ____ Cough
    ____ Night sweats
    ____ Low-grade fevers
    ____ Feeling cold often
    ____ Feeling hot often
    ____ Cold extremities (hands and feet)
    ____ Low body temperature (below 97.6)
    ____ Low blood pressure (below 110/70)
    ____ Heart palpitations
    ____ Dryness of eyes and/or mouth
    ____ Increased thirst
    ____ Symptoms worsened by temperature changes
    ____ Symptoms worsened by air travel
    ____ Symptoms worsened by stress


    PAIN
    ____ Headache
    ____ Tender points or trigger points
    ____ Muscle pain
    ____ Muscle twitching
    ____ Muscle weakness
    ____ Paralysis or severe weakness of an arm or leg
    ____ Joint pain
    ____ TMJ syndrome
    ____ Chest pain



    GENERAL NEUROLOGICAL
    ____ Lightheadedness; feeling "spaced out"
    ____ Inability to think clearly ("brain fog")
    ____ Seizures
    ____ Seizure-like episodes
    ____ Syncope (fainting) or blackouts
    ____ Sensation that you might faint
    ____ Vertigo or dizziness
    ____ Numbness or tingling sensations
    ____ Tinnitus (ringing in one or both ears)
    ____ Photophobia (sensitivity to light)
    ____ Noise intolerance



    EQUILIBRIUM/PERCEPTION
    ____ Feeling spatially disoriented
    ____ Dysequilibrium (balance difficulty)
    ____ Staggering gait (clumsy walking; bumping into things)
    ____ Dropping things frequently
    ____ Difficulty judging distances (e.g. when driving; placing objects on surfaces)
    ____ "Not quite seeing" what you are looking at



    SLEEP
    ____ Hypersomnia (excessive sleeping)
    ____ Sleep disturbance: unrefreshing or non-restorative sleep
    ____ Sleep disturbance: difficulty falling asleep
    ____ Sleep disturbance: difficulty staying asleep (frequent awakenings)
    ____ Sleep disturbance: vivid or disturbing dreams or nightmares
    ____ Altered sleep/wake schedule (alertness/energy best late at night)



    MOOD/EMOTIONS
    ____ Depressed mood
    ____ Suicidal thoughts
    ____ Suicide attempts
    ____ Feeling worthless
    ____ Frequent crying
    ____ Feeling helpless and/or hopeless
    ____ Inability to enjoy previously enjoyed activities
    ____ Increased appetite
    ____ Decreased appetite
    ____ Anxiety or fear when there is no obvious cause
    ____ Panic attacks
    ____ Irritability; overreaction
    ____ Rage attacks: anger outbursts with little or no cause
    ____ Abrupt, unpredictable mood swings
    ____ Phobias (irrational fears)
    ____ Personality changes


    EYES AND VISION
    ____ Eye pain
    ____ Changes in visual acuity (frequent changes in ability to see well)
    ____ Difficulty with accommodation (switching focus from one thing to another)
    ____ Blind spots in vision


    SENSITIVITIES
    ____ Sensitivities to medications (unable to tolerate "normal" dosage)
    ____ Sensitivities to odors (e.g., cleaning products, exhaust fumes, colognes, hair sprays)
    ____ Sensitivities to foods
    ____ Alcohol intolerance
    ____ Alteration of taste, smell, and/or hearing



    UROGENITAL
    ____ Frequent urination
    ____ Painful urination or bladder pain
    ____ Prostate pain
    ____ Impotence
    ____ Endometriosis
    ____ Worsening of premenstrual syndrome (PMS)
    ____ Decreased libido (sex drive)




    GASTROINTESTINAL
    ____ Stomach ache; abdominal cramps
    ____ Nausea
    ____ Vomiting
    ____ Esophageal reflux (heartburn)
    ____ Frequent diarrhea
    ____ Frequent constipation
    ____ Bloating; intestinal gas
    ____ Decreased appetite
    ____ Increased appetite
    ____ Food cravings
    ____ Weight gain (____ lbs)
    ____ Weight loss (____ lbs)


    SKIN
    ____ Rashes or sores
    ____ Eczema or psoriasis



    OTHER
    ____ Hair loss
    ____ Mitral valve prolapse
    ____ Cancer
    ____ Dental problems
    ____ Periodontal (gum) disease
    ____ Aphthous ulcers (canker sores)



    COGNITIVE
    ____ Difficulty with simple calculations (e.g., balancing checkbook)
    ____ Word-finding difficulty
    ____ Using the wrong word
    ____ Difficulty expressing ideas in words
    ____ Difficulty moving your mouth to speak
    ____ Slowed speech
    ____ Stuttering; stammering
    ____ Impaired ability to concentrate
    ____ Easily distracted during a task
    ____ Difficulty paying attention
    ____ Difficulty following a conversation when background noise is present
    ____ Losing your train of thought in the middle of a sentence
    ____ Difficulty putting tasks or things in proper sequence
    ____ Losing track in the middle of a task (remembering what to do next)
    ____ Difficulty with short-term memory
    ____ Difficulty with long-term memory
    ____ Forgetting how to do routine things
    ____ Difficulty understanding what you read
    ____ Switching left and right
    ____ Transposition (reversal) of numbers, words and/or letters when you speak
    ____ Transposition (reversal) of numbers, words and/or letters when you write
    ____ Difficulty remembering names of objects
    ____ Difficulty remembering names of people
    ____ Difficulty recognizing faces
    ____ Difficulty following simple written instructions
    ____ Difficulty following complicated written instructions
    ____ Difficulty following simple oral (spoken) instructions
    ____ Difficulty following complicated oral (spoken) instructions
    ____ Poor judgment
    ____ Difficulty making decisions
    ____ Difficulty integrating information (putting ideas together to form a complete picture or concept)
    ____ Difficulty following directions while driving
    ____ Becoming lost in familiar locations when driving
    ____ Feeling too disoriented to drive